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Question for Med Scanman
Hi Scanman my question concearns the advantages of PET scans over MRIs or CT scans without contrast since most of the members here have comprimised kidney function and because of this we are not givem contrast.Now i could be way off here but think i rememeber when i had my PET scan i was injected with what i think was…
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Questions about metastatic urothelial cancer (transitional) of kidney - Help
My father was just diagnosed Thursday with urothelial metastatic cancer of kidney. We meet with oncologist on Friday to discuss treatment. I am reaching out to anyone who has been diagnosed with this. We are still in shock. He is 74 and has had chronic kidney stones/infections since his early 20's. He has had hematuria off…
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I am happy to report, 2 1/2 months post surgery, my energy is back
I had been feeling more energetic each day, but had been getting really tired by Friday, and spent the weekend resting up. This past friday, I was feeling pretty good, after a busy (but holiday shortened) week. And this weekend, we actually did things: Company picnic all day Sat, and took my 10 yo to a baseball game…
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CAT scan after 2nd cryoablation
Almost a year since the nephrectomy of my left kidney due to multifocal chromophobe renal cell carcinoma. I am scheduled for my CAT scan at St. Joseph's in Atlanta after my 2nd cryoablation procedure next Friday. Have had a total of three small masses frozen so far in my right kidney. Really need everyone's support and…
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5 weeks since surgery - still having trouble but getting better
It's been 5 weeks since my surgery. I had decided to go for a total laparoscopic nephrectomy but when I talked to the doctor on the morning of surgery, he convinced me to allow him to try for a partial laparoscopic nephrectomy. He cut into positive margin so ended up taking the entire kidney anyway. After I learned he cut…
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Post-nephrectomy annual follow ups?
I had a radical nephrectomy Aug 30, 2010. I am coming up on my second anniversary! I'm in a slightly odd situation, doctor-wise. My wife works in an MRI center, and we found the mass on my kidney, as I was being a guinea pig for them to tweak their MRI protocols. The radiologist at her MRI center told me to get it checked…
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Pathology and Follow-up Appointment with Surgeon
I went to my post-op appointment today. Doctor was confident that the cancer is gone. He referred me to a nephrologist and said that I will have blood work and urinalysis every three months for the next two years. Said he will throw in a few chest x-rays and a ct scan during the two years as well. Good report. I asked him…
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Path report back
I got Pathology report back today. It was renal cell stage 1 grade 2. Which is wonderful. Scan in 6 months. I am very happy tonight to report this to you. I would say more but still with nausea. That will get better too. Thanks
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26 years old with Rcc
I am the caregiver of my brother who is only 26 years old ,he has been diagnosed with Rcc July 2012 ,his Right kidney has been removed August 2012 the path came as: Diagnosis: Right kidney, radical laparoscopic nephrectomy + para-caval tissue biopsy: Conventional Clear Cell Carcinoma Tumor size : 5.2 cm Furman unclear…
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#Istandupfor cancer fighters everywhere
Today we celebrate all of the cancer fighters in the world. Bravo!! Stand Up 2 Cancer!
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Green Tea....
FYI.... http://www.businessinsider.com/a-chemical-found-in-green-tea-makes-tumors-vanish-study-finds-2012-8
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Grading
Apologies for rev-visiting a subject which I'm sure must have been discussed many times in the past. However I am a little worried about the discrepancy between the advice given by my physician and the UCLA grading survival statistics shown in the below link : Kidneycancer.ucla.edu/body.cfm?id=37 The UCLA PowerPoint in…
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Pazopanib trial for recurrence prevention
I am new to this site. I have just enrolled in the phase 3 pazopanib trial for recurrence prevention. I had a radical nephrectomy in Dec 2011 (stage 3). I would be interested in sharing experiences with any other trial participants.
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Surgery is over and now recuperating
Hi, I am finally back on here to let you know how im doing. Had surgery Aug. 28 and came home friday Aug 31. Surgery for Lap partial neph is over and i am doing good I think. Been having a battle with nausea for several days, just drinking fluids and trying to stay hydrated. Have not got path report back yet should be…
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Happy Anniversary To Me!
One year ago today I was given the news that the RCC had spread to my pancreas - two tumors - one at head, one at tail, ranging in size from 5.7 to 6.2 cm. One year previous to that my scans were negative. Go figure! It was determined that this was inoperable so we tried stereotactic radiosurgery (similar to cyberknife) -…
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Just an Update...
Sorry I've been away for a few weeks. I'll try to stay in touch better. First, my stats: Male, 42, father of 2 girls, 7 and 11, and husband to 1 wife. Diagnosed 4/12 mRCC with mets in lungs, rt kidney and along the spine. Radical nephrectomy 5/25/12 included left kidney, adrenal gland, several lymph nodes and a slice of my…
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Pazopanib
Can anyone tell me their experience with Pazopanib? I'm part of a adjuvant trial group and I'd like to know if this has helped anyone. Ben
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Thyroid Ultrasound
I will be going in the next few weeks to see if the nodules in my thyroid have enlarged enough to biopsy and I am very nervous. I was diagnosed with stage 1 grade 2 chromophobe this year and had a partial nephrectomy. I see on here where people keep saying that it is rare for this cancer to return, but I also see where…
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New to this
Had a biopsy done last week and stent removed Thursday. Had been diagnosed with kidney stones but after CAT and MRI found the tumor. Biopsy confirmed low grade TCC. Doctor removed stent and said bleeding and pain would stop in a couple of days. It hasn't. Is this normal? I have no idea what to expect with all this and must…
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TCC/ papillary urothelial carcinoma inrt.kidney
Recent diagnosis of TCC in upper lobe of rt. kidney. Recommended for endoscopic surgery for partial kidney removal or possibly removal of whole kidney. Any suggestions for expert surgeons in South Florida or Florida as a whole? Thanks.
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Update on IMA901 Vaccine trial
Hi Everyone, We got a great news this week that my husband is a candidate for IMA901 vaccine trial. The trial is in Phase III and they had great results in the first two phases. It is for patients with mRCC, who have a substance in their blood called HLA-A*02. It was the first milestone for my DH and only 30% chance that…
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New to this...
At first I thought June 18th was going to be a typical day off. But when I got out of bed to go to the bathroom I realized something was very wrong. I had blood in my urine. I decided it was time to make a doctors appointment, but the earliest I could get in was the next afternoon. As the day progressed, the more miserable…
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Liver metastasis
My sister was recently diagnosed with mRCC with lesions in lungs and liver. I've been reading up on this quite a bit and was initially feeling positive as I learned about all the new drugs/treatments available. However, I've recently come across several items on the internet that indicate those who have liver metastasis…
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TCC/ papillary urothelial carcinoma inrt.kidney
Recent diagnosis of TCC in upper lobe of rt. kidney. Recommended for endoscopic surgery. Any suggestions for expert surgeons in South Florida or Florida as a whole? Thanks.
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Wishing You All A Great Weekend
Here in Canada we have Labour Day on Monday. Whether you have a long weekend ahead or not, I wish you all a peaceful, and relaxing weekend, filled with family, friends and the things that bring you joy. Live in the moment and make every moment count. God bless you all. No matter how good or bad life gets, each of you has…
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Looking for a surgeon in the Dallas or Houston area
Hi, I usually post in the Esophagus Cancer discussion board but I have a friend looking for a surgeon for her mom. Her mom was diagnosed with Renal Cell Carcinoma. She lives in the Dallas area and is looking for a surgeon. She also has family in the Houston area so either location would work. Please let me know if you have…
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MDX-1106 part 6
Well, here we go. Of course, there is a refresher for old, and a synopsis for new. March 2011 led to a left radical nephrectomy. I was 59 years old, physical therapist. For years,( and I mean 40+ years) I weight trained 4-5 x a week. Ran 3 miles every other day..... By the end of the year, I was loaded with mets. Lungs,…
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How does MDX-1106 work?
I've been asked to explain how MDX-1106 works. I will describe this process in simple laymans terms. As a result it may not be entirely scientifically correct. But the idea and concept are close enough to share during casual conversation. MDX-1106, also known as BMS-936558, or anti-PD1 is a natural human monoclonal…
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Thyroid test function (THS) fluctuations?
John had his bloodwork done today as he does every three weeks as required by the trial. Again, his thyroid function (THS) test is low. This is the third consecutive panel where it’s been low and the third time they’ve lowered his dosage of Synthroid from 100 mg to 75 mg and now to 50 mg. He began taking Synthroid on May 2…
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Does color of tumor matter?
I am one week out of a partial nephrectomy on my left kidney. I have not gotten the results of my pathology report back, but my doctor said the tumor was abnormal to him because it was "black" in color...and he had not seen that before. He told me he did not know what it meant. Has anyone else had this happen? How was the…