Renal Cell Patient on Torisel

littletenie

I have a friend who is a renal cell patient and she is currently taking torisel and was looking for someone to talk with who is dealing with the same diagnosis. Any suggestions?

Thanks
Littletenie

tm

Is torisel a chemotherapy? My husband was diagnosed a mos ago and I feel that he should get chemo just in case. Did your doc suggest it?

ddt

tm said:

Is torisel a chemotherapy? My husband was diagnosed a mos ago and I feel that he should get chemo just in case. Did your doc suggest it?

Torisel
It isn't a chemo. It is what is called a targeted therapy. Chemo doesn't work on kidney cancer. Sounds like your doctor is on track. Just make sure you are with an RCC specialist.

bigneil

Torisel
I have been on Torisel for about a year now give or take a week. I went 26 weeks with no progression. We will be doing another ct/scan in the next week or two to see what results are. My 1st reaction was a rash which was cured by switching from acid based bathsoap to glycerin based soap. About a month later I had another reaction, this time edema, they put me on some sort of antibiotic. It stopped it but you can still see the scarring on my lower legs. A few weeks ago i came down with another rash/skin irritation which was very itchy and the oncologist recomended we skip a week. I used hydrocortisone cream and benadryl and I resumed treatment this past Monday. I get treatment each Monday.

The Torisol is much better to me than Nexavar. Nexavar gave me bad side effects including a hand/foot reaction which turned all my callouses into large sore blisters. I could hardly walk. I was on Nexavar about 1 year.

I had my left kidney removed over 3 years ago along with a separate procedure in which the took out part of my right lung. Our goal now is to hopefully stop the renal carcinoma from spreading any further.


Neil