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Primary Kidney Cancer - now primary lung cancer
Hi I am back from the stint in the hospital where they removed a lung nodule (I had the left kidney out in September). They took the nodule from my lung out and it's also primary lung cancer - not kidney cancer spread to the lungs. Is this survivable - the lung cancer is very small and it's stage 1. I have to have a right…
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Informal survey
there have been a few on this board who have gotten bad news from their check-ups lately. my husband is now scheduled for his scans, including another bone scan to rule out any progression from a slight neck rotation issue. my question is whether those who got news of progression, either recently or earlier, had any hint…
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Insurance considerations.
Since my family is just in the beginning stage looking for systemic RCC treatment I am wondering if we are going to come across issues with insurance. And i know all insurance is different, but I am curious if any roadblocks with insurance were a problem for anyone here. My dad has medicare and anthem (don't know the…
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Numerous lung nodules - Anyone else have experience with this?
Hello Everyone, I am new here. My dad was diagnosed with clear cell RCC in November 2013 and had a radical nephrectomy. He is in his late 60s. Primary tumor was quite large ~13cm though thought to be encapsulated in the kidney. We are now 3 months out and had a follow up CT scan which revealed metastatic disease to the…
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Survey: Partial Laporscopic Nephrectomey for small Tumor
Hi, How long do you think it will be before I could return to work? If anyone had a simillar procedure and would care to share their recovery experience, I would really appreciate it. Thanks! Diana
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Hi de Hi Campers!
It has been a little while since I posted! I had a biopsy some weeks ago which confirmed what everyone with half a brain suspected, the cancer had spread. The doctors are concerned about the rapid growth in just a matter of months, also the spread of cancer to my lymph. The consensus of opinion is that this is very rare, I…
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Change of pace
I was thinking... No Thaxter, the smoke is not from the MJ... I was thinking. Cancer sure does change us. The shock. The panic. The praying and deal making. The acceptance. The short term plans vs. long term plans. At first I dealt with the diagnosis and surgery pretty easily. I expected to get better. No big deal. 6…
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Our annual survivor trip
Eleven years ago last August I had just got out of the hospital from my neph. and my my wife thought we should go on a Carribean cruise in January to celebrate my recovery and the fact that I had not checked out (she really thought I might check out soon in the begining). The C word was a lot more scary to me then, than it…
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Diet and medications after radical nephrectomy
Hi everyone. My mom has had a radical left nephrectomy done just under 3 weeks ago. I asked the doctors and nurses if there is a specific diet that she has to follow and they said no (Except low sugar, she is borderline type 2 diabetic with a hba1c of 7.2, diet controlled). I was very surprised to hear that she can be on a…
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Rollercoaster Ride
This cancer stuff is taking me for a ride. I have battled tongue cancer for almost 20 yrs (10 surguries mostly outpatient except 2) and never smoked or chewed. 3 surguries from Dec 2011 to Jan 2012 led me to explore radiation and had PET scan which showed my mouth clean but my left kidney was cancerous. Adios to left…
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Ron!
How was your first official day of retirement? Hugs, Jojo
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newly diagnosed on 1/28/14
Hello, Everyone So I was diagnosed with type 1 papillary renal cell carcinoma in my left lower pole. They are going to do a robotic laparoscopic partial nephrectomy on 2/12. I feel very comfortable with this. My problem is this. This past July I was admitted in the hospital for over 2 weeks for E Coli 157, which is a…
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ms and rcc, all dx'd since november
hey everyone! i got here incidentally.. went to a chiro in august for my back pain that i thought was causing my little finger numbness..he sent me (via my pcp) to have an MRI...got referred to a neurologist specializing in MS when a big spinal lesion was found...he had another mri done which located a brain lesion…
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Newbie: Ipilumaab and Nivolumab
I am a newbie to this site but unfortunately not a newbie to cancer. Up until about 3 months ago I proudly stated that I was a three (3) time cancer survivor. I had Skin cancer in 2006 with surgery to remove a chunk of my chest. Kidney cancer in early 2008 with surgery to remove left kidney and renal gland, followed up…
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dancing with ned
Well got the great news for my first 3 month scan and blood work.Ned came a calling and everything is great ,hope everyone is well out there.3 month scan again inapril ,can relax til then. Thanks everone for your support. Brian
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Views from 2 survivors
Today, I had brunch with my dearest friend, who recently underwent a double mastectomy. The doctor had been monitoring something on one side and then found the tumor on the other. She's still experiencing post surgical "problems" that time should resolve. We agreed that perhaps our age, and the life threatening diagnoses…
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IV Contrast
I know this topic has been discussed 'ad nauseum' but sometimes it's good to bring things back in view for newbies. I've been doing a 1/2 dose [ 50ML ] instead of the normal 100ML dose of IV Contrast 'I think' - On my 1st scan, post-surgery I took N-acetylcysteine but it's hard to find. Now just hydrate very well. I've…
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CBD or Hemp Oil
A guitar playing friend of mine on a discussion group who is also an MD suggested that I discuss taking CBD--a non-psychoactive derivative of hemp--because of it's promise in fighting cancer, pain, and nausea. It's legal in all 50 states apparently and is sold online as oil or gum. Anyone here have any experience--first or…
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HD IL-2 scheduled for February
So my first treatment since my September nephrectomy will be HD IL2 at UVa's Emily Couric Cancer Center. My doc was a pioneer in this procedure and this center does several patients every week so I was glad to hear that I'm getting an experienced team. I've got four or five small lung mets (largest 1 cm) to deal with. Feb…
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Hyponatremia .
I have hyponatremia which translates to low serum sodium levels . Normal is 135-145 . Mine is around 125 - 126 . In order to keep my sodium levels up I have to include a truly large amount of salt in my diet . In order to achive a level above 130 I have to eat on the order of 16,000 mg of sodium . After consumning that…
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Both Kidneys?
Hi, Does anyone here have issues in both kidneys? I was feeling good when I was told the CT scan indicated a 1.6 cm BosniakIII cyst on outside of R kidney that should come off and that a 2.6 cm BosniakII cyst in the middle of my L kidney didn't look worrisome but after processing all of this I'm feeling really concerned…
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Roseann Rosannadanna
For you SNL fans of way back, "If it's not one thing, it's another." I'm back to a waiting game, again. My PC received the results of my last CT, which found a polyp in my stomach. I see the PC on Friday to discuss all the fun we'll have doing a gastroscopy and a colonoscopy. The tests aren't bad, it's the exciting time…
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3rd time - Stage 4 in 2007
Hi all, I am new to this forum. I was on another forum off and on since 2007 but I can't find it anymore and am so glad to find this one! Short version of my story: June 2007 - 15.5cm RCC RIGHT kidney. / 1.5cm mets to right lung. Age 49. Both resected (radical nephrectomy) at Lankenau Hospital in suburban Philadelphia.…
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Headache
Does anyone have any ideas on how to get rid of a headache I've had for over a month now? It's not bad, and not constant, but keeps nudging me every. single. day. and. night. I've taken Tramadol every day, sometimes 2-3 times a day and the danged thing won't go away. I have several spots that are sore to touch now on my…
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Good News (I think)
I had my CT Scan with contrast today and took the results to the doctor. Aparently the 3cm complex cyst they saw on my Left Kidney is a Bosniak II and he says I should just moniotor it. They found another cyst on my Right Kidney. This was concerning to me but the doctor said it was small but a Bosniak III and should come…
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Some good news!
In the early hours of May 1, 2012, (4:45 AM), the ER physician told me that there was a large mass on my kidney, and it was probably cancer. About 3 hours later, one of my neighbors picked up her 18 month old, and felt something in her belly, which turned out to be neuroblastoma. At least I am old enough to understand what…
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Some of us are pushy
Hi All.. just saw this article on SP and thought it would be good to share it here as well. Did you know we Americans are pushy..?? http://news.uk.msn.com/uk/patients-must-be-more-pushy-2#tscptme Ron
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CVS Fired me for being "sick" :(
CVS corporate in Woonsocket, RI fired me from my IT specialist position, and told me I was welcome to come back when I was healthy. They told me that they had not been informed of any health issues before they hired me, and that they were not willing to work with me in my "current condition". Though I scheduled my surgery…
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PET scan results show lung mets
I had my first post surgery scan on 1/16 but didn't see the doc until today. I have four or five small nodules. Largest in one lung is 7-8 mm and in the other 10 mm. My oncologist has referred me to a Dr. Weiss at the Emily Couric Cancer Center at UVA hospital for possible IL-2 treatment. He described it as two five day…
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Has anyone heard anything from Djinnie?
I know she was doing some biopsies and such, but haven't seen her on the forum at all. Anyone know anything? Jojo