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New calcifications
Hello- I am new to this forum. I am 47 year old woman. Non smoker and not extremely overweight (I could lose 20 lbs). I just had a partial nephectomy to remove a 3cm tumor on my left kidney. The surgery was 3 months ago. I was told it was rcc and needed to come for regular follow up ultrasounds to be on safe side. They…
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Is this what I should be expecting?
I have a generalized anxiety disorder and I have always been afraid of doctors. So much so that for all of my adult life I never saw one, about to turn 45 by the way. Recently my girlfriend gave me an ultimatum to get help for my anxiety or we were through. I love this woman with every fiber of my being so fought with…
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6 weeks scan results... Chuck is involved in the Anti PD1-IPI trail GOOD NEWS :D
Chucks scan result were read to me over the phone this morning...He had his 3rd infusion of the combo of drugs Tuesday and scans Thursday.. Some of the Tumors in his Lungs are completely gone or have resolved as they say... the other have had significant shrinkage...His liver Tumor has shrunk by OVER half... the lymphnodes…
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Nivolumab side effects, efficacy
My wife recently started on a clinical trial with nivolumab. So thankful and excited about the trial but I wanted to solicit the experience of others. My town main questions are: 1) What side effects have you experienced? 2) What was the time course of being on the drug? When was the first scan? Did your scan show tumor…
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Wording in reports
I was looking at my radiologsts report from my scans. Instead of no evidence of disease, the wording was no definititve evidence of metastatic disease. Is that the same as NED? I can not really ask the Doctor, because I have been kicked out of the NIH research study. (I tried, and was told (by the fellow to follow up with…
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Weird scan results. Any input before operation would be great!
I recently had a CT with contrast where they noticed a few enlarged mesenteric lymph nodes. Has anyone encountered this? Now they are wanting to do a biopsy, via an excision. Meaning major surgery again and of course Scanxiety to the max. =(7 HISTORY: Chromophobe RCC 10cm Open nephrectomy, left kidney removed in it's…
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Yesterday was great !
I got my scans yesterday at Cleveland Clinic . All clear ! Nivolumab continues to kick cancers butt . I also got my 36th infusion . After more than two years on this treatment the very few mild side effects which I might once have experienced have faded away completely . The only side effects I ever had were a little…
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first scan after operation
I had my first ct scan/blood work yesterday and all was well NED. Now its going to be every 6 months.
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newbie looking for help
Hello to everyone on here. My Dad was diagnosed on June 25, 2013 with stage 4 RCC, on July 9 we has a appointment for treatment options. To make a long story short, we got a apology tour , tort reform and apology letter. We did not meet with Doctors but with administration. They told us that his scans they did 2 years ago…
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Path report
Path report showed oncocytoma. Getting stronger every day! I want to thank each of you for your support and wisdom when my world was spinning. I wish you all health and every happiness, you deserve it!!
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HYALURONAN
I HAVE BEEN SCHEDULED TO GET INJECTIONS OF HYALURONAN ACID IN MY KNEES...A TOTAL OF THREE INJECTIONS FOR EACH KNEE. i AM 60 YEARS OLD HAD MY KIDNEY REMOVED IN 2008 FROM RCC...A LAPROSCOPIC NEPHRECTOMY WITH HAND ASSIST. IT WAS GRADE 2 ABOUT 8 CM ( MAYBE MM NOT SURE OF THIS MEASURING SYSTEM) ABOUT THE SIZE OF A PLUM. NO…
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Kidney Cancer Patient and Survivors Conference in Los Angeles Saturday, February 22, 2014
I'll try and post the speakers/topics soon. It will be from 8am-2pm at the following location: Cedars-Sinai Medical Center Harvey Morse Conference Center 8700 Beverly Blvd West Hollywood, CA 90048 If you message me privately, I'll send you a picture of the agenda via email if you like. It includes speakers from Cedars…
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I'll take it!
Scans today. A few stable mets. The rest are gone or going. I am a fortunate guy. 18 months of nivolumab and 4 rounds of Il-2. Still getting zometa. Next scan in 3 months. Damn! Is life good or what? This means that about 90% of my cancer has disappeared in the last couple years. AWESOME! AWESOME! AWESOME! How long can…
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1st CT scheduled in about a year... am apprehensive
Hey everybody, diagnosis- Stage 2 RCC- 10/01/2011 partial neprhectomy - 11/09/2011 Pathology - Malignant Non invasive, Not metastised 11/30/2011 I know I'm brand new to these boards, but I wanted to post that I'm going in for a check-up CT /with contrast of Pelvic,Abdomen, and Chest on Thursday 01.09.2014. at Virginia…
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Is a brain scan (or some test) part of a normal work-up for all patients who have follow-up scans?
I am totally in the dark about this topic and I was wondering if someone could inform me. My husband is Stage 4 with mets to bones. Sometimes I read on here where someone has had mets to the brain and is undergoing radiation. What I would like to know is how are brain mets found? What test is used? Is it part of the…
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Radiation Exposure - How much is too much?
I was wondering if anyone tries to keep track of all their radiation exposure? One of the things that bothers me, is that there is no central "person" or "doctor" or anyone really keeping track of how much radiation I'm being exposed to. Each doctor makes a decision to perform a CT or MRI in isolation, without having…
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Scan #2 results: N.E.D.
I am both celebrating and giving thanks tonight. I am blessed. I meet with my surgeon, Friday. I suspect he will put me on a 6 month schedule for scans. Many thanks to all "club" members for the kind words of encouragement and prayers. Love to all, Izzy
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On being back
hey all, it's good to be back, and I have missed you. i tried to convince myself that cancer wasn't really mine. I tried to bury the fear and uncertainty, get lost in work. i even tried to convince myself that chromophobe RCC was no big deal, cut it out and move on already. didnt work. i apologize for bailing. I won't…
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Here I go again!
Hi All, Cyber knife treatments are all done, just waiting for the hair to fall out now. Promised grandkids drawings on Mawmaws head available soon. MRI was wonderful, no more mets in the brain! But, having pain in right leg hoping and praying no bone problems. Cat Scan scheduled for 12/31 and we are hoping and praying for…
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dissecting CT
Hey y'all, I received my CT report in the mail today. I don't go back to my oncologist for 3 months, at which time, I guess he'll discuss these findings with me. Until then, I'm left to interprate them on my own, with the help of google, of course. And hopefully, y'all. The CT Chest Impression is negative for thoracic…
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Leather Goods/ Vinyl / Textiles (Bikers?) Carcinogenics
Hi, I was doing some internet reseach and read that certain chemicals used in the manufacturing of Leather Goods and Textiles can be carcinogenic and can be associated with Kidney Cancer. I also noticed that a few of the members here might be bikers as in motorcycle riders. My Father both have been diagnosed with Kidney…
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I am surprisingly calm as I wait for my scans
Hi, Today starts the Fan 2014 Scanathon for me. I have already been pokes, probing comes next. And tomorrow, I glow. Thurs, the results. I am surprisingly calm. I have some things I am concerned about -- wierd abdominal pains and swolen lymph node, but I will have answers. And if they are not glowing things (on the PET), I…
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Renal Pelvis Freaking Out Again...
I just read the paper work I got from urologist. So far I only saw a Urologist who refered me to a surgeon after he got my songram. It said malignant renal pelvis. So I googled that and I saw that it is very rare and I stopped reading because I'm so freaked out my eye is twitching. I haven't gotten approval for the CT scan…
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Diagnosed This Week by Sonogram
Hi, I had an MRI for back pain and a renal cyst was discovered. I had a sonogram and was referred to a urologist who told me this Thursday he was pretty sure it was cancer. It was described as a Bosniak III 3cm cyst on my lefy kidney. He referred me to a surgeon and I'm waiting to get insurance approval for an CT scan with…
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First post--long wait for PET scan results
After a couple of years of seeing my PCP for diabetes, weight loss, anemia, I finally got a CT scan in August of 2013 where a 10 cm tumor on my right kidney was found. Also got a negative bone scan before surgery. Radical nephrectomy on 9/13/13. Recovery has been pretty good. Went back to work after the govt shutdown ended…
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Stewart is gone!!
Stewart is gone!! Surgery went well. Docs were able to remove tumor without taking any of the kidney because it was "laying" on the back of the kidney, they told me they got it all, so I hope they are right. I have 6 incisions, one is giving me grief that is by my hip bone but taking pain meds is helping. Getting stronger…
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Dealing with pain med addiction post treatment
Hey Y'all, I'm not expecting many public replies to this request for help since these boards are "google searchable" but I'd love some email responses... I'm 2 yrs out from a partial nephrectomy on my right kidney from a stage 2 clear cell RCC. I've had other surgeries and back issues. I'm in a 12 step program and am…
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Tired and concerned
I had a gallbladder attack on 11-13-13 and a CT was done where they found a very large Right kidney mass (ended up being 12.5 cm). So I had and open cholesctomy and radical nephrectomy with embolization of the mass prior to surgery. The mass was into my vena cava which was resected also. This was done on 11-21-13. I have…
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Maybe TMI, but it's beginning to be a problem.
First of all, I'm 8 months out from surgery and the right kidney area (where there is nothing anymore) is still kind of "bulgy" and tender. That I can deal with...don't like it but I can deal with it. What I can't deal with is the persistent gas that I have and have had since the surgery! I mean, it's BAD! If I get up from…