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It has been 18 months
It has been 18 months since I had a radical nephrectomy. I have still been struggling with awful lower back and pain at removal site. Some clothes just are too much to stand some days. I exercise daily and a chiropractor helps sometimes. Sitting, standing, or lying down for too long makes moving excruciating. I get so…
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Sutent
Has anyone been on Sutent and how did it work for you? If so, what are your side effects? Where are your mets...bone,lung, etc.? My husband is hoping to start it soon and Sutent was recommended to him over Nexavar. Thank you for your help.
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It's a green light for PDL!!!
GREAT NEWS FROM MINNIE!!!! I qualified for the PDL trial and I am going to Nashville on Tuesday 10/16. Labs and scans on Tuesday, treatment on Thursday AND the protocol has changed! I can go home on Thursday and return in 3 weeks for another treatment! Hooray!
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Previous scans
The scans that I had two weeks ago from my mdx 1106 / sutent trial finally received the % of shrinkage. The overall shrinkage of my tumors was 12 % over the first 6 weeks. It took over 2 weeks to get the results. Such a blessing!!
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Anyone in PDL or MDX or BMS trials at Sloans in NYC?
Hello, i am looking for anyone currently in a trial there for this drug. I am hard pressed to find any information and having trouble getting an appt. to get in. Can anyone share any details with me? Thanking you in advance. Angela
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Somedays you eat the bear and somedays the bear eats you
I was diagnosed with my kidney tumor back in November. About the same time two fellow firemen from other departments in the same state were also diagnosed with RCC. I had a partial nephrectomy, another guy had full nephrectomy and the third fellow passed away last week. I don't know how things happen or why. I have spent…
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8 weeks post OP
HI !!! I have a ton of questions ! I am a 40 yr old female 8 weeks post op for Left partial RCC T1G2 clear cell no sarcamoid feature tumor. What do you suggest be a normal follow up schedule for imaging. My urologist suggests ultrasound at 6 mo then CT scan yearly for 5 years with ultrasound every 6mo. I dont want to start…
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Newbie trying to get treatment
I'm having a lung problem and my pulmonary dr orders a CT scan 9/14 that shows 10cm mass on my kidney. So he says need to get that addressed asap. Okay, so I make appt and wait 2 weeks to see dr @ UPMC. Says he'll get back to me and another week has passed and I can't get past the secretary. Okay, so I call Cleveland and…
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Does Radiation Treatment stop the pain?
My mom was diagnosed with RCC stage IV at the end of Feb. Then, about 4 weeks ago she had her kidney removed. Just before her kidney surgery her left leg was hurting and it continued to worsen. Last week we took her to her orthopedic surgeon, who had put a pin in her femur in 2008 after a fall. He found that the RCC was in…
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An Informative Article on Chemotherapy, Curative or Pallitive?
http://health.yahoo.net/news/s/nm/cancer-patients-may-misunderstand-goal-of-chemo
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if you have a hard time posting
Something you veterans probably already know: Sometimes it takes a minute for your posting to get posted, you just have to wait. But occasionally it never clears. If your posting takes forever to act - if selecting "Post Comment" simply stays on that page forever - just select Preview Comment to get out of the loop and go…
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Side Effects Threads
Hey Kids, Max Power mentioned that it would be great if doctors would give us a better idea of what side effects we might expect from various medications, so we don't have to Google everything to find out what's going on. Well today I was interested in learning more about splinter hemorrhages and why they form with…
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Well, I lost a week of my life.....
Hey all. So you may remember that I went for il-2 therapy a couple weeks ago. All was going well, and I just about finished the treatment. But towards the end, my blood pressure began to dip dangerously low. I had to be intubated and therein begins my week from hell. Pretty sure I don't know what happened, or why. I do…
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Anyone with transitional cell cancer of kidney?? Help!
My father was just diagnosed last week with transitional cell carcinoma of the renal pelvis that has metastasized to the liver. He starts chemotherapy today. Would like to hear from anyone who has experienced this. Thank you.
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Votrient side effects
My wife was surprised to be diagnosed 10 weeks ago with Renal Cell Carcinoma that starting with a CT scan for her back problems. After a diagnosis in Houston She had her left kidney, left adrenal gland, lymph nodes and a mass in her abdomen removed, she also has multiple spots on each lung. After a six week recovery from…
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3 month post-op scan reports, need help
Here i'm talking about my relative. He was diagnosed with clear cell RCC 4.8cm in size, all margins clear, stage 1, grade 2 in right kidney. He had radical naph. 3 months ago. Now after 3 months when he had x ray and other scans, the x ray discovered a small "spot" in lungs which is 2mm in size and they describe it as…
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Mdx 1106/ sutent trial 6 week scan results
FINALLY, some positive news!!! My scans were yesterday and my lung mets have decreased in size. I am so excited, it wasn't a remarkable decrease but I will sure tale it. My 1 mass was 4.7 x 3.6 and is now 3.9 x 3.1 and the other major one was 2.1 x 3.6 and now is 2.1 x 3.3 and my leg tumor was unchanged. God has been good…
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Not Diagnosed Yet..Keeping Fingers Crossed
Hi Guys, I have been on here before and you've all been such great help! I really appreciate it. I had a small complex mass that was found on my kidney by accident and we were monitoring it. My GP wanted to repeat the US in another 3-6 months to check for growth. I requested that we push it out 6 months (February), since…
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Had a Zometa infusion yesterday
I was planning a wonderful relaxing kayak trip down the Chattahoochee River yesterday. The oncologist's office called as we were getting ready to go. After covering myself with suntan lotion and bug spray, I had to shorten the trip and had to hoof it to the oncologist's office yesterday afternoon to get an infusion of…
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15th infusion
Wow! I never thought I would make it to get #1. Now up to 15! Well, I had that infusion today. Also got my latest scan results. 2 remaining node tumors are stable. 2 months in a row. They must be trying to grow but can't. Thumbs up. 2 bone mets appear bigger, but are probably all swollen and beat up from the radiation.…
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AGENT ORANGE
My husband died this year in May, they had first found is kidney cancer in 2008 in removed his left kidney, but it came back and speaded. He served as a carrier in oki.I also had left kidney cancer abd had mine emoved in 2007. We was to;d that we had tp be explosed to something. My youngest son was bon with Poland syndome…
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Petechiae
Good day my friends, I awoke this morning (great news) and noted that I had Petechiae across my lower abdomen. I am not on any blood thinners, blood pressure or cardiace related drugs. I have been on low dose Cipralex for pre-surgery anxiety. Just wondering if anyone has had any issues with Petchiae related to kidney…
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stage IV papillary non-clear cell kidney cancer
Still alive since Jan 2010 diagnosis of stage IV non clear cell kidney cancer a metatasized to lymph glands. Entered a clinical trial, sutent vs evrolimus. Sutent only worked for 6 months before tumor started to increase. Have been on evrolimus since fall of 2010 (17 rounds). Edema lympodema and diabetis has set in but 60…
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Test(s) news
Saw my oncology nurse this morning. I've been recertified for another three months, with no more tests (other than labs) for 6 months. Kind of makes me feel like a fire extinquisher-they check and retag them yearly and they have to be inspected and marked every month. There were no changes in everything that was CT…
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radiation
Well,I finished my radiation series today. 5 sessions on a rib, and 3 steriotactic sessions on my t6 vertebrae. I felt nothing from my rib. But my spine ached quite a bit for a day or two after each session. Percs have been very helpful. Doc told me that radiation fatigue would hit me big time. I just have felt a little…
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new flank pain 12 yrs out
Hello all, I had my left kidney remove via laproscopic surgery in 2000 at age 30, stage 1-2 RCC. Over the years since the surgery, from time to time, but not often, I have had some dull pain in the flank area where the kidney was removed. The past 6 or 8 weeks the pain is more frequent especially after a phisically active…
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What is safest treatment for 80 year old?
Any 80 year olds on any of the treatment for RCC? Just wondering what is more tolerable. I know everyone reacts differently but am wondering if there are any experiences out there...
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Application submitted for new drug approval
This is quite interesting.... http://www.oncologynurseadvisor.com/nda-submitted-for-tivozanib-for-advanced-renal-cell-carcinoma/article/261212/
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Follow up with oncologist and a question about pain.
Hello everyone, My husband just had his bi-weekly visit with his oncologist and research nurse. Some background: He had his left kidney and part of his bowel removed last December. He has three hilar lymph nodes that are affected and the lymph node on his neck has a 5 cm tumor on it. He is currently on his 9th cycle of…
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Happy Friday...
Burma Shave REMEMBER THESE ? ? ? > > For those who never saw any of the Burma Shave signs, here is a quick lesson in our history > of the 1930's, 40s, and '50's. Before there were interstates, > when everyone drove the old 2 lane roads, > Burma Shave signs would be posted all over the countryside in farmers' fields. > They…