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tanks to all........al little venting tonight
Firstly, thank you all for your selfless sharing of your knowledge, experience and encouragement. With your support and armed with lots of research I feel confident about prognosis of localized 2cm tumours in my left amd the credibility of the urologic oncologist I have been referred to. My consult is tomorrow morniong,…
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Progress in RCC treatment
More evidence here: http://www.cancernetwork.com/rcc/content/article/10165/2044903
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Residual pain....
I had full RN surgery on 07/17/12. I've been doing very well since. Very little unmanageable pain. I was off all pain meds by the afternoon of 07/18/12 & home by 07/19/12. I have developed a new area of 'shooting' pain away from the incision site, which isn't a constant occurrence, but only when I move certain ways, get…
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Collecting Duct Carcinoma
Hi all, would like to know if there is anyone out there who has had any experience with Collecting duct carcinoma a rare kidney cancer. My younger sister Ngaio Rose Marie was diagnosed with it in Nov 2009 and by all reports the outlook is not good. She may be stage 3 or 4 am not sure, she has been in hospital for over a…
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Trying to find out the odds of getting cancer in the other kidney
Six weeks ago, my right kidney was removed with a 6 cm Stage 1B grade 4 RCC. I am convinced that for me, the cancer is genetic, as my father had RCC, and his dad died of RCC. As all of the genetic markers have not been identified, the genetic testing I have had may or may not give insight into the gene. My concern is…
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I am new here. I wasn't sure where to post.
Hi, I lost my dad to cancer in April of this year. Although, I am 28 with a family of my own I have a hard time every now and then. My husband is great at comforting me. Work and hobbies keep me occupied. (I am a nurse and love what I do.) These past two days have been hard.. I've been thinking a lot about my dad and its…
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Post surgery questions
I had a Radical of my right kidney this past Tuesday. - It was Stage-1, 6.2cm - many MRI's, CT's, Bone Scans were done prior to surgery to determine whether there was ANY spreading. From what they could see, there was none. Preliminary pathology, from what I was told by the dr, is a non-aggressive type. Not sure how long…
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Things your Surgeon may not tell you
Depression can hit hard after a few days you will be asked to pass gas or have a bowel movement regardless of how much it hurts lying on your side (either one) may be a thing of the past for a long time sleep will elude you random pain will make appearances you may feel as if they put something in and not taken it out you…
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advice about Biopsy needed
I have been impatiently waiting for an appointment with the oncologist. Today I got a voice message advising that the oncologist has ordered a biopsy before the consult. I am confused. Is it not proper to provide a patient with options and to discuss the risks? I have read on many sites that biopsies are not standard…
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The journey ends
I want to start by thanking every single one of you who have offered me hope and advice during these past months. I had to take my mom to the emergency room last Thursday and they found she had a rupture in her bowel system. It is not healing itself and they do not believe she could survive and/or recover from another…
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Cryoablation of small tumor
After a rough first night I feel a lot better after the cryoablation of a small tumor in my remaining right kidney.. Still a little sore in the treatment area and from the nausea from the first night. Hope to be fully recovered in a couple of more days. Will have a complete kidney evaluation in four to six weeks. There are…
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Is this crazy?
I was scheduled for a partial nephrectomy July 31, 2012. MRI disc was brought to my first appt with top doc in Phila area on July 6th. He quickly read MRI and said he felt it was a solid mass and no further MRI was necessary (I had it done local to my home)...BUT he said his radiology department would read disc and file a…
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Life Changing
Hello, I am a 48 year old female who had a abdominal ultra sound for gallbladder pain and a kidney lesion was discovered. Followed up with a CT scan w/ and without contrast...still not sure if its solid....MRI confirmed solid renal mass 2.1cm. I immediately researched RCC and top docs/hospitals in the Philadelphia area. I…
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Nephrectomy tomorrow - path report confirmed cancer
Hello everyone As you could tell from my previous posts, I was on a panicky emotional rollercoaster the first few weeks but things have calmed down a lot. I am having a nephrectomy in the morning. I feel good about my decisions on the hospital and surgeon so expect all to go well. I will update you in a few days Kathy
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Lurker with thank yous
I just wanted to say thanks to those of you who have shared your experiences here. It has made the last few months much better for me. I had a robotic partial a little over a week ago and am battling the boredom and the wait for the pathology report now. I will be going in next week for the report and get the staples…
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MDX-1106 part 5
Well here we go. I was very anxious going to treatment today. Afraid that I was no longer responding because of the pain I've had in my back and ribs.....First a quick refresher...Left radical nephrectomy March 2011. By October mets in lungs, liver lymph nodes. Told I might not make it to spring 2012. I started being…
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Post RF ablation 3yrs out ,they say its back..What , I was told it was Benign?
Hello all I joined the discussion group about a week ago and I have to say I have been supported and educated more in this week then I have been in 3yrs since my dx: Solid R Renal mass 1.5 cm in May 2009. I remember that Friday afternoon when the doctor said Suki " You most likely have Kidney Cancer" I was 45 yrs old and…
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New Member - Very Scared
Hi, all. I was diagnosed with Stage IV RCC a couple of months ago and had my left kidney, adrenal gland and 15 or so lymph nodes removed 6 weeks ago. I also have metastatic disease in my lungs and a possible node in my other kidney. I'm starting Sutent today and frankly I am scared out of my mind. I'm 42 years old with two…
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Forks Over Knives and Dr. David Servan-Schreiber
I just wanted to say thanks to whomever gave out the information about the Forks Over Knives documentary. I can't remember who started that conversation. (Sorry.) That DVD was awesome and very eye opening. I recommend it to anyone who has or has had cancer or for anyone who cares for someone who does. It really gave me a…
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Just found this site
I am a 50 y/o female who was diagnosed with kidney cancer through a yearly physical(very lucky). I had a partial removal of a two centimeter tumor in my kidney through robotics. I am almost 5weeks out. Recovery has gone very well, but in the last few days I have been so exhausted, feeling like I could sleep all the time.…
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My first scan question
Hello everyone. I havent posted in a while but now I have a question about scans. I had a full left robotic assisted nephrectomy in April for RCC. stage 2 grade 1. My urologist has scheduled me for a lower body scan on July 23rd. My oncologist has also scheduled me for one on Oct 5th. Im not sure if I should have them so…
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Seeking guidance reg treatment after nephrectomy
Dear All I had been reading posts on this discussion board since last 4-5 days and believe me, I have got connected with all of you. I am getting so much inspiration and strength, after reading all positive thoughts of yours. Can somebody please tell me, whether MDX 1106 and Votrient are same or different drugs. How do you…
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still here
Just to update on my hubby .Dr's said few weeks, Really dont know what a few weeks are but been with Hospice now 6 weeks and that to me accounts for something.He is still fighting but the way the doctors talk he should have been gone by now so I guess the good Lord still has a plan for him I check in on everyone from time…
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diet
hi I'm 11 days out from right Kidney removal hope to get some diet ideas
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Wilms and Lung nodules
Lung nodules .... what causes them in a 9 or 10 year old boy? My son was diagnosed in March 2011 with Wilms tumor stage II. He had 2 nodules at time of diagnosis. 3 months into treatment he developed 9 more nodules. These eleven have remained stable for 11 months. In June 2012, 3 new nodules have developed making a total…
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CT scan tomorrow....
Hello all, First of all and foremost I want to thank all of you for the comments and feedback. We go very early in the morning to have blood work, 30 minutes later to have the Scan and then meet with the Oncologist 2 hours later. We are so fortunate to be at a clinic where we can get the results the same day. Duke Cancer…
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Complications 4 weeks after laprascopic radical nephrectomy: Still draining, possible infection, fe
Hi, Four weeks ago, I had a laprascopic radical nephrectomy which successfully removed a stage 1 grade four 5 1/2 cm tumor. The good news is the cancer is out of my system. The bad news is healing from the surgery has not been smooth. Basically, I continue to drain from a small portion of the 10 cm incision. It did not…
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Radio frequency Ablation
Not sure i spelled that correctly but its a new term i was introduced to last week.I will be having this procedure done may2 wednesday ,i guess when they do this techniqe it uses heat to fry cancerous tumors,but is only efective on smaller ones,i guees it also is less stressfull on the organ compared to doing a…
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BMS93558* Votrient trial (formerly MDX 1106)
John had his six-week CT scan today. For those of you that are unfamiliar with John’s history,see below for quick update. The scan showed SIGNIFICANT interval decrease in the size of multiple pulmonary metastases with no evidence of new lesions. There also is a decrease in the pelvic and shoulder regions. The research…
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Confused about Ultrasound
Let me start by saying I have not been diagnosed with cancer, however, there is a possibility. So, if I really shouldn't be here, please forgive me but I don't know where else to go. If anybody can help ease my concerns, I'd be very grateful. Here's my ultrasound report and my questions to follow. I just skipped to the…