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Surgery in two weeks...finally can see the end
On May 1, I heard those dreaded words that have changed my life: the CT scan shows a 6 cm mass on your kidney. I knew what it meant. I did not know anything about Renal Cell Carcinoma then, but my assumption was it comes out immediately. Dr felt differently, and medical research supports the doctor. This will be the first…
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Affordable Health Care
Today a major hurdle was jumped over towards allowing all Americans Affordable Heath Care. Having been on Medicare for exactly 4 years as of July 1, 2012, I will not be effected by this new law. However it will allow many millions of Americans to obtain insurance coverage and more importantly for our group will assist…
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Making life altering decisions
Hello everyone, I’m having a nephrectomy in 2 weeks. This experience has me reassessing priorities and I wondered if anyone else did the same and made significant changes in their lives. I’m considering whether to make a permanent move to the town where my sisters live because we have been getting closer and I’m pretty…
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God intervened
My wife, in 2006, shortly after going through hurricane Katrina down here in Biloxi, Ms, had knee surgery. Apparently, they cut a nerve (the surgery itself was perfect) and did an echo gram to try and find the cause and fix the problem of her "drop foot" condition because of the cut nerve. When they did the echogram, they…
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keeping the faith
im speaking on behalf of my husband he wanted me to do update. doctors gave him a few weeks we have since gotten hospice and they seems to be doing ok just so much to think about now he is starting to have lot of back and chest pain but other than that he is doing so so found two new tumors this morning they are totally…
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An article on prognoses.
I found this out on the web Tumor growth is unpredictable. A recent questioned posed was, “at what speed do tumors grow? “First let us discuss tumors, not all tumors are the same, a mass is different from a met, a legion different from a tumor and so on. Yes they are all similar, but they have different names because they…
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The Top 10 Reasons I’m Glad I Was Diagnosed with Kidney Cancer in 2011
I am going to speak as the honorary survivor at our local Relay for Life. As I work on my talk, I thought you all might appreciate my closing Top Ten list: 1. The lesson in humility 2. A two month ‘vacation’ from work 3. The modern technology that caught my cancer early 4. Being diagnosed at a time when research and body…
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Adult Wilms Tumor
Hi. I am a 29 yr old currently going thru treatment for Wilm's Tumor. Until my diagnosis six months ago I knew nothing about Wilms but have to come to know that this is primarily only found in young children. I was wondering if there was anyone else that has had Wilms as an adult?
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counting down the days til surgery
In 10 days I am going to be at Fox Chase Cancer Center getting a partial nephrectomy laprascopically from the back. They're doing it that way because of all the scar tissue from previous surgeries. I don't know what to expect because I have not found any information on this procedure. I am really curious about how much…
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Help- Question on Next Steps
Respect this board and her members and have learned a lot. Have a question- Dad 78 years old. RCC in September 2008. Stage 3/4. Went on trial with Sutent for a year in a Phase II trial. RCC pops back up January 2011 in same spot- and removed. Some small spots in lung. RCC back in leg bone in May 2011 and rod is placed and…
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Pathology report
I had a laproscopic nephrectomy to remove a 5.5cm tumor on my left kidney almost 5 weeks ago. At my first visit, my doctor told me that I was cancer free. He never showed me the pathology report or even discussed it. I was wondering if you all received a copy of your pathology report. I keep reading about the stage/grade…
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The view from the other side
I went in for a radical nephrectomy on the 19th. Before that, my thoughts were on the big things...Cancer, what if it returns, etc. In the mid to late afternoon on the 19th, I woke up. I did not know where I was or what had happened to me. I was quickly told by (I guess) a nurse that I had surgery and am in the Fairfax…
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How do you know if a kidney is functioning?
After my husband’s open partial surgery last week, the doctor said, on day two, it appeared the kidney was functioning. I assumed this was determined due to the blood test results. Then my Mom asked me “how do they know if it is functioning and not the other one?” Then I wasn’t sure. If one can live normally with one…
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My Path Results
Well, a week after my surgery, I finally got my results: FINAL PATHOLOGIC DIAGNOSIS Kidney, left, nephrectomy - CLEAR CELL RENAL CELL CARCINOMA - FURHMAN GRADE 2 - TUMOR SIZE: 4.9 CM - NO EXTRACAPSULAR INVASION - NO LYMPHOVASCULAR INVASION - NO EXTENSION INTO PELVIS - URETER AND VASCULAR SURGICAL MARGINS NOT INVOLVED -…
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Re: BMS93558* Votrient trial (*formerly MDX1106) Active dose question?
Re: BMS93558* Votrient trial (*formerly MDX1106) http://clinicaltrials.gov/show/NCT01472081 In meeting with John's Dr. yesterday, he stated John was on the "active dose" in trial. I made a mental note to go back to that and ask what was meant by "active dose" but in the flurry of so much info being shared, I lost track.…
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Dont know how to do away with cancer
I contacted kidney cancer several years ago.however,the disease has become worse,and in our country there is no support offered,please advice.
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Dont know how to do away with cancer
I contacted kidney cancer several years ago.however,the disease has become worse,and in our country there is no support offered,please advice.
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Votrient and other RCC Procedures - scared family with questions
Hello, My husband was diagnosed with stage IV renal cell carcinoma four months ago. We have two children and this has been a traumatic time. As I am sure many people on this forum can understand, we are facing losing husband (and best friend), father, and our home. Since his diagnosis he has had brain surgery to remove a…
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4 weeks into recovery
Hi Everybody, I had a laproscopic nephectromy on my left kidney. I'm four weeks into recovery and I felt like I was doing pretty good, but 3 days ago I started to get a pain close to the incision site. Now it feels like a hard ball inside of me. Is that normal? I contacted pneumonia while in the hospital and I coughed so…
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MDX/Votrient and MDX/Sutent trial expansion
Met with John's Dr. today. We had several questions and he sat with us for some time. While talking about the MDX/Votrient and MDX/Sutent trial, we talked about the promise of early results. He stated that the trial is being expanded; will probably be in August. This expansion will only take kidney cancer patients who have…
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Doing something for yourself.
I'll steal this thought from Iceman. ( something about vacations) Who here is not scared? Reality check..... Point is, recover and put yourself in a position to do something for yourself. Most of us have and still place our families, jobs, and responsibilities far ahead of our own needs..... Now, some call it a bucket…
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Scans all clear
Sorry for the delay in getting the good news posted but right after my series of 6 month scans my husband and I left for a week at Myrtle Beach, SC. I got all my results this past Monday (18th) and everything is good. Thanks for all the prayers..... they were answered. Love you guys!!!
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Unexplained Upper Abdomen Pain
I have posted on here several times and my hubby has Stage IV Clear Cell Renal Cell Carcinoma that has Metastasized to his Lungs in 5 spots. He has had a radical nephroectomy and is on Votrient now to hopefully help the lung spots. He has been on the Votrient for 6 weeks now and the only real side effect he has had is…
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Post surgery update
Hi Everyone! Surgery went well. It felt like as soon as they put me out I was awake. It took 5 hours. They were able to do the sugery laparoscopically so the main incision was not as big. they did a full removal. The tumor was also pushing and attaching to another artery. I will know in a week or so the biopsy results. The…
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VOTRIENT SIDE EFFECTS
I have been treated for Kidney Cancer (Clear Cell) which has spread thru lungs and brain. I have been taking Votrient (4 tablets) 250mg each. Most of my side effects come and go but main side effect is being tired and no energy. I have no appetite and immune system is not very strong. At present my tumor in Brain and Lungs…
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Help - treatment advice/meds/success stories, we need hope.
My father (52) was diagnosed with RCC around Oct last year. They found a small met 2cm in his lung and he had both the kidney (7cm tumor) and lung met removed in one surgery. He recovered well. The oncologist said to wait before starting treatment as the most successful chemotherapy is Sutent and in some patients it only…
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A world within a tumor - new story shows just how complex cancer can be
The below article describes in layman's tongue about the complexities in tumor diagnosis/ treatment. I thought it was pretty easy reading (which I need). I believe this is along the same line as an article TW shared with us recently. (Sorry--if I ever knew--I've forgotten how to post a link on this site. So I guess you'll…
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CT Scan and enlarged lymphnodes in lung and stomach after being a kidney cancer survivor for 14 year
just had my yearly CT Scan and my one kidney is doing great but, they found one enlarged lymphnode in my lung and several in my stomach. i am waiting for the Cancer Center to call and schedule my appt. for more tests to see what is going on. has anyone here gone through anything similar? 14 years and this!!! i am a lil…
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Clinical Studies
Hello to all! I'm a newbie and have been reading and reading. Finally I asked my daughter for help on how to start a new topic! I am a T3a, Grade 4, 49 yr old female. The radical nephretomy removed the right kidney, which was 9 x 8.5 x 5.8 on 3/28/12. I'm wondering if anybody out there is in a clinical study for…
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Tomorrow
Tomorrow I will go to sleep late morning, and wake up without cancer. Tomorrow will be the rebirth of my life. For the last seven weeks, there has been no tomorrow, only today. Tomorrow was too far away. Now, tomorrow is tomorrow. Tomorrow (or after recovery), my life begins. My second phase. Maybe I will not worry about…