Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Newly diagnosed, am terrified, but supposed to be strong
Last week, i had an admominal ct scan to run out appendicitis. In the scan, they saw a 6 cm mass on my kidney. I went to see my dr, who sent me to a urologist. I am lucky: the cancer will be cured once the tumor is gone. It does not seem to have spread. The surgery has not been scheduled, but it will be soon. I am lucky.…
multi cancer lynch syndrom , remove my entire urinary track or remove cancer only ? stats on succe
They found another cancer in my left kidney , transitional cell carcinoma , and the right kidney is already removed from a previous cancer on 2007 . The urology surgeon gave me two choices 1) remove only the cancer 2) remove the entire urinary tract. Are there any studies or statistics for success rates on cancer in the…
New Here!
Good morning everyone! First off I have read alot of your posts... And Thank You. My name is Trisha, and as you can tell my my user name, my hubbie is Kevin. he was diagnosed 3 years ago with Renal cell carcinoma. He had a left nephrectomy and was told he was 95% cured. Well that wasn't true. It metastisized to his…
CT Scan Tomorrow
I am now 6 months post-op and scheduled to have a full body CT Scan tomorrow evening. As you guys know, anticipating these scans is very stressful. Just wanted to ask you to cross your fingers and please keep me in your prayers. God Bless.
Robotic Assisted Kidney Nephrectomy
Hello I’m a 63 year old female. I just had a left Kidney Robotic Assisted Radical Nephrectomy. Due to a mass, measuring 4x3.8x3.6 cm. I was in the hospital for two days and sent home on the third. My mass was found by accident when an ultrasound was done on my stomach and then an MRI was done on my Kidney. The results on…
Just found out I have Kidney cancer
I’m amazed how conflicting the information is for a disease so well known. I don’t have all the stats on the size and level. But I can tell you there going to remove the left kidney and a small bit of the right. It doesn’t look like it’s spread to any other organs. I guess I need to learn the terminology so I can have more…
Religious nuts etc...
Reverend Boudreaux was the part-time pastor of the local Cajun Baptist Church and Pastor Thibodaux was the minister of the Covenant Church across the road. They were both out by the road pounding signs into the ground that read: 'Da End is Near Turn Yo Sef 'Roun Now Afore It Be Too Late!' As a car sped past them, the…
Discrepancy between radiological and pathological size of renal masses
Research article Discrepancy between radiological and pathological size of renal masses http://www.biomedcentral.com/1471-2490/11/2
Copay help with cancer drugs
I am wondering if any of you have found someplace to get help with the copays for cancer drugs that your insurance doesn't cover. I did find someplace that helps and will post if anyone wants the website. My husband's drug is $6300 a month and our insurance only pays $3400 so we had to find help somewhere and finally did.
flip flop
I just found out that my dad now has bladder cancer. He had surgery to remove it on Wednesday. Now it is just the wait for the path report. I guess I will be flip flopping from this board and the bladder cancer board. Praying for a good path report in the meantime. ~Judy~
Accessory spleen after nephrectomy
Dear All! My mother has a radical nephrectomy in 2010 (left kidney) because of renal cell carcinoma. In 2010 the doctors did not find any metastasis in her body. Now she had a control CT scan which shows 3 small nodules next to her spleen. The doctors do not know whether it is a metastatic or can be an accessory spleen.…
Can't believe how you have to double check everything
My mom has recently been diagnosed with stage IV RCC with mets in her lungs. This is 2 years after her kidney was removed. It just amazes me that you can't trust that what is supposed to happen will happen and you have to be on top of everything. My mom and dad divorced 20+ years ago and they both rely on me to help them…
Anyone with Papillary Sarcomatoid Kidney Cancer (in spine & hip bone too)
My dad was diagnosed in October of a massive tumor on his right kidney. Spots on his spine, hip bone and tail bone. He first had a biopsy done of the hip bone (which made a huge hole in his hip). In November he had the right kidney & tumor removed (huge tumor). First he had to get radiation on his hip because the biopsy…
Cancer therapy that boosts immune system ready for wider testing
Just saw this news Cancer therapy that boosts immune system ready for wider testing http://www.eurekalert.org/pub_releases/2012-06/jhmi-ctt053012.php
How long before return to work?
Can anyone share with us how long after an open partial nephrectomy surgery you were able to return to work. Either part time or full time, desk type work. My husband has limited leave and we are trying to make plans. Surgery is June 11th. Thank you for your help! Lee Ann
Scans every 3 mos-ugh
Those of you who have to have scans every few months---how do you handle it emotionally? I’m having my first scans since surgery on Monday and it’s SO scary. History: had stage II breast cancer, surgery, chemo 3 yrs ago; Feb had spinal MRI due to leg/back pain; discovered back problems and accidentally discovered 8.5 tumor…
Bucket List Update - Hunting
I had partial nephrectomy December and its still not healed, due to leaking kidney and hospital aquired MRSA. Long story, but second opinion at Mass Gen. says **** happens but my case is extreme. Yadda, Yadda ....tumor had doubled in size in a couple months, Yadda... Spared kidney anyways. Thus I have been wearing a wound…
New to all this!
Hello, I hope im in the right place. I just had a upper pole partical nephrectomy on my left kidney on May 10,2012. I dont know the size or stage but the surgan said it was the size of a golf ball. I also have a cyst on he same kidney and one on the right also, they say they look like just fluid filled and common. Im in…
Charitable Compensation - American Cancer Society Exec???
Just read a piece from Chris Battle (http://kidneycancerchronicles.com/american-cancer-society-salaries/) about what the head of American Cancer Society rakes in. WOW! Given that I and John's family and friends just signed up for a walk (Walking for John) on May 6 in support of National Kidney Foundation…
Just wanted to say hi....
Hey Everyone, I thought I'd stop by to say hello. Thankfully I was able to post! I hope everyone here is doing well. I think of you all often. A couple of months ago, I started having a lot of trouble getting into this site. It would take me 15 minutes or more to get the site to load and just that much longer to try and…
Been 4 months and I don't think I will ever be the same
January 19th I had a right partial nepherotomy, and they took out half my kidney with cancer grade one and two. Like a lot of people on here they said I was cured. That is hard to get past. I think not thinking of it is helping. I was a complete train wreck for three months after. (being 28 pretty much nobody knows what I…
Brain mets found - what do I do now?
I just joined in late Feb or March when my mom was diagnosed with RCC Stage IV at that time she had a softball size tumor in her kidney which they removed that kidney and adrenal gland in mid March and they knew she had multiple tiny lung mets and mets in her left femur and a couple places in her spine. They treated her…
Palliative care vs Treatment
Hello - I'm daughter to a strong and loving father faced with the unimaginable situation of having to decide what treatment path to undergo. I myself go back and forth on what I'd like to see him do, and it breaks my heart to think of the thoughts that might be racing through his mind ... This past February 2012 he went to…
Lists of hospitals espcialzed with interleukin 2 in California
I would like to know what hospital espcialzed in giving interleukin 2 in California? We live in San Jose California and our doctor suggested kaiser riverside. I have 3 kids and my wife can't take off from work - I'm thinking if there's closer to San Jose California . My doctor said kaiser riverside specialized and only do…
14mm lymph node enlargement after open Partial nephroctomy
I am a 42 years old lady and had my open partial nephroctomy surgery on dec 2011, a tumor was enclosed within the end of left kidney was removed with a part of my kidney. Since then i had lots of pain, fluid in the surgery part due to inflimmation. I had ct scans done and MRI done too which shows a 14mm enlarged lymph node…
Castle Surgical Website
I just searched google looking for other people in the same trial as John and realized our postings are carried on the Castle Surgical website too. I coincidentally found my own post. Just an fyi. http://www.castlesurgical.com/cancer-survivors-network.html
GFR And Creatine
Just a quick question,my GFR IS 54 and my Creatine is 1.4 ,what i am curious about is if this is my new normal or is it possible these numbers might improve over time. Thanks and have a Nice Day
IL15 (Interlukin 15) - Kidney Cancer Chronicles
http://kidneycancerchronicles.com/of-porn-and-natural-killer-cells-the-mean-streets-of-the-national-institutes-of-health/ I just received an update on Chris Battle who has undergone many different treatments in his war with kidney cancer. He is currently at the National Institute of Health in an IL15 trial. The link above…
Guess its true.. bad things happen in threes
Just when I was finally getting rid of some of my anxiety, bam, its hitting me again. Not so much for my RCC dx but now my job.. Little history on the "3 bads in a row". Besides getting the dx of RCC at the end of March, I also lost everything to a flood in Sept of this year. I had to gut my whole downstairs and redo all…
Anti-angiogenesis
Just watched the video about angiogenesis by Dr. William Li. Very informative. See this link http://www.ted.com/talks/william_li.html I have stage one rcc, and want to do more proactive things other than 6mon scan. Does anyone on this forum know any anti-angiogenesis products (not prescription medicine)?

Kidney Cancer

Discussion List

Discussion Boards