-
Help- Question on Next Steps
Respect this board and her members and have learned a lot. Have a question- Dad 78 years old. RCC in September 2008. Stage 3/4. Went on trial with Sutent for a year in a Phase II trial. RCC pops back up January 2011 in same spot- and removed. Some small spots in lung. RCC back in leg bone in May 2011 and rod is placed and…
-
Pathology report
I had a laproscopic nephrectomy to remove a 5.5cm tumor on my left kidney almost 5 weeks ago. At my first visit, my doctor told me that I was cancer free. He never showed me the pathology report or even discussed it. I was wondering if you all received a copy of your pathology report. I keep reading about the stage/grade…
-
The view from the other side
I went in for a radical nephrectomy on the 19th. Before that, my thoughts were on the big things...Cancer, what if it returns, etc. In the mid to late afternoon on the 19th, I woke up. I did not know where I was or what had happened to me. I was quickly told by (I guess) a nurse that I had surgery and am in the Fairfax…
-
How do you know if a kidney is functioning?
After my husband’s open partial surgery last week, the doctor said, on day two, it appeared the kidney was functioning. I assumed this was determined due to the blood test results. Then my Mom asked me “how do they know if it is functioning and not the other one?” Then I wasn’t sure. If one can live normally with one…
-
My Path Results
Well, a week after my surgery, I finally got my results: FINAL PATHOLOGIC DIAGNOSIS Kidney, left, nephrectomy - CLEAR CELL RENAL CELL CARCINOMA - FURHMAN GRADE 2 - TUMOR SIZE: 4.9 CM - NO EXTRACAPSULAR INVASION - NO LYMPHOVASCULAR INVASION - NO EXTENSION INTO PELVIS - URETER AND VASCULAR SURGICAL MARGINS NOT INVOLVED -…
-
Re: BMS93558* Votrient trial (*formerly MDX1106) Active dose question?
Re: BMS93558* Votrient trial (*formerly MDX1106) http://clinicaltrials.gov/show/NCT01472081 In meeting with John's Dr. yesterday, he stated John was on the "active dose" in trial. I made a mental note to go back to that and ask what was meant by "active dose" but in the flurry of so much info being shared, I lost track.…
-
Dont know how to do away with cancer
I contacted kidney cancer several years ago.however,the disease has become worse,and in our country there is no support offered,please advice.
-
Dont know how to do away with cancer
I contacted kidney cancer several years ago.however,the disease has become worse,and in our country there is no support offered,please advice.
-
Votrient and other RCC Procedures - scared family with questions
Hello, My husband was diagnosed with stage IV renal cell carcinoma four months ago. We have two children and this has been a traumatic time. As I am sure many people on this forum can understand, we are facing losing husband (and best friend), father, and our home. Since his diagnosis he has had brain surgery to remove a…
-
4 weeks into recovery
Hi Everybody, I had a laproscopic nephectromy on my left kidney. I'm four weeks into recovery and I felt like I was doing pretty good, but 3 days ago I started to get a pain close to the incision site. Now it feels like a hard ball inside of me. Is that normal? I contacted pneumonia while in the hospital and I coughed so…
-
MDX/Votrient and MDX/Sutent trial expansion
Met with John's Dr. today. We had several questions and he sat with us for some time. While talking about the MDX/Votrient and MDX/Sutent trial, we talked about the promise of early results. He stated that the trial is being expanded; will probably be in August. This expansion will only take kidney cancer patients who have…
-
Doing something for yourself.
I'll steal this thought from Iceman. ( something about vacations) Who here is not scared? Reality check..... Point is, recover and put yourself in a position to do something for yourself. Most of us have and still place our families, jobs, and responsibilities far ahead of our own needs..... Now, some call it a bucket…
-
Scans all clear
Sorry for the delay in getting the good news posted but right after my series of 6 month scans my husband and I left for a week at Myrtle Beach, SC. I got all my results this past Monday (18th) and everything is good. Thanks for all the prayers..... they were answered. Love you guys!!!
-
Unexplained Upper Abdomen Pain
I have posted on here several times and my hubby has Stage IV Clear Cell Renal Cell Carcinoma that has Metastasized to his Lungs in 5 spots. He has had a radical nephroectomy and is on Votrient now to hopefully help the lung spots. He has been on the Votrient for 6 weeks now and the only real side effect he has had is…
-
Post surgery update
Hi Everyone! Surgery went well. It felt like as soon as they put me out I was awake. It took 5 hours. They were able to do the sugery laparoscopically so the main incision was not as big. they did a full removal. The tumor was also pushing and attaching to another artery. I will know in a week or so the biopsy results. The…
-
VOTRIENT SIDE EFFECTS
I have been treated for Kidney Cancer (Clear Cell) which has spread thru lungs and brain. I have been taking Votrient (4 tablets) 250mg each. Most of my side effects come and go but main side effect is being tired and no energy. I have no appetite and immune system is not very strong. At present my tumor in Brain and Lungs…
-
Help - treatment advice/meds/success stories, we need hope.
My father (52) was diagnosed with RCC around Oct last year. They found a small met 2cm in his lung and he had both the kidney (7cm tumor) and lung met removed in one surgery. He recovered well. The oncologist said to wait before starting treatment as the most successful chemotherapy is Sutent and in some patients it only…
-
A world within a tumor - new story shows just how complex cancer can be
The below article describes in layman's tongue about the complexities in tumor diagnosis/ treatment. I thought it was pretty easy reading (which I need). I believe this is along the same line as an article TW shared with us recently. (Sorry--if I ever knew--I've forgotten how to post a link on this site. So I guess you'll…
-
CT Scan and enlarged lymphnodes in lung and stomach after being a kidney cancer survivor for 14 year
just had my yearly CT Scan and my one kidney is doing great but, they found one enlarged lymphnode in my lung and several in my stomach. i am waiting for the Cancer Center to call and schedule my appt. for more tests to see what is going on. has anyone here gone through anything similar? 14 years and this!!! i am a lil…
-
Clinical Studies
Hello to all! I'm a newbie and have been reading and reading. Finally I asked my daughter for help on how to start a new topic! I am a T3a, Grade 4, 49 yr old female. The radical nephretomy removed the right kidney, which was 9 x 8.5 x 5.8 on 3/28/12. I'm wondering if anybody out there is in a clinical study for…
-
Tomorrow
Tomorrow I will go to sleep late morning, and wake up without cancer. Tomorrow will be the rebirth of my life. For the last seven weeks, there has been no tomorrow, only today. Tomorrow was too far away. Now, tomorrow is tomorrow. Tomorrow (or after recovery), my life begins. My second phase. Maybe I will not worry about…
-
KCFighter
Are you out there somewhere - lurking? Been thinking about you lately and wondered how you were doing. There are so many 'missing' people - who I used to correspond with years ago. I'm hopeful that they've just decided to spend their time someplace other than a cancer board. LizB NDY
-
We have Kidney Cancer - Survivors stories - DOWNLOAD WE HAVE KIDNEY CANCER
http://www.kidneycancer.org/download-we-have
-
Going in for surgery this Friday
Last Tuesday I had a meeting with a Urological Surgeon and he told me that there was a mass on my left kidney. This was found while doing an abdominal CT scan. For the last 6 months I have been having pain in my left abdomen as well as up and down my entire left side. He said because the mass is on the front of my kidney,…
-
New Here - Diagnosed Today - confused
Hello. This is my first time here. The Urologist told me today that from my ct scan he is almost certain my tumor is cancer, but it looks like it has not spread. He said he can't be 100% sure until the post-op pathology report. It is about the size of a softball. The last two months have had my head spinning and some of it…
-
Great report from scans
I had my appointment this AM and got the best news about my scans. Abdominal, chest, pelvic, and bone scans were all clear with no evidence of disease. I have been on Votrient 400mg daily for the last year and it has kept me in remission. I am off of it for 2 weeks due to slightly elevated liver enzymes and still just…
-
One week to go, my hope, dreams, and fears
Hi, In the early hours of May 1, I got the news from the ER Dr. that the CT scan showed there is nothing causing the pain, but there is a 6 cm mass on the kidney, that needs to be checked out. I knew what it meant -- my dad and grandfather also had the mass. I assumes that the surgeon would want it out ASAP (I know I did).…
-
Low kidney function...
I went for my first set of post surgery CT scans today - I had my left kidney removed in January (RCC Chromophobic) and they were supposed to be with IV contrast - however they said my kidney function was a little low - so no IV. Has anyone else experienced this? They gave me some measure like 60 is normal, with one kidney…
-
Positive focus.
June 9, 2012 - 8:35pm positive info Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether…
-
What to expect
I’m hoping you can share with me what to expect. My husband had esophageal cancer last year. Which he had removed and has been doing very well. But, he had low potassium that they have been trying to diagnose. In an effort to find the cause of the low potassium they did a CT with contrast to look at his adrenal gland. The…