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Member of the club now? :)
Can I officially count myself as a member of the club now? I had my surgery on 9/12 and it was an astounding success. My relatively small (2 cm) tumor was found to be malignant and I am in the process of healing now. The doctor personally called me to tell me that he felt superbly confident that the cancer is completely…
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High calcium
Has anyone here ever had a high calcium level? About two weeks ago my oncologist's nurse called me to tell me they wanted to recheck my calcium level. It had been 11 (should be no higher than 10, I think). I went on Monday, 12 days later and they called me today to tell me it is still too high,,,now 11.8. They said I need…
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protocols for follow up testing
I've recently been looking for another Dr to handle my follow up testing. The Dr that did the surgery has only ordered an ultrasound and chest xray, which seems like a light follow up. My Full-Neph was 07/17/12 Stage 1 5.0 cm - right kidney Grade 1 Clear Margins NX I have been speaking with Urology/ Oncology dept's in a…
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Nervous - review scheduled
As some you recall, after my surgery I felt my Path report was pretty good all things considering, large tumor and all. I was given my classification via phone as T3a N0 Mx - clear cell - grade 3 - negative margins - 12 cm extraction size Well I finally got a hard copy of my pathology report via postal service, and it…
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New Year
(Belated) New Year wishes and well over the Fast.
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THE JOURNEY HOME
DANNY HAS MADE HIS JOURNEY HOME WITH JESUS. IT IS TOTALLY NOT THE SAME WITHOUT HIM NEVER WILL BE BUT I KNOW HE IS NOT SUFFERING ANYMORE. I FEEL EMPTY ALONE AND LOST BUT TIME THEY SAY WILL HEAL THE HURT, WE SHALL SEE. EVEN THOUGH DANNY LOST THIS BATTLE I SINCERELY HOPE EVERY ONE KEEPS FIGHTING THE FIGHT WITH CANCER. KEEP…
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This is Awesome! Marijuana Stops spread of Cancer!!!
http://www.huffingtonpost.com/2012/09/19/marijuana-and-cancer_n_1898208.html?icid=maing-grid10|htmlws-main-bb|dl1|sec3_lnk1&pLid=207936 This has to be the cure! They gov't won't let this happen I am sure!
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First 6-month follow-up
Good morning everyone. I don't post a lot, but I follow the forum pretty regularly. I had my first follow-up x-rays and blood tests last week. The results are still dribbling in (pun intended). Blood counts are back to normal. It was my low hemoglobin that stated this whole journey (not being able to donate blood summer of…
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Oncocytoma
Hi everyone - You probably remember me - I posted a couple of weeks ago asking how long we could expect my husband to be in the hospital after his robotic partial nephrectomy. (He was released after two days.) I wanted to post to let you know the pathology report showed that my husband's tumor was benign! His urologist had…
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Study says Grapefruit Juice does not hurt Sutent Users
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3043256/
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Partial nephrectomy 5/12 continued complications-atlanta ga
Hello everyone, My father had a partial nephrectomy in May to robotically remove a mass that turned out to be cancerous. The tumor was deep in the kidney and it took 6 hours to complete. He came home with a jp drain. He ended up having to go back to the doctor to get a catheter. He has had to measure the output of both the…
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post-op appt and path report
Hi All, I just got back from my post op doctor appointment and I am not sure how I am feeling. The good: I am feeling great physically. My staples were removed and I am cleared to go back to work next Monday, which will be just 20 days post-op. The mass actually ended up being smaller than what the ct showed (4cm vs…
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1st Oncology visit
Today I have my first oncologist appt, hopefully he will be able to tell me what kind of ride it will be. My wife just has to go and hear it all first hand but I am one of those who doesn't like a peanut gallery. Is it normal to want to digest the news before you share it?
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Good news
I have posted on other topics too regarding IL-2. My husband , 32 years old, was diagnosed with RCC stage IV to brain and lungs in march 2012. He had laproscopic surgery for kidney in April, then 2 sessions of cyber knife brain radiation and then 1st cycle of IL-2 in July. Yesterday he had 10 week scan after 1st round of…
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Back in hospital 4 days after Chemo started??
My father was just diagnosed with metastatic transitional cell carcinoma of kidney. He received his first dose of Carboplatin/Gemzar on Monday. Went to ER last night with 101 temp, shortness of breath. Admitted with possible pneumonia and high potassium, low calcium. Is this from Chemo???
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IL_2.....5 doses down....
Hey everyone. I started treatment Monday night. I've had 5 doses, so I'm one third of the way there. So far, I'm feeling good. The first night was rough after I got the interferon shot. I got a high fever and chills. By morning I was fine though. I've eaten 3 meals a day, no nausea yet. really hoping this lasts. We'll…
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radiation
Had my first radiation on my rib this afternoon. 4 more next week then 3 on my spine. NTI. nothing to it. Now my question is ,"Has anyone else had radiation?" I don't know if this has come up. Now I want to know the results others have experienced.
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MDX-1106
Seemed like a long wait from my initial consult Re: MDX-1106 and finally getting it done. But only 4 weeks. Lots of scans and a biopsy. Enough blood work to keep a vampire family of 4 happy. On Monday, the day began with 6 vials of blood followed by an hour infusion. Had to stay for a 12 hour day so they could cont. to…
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Current plans with radiation
....Damn, I just lost a half hour of typing. I was so eloquent too. Excellent Star Trek references. Can't do it twice. Met with my Dr. today to finalize my plans for radiation to my rib and T6 spine.... I have had fantastic results from MDX-1106. It has devoured more tumors than anyone should ever get. Only a couple left…
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Sorta new to this roller coaster and new to CSN
Hello everyone. I have been lurking this board on and off over the last three months or so and decided to sign up. Not sure what to post so I figure I an start with my story though not unlike the others I have read. Well this all began for me back in December when I started with the flank pain. I am not one who enjoys…
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2 weeks post op
Had Doc appt Friday for 2 week follow up after surgery. Noticed every time I ate something my stomach would pouch out, uncomfortable at times, and could only eat about 4 ounces at a time. I told Doc he must have done some bariatric surgery too LOL. But , now I have to have a CT Scan of abdomen sometime this next week. He…
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Husband with Stage IV RCC
Hello, My husband was diagnosed with Stage IV RCC (clear cell) the first week of August 2012. After experiencing what we were told was a "minor" stroke his symptoms worsened and a CT showed lesions in his brain and spots on his lungs. Subsequent scans showed he has a large mass on his right kidney, mets in the brain,…
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Am I translating these pathology statements correctly?
Reading my pathology report (and pretty much googling every word to try and understand what they reported.) there are two items I am not sure if i understand (and yes the doctors will be asked). 1)"Tumor shows extension into fat of renal hilum and multiple areas of invasion into vessels some of which contain smooth muscle…
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Another Newbie
Hi everyone - I wanted to post to say I've read many of your posts over the last few weeks and they have really helped to understand this diagnosis and give us piece of mind that this is hopefully just a "bump" in the road. I am not the patient - I am the caregiver. My husband, age 56, was diagnosed with a 1.5cm mass on…
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First Post
Hello all. Although this is my first post, I have been aware of CSN and all that we do for each other. Last year, I became a caregiver for my twin sister as she was battling with colon cancer (she was an avid member of CSN). I was able to bring her to my house to take care of her as her cancer went exponential. She passed…
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1 yr since nephrectomy ct shows hematoma in the place of kidney
It has been 1 year since I had a full nephrectomy. I still have severe flank pain so my family dr did another CT scan and it showed a hematoma has formed in the place of my kidney. Has anyone else had this? I also have an ovarian cyst which they are removing this week to see if my flank pain could be referred pain from…
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Only sonogram identification of tumor
Hey guys, the doc found a lump in a routine physical and ordered a sonogram where he has identified a tumor on my right kidney. The only fear I have is the unknown, I am probably reacting prematurely but like probably all of you waiting on the news as MRI's are done is all consuming. According to the initial conference I…
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Survivor Guilt.
Does anyone ever have survivor guilt? I am 28 and had a right partial nepherotomy in January, grade one and two cancer. It has been a long road to normal life, but I have been trying to take life and live every day. Had been doing great and just feel like my new position at work has set me into a crying mess every night. I…
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Six month scanxiety
I go for my six month post op scan this Thursday. I'm having a MRI because my doctor doesn't like CT scans and I didn't want a ultrasound. Didn't want an ultrasound because they missed the kidney cancer last time. So I'm happy for the MRI. Well I've been doing fine and now I'm starting to get scanxiety. I guess because my…
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Sarcomatoid
I had my tumor removed on 8/8/2012. It was 11x12cm in size. I was told it was a rare form of Sarcomatoid type cancer. Not sure of what's next. I see oncologist in 2 weeks.