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my children
Since I had RCC are my children considered to be higher risk to also get it? Kathie
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Anyone tried cryoablation or RF ablation?
I have just been diagnosed with a 2cm renal mass suspicious of RCC. Both of the doctors I have talked to are recommending ablation. Has anyone had either procedure done or have any information.
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Freezing your cancer tumor: anyone do it?
Hello everyone. I am brand new here... recently diagnosed with a tumor on my right kidney. Will probably do the surgery in a few weeks but am doing tons of research first on the internet to learn more about my condition. One thing I read about was the idea of freezing your tumor and/or kidney after removal so that they…
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Did anyone here get a biopsy before surgery?
My doctor said that getting a biopsy of the tumor on my kidney to make sure it is malignant is risky because it could actually do more harm to me. He said the normal treatment is to just go ahead with the kidney removal. I was wondering if people here heard similar advice and did anyone go ahead and get the biopsy anyway?…
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Other forums like this?
This is a very informative forum but I was just wondering if anyone can suggest some others? I haven't had much luck finding many from Google searches. I just find places like this with comments from real world kidney cancer survivors very supportive and helpful. If you know of any other similar forums, please share.
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Avoiding kidney removal: who should I see?
A recent catscan turned up a 4.9 cm tumor on my right kidney. I've seen two urologist surgeons who both want to remove the right kidney completely. I read an article on WebMD about a study done in 2008 that showed that most surgeons prescribe kidney removal because its easier than just removing the tumor. So how can I find…
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Kidney cancer is suposed to be curable
I'm shaken, I'm confused. My mom was diagnosed with Kidney Cancer April 7th 2009, my birthday. OK, it's kidney cancer....research shows this is a very curable disease. Remove the affected Kidney, things get better...she will be a cancer survivor right? No. It's not the case. She has stage IV rare aggresive chromophobe…
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Question about translocation renal cell carcinoma
Are there any recent, effective treatments for translocation renal cell carcinoma? a friend asked me on my website. I know it's rare, I have never looked into this type, anyone can help?
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TF+
As a newly diagnosed and post surgical patient I was told to take TF+ (4life transfer factor plus) by another poster. I thought I would do some of my own research but also start a new thread here to see if others have taken it and what their experience has been? Can anyone provide some insight or thoughts of TF+? Thanks so…
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How many "second opinions" did you get?
I was wondering how many "second opinions" people here got before finally deciding on their treatment. So far I've seen two doctors and am seeing a third next week. Is it typical to see three or more doctors? Did your insurance pay for all these visits? On a related question, do you tell the doctors who else you've seen?
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hair dye and diet soda
Hello, After my nephrectomy this summer I decided I needed to make some changes in order to strenghten my chances of avoiding a recurrence. I didn't have the risk factors for kidney cancer that are typically listed, but I have been trying to drink more water and eat more vegetables and things like that. I also decided it…
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help me
my wife and i are have in trouble!! i have been fighting kidney cancer or 5 years and rigt now i feel the best i'v felt in 5 years. i'm back, from the dazed and confused and mean person i have been seance we started this 5 years ago. but now that i'm better my wife does not feel excited or intimate with me now. she says…
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Inked margins
Hi,i am 40 yers old .I was diagnosed 1.8cm kidney cancer,and had a partial nephrectomy. The pathology report : kidney lower third wedge resection- Rcc clear Max tumor diameter 2.5cm. Grade 2 Tumor is seen at the inked margins. My doc said no need any treatment just follow-up. I suspect that my pathology is not too good.…
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Toricel - side effects
I have been on Toricel quite awhile and have many good things to say about it - mostly because for me it is working. My question is about side -effects (hey if its got them- I get them) My major ones now are diabetes, swelling, and minor skin rash (you can throw in fatigue but not much you can do there) I am currently on…
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Complete incontinence
Hi all; My partner has been undergoing radiation for stage 4 renal carcinoma that has metastisized in his brain. He has 2 treatments left before he starts chemo, and he has complete urinary and bowel incontinence. Aside from his complete humiliation regarding this experience I am wondering will this go away in time or ?
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Wisdom and Experience please
About 7 weeks age I had may right kidney removed (T1a 2.2 cm cancer in lower lobe). In the first month or so the pain dissipated around the 5 inch incision (horizontal to rt of belly button)and by the small lapro incisions. Over the past week as I have gotten more active (cautiously)I have gotten a lot of pain in the back…
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Torisel for treating Stage-1 kidney cancer
Hi All, my father (73) a few weeks ago began treatment on Torisel for a stage 1 kidney cancer (he had one kidney removed, but a year later other growths had appeared) and I was wondering if there are any statistics on remission rates for this type of cancer and medication. Thank you all. Regards.
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5 Years Cancer Free
I went on Thursday to have my MRI and Chest X ray. The Urologist that I have been with the whole time said all looks good and that 5 years is a good mark. He also said that starting next year I will just have a chest x ray and the following year an MRI and chest x ray. Does anyone know the protocol for follow up after 5…
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Sutent and anger
Hello, I am just curious to hear about other people's experience with Sutent and anger. I know that depression is a side effect of the drug, but has anyone experienced anger. I know that anger is a natural reaction to cancer, and it may be hard to differentiate anger related to a drug and anger related to the cancer. My…
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having surgery tomorrow very anxious
Hi all, Unfortuanatly I am not new to cancer. I had a right upper lobectomy 2 years ago. They found the Kidney cancer during my routine 2year CT scan. No biopsy, so I won't know what kind, or if it is lung cancer or primary till tomorrow. My question is: any of you who are still up, is I keep reading about the pain…
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Tired of hearing "you have cancer"
Wanted to intraduce myself. I'm 62 yr. old female with diabeties who has been told 3 times in the last 5 yrs. that I have cancer. 2004 1st.time,rare breast cancer--mastectomy. Jan.2009 2nd. time, DCIS breast cancer--mastectomy. No treatment either time. Now on the 7th of this month I was told that I have renal cell…
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Recently diagnosed
I was diagnosed with two masses on my left Kidney two weeks ago. I am pretty much a workaholic and since diagnosis have been home awaiting surgery. I dont talk much to the people that are close to me and have found myself sleeping the days away. My surgery is early in August and I have had good and badd days. I have yet to…
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Pain killers
My husband has had a recurrence of kidney cancer which has been diagnosed as stage 4 metastasized cancer. We were completely blind sided by this recurrence as we had been told 4 years ago that it was very unlikely to recur since the cancer was completely encapsulated in the kidney and the kidney was successfully removed.…
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Summer 09 issue of Cure
If you have never seen a issue of Cure, or read it online, here is your chance for more info. My copy arrived on Thursday and there is finally a full article on Kidney Cancer and the drugs that are available. For over 2 years, I have read the mag and bemoaned the fact that just about every other type of cancer was written…
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RCC
Dear Readers, My uncle is going through renal cell carcinoma cancer.The illness is come to know very late.in October 2008 he got problems like blood in urin and pain during the urination.Then the urologist suggested to go for prostate but before prostate he suggested to see a cardiaclogist for through checkup.But…
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Does the size of the tumor matter?
Hello, My wife was diagnosed last May 2008 with a very large tumor which turned out to be kidney cancer. It turned out to be 22 cm in length, 8 cm in width and weighed in at 5 pounds. According to the surgeon - this is a "remarkable" tumor. Because of the size of the tumor, it was declared a stage 3. The cancer had broken…
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New to this network
Hey - I received word on 2-19-2009 that I had a tumor in my left kidney - I had a radical nephrectomy on 3-16-2009 - I was back to work on 4-16-2009! I feel really well, but I have soreness in my belly, along with numbness like a tingling sensation when I touch my belly - some days it's not too bad - but if I do alot of…
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blood tests
i had my surgery almost 3 yrs ago...i had renal cell carconoma stage 1 inclosed in its own bag yet. they removed the tumor which was at the top of my kidney and sitting right against my lung on the left side. i went for my reg checkup in feb.2008 as uausal said i was fine but did blood work. dr called 2 days ago and said…
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3 mths post surgery, Still sore and achy?
New to this site.....Diagnosed with 6cm tumor RCC in left kidney 10/08 and had radical nephrectomy,open surgery, along with removal of gall bladder. My incision runs across my abdomen from left to right. Never had surgery prior to this. I came on this site to search for any discussions regarding how I should be feeling 3…
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Nexavar treatments
My husband is one month into a 12-month regimen of targeted therapy of Nexavar for renal cell carcinoma. He has had many side effects already, some of the quite severe. What can we expect over the next year?