Good news

strongmind
strongmind Member Posts: 34
in Kidney Cancer #1
I have posted on other topics too regarding IL-2. My husband , 32 years old, was diagnosed with RCC stage IV to brain and lungs in march 2012. He had laproscopic surgery for kidney in April, then 2 sessions of cyber knife brain radiation and then 1st cycle of IL-2 in July. Yesterday he had 10 week scan after 1st round of IL-2 and all spots from lungs are gone except 4 tiny ones. We hope them to go away with next cyle which is starting from oct 9th. He still have swelling in brain on one spot from radiation but doctor says that should go away with time.
It was such a relieving news. I keep visit this forum very often and take all the notes. It gives me positive hope always. I will keep on praying for whoever is battling this disease.
Hope for the best..

Thank you.

Comments

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #2
    Good news
    I think you must both have strong minds. Thanks for sharing your great (not just good) news. Stage 4 with mets to brain and lungs is unusual and tough to take at only 32. With youth and you on his side he'll continue to do well. keep coming back here to help keep your spirits up and to cheer us all up all the more with your good news.
  • alice124
    alice124 Member Posts: 896 Member
    #3
    Wonderful news
    That is wonderful news and after just one cycle of IL-2! With several people on this Board undergoing IL-2 and even more contemplating it, we love to hear good news like this. Keep on sharing. Wishing you and your husband more future success.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #4
    alice124 said:

    Wonderful news
    That is wonderful news and after just one cycle of IL-2! With several people on this Board undergoing IL-2 and even more contemplating it, we love to hear good news like this. Keep on sharing. Wishing you and your husband more future success.

    Wonderful news
    Alice, I keep reading about long-term benefits of IL2. I'm a bit weary just now so can't remember who it was I was just reading about but it was someone who, per the trial protocol, was dropped from IL2 but continued to be stable for 2 years afterwards. I still believe John may be buoyed up by unrecognised benefits from his tryout on IL2 even though it was judged to be a failure. It often seems that people do unexpectedly well on subsequent treatments after HDIL2 has "failed" them.
  • garym
    garym Member Posts: 1,647
    #5
    Texas_wedge said:

    Wonderful news
    Alice, I keep reading about long-term benefits of IL2. I'm a bit weary just now so can't remember who it was I was just reading about but it was someone who, per the trial protocol, was dropped from IL2 but continued to be stable for 2 years afterwards. I still believe John may be buoyed up by unrecognised benefits from his tryout on IL2 even though it was judged to be a failure. It often seems that people do unexpectedly well on subsequent treatments after HDIL2 has "failed" them.

    Max Power...
    The member you referred to with 2 yrs of stability is Max Power.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #6
    garym said:

    Max Power...
    The member you referred to with 2 yrs of stability is Max Power.

    Max Power
    ooʇ noʎ oʇ ɹǝʍodxɐɯ puɐ ʎɹɐƃ sʞuɐɥʇ
  • alice124
    alice124 Member Posts: 896 Member
    #7
    Texas_wedge said:

    Wonderful news
    Alice, I keep reading about long-term benefits of IL2. I'm a bit weary just now so can't remember who it was I was just reading about but it was someone who, per the trial protocol, was dropped from IL2 but continued to be stable for 2 years afterwards. I still believe John may be buoyed up by unrecognised benefits from his tryout on IL2 even though it was judged to be a failure. It often seems that people do unexpectedly well on subsequent treatments after HDIL2 has "failed" them.

    IL2
    Tex - You're right I believe. There appears to be increasing evidence that a failed or mixed* (*more bad than good) HDIL2 response increases the likelihood of a positive anti-pd1 response. And actually John's response to HDIL2 wasn't classified as "failed;" it was labeled "mixed." He had growth in several lung nodules but a reduction in one nodule. Two months later when he started BMS-936558 trial, his scan showed significant growth in most of his tumors. So while his doctor never suggested discontinuing HDIL2 might provide latent benefits overall, he does surmise it may provide a more hospitable environment for the anti-pd1 drug (and possibly other drugs).

    Strongmind--just to bring you up to speed--my husband, John, went through two cycles of HDIL2 in early 2012 but after two cycles (24 doses)the HDIL2 was discontinued. Guess it helps explain my excitement at your husband's success; I know how devastating it is to get the other envelope. Again, congratulations.
  • garym
    garym Member Posts: 1,647
    #8
    Texas_wedge said:

    Max Power
    ooʇ noʎ oʇ ɹǝʍodxɐɯ puɐ ʎɹɐƃ sʞuɐɥʇ

    Max Power
    Typing at night again I see...
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #9
    garym said:

    Max Power
    Typing at night again I see...

    Max Power
    True enough - I was still asleep.
    T. Keaton-West
  • garym
    garym Member Posts: 1,647
    #10
    Texas_wedge said:

    Max Power
    True enough - I was still asleep.
    T. Keaton-West

    T. Keaton-West???
    Do the dash be silent?
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #11
    garym said:

    T. Keaton-West???
    Do the dash be silent?

    T. Keaton-West
    No it don't be. Remember

    ɯɐpɐ puɐ lǝɐɥɔıɯ ?

Discussion Boards