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Wilms and pregnancy
Hi i'm 20 years old and i'm getting married in 11 days and am hoping to start a family in the near future I was diagnosed with a stage 4 wils tumor in my left kidney when I was 2 in 1994 that had spread to my lung and I had it removed along with a dime sized portion of my lung and revived chemo and radiation I went into…
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Mass Detected
Hello, I am new to this board. My beautiful wife (41) of 21 years endured a fairly painful kidney stone a couple of months ago. It was finally broken up and she was able to resume normal activity. Upon a further follow-up, ultrasounds were done on both of her kidneys to make sure no further stones were detected. During the…
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a bit scared
hi everyone Im a 49 yr old F and I was dx with a 1.5cm r renal mass in 2009. I had a RF ablation done and for 2 years my scans were good. My pathology from the surgery back in 2009 states benign..but the doctor I am seeing now says he feels they didnt get a correct read on that. I had a routine follow up scan on 6-20-12 it…
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My first time posting my story
My husband, Pat thought he had kidney stones. Was passing alot of blood and stuff. Waited to get checked out by his primary care physician. Sent him to get a CT scan. Then we found out the news. Kidney cancer.....I lost it. Went the same day to see our OC. He is awesome. Dr. Kasbari. We then proceeded to get 9 pints of…
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Interleukin-2 treatments for Stage 4 RCC
I am new to this website and to this discussion board. In November 2004, I underwent a radical left nephrectomy for Stage 2 RCC. I received no further treatment at that time because I was told by the urologist who removed the kidney that kidney cancer was non-responsive to both chemotherapy and radiation therapy. I…
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The True Joy of Life is the Trip
Many years ago this was introduced to me by my boss. I loved it at the time and still do. Of course, it is now more relevant than ever. Many of you -- Fox, Tex, Gary, and Liz --seem to integrate this thinking into their everyday thinking, but I sometimes need a reminder. Thought others might find it worthy too. Enjoy.…
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CSN Kidney Cancer forum
So, it seems as though our pics have disappeared (temporarily I hope). Is anyone noticing any other changes? Am I imagining it or was the Drupal logo not there before, in green, at the top of the screen?
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What causes RCC?
When I was at MD Anderson, I was in a discussion with my Doctor whether I should have my kids (both young adults) checked sometime for RCC. He told me that RCC was environmental, not hereditary. At the time I failed to pursue the cause further. In the mid 1970's to mid 1980's I worked in the Houston Shipyards with…
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6 month scan
Hi All, Been awhile since my last visit and I hope everyone is well. I do check every so often without signing in. I had an appointment with my oncologist this morning for a checkup and to discuss my latest ct scan ( 6 month post op) I had last Thursday. Great news as she said the scans were excellent with no signs of…
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Contrast or no contrast
After my left radical nephrectomy in February 2009, my Urologist was adamant that my CT scans be without contrast. Initially they were concerned that my other kidney may have been diseased, but it is a healthy working kidney (thank goodness). Even after this confirmation, CT scans were ordered without contrast. This year,…
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Grateful but scared
April 23th at 8:00 AM I had an MRI done on my lower back because of some back issues. The Doctor called that afternoon and said he wanted to see me the next day. I assumed it was not good news about my back, Little did I know that was not the issue. He told me that they found a 2.7 cm mass in my right kidney, It didn't…
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kidney cancer with mets in thyroid
Just over 3 years ago I was diagnosed with an 11cm renal cell carcinoma; had a radical nephrectomy - (12" incision, rib removed etc) still have discomfort from surgery with neuromas,scar tissue and adhesian but thought I was doing ok until I noticed a lump on my thryoid; as I didn't feel unwell I ignored it for a few…
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Viotrine 200mg
Hi, I am currently on Viotrine 200mg treatment 2 pills (from 4 pills) per day. I had lots of side effects. Can someone explain success with Viotrine and also how better to deal with side efeects mainly being tired all time. I have clear cell cancer on left kidney which as spread thru lungs and Brain. Currenly its dormant.…
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pathology report
Hi 12 days after right kidney removal waited these days for pathology report and my doctor calls and postponeds the follow up visit until next week !She wants a second opinion on the pathology report??
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1 week post laproscopic partial nephrectomy
Just had surgery last Thursday and am questioning pain? I had a laparoscopic partial nephrectomy last Thursday. The surgeon Had some trouble controlling the bleeding and had to "open me up" To reach in and stop it. Leaving me with an additional 4" incision across my upper Abdomen. I was released after a couple days in the…
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Help!
Hi All, I first joined this page in Dec 2011 when my mother was diagnosed with Kidney Cancer. My mother had her right kidney removed in December 2011. The tumor was pretty large about the size of a football according to her doctor 11cm in one dimension 20cm in the other, it was also protruding against the liver. My Mom has…
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Emotional-Normal?
Hello Everybody, I hoping that all the great RCC survivors on this board can offer me some help, advice or just a discussion board to cry on. :) I am a 39 yr. old wife, and a mother to three children (21, 14, 10). Back in February I went to the ER for a pain on my right side. I had the pain for about a week, but it would…
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MDX-1106 Part 4
OK, here we go. Brief refresher. Radical nephrectomy in March 2011. By winter mets were in lungs, liver, spine and pelvis. Qualified for and began MDX-1106 at maximum dosage of 10 mg/kg of weight. I had a rapid response with healing in my bones, and liver. Lungs have demonstrated reduction in tumors from reported dozen to…
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NED - my first follow-up scan!
I had my first 6 month follow-up scan today after a partial nephrectomy in December. Everything looked great, a great big NED. I'm really happy and relieved! The only bummer of the day was learning that my doctor is leaving the university. I'm really sad about that. But now it's time to celebrate, take a deep breath, and…
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First Follow-up Scan
I am preparing for my first follow-up CT scan after having a right, radical nephrectomy on March 1, 2012. I've been feeling a little anxious, and worried. After being a smoker for 25 years( I've quit now for 4 months) I'm afraid they will find it in my lungs. Also, the past couple of weeks I've been having problems with my…
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scared to death!
I have a history of stones in urinary bladder (detected when I was in the 7th Grade) followed by frequent occurances of stones in the right and left kidneys. Have taken a treatment for both. The stone in the bladder went away but the kidney stones keep coming back. From 3 or 4 months, I experience pain in my thighs, both…
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Surgery in two weeks...finally can see the end
On May 1, I heard those dreaded words that have changed my life: the CT scan shows a 6 cm mass on your kidney. I knew what it meant. I did not know anything about Renal Cell Carcinoma then, but my assumption was it comes out immediately. Dr felt differently, and medical research supports the doctor. This will be the first…
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Affordable Health Care
Today a major hurdle was jumped over towards allowing all Americans Affordable Heath Care. Having been on Medicare for exactly 4 years as of July 1, 2012, I will not be effected by this new law. However it will allow many millions of Americans to obtain insurance coverage and more importantly for our group will assist…
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Making life altering decisions
Hello everyone, I’m having a nephrectomy in 2 weeks. This experience has me reassessing priorities and I wondered if anyone else did the same and made significant changes in their lives. I’m considering whether to make a permanent move to the town where my sisters live because we have been getting closer and I’m pretty…
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God intervened
My wife, in 2006, shortly after going through hurricane Katrina down here in Biloxi, Ms, had knee surgery. Apparently, they cut a nerve (the surgery itself was perfect) and did an echo gram to try and find the cause and fix the problem of her "drop foot" condition because of the cut nerve. When they did the echogram, they…
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keeping the faith
im speaking on behalf of my husband he wanted me to do update. doctors gave him a few weeks we have since gotten hospice and they seems to be doing ok just so much to think about now he is starting to have lot of back and chest pain but other than that he is doing so so found two new tumors this morning they are totally…
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An article on prognoses.
I found this out on the web Tumor growth is unpredictable. A recent questioned posed was, “at what speed do tumors grow? “First let us discuss tumors, not all tumors are the same, a mass is different from a met, a legion different from a tumor and so on. Yes they are all similar, but they have different names because they…
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The Top 10 Reasons I’m Glad I Was Diagnosed with Kidney Cancer in 2011
I am going to speak as the honorary survivor at our local Relay for Life. As I work on my talk, I thought you all might appreciate my closing Top Ten list: 1. The lesson in humility 2. A two month ‘vacation’ from work 3. The modern technology that caught my cancer early 4. Being diagnosed at a time when research and body…
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Adult Wilms Tumor
Hi. I am a 29 yr old currently going thru treatment for Wilm's Tumor. Until my diagnosis six months ago I knew nothing about Wilms but have to come to know that this is primarily only found in young children. I was wondering if there was anyone else that has had Wilms as an adult?
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counting down the days til surgery
In 10 days I am going to be at Fox Chase Cancer Center getting a partial nephrectomy laprascopically from the back. They're doing it that way because of all the scar tissue from previous surgeries. I don't know what to expect because I have not found any information on this procedure. I am really curious about how much…