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Scan #2 results: N.E.D.
I am both celebrating and giving thanks tonight. I am blessed. I meet with my surgeon, Friday. I suspect he will put me on a 6 month schedule for scans. Many thanks to all "club" members for the kind words of encouragement and prayers. Love to all, Izzy
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On being back
hey all, it's good to be back, and I have missed you. i tried to convince myself that cancer wasn't really mine. I tried to bury the fear and uncertainty, get lost in work. i even tried to convince myself that chromophobe RCC was no big deal, cut it out and move on already. didnt work. i apologize for bailing. I won't…
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Here I go again!
Hi All, Cyber knife treatments are all done, just waiting for the hair to fall out now. Promised grandkids drawings on Mawmaws head available soon. MRI was wonderful, no more mets in the brain! But, having pain in right leg hoping and praying no bone problems. Cat Scan scheduled for 12/31 and we are hoping and praying for…
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dissecting CT
Hey y'all, I received my CT report in the mail today. I don't go back to my oncologist for 3 months, at which time, I guess he'll discuss these findings with me. Until then, I'm left to interprate them on my own, with the help of google, of course. And hopefully, y'all. The CT Chest Impression is negative for thoracic…
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Leather Goods/ Vinyl / Textiles (Bikers?) Carcinogenics
Hi, I was doing some internet reseach and read that certain chemicals used in the manufacturing of Leather Goods and Textiles can be carcinogenic and can be associated with Kidney Cancer. I also noticed that a few of the members here might be bikers as in motorcycle riders. My Father both have been diagnosed with Kidney…
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I am surprisingly calm as I wait for my scans
Hi, Today starts the Fan 2014 Scanathon for me. I have already been pokes, probing comes next. And tomorrow, I glow. Thurs, the results. I am surprisingly calm. I have some things I am concerned about -- wierd abdominal pains and swolen lymph node, but I will have answers. And if they are not glowing things (on the PET), I…
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Renal Pelvis Freaking Out Again...
I just read the paper work I got from urologist. So far I only saw a Urologist who refered me to a surgeon after he got my songram. It said malignant renal pelvis. So I googled that and I saw that it is very rare and I stopped reading because I'm so freaked out my eye is twitching. I haven't gotten approval for the CT scan…
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Diagnosed This Week by Sonogram
Hi, I had an MRI for back pain and a renal cyst was discovered. I had a sonogram and was referred to a urologist who told me this Thursday he was pretty sure it was cancer. It was described as a Bosniak III 3cm cyst on my lefy kidney. He referred me to a surgeon and I'm waiting to get insurance approval for an CT scan with…
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First post--long wait for PET scan results
After a couple of years of seeing my PCP for diabetes, weight loss, anemia, I finally got a CT scan in August of 2013 where a 10 cm tumor on my right kidney was found. Also got a negative bone scan before surgery. Radical nephrectomy on 9/13/13. Recovery has been pretty good. Went back to work after the govt shutdown ended…
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Stewart is gone!!
Stewart is gone!! Surgery went well. Docs were able to remove tumor without taking any of the kidney because it was "laying" on the back of the kidney, they told me they got it all, so I hope they are right. I have 6 incisions, one is giving me grief that is by my hip bone but taking pain meds is helping. Getting stronger…
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Dealing with pain med addiction post treatment
Hey Y'all, I'm not expecting many public replies to this request for help since these boards are "google searchable" but I'd love some email responses... I'm 2 yrs out from a partial nephrectomy on my right kidney from a stage 2 clear cell RCC. I've had other surgeries and back issues. I'm in a 12 step program and am…
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Tired and concerned
I had a gallbladder attack on 11-13-13 and a CT was done where they found a very large Right kidney mass (ended up being 12.5 cm). So I had and open cholesctomy and radical nephrectomy with embolization of the mass prior to surgery. The mass was into my vena cava which was resected also. This was done on 11-21-13. I have…
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Maybe TMI, but it's beginning to be a problem.
First of all, I'm 8 months out from surgery and the right kidney area (where there is nothing anymore) is still kind of "bulgy" and tender. That I can deal with...don't like it but I can deal with it. What I can't deal with is the persistent gas that I have and have had since the surgery! I mean, it's BAD! If I get up from…
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Not the Christmas Gift I was expecting from Santa!!
I was admitted into hospital yesterday for severe abdominal pain, this culminated my having a scan with contrast. I had only just had my six month scan back in September, which showed a clear result on my kidney. Anyway! yesterday they were unable to determine the cause of the pain but they did discover a new 1.7 cm tumour…
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New Year and scared
I've been checking in on this site since June, when my father was first diagnosed with RCC, which (according to the spread of it) seems to be stage IV (no one ever outwardly told us). He was told he had an 11cm tumor on his right kidney, and also found out the cancer had spread to his lungs, brain, lymph-nodes, and adrenal…
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Still having incision pain
Today I am 3 weeks post op from my Right open radical nephrectomy. My incision is very large because of the size of my tumor. The incision extends from a few inches below the arm pit starting with where the chest tube was inserted, across my rib cage to below my sternum, and down to the belly button. I am still having a…
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Cancer cells can be killed in blood before reaching healthy organs
FYI http://www.telegraph.co.uk/science/science-news/10553921/Cancer-cells-can-be-killed-in-blood-before-reaching-healthy-organs.html
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pain is back
hello everyone ,well its been 3 months since my surgery.everything was healing well ,felt ready to go back to work after my blood work and ct scan in next two weeks,when out of the blue my stomach on the side of my incision started to hurt again almost as much as right after surgery.I have to hold my chest when i cough and…
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Answers anyone?
I had my left kidney removed 11 months ago. (T2b) grade 4. I also had hypercalcemia. I'm a 38 year old female. At my 3 month follow up CT there was a lump? On one of my overies but ultrasound results said it was gone. Just had another CT and now it's showing a cyst/lesion on my spleen. So waiting for appointment for…
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I am tired of cancer....pain even though I am NED (at least to next week's scans)
I am not sure if this is just me psychologyically preparing myself for bad news next week, or if this is a long term problem. I am in a lot of pain...19 months post nephrectomy, deep under the scar hurts. And the ribs around there hurt. And where the chest tube was after the Met was removed hurts...and neuropathic pain,…
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Surgery went well home now
sorry for the delay in posting. No computer. Surgery was 30th 3 hours all lap incisions YEAH!! Had some fun hallucinations and confusion with all pain meds. Having no pain. But can never take my anti inflammatory for my multiple sclerosis again. Seems one kidney cannot handle such a drug. This could affect my future…
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Pre-surgery lab
I go in tomorrow for my pre-surgery lab. It is finally sinking in and feeling real. I go for surgery next Wednesday for them to remove however much they need to take of my right kidney. I have searched countless sites on the web for information & have gotten a wealth of information from you. I feel as ready as I am going…
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Caregiver - Husband diagnosed stage 4 clear cell RCC
My husband was diagnosed in March of this year with Stage 4 clear cell RCC. He had 2 rounds of Sutent which worked some on round 1one. He had a radical nephrectomy in July to remove the tumor, kidney and ended up taking his spleen, part of his diaphram, almost half of his pancreas -- Now he is undergoing IL2 for the…
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Everest Trial - Who is on it? How long? What side effects have you had?
I'm nearing the end of this study. Next week I have my blood tested (for the 9th or 10th time), then I have 1 more 6-week period on the drug, then the final CT and blood test and go off the drug. I'm pretty sure I was on the drug and not the placebo. At least I hope I was, since I haven't felt great this year. It hasn't…
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CT scan report
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
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Mother in Law and a complex cyst
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
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Overwhelmed
This is my first post and I'm not sure where to start. I hurt my back at work 6 months ago and on MRI they found what they thought was a kidney cyst. Doctor said to recheck in 6 months. I did, sono showed it has grown and suggested a CT. I had CT done which suggested to see a Urologist and that it was solid, possibly renal…
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Post surgical abscess
Just found this site, which is great since its hard to discuss some things with friends and family, as you all know. Just recently had surgery on Nov. 18th, Radical Nephrectomy left side due to a 4cm tumor. Had to remove the entire kidney due to the location of the tumor. Two weeks after surgery I wasnt recovering as…
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Post surgery - lost/confused
I learned about my renal cell kidney cancer on Monday, November 25, 2013. I had experienced symptoms (anemia, fatigue, fever, chills, night sweats, 30lb weight loss, loss of color to skin) over the past year and a half. After several months of blood tests with no change in iron or hemoglobin, my internist referred me to a…
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Happy Ending
I must be quick here. Baby is asleep in the Jeep. Not to worry, I'm with him, sitting in the driveway as, he was asleep upon returning from errands. Besides, it's a beautiful day here in the Oklahoma City burbs! Window cracked and Dr Hook on the radio...what a life, huh? To be two again!! Anyway, finally spoke to…