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side indintation anyone?
this is my first post ever so if this sounds wierd or is in the wrong spot sorry... anyways hi im 22F, i had wilms turmor stage 3-4 when i was 3yrs old. i survived with out having cancer again. i want to know if there is anyone else who like me has a very large indentation where their kidney used to be. ive never seen…
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Info on Mucomist/Acetylcyst dosing
When I saw my internist earlier this week, we were discussing the frequency and types of CT and/or Ultrasounds& Xray. Yes, I have pre and post hydration-very necessary to flush the contrast dye thru the remaining kidney. He then asked about mucomist and I said that has been prescribed for the day before and the morning of…
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Surgery story and post surgical pains, please share!
Hey every one, I just wanted to share my experience with a partial nephrectomy. Surgery at Mayo in late October. Open insicion because of location of tumor. The pain was unbearable two to three weeks after.I had an infection and kidney stones a month later and it was very painfull and scary. I am finally back to work as a…
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Blood test could guide treatment for kidney cancer
A potentially valuable new development - typically, with this disease, apparently come up with by chance, while looking for something else! http://www.dukehealth.org/health_library/news/blood-test-could-guide-treatment-for-kidney-cancer
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On a Happy note....
Introducing my new grandson (Declan joseph) born on August 14th at 9:53am .. 6lb 7oz & 18/4 inches long.. it was love at first sight!!!!! I am down in Philly with my daugher and son-in-law and new grandson as I type.. I dont want to leave but I have to.. 4 hour drive back to my home. I have my first cat scan on Wednesday…
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Mdx/ sutent trial
I finally get to start the mdx 1106 / sutent trial in the morning. I've been waiting to get the opportunity to try this since march, but have been held up by several things. The trial was delayed by 16 weeks longer than expected start date. Then my cancer went into my thigh and surgury was done, they inserted a rod for…
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Kidney function....or is it time to get a new Dr?
I am two months out from a radical nephectomy. Before the surgery, my creatinine was .85. I went is for my standard three month blood test (A1c, cholesterol and panel). the good news is my A1C dropped disgnicantly, from 7.1 to 5.7 (and my weight dropped 30 lbs). But he was very concerned about my Creatinine level. It was…
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Good Test Results
I can't brag about a new grandson, but my most recent Dr. appt and test results were good. My internist has now stretched his appointments to 6 months from every 4. But still do oncologist and his tests every 3 months. Anyway...Liver function OK-with only 1/2 to function. The one kidney doing well; Creatinine was 1.5 and…
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Yet another Newbie
Hello everyone, I first wanted to thank you all for your help, I have been circling your boards for about 3 weeks now and all the information that you discuss has been very inspiring and has made my short journey thus far easier to deal with. A quick little background. I was sent for an ultrasound to find out why I was…
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Nephrologist appointment
I had my first, post-surgery Nephrologist appointment this morning ( FULL NEPH 07/17/12 ). My latest bloodwork showed a GFR of 67. He said that for a 50 y/o male that number isn't much lower than someone with 2 kidneys. Is this right? He gave me NO limitations. I can take aspirin, too. He said a high protein diet to lose…
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Changing Dr's....and when is it malpractice?
I am really venting here. I have been with the same primary care physician for 14 years. About 8 years ago, I mentioned my concern about kidney cancer: my dad had it, and my paternal grandfather died of it. My physician basically said, you have no other risk factors, and dropped it. Three months ago, a tumor was found…
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How long before back to normal after kidney removal
My husband was diagnosed with kidney cancer from an MRI of his back following a car accident. He had no symptoms and it was fully contained. However, he is now always exhausted. He is 58 and the surgery was done on March 15. Before this, he was unstoppable. I am 46 and he had twice my energy level. I am not sure if the…
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Diag. 10/2011 t2a,n1,m1 Finishing 3rd round Sutent 8/17
Been gone awhile from here.Feeling good but still trying to come to terms with all of this. Just finishing up my Sutent and preparing for PET Scan..Bone Scan and what ever else scan! Been rough at times.Except for my dog,I live alone. Family is 800 miles away in Tacoma,Wa. I had to stop taking my meds. on Friday due to the…
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Recovering from radical nephrectomy
Male, 55 years old. Had my left kidney removed on 7/24/12 withy 9.5 cm tumor and am doing very well. It was the "larger" surgery where there was a big incision and doctor had to remove part of a rib. I am, however, doing quite well. In fact, only a week and a day later I returned to work (desk job) and had very little…
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LONDON 2012 OLYMPICS
Is anyone on the western side of The Pond following the Olympics? If so, what do you think of our show? How have we done? Are you enjoying it? All of us on these threads can do with all the feel-good factors we can find. I've had some real highs watching the sports I used to most enjoy competing in - weight-lifting, rowing…
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Pazopanib vs Placebo 54 week study
Anyone else in the Pazopanib 54 week study. I am sure I am doing the right thing by entering the study. At least I am being watched closely. I have not had any real side affects so does that mean I am on the placebo? My husband seems to think that just because there are side affects it doesnt mean I will have them.…
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scared for husband need help!!! collecting duct cacinoma mets to lungs...
my husband was diagnozed with collecting duct cacinoma on his kidney which now mets to his lungs a few weeks ago...they took out his left kidney and the tumor that was attached to it about 2 months ago...he should be starting VOTRIENT soon...to get rid of the mets...anyone useing this drug? and how is it going? i would…
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Oncologist
I had a question for the experienced folks on this site. I have Kaiser Hospital insurance and they have been great on keeping me informed and I love my doctor. My question is my doctor is an Urologist and is continuing to follow me after my surgery for the next five years. Should I be followed by an Oncologist for future…
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BMS93558* Votrient trial (formerly MDX 1106) John's 12 week scan
I went with John to his doctor’s appointment yesterday and I brought up his thyroid/medication levels and questioned his need to stay on those meds. The oncologist agreed it was reasonable “to stop the medication for six weeks and see where we are at that time.” So John has one less drug to take for now. He also had a CT…
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Pfizer/ Torisel Drug Trial - Update
http://www.fiercebiotech.com/story/pfizer-strikes-out-phiii-study-kidney-cancer-treatment/2012-08-10
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Opinions needed re: Sutent, Back Pain, Neck Pain...
Hi, friends. Brief History: Male. 42 years old. Diagnosed mRCC April, 2012. Left radical nephrectomy with adrenal gland, partial spleen and 12 lymph nodes removed via laproscopic/robotic surgery May, 2012. Mets in lungs and elsewhere... On to my question: I'm on day 18 of my first cycle of Sutent, 50mg. Overall I've been…
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Inlyta (axitinib) roll call
Who here has taken or is taking Inlyta? What were your prior treatments? What strength dose are you taking and how are the side effects? I had taken Sutent for 10 months and everything in my lungs had disappeared or diminished. In late June, my scan showed that 2 nodules had started growing again. On July 5th I started…
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Post-op questions - update after oncologist
Its been 2 and a half weeks since my nephrectomy. My blood work at that time was showing some signs of malnutrition because of a still undiagnosed problem causing weight loss. But, I got a call today from the urologist office that my latest blood work shows possible decline in kidney and liver function. I have to stop ALL…
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Surgery things to consider
Just reading my husband's radiology report and it seems all of the mets they found are at surgical ports. He had radical Nephrectomy Jan 2010 for 10.5 cm RCC performed Laparoscopic surgery with one big abdominal incision at the end to remove the kidney.Since the cancer was not in the lymph nodes I think all the spreading…
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Genetics, Cancer, and our kids
I am just curious how others handle this: Talking to your children about the specific risk of cancer. As I have posted before, on April 30, a CT Scan checking for the cause of my abdominal pain (cause was probably gas) found a 6 cm mass on my right kidney. The kidney and tumor were removed 6 weeks later, and it was a Stage…
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Another new member
Hi, just thought I would introduce myself. I just found this site. I was diagnosed with Renal Cell Carcinoma in early April and had surgery at the end of April. Everything went well as far as that goes. The alien autopsy as I call it did not go as well. I had a 7.5 cm growth that extended into the fatty tissue but not out…
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Does anyone know anything abot this trial- IMA901 in Patients Receiving Sunitinib?
Hi, I am new here. My husband was diagnosed with stage IIIA clear cell RCC in 2010.He had nephrectomy on his right kidney and there were no mets in the lymph nodes. This month the CT scan found 3 distant metastasis- in his abdomen, near his liver and in the removed kidney cavity. We are still waiting on results of his…
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Cyst in normal kidney
I had a partial nephrectomy on 6/18/12. I am now cancer free :) . When they did the ultra sound, they discovered the cyst in my left kidney and a mass on my right kidney. Was more concerned about the cancer so I never asked about the cyst, don't even know how big it is. I'm guessing that the cyst won't turn malignant, but…
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New here.Need some advise.
I posted our story on a different post, but short version is - my husband was stage 3 RCC and after 2.5 years cancer reoccurred with 3 distant metastasis in the abdomen.He had chest CT Thursday, but his oncologist never called with the results. It seems we have to wait until his visit on 8/15 to find out if there is…
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Grapefruit-sized mass found - contrast CT scheduled for Monday
So, my 44-year old DH went in for a chest x-ray due to recurrent (4+ mos) cough on Thursday. They scheduled a follow-up chest CT on Friday due to some minor atelectasis. Chest CT showed no cancer in the lung but showed a grapefruit sized mass in the vicinity of his kidney and adrenal gland. Dr. said that the mass was…