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Seeking guidance reg treatment after nephrectomy
Dear All I had been reading posts on this discussion board since last 4-5 days and believe me, I have got connected with all of you. I am getting so much inspiration and strength, after reading all positive thoughts of yours. Can somebody please tell me, whether MDX 1106 and Votrient are same or different drugs. How do you…
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still here
Just to update on my hubby .Dr's said few weeks, Really dont know what a few weeks are but been with Hospice now 6 weeks and that to me accounts for something.He is still fighting but the way the doctors talk he should have been gone by now so I guess the good Lord still has a plan for him I check in on everyone from time…
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diet
hi I'm 11 days out from right Kidney removal hope to get some diet ideas
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Wilms and Lung nodules
Lung nodules .... what causes them in a 9 or 10 year old boy? My son was diagnosed in March 2011 with Wilms tumor stage II. He had 2 nodules at time of diagnosis. 3 months into treatment he developed 9 more nodules. These eleven have remained stable for 11 months. In June 2012, 3 new nodules have developed making a total…
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CT scan tomorrow....
Hello all, First of all and foremost I want to thank all of you for the comments and feedback. We go very early in the morning to have blood work, 30 minutes later to have the Scan and then meet with the Oncologist 2 hours later. We are so fortunate to be at a clinic where we can get the results the same day. Duke Cancer…
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Complications 4 weeks after laprascopic radical nephrectomy: Still draining, possible infection, fe
Hi, Four weeks ago, I had a laprascopic radical nephrectomy which successfully removed a stage 1 grade four 5 1/2 cm tumor. The good news is the cancer is out of my system. The bad news is healing from the surgery has not been smooth. Basically, I continue to drain from a small portion of the 10 cm incision. It did not…
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Radio frequency Ablation
Not sure i spelled that correctly but its a new term i was introduced to last week.I will be having this procedure done may2 wednesday ,i guess when they do this techniqe it uses heat to fry cancerous tumors,but is only efective on smaller ones,i guees it also is less stressfull on the organ compared to doing a…
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BMS93558* Votrient trial (formerly MDX 1106)
John had his six-week CT scan today. For those of you that are unfamiliar with John’s history,see below for quick update. The scan showed SIGNIFICANT interval decrease in the size of multiple pulmonary metastases with no evidence of new lesions. There also is a decrease in the pelvic and shoulder regions. The research…
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Confused about Ultrasound
Let me start by saying I have not been diagnosed with cancer, however, there is a possibility. So, if I really shouldn't be here, please forgive me but I don't know where else to go. If anybody can help ease my concerns, I'd be very grateful. Here's my ultrasound report and my questions to follow. I just skipped to the…
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Wilms and pregnancy
Hi i'm 20 years old and i'm getting married in 11 days and am hoping to start a family in the near future I was diagnosed with a stage 4 wils tumor in my left kidney when I was 2 in 1994 that had spread to my lung and I had it removed along with a dime sized portion of my lung and revived chemo and radiation I went into…
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Mass Detected
Hello, I am new to this board. My beautiful wife (41) of 21 years endured a fairly painful kidney stone a couple of months ago. It was finally broken up and she was able to resume normal activity. Upon a further follow-up, ultrasounds were done on both of her kidneys to make sure no further stones were detected. During the…
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a bit scared
hi everyone Im a 49 yr old F and I was dx with a 1.5cm r renal mass in 2009. I had a RF ablation done and for 2 years my scans were good. My pathology from the surgery back in 2009 states benign..but the doctor I am seeing now says he feels they didnt get a correct read on that. I had a routine follow up scan on 6-20-12 it…
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My first time posting my story
My husband, Pat thought he had kidney stones. Was passing alot of blood and stuff. Waited to get checked out by his primary care physician. Sent him to get a CT scan. Then we found out the news. Kidney cancer.....I lost it. Went the same day to see our OC. He is awesome. Dr. Kasbari. We then proceeded to get 9 pints of…
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Interleukin-2 treatments for Stage 4 RCC
I am new to this website and to this discussion board. In November 2004, I underwent a radical left nephrectomy for Stage 2 RCC. I received no further treatment at that time because I was told by the urologist who removed the kidney that kidney cancer was non-responsive to both chemotherapy and radiation therapy. I…
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The True Joy of Life is the Trip
Many years ago this was introduced to me by my boss. I loved it at the time and still do. Of course, it is now more relevant than ever. Many of you -- Fox, Tex, Gary, and Liz --seem to integrate this thinking into their everyday thinking, but I sometimes need a reminder. Thought others might find it worthy too. Enjoy.…
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CSN Kidney Cancer forum
So, it seems as though our pics have disappeared (temporarily I hope). Is anyone noticing any other changes? Am I imagining it or was the Drupal logo not there before, in green, at the top of the screen?
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What causes RCC?
When I was at MD Anderson, I was in a discussion with my Doctor whether I should have my kids (both young adults) checked sometime for RCC. He told me that RCC was environmental, not hereditary. At the time I failed to pursue the cause further. In the mid 1970's to mid 1980's I worked in the Houston Shipyards with…
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6 month scan
Hi All, Been awhile since my last visit and I hope everyone is well. I do check every so often without signing in. I had an appointment with my oncologist this morning for a checkup and to discuss my latest ct scan ( 6 month post op) I had last Thursday. Great news as she said the scans were excellent with no signs of…
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Contrast or no contrast
After my left radical nephrectomy in February 2009, my Urologist was adamant that my CT scans be without contrast. Initially they were concerned that my other kidney may have been diseased, but it is a healthy working kidney (thank goodness). Even after this confirmation, CT scans were ordered without contrast. This year,…
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Grateful but scared
April 23th at 8:00 AM I had an MRI done on my lower back because of some back issues. The Doctor called that afternoon and said he wanted to see me the next day. I assumed it was not good news about my back, Little did I know that was not the issue. He told me that they found a 2.7 cm mass in my right kidney, It didn't…
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kidney cancer with mets in thyroid
Just over 3 years ago I was diagnosed with an 11cm renal cell carcinoma; had a radical nephrectomy - (12" incision, rib removed etc) still have discomfort from surgery with neuromas,scar tissue and adhesian but thought I was doing ok until I noticed a lump on my thryoid; as I didn't feel unwell I ignored it for a few…
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Viotrine 200mg
Hi, I am currently on Viotrine 200mg treatment 2 pills (from 4 pills) per day. I had lots of side effects. Can someone explain success with Viotrine and also how better to deal with side efeects mainly being tired all time. I have clear cell cancer on left kidney which as spread thru lungs and Brain. Currenly its dormant.…
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pathology report
Hi 12 days after right kidney removal waited these days for pathology report and my doctor calls and postponeds the follow up visit until next week !She wants a second opinion on the pathology report??
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1 week post laproscopic partial nephrectomy
Just had surgery last Thursday and am questioning pain? I had a laparoscopic partial nephrectomy last Thursday. The surgeon Had some trouble controlling the bleeding and had to "open me up" To reach in and stop it. Leaving me with an additional 4" incision across my upper Abdomen. I was released after a couple days in the…
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Help!
Hi All, I first joined this page in Dec 2011 when my mother was diagnosed with Kidney Cancer. My mother had her right kidney removed in December 2011. The tumor was pretty large about the size of a football according to her doctor 11cm in one dimension 20cm in the other, it was also protruding against the liver. My Mom has…
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Emotional-Normal?
Hello Everybody, I hoping that all the great RCC survivors on this board can offer me some help, advice or just a discussion board to cry on. :) I am a 39 yr. old wife, and a mother to three children (21, 14, 10). Back in February I went to the ER for a pain on my right side. I had the pain for about a week, but it would…
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MDX-1106 Part 4
OK, here we go. Brief refresher. Radical nephrectomy in March 2011. By winter mets were in lungs, liver, spine and pelvis. Qualified for and began MDX-1106 at maximum dosage of 10 mg/kg of weight. I had a rapid response with healing in my bones, and liver. Lungs have demonstrated reduction in tumors from reported dozen to…
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NED - my first follow-up scan!
I had my first 6 month follow-up scan today after a partial nephrectomy in December. Everything looked great, a great big NED. I'm really happy and relieved! The only bummer of the day was learning that my doctor is leaving the university. I'm really sad about that. But now it's time to celebrate, take a deep breath, and…
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First Follow-up Scan
I am preparing for my first follow-up CT scan after having a right, radical nephrectomy on March 1, 2012. I've been feeling a little anxious, and worried. After being a smoker for 25 years( I've quit now for 4 months) I'm afraid they will find it in my lungs. Also, the past couple of weeks I've been having problems with my…
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scared to death!
I have a history of stones in urinary bladder (detected when I was in the 7th Grade) followed by frequent occurances of stones in the right and left kidneys. Have taken a treatment for both. The stone in the bladder went away but the kidney stones keep coming back. From 3 or 4 months, I experience pain in my thighs, both…