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Kidney Cancer

stage IV papillary non-clear cell kidney cancer
Still alive since Jan 2010 diagnosis of stage IV non clear cell kidney cancer a metatasized to lymph glands. Entered a clinical trial, sutent vs evrolimus. Sutent only worked for 6 months before tumor started to increase. Have been on evrolimus since fall of 2010 (17 rounds). Edema lympodema and diabetis has set in but 60…
Test(s) news
Saw my oncology nurse this morning. I've been recertified for another three months, with no more tests (other than labs) for 6 months. Kind of makes me feel like a fire extinquisher-they check and retag them yearly and they have to be inspected and marked every month. There were no changes in everything that was CT…
radiation
Well,I finished my radiation series today. 5 sessions on a rib, and 3 steriotactic sessions on my t6 vertebrae. I felt nothing from my rib. But my spine ached quite a bit for a day or two after each session. Percs have been very helpful. Doc told me that radiation fatigue would hit me big time. I just have felt a little…
new flank pain 12 yrs out
Hello all, I had my left kidney remove via laproscopic surgery in 2000 at age 30, stage 1-2 RCC. Over the years since the surgery, from time to time, but not often, I have had some dull pain in the flank area where the kidney was removed. The past 6 or 8 weeks the pain is more frequent especially after a phisically active…
What is safest treatment for 80 year old?
Any 80 year olds on any of the treatment for RCC? Just wondering what is more tolerable. I know everyone reacts differently but am wondering if there are any experiences out there...
Application submitted for new drug approval
This is quite interesting.... http://www.oncologynurseadvisor.com/nda-submitted-for-tivozanib-for-advanced-renal-cell-carcinoma/article/261212/
Follow up with oncologist and a question about pain.
Hello everyone, My husband just had his bi-weekly visit with his oncologist and research nurse. Some background: He had his left kidney and part of his bowel removed last December. He has three hilar lymph nodes that are affected and the lymph node on his neck has a 5 cm tumor on it. He is currently on his 9th cycle of…
Happy Friday...
Burma Shave REMEMBER THESE ? ? ? > > For those who never saw any of the Burma Shave signs, here is a quick lesson in our history > of the 1930's, 40s, and '50's. Before there were interstates, > when everyone drove the old 2 lane roads, > Burma Shave signs would be posted all over the countryside in farmers' fields. > They…
Investigatory modalities
To Jeff, in particular:- your thoughts on the following would be appreciated - interpretation, significance, follow-up etc. and, in particular what types of scan, or other investigation you think might be sensible. Clinical History: Right nephrectomy for high grade sarcomatoid T4 renal cell carcinoma. Level 4 follow-up.…
Solid kidney mass.
On 9/03/12 I had a CT scan due to severe abdominal pain. It showed a kidney mass and fluid in my pelvis. On 9/14/12 I had an ultrasound that confirmed the mass is solid and a little over 2cm. I go to a urologist in 2 days. What will happen at my appointment? My doctor told me there's about a 90% chance that solid kidney…
Clinical trial BMS936558 (MPDL3280A)(MDX1106)--you know, the anti-PDL1 drug!
I am very excited to tell everyone I am going to Nashville to see about a clinical trial with the wonder drug...BMS936558 (also know as Fox's MDX1106). Got the call yesterday to come to sign some release forms in Nashville at 8:45 on Friday morning. They got all my records and I will be talking to a doctor about all the…
Xeloda, Gemzar, and Avastin
Good morning! I found this site a couple of days ago when I was looking for other people that were experiencing the same side effects as my husband. It was then I realized that maybe he is one of the few people taking Xeloda, Gemzar, and Avastin for RCC! A little background: Last fall my husband became sick with his usual…
Rcc cancer now spread to brain lung and liver
My father was diagnosed in nov 2010 with kidney cancer... He had a full kidney removed and 1/3 of his other kidney.... One year later we where told he was cancer free.... Only to find out 4 months later that it had spread to his brain, lungs, liver and kidney linning on the side where there is no more kidney!!!! He…
Kidney and a Esophageal Cancer connection........
I recently read somewhere that people with RCC and other kidney cancers are at a higher risk for esophageal cancer later on. Not sure if this is meant as a 'metastatic' connection or something entirely new. I spoke to a friend today who told me this happened to his dad, but the cells weren't RCC in his esophagus, they were…
quasi newbie
While this is my first post, I'm far from a stranger to this site.I am the quintessential " lurker".I am Alice's husband John.I am a criminal lawyer and get paid to talk (not write)for a living.Alice is far and away the better writer in the family.From time to time Alice calls upon me to explain certain things to her, such…
Disability, Medicare and Advantage Plans
Just for those who don't already know this: If you have Stage 4 cancer (most simply defined as metastasized) you are not only eligible for getting your Social Security (through "disability") but they will fast-track it for you, no hassles, little paperwork, no questions asked (except of your doctor) and you will start…
First day on IMA901/Sunitinib vaccine trial
Finally after a month fighting with insurance company to approve his brain MRI, so he can get into the trial he is in :-) Insurance didn't pay, but the trial people found a sponsor and he got his CT's and MRI done. He just started on Sutent and in a month after randomization hopefully he gets the IMA901 vaccine. Four…
Member of the club now? :)
Can I officially count myself as a member of the club now? I had my surgery on 9/12 and it was an astounding success. My relatively small (2 cm) tumor was found to be malignant and I am in the process of healing now. The doctor personally called me to tell me that he felt superbly confident that the cancer is completely…
High calcium
Has anyone here ever had a high calcium level? About two weeks ago my oncologist's nurse called me to tell me they wanted to recheck my calcium level. It had been 11 (should be no higher than 10, I think). I went on Monday, 12 days later and they called me today to tell me it is still too high,,,now 11.8. They said I need…
protocols for follow up testing
I've recently been looking for another Dr to handle my follow up testing. The Dr that did the surgery has only ordered an ultrasound and chest xray, which seems like a light follow up. My Full-Neph was 07/17/12 Stage 1 5.0 cm - right kidney Grade 1 Clear Margins NX I have been speaking with Urology/ Oncology dept's in a…
Nervous - review scheduled
As some you recall, after my surgery I felt my Path report was pretty good all things considering, large tumor and all. I was given my classification via phone as T3a N0 Mx - clear cell - grade 3 - negative margins - 12 cm extraction size Well I finally got a hard copy of my pathology report via postal service, and it…
New Year
(Belated) New Year wishes and well over the Fast.
THE JOURNEY HOME
DANNY HAS MADE HIS JOURNEY HOME WITH JESUS. IT IS TOTALLY NOT THE SAME WITHOUT HIM NEVER WILL BE BUT I KNOW HE IS NOT SUFFERING ANYMORE. I FEEL EMPTY ALONE AND LOST BUT TIME THEY SAY WILL HEAL THE HURT, WE SHALL SEE. EVEN THOUGH DANNY LOST THIS BATTLE I SINCERELY HOPE EVERY ONE KEEPS FIGHTING THE FIGHT WITH CANCER. KEEP…
This is Awesome! Marijuana Stops spread of Cancer!!!
http://www.huffingtonpost.com/2012/09/19/marijuana-and-cancer_n_1898208.html?icid=maing-grid10|htmlws-main-bb|dl1|sec3_lnk1&pLid=207936 This has to be the cure! They gov't won't let this happen I am sure!
First 6-month follow-up
Good morning everyone. I don't post a lot, but I follow the forum pretty regularly. I had my first follow-up x-rays and blood tests last week. The results are still dribbling in (pun intended). Blood counts are back to normal. It was my low hemoglobin that stated this whole journey (not being able to donate blood summer of…
Oncocytoma
Hi everyone - You probably remember me - I posted a couple of weeks ago asking how long we could expect my husband to be in the hospital after his robotic partial nephrectomy. (He was released after two days.) I wanted to post to let you know the pathology report showed that my husband's tumor was benign! His urologist had…
Study says Grapefruit Juice does not hurt Sutent Users
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3043256/
Partial nephrectomy 5/12 continued complications-atlanta ga
Hello everyone, My father had a partial nephrectomy in May to robotically remove a mass that turned out to be cancerous. The tumor was deep in the kidney and it took 6 hours to complete. He came home with a jp drain. He ended up having to go back to the doctor to get a catheter. He has had to measure the output of both the…
post-op appt and path report
Hi All, I just got back from my post op doctor appointment and I am not sure how I am feeling. The good: I am feeling great physically. My staples were removed and I am cleared to go back to work next Monday, which will be just 20 days post-op. The mass actually ended up being smaller than what the ct showed (4cm vs…
1st Oncology visit
Today I have my first oncologist appt, hopefully he will be able to tell me what kind of ride it will be. My wife just has to go and hear it all first hand but I am one of those who doesn't like a peanut gallery. Is it normal to want to digest the news before you share it?

Kidney Cancer

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