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New to this...
At first I thought June 18th was going to be a typical day off. But when I got out of bed to go to the bathroom I realized something was very wrong. I had blood in my urine. I decided it was time to make a doctors appointment, but the earliest I could get in was the next afternoon. As the day progressed, the more miserable…
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Liver metastasis
My sister was recently diagnosed with mRCC with lesions in lungs and liver. I've been reading up on this quite a bit and was initially feeling positive as I learned about all the new drugs/treatments available. However, I've recently come across several items on the internet that indicate those who have liver metastasis…
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TCC/ papillary urothelial carcinoma inrt.kidney
Recent diagnosis of TCC in upper lobe of rt. kidney. Recommended for endoscopic surgery. Any suggestions for expert surgeons in South Florida or Florida as a whole? Thanks.
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Wishing You All A Great Weekend
Here in Canada we have Labour Day on Monday. Whether you have a long weekend ahead or not, I wish you all a peaceful, and relaxing weekend, filled with family, friends and the things that bring you joy. Live in the moment and make every moment count. God bless you all. No matter how good or bad life gets, each of you has…
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Looking for a surgeon in the Dallas or Houston area
Hi, I usually post in the Esophagus Cancer discussion board but I have a friend looking for a surgeon for her mom. Her mom was diagnosed with Renal Cell Carcinoma. She lives in the Dallas area and is looking for a surgeon. She also has family in the Houston area so either location would work. Please let me know if you have…
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MDX-1106 part 6
Well, here we go. Of course, there is a refresher for old, and a synopsis for new. March 2011 led to a left radical nephrectomy. I was 59 years old, physical therapist. For years,( and I mean 40+ years) I weight trained 4-5 x a week. Ran 3 miles every other day..... By the end of the year, I was loaded with mets. Lungs,…
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How does MDX-1106 work?
I've been asked to explain how MDX-1106 works. I will describe this process in simple laymans terms. As a result it may not be entirely scientifically correct. But the idea and concept are close enough to share during casual conversation. MDX-1106, also known as BMS-936558, or anti-PD1 is a natural human monoclonal…
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Thyroid test function (THS) fluctuations?
John had his bloodwork done today as he does every three weeks as required by the trial. Again, his thyroid function (THS) test is low. This is the third consecutive panel where it’s been low and the third time they’ve lowered his dosage of Synthroid from 100 mg to 75 mg and now to 50 mg. He began taking Synthroid on May 2…
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Does color of tumor matter?
I am one week out of a partial nephrectomy on my left kidney. I have not gotten the results of my pathology report back, but my doctor said the tumor was abnormal to him because it was "black" in color...and he had not seen that before. He told me he did not know what it meant. Has anyone else had this happen? How was the…
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surgery
I will be having lap partial neph in am at 730 just asking for your thoughts and prayers. when i get back home I will update. Thanks so much for your encouragement.
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stage 4 renal cell carcinoma
My mother fell and broke her humerus in Sept 2011. Due to that fall, the Dr's found stage 4 renal cell carcinoma kidney cancer. They removed her right kidney and gave her a prosthetic left humerus and shoulder. She recently broke her right hip (didn't fall). The tumors grew so fast that when she turned, her hip broke. She…
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MRI question for MedScanMan (non-cancer related)
I apologize for posting this here because it is not related to kidney cancer, but until I talk to my doctor, I don't know what forum to go to. I promise I won't keep posting here on this topic. I'm hoping the scan man can help with one comment on an MRI. When I mentioned some "weird" events to my Oncologist, he ordered a…
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Tumor located in the 'collective area' of the kidney & PNX nodes....
As most of you know I'm 6 weeks post surgery. I had a full Neph that was 5.0cm. I received a great path report. Stage 1, grade 1 w clear margins. As I've been continuing to educate myself & learning as much as I can from all of you, as well as, reading, etc, I've come across some very limited information regarding tumors…
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Mild hot flashes
I'm four weeks post partial nephrectomy for a 4.1 cm tumour on the right kidney. Staged T1b , no evidence of any further spead on CT. ( diagnosed incidentally during an ultrasound for possible gall stones )Will have the pathology in a weeks time. Everything post op is fine healing wise, strength recovering day by day. ( 55…
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Cramps
Anyone else here experiancing muscle cramps around the incision area.I am 10 months out and i am still getting what feels like a leg cramp in my stomach area close to where the large incision is just above my waist.
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Brain MRI
I'm 5 months post op from a partial nephrectomy. I'm considered stage 1 but I've been having some new symptoms so my primary doctor is sending me for a MRI of my brain. I'm a little nervous but I'm used to all the doctors always saying I'm fine so I just figure it's nothing. Does the MRI of the brain include the whole…
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Update: Surgery over... all that's left is the healing
Hi all - My surgery happened Monday (8/20) and I came home yesterday (8/23). Had a rough few days because of my reaction to pain meds, but got past it. Apparently pain meds and me do not mix. Now I am home and all that is left is the healing. Doctor said the cancer was stationary to the kidney and there were no margins. I…
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Diagnosed with Renal Cell Carcinoma
I stumbled upon this page while doing internet research on the condition I was diagnosed with last week. I never, ever thought I would hear the words "you have a 2cm mass on your kidney that we think is cancer and we'll need to remove it," in my life. To say I am scared is the understatement of the century. I maintain a…
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New to Kidney cancer.
Hi , I have recently been diagnosed with RCC. I have a 4 cm tumour in my right kidney and my specialist has told me that I need to have a Radical Nephrectomy to remove the kidney. Whilst I am coming to terms with the fact that I have Kidney cancer, I am struggling to come to terms with having to face a major operation. I…
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Successful Surgery Yesterday - Thank you!
Hello everyone, My wife Holly had a successful laproscopic kidney removal yesterday. The surgery went very well and she is recovering. The surgery lasted approximately 90 minutes and she is expected to come home today. Thanks to everyone for all of the thoughts and prayers. Tom and Holly
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Friday funnies...
Going to Yosemite and Lake Tahoe for a bit of R&R next week, thought I'd leave some smiles for all of you in the meantime... Several days ago as I left a meeting at a hotel; I desperately gave myself a personal TSA pat down. I was looking for my keys. They were not in my pockets. A quick search in the meeting room revealed…
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Cancer by country & type....
http://visual.ly/cancer-epidemiological-overview-malignant-neoplasms
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My Scan
I had my first scan today.. (three months after my surgery). I have been so anxious about it forever so I was a bit disappointed that no one could give me any answers today. I was told, "you have an appointment with your urologist on the 30th and he will talk to you then" WHAT??? Im not waiting till the 30th to find out my…
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Blood Pressure and KC
As you know my RCC was discovered as a result of investigating BP variances over the last 6-7 months. I met with my cardiologist today, who continues to monitor my BP and cardiac performance. He is confident that my BP will be better regulated and even return to normal once the tumour is removed. Good news is my Heart rate…
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How to deal with cancer
A couple of good reads here. The first is sage advice for both cansurvivors and caregivers. The second is a brief but to-the-point indictment of our conduct of the battle against cancer on the national (and world-wide) scale.…
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Need Dr. referal in Atl area
Hi, I'm new to the network. I had an open partial nephrectomy on my left kidney 4 weeks ago, and am in need of some help that I hope fellow survivors can offer. My surgery went well, but I need to find someone in the North Atlanta area for follow up. My doctor neglected to tell me of a study he is conducting on pain…
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Chewing the cud-from an older study
At the time of Dx in 2006, I assembled a volume of information about the new topic in my life-Kidney Cancer and surviving. Recently, I was purging some of it, and refiling monographs and items to retain. I came across an article co-authored by my urologic/oncologist/surgical specialist when he was at UCLA, "CA-A Cancer…
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2 primary cancers, very confused
Hello! My uncle has been diagnosed 2 weeks ago with stage 2 nasopharyngeal cancer, poorly differentiated, Stage 2. A routine ultrasound was done 5 days ago and they incidentally found a 6x 5 cms solid mass on his right kidney. His oncologist told us that this could be a different cancer and most probably not a mets. So…
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To RCC survivors & families: your input appreciated
I’ve been a lurker here starting 25 days ago when my DH received the report from an MRI (for an unrelated issue) that a 3.6 cm mass on right kidney was “suspicious for RCC.” The rest of the MRI was “unremarkable.” Since then, the following has happened and I could use some input: DH was referred by his GP to a prominent…
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Mr Scanman give me a wink please
Hi mr. Scanman just a quik question about the different types of contrast,i am wondering how many types there are and if any are less binding to our organs making them easier for our lone kidney to flush out,thank you and i look forward to hearing from you.