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Spousal scanxiety
it's that time again; my husband is going in for scans and his second follow-up visit; he's feeling good, gaining weight and muscle tone but has a minor (nothing minor with stage 4) neck issue. he feels a muscle pull when turning his head on both sides of his neck; So, another bone scan is scheduled. he will have an MRI to…
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Sutent
Hi All, My husband is 50 years old and was diagnosed with Kidney Cancer and mets to his lung and brain. Is is currently having radiation on the whole brain and is on Sutent 50mg for the kidney and lung. He has only 5 days of sutent left of his first cycle, and 1 week left of whole brain radiation. He is experiencing a very…
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Rcc Stage t1a grade3.
Just returned from hospital and terrified.
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a change in scan schedule
Having mixed emotions. I met with oncologist yesterday to discuss the results of my early January CT's. Initially doc said he wanted me scanned every 6 months. Yesterday, he changed it to every 3 months. According to him, the enlarged lymph node in my lungs is not too worrisome and the 1.5 cm spenule, aka accessory spleen,…
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RIP Texas_Wedge
I was informed last night that Mr. Wedge is no longer with us. I'm not on the site as much as I used to be. I wanted to personally thank him for his bravery and personal support the past 18+ months. I'm sorry we never got to play golf together, that would have been fun. I will play in Scotland one day in your honor, my…
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Chromophobe RCC and Upcoming Cedars Sinai Conference
Hello everyone, I have been lurking for a while, trying to decide if it was a good idea or a bad idea to join and connect online with others. Well, here I am. My 47 year old husband had a radical nephrectomy (and adrenal gland removed) in October for what turned out to be stage three chromophobe renal carcinoma. His tumor…
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Presurgical Testing Monday
I have my presurgical testing scheduled for Monday and reality is starting to set in. Sometimes I'm calm, sometimes I'm scared. My husband has been acting like this is no big deal. Well, not for him! I'm feeling blue again. My sister in law had a laporoscopic surgery to remove a dermoid tumor from her ovary. I went to see…
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something my doctor said
Something I read on someone else's post caused me to have a flashback, so to speak, and I remembered something my doctor told me during my surgery consult. It kinda went in one ear and out the other, I guess because I had so much info coming at me. At any rate, once I had this flashback, I referred to my medical records to…
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CAT or PET?
During the Super Bowl I was visiting with a friend who was formerly a Xray Technician. He had not heard about my RCC, so as I was filling him in on the details I mentioned that I have my first scan since my surgery coming up. He asked if it was a PET scan, and I replied that as far as I was aware it was just a CAT scan. He…
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Primary Kidney Cancer - now primary lung cancer
Hi I am back from the stint in the hospital where they removed a lung nodule (I had the left kidney out in September). They took the nodule from my lung out and it's also primary lung cancer - not kidney cancer spread to the lungs. Is this survivable - the lung cancer is very small and it's stage 1. I have to have a right…
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Informal survey
there have been a few on this board who have gotten bad news from their check-ups lately. my husband is now scheduled for his scans, including another bone scan to rule out any progression from a slight neck rotation issue. my question is whether those who got news of progression, either recently or earlier, had any hint…
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Insurance considerations.
Since my family is just in the beginning stage looking for systemic RCC treatment I am wondering if we are going to come across issues with insurance. And i know all insurance is different, but I am curious if any roadblocks with insurance were a problem for anyone here. My dad has medicare and anthem (don't know the…
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Numerous lung nodules - Anyone else have experience with this?
Hello Everyone, I am new here. My dad was diagnosed with clear cell RCC in November 2013 and had a radical nephrectomy. He is in his late 60s. Primary tumor was quite large ~13cm though thought to be encapsulated in the kidney. We are now 3 months out and had a follow up CT scan which revealed metastatic disease to the…
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Survey: Partial Laporscopic Nephrectomey for small Tumor
Hi, How long do you think it will be before I could return to work? If anyone had a simillar procedure and would care to share their recovery experience, I would really appreciate it. Thanks! Diana
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Hi de Hi Campers!
It has been a little while since I posted! I had a biopsy some weeks ago which confirmed what everyone with half a brain suspected, the cancer had spread. The doctors are concerned about the rapid growth in just a matter of months, also the spread of cancer to my lymph. The consensus of opinion is that this is very rare, I…
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Change of pace
I was thinking... No Thaxter, the smoke is not from the MJ... I was thinking. Cancer sure does change us. The shock. The panic. The praying and deal making. The acceptance. The short term plans vs. long term plans. At first I dealt with the diagnosis and surgery pretty easily. I expected to get better. No big deal. 6…
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Our annual survivor trip
Eleven years ago last August I had just got out of the hospital from my neph. and my my wife thought we should go on a Carribean cruise in January to celebrate my recovery and the fact that I had not checked out (she really thought I might check out soon in the begining). The C word was a lot more scary to me then, than it…
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Diet and medications after radical nephrectomy
Hi everyone. My mom has had a radical left nephrectomy done just under 3 weeks ago. I asked the doctors and nurses if there is a specific diet that she has to follow and they said no (Except low sugar, she is borderline type 2 diabetic with a hba1c of 7.2, diet controlled). I was very surprised to hear that she can be on a…
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Rollercoaster Ride
This cancer stuff is taking me for a ride. I have battled tongue cancer for almost 20 yrs (10 surguries mostly outpatient except 2) and never smoked or chewed. 3 surguries from Dec 2011 to Jan 2012 led me to explore radiation and had PET scan which showed my mouth clean but my left kidney was cancerous. Adios to left…
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Ron!
How was your first official day of retirement? Hugs, Jojo
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newly diagnosed on 1/28/14
Hello, Everyone So I was diagnosed with type 1 papillary renal cell carcinoma in my left lower pole. They are going to do a robotic laparoscopic partial nephrectomy on 2/12. I feel very comfortable with this. My problem is this. This past July I was admitted in the hospital for over 2 weeks for E Coli 157, which is a…
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ms and rcc, all dx'd since november
hey everyone! i got here incidentally.. went to a chiro in august for my back pain that i thought was causing my little finger numbness..he sent me (via my pcp) to have an MRI...got referred to a neurologist specializing in MS when a big spinal lesion was found...he had another mri done which located a brain lesion…
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Newbie: Ipilumaab and Nivolumab
I am a newbie to this site but unfortunately not a newbie to cancer. Up until about 3 months ago I proudly stated that I was a three (3) time cancer survivor. I had Skin cancer in 2006 with surgery to remove a chunk of my chest. Kidney cancer in early 2008 with surgery to remove left kidney and renal gland, followed up…
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dancing with ned
Well got the great news for my first 3 month scan and blood work.Ned came a calling and everything is great ,hope everyone is well out there.3 month scan again inapril ,can relax til then. Thanks everone for your support. Brian
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Views from 2 survivors
Today, I had brunch with my dearest friend, who recently underwent a double mastectomy. The doctor had been monitoring something on one side and then found the tumor on the other. She's still experiencing post surgical "problems" that time should resolve. We agreed that perhaps our age, and the life threatening diagnoses…
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IV Contrast
I know this topic has been discussed 'ad nauseum' but sometimes it's good to bring things back in view for newbies. I've been doing a 1/2 dose [ 50ML ] instead of the normal 100ML dose of IV Contrast 'I think' - On my 1st scan, post-surgery I took N-acetylcysteine but it's hard to find. Now just hydrate very well. I've…
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CBD or Hemp Oil
A guitar playing friend of mine on a discussion group who is also an MD suggested that I discuss taking CBD--a non-psychoactive derivative of hemp--because of it's promise in fighting cancer, pain, and nausea. It's legal in all 50 states apparently and is sold online as oil or gum. Anyone here have any experience--first or…
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HD IL-2 scheduled for February
So my first treatment since my September nephrectomy will be HD IL2 at UVa's Emily Couric Cancer Center. My doc was a pioneer in this procedure and this center does several patients every week so I was glad to hear that I'm getting an experienced team. I've got four or five small lung mets (largest 1 cm) to deal with. Feb…
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Hyponatremia .
I have hyponatremia which translates to low serum sodium levels . Normal is 135-145 . Mine is around 125 - 126 . In order to keep my sodium levels up I have to include a truly large amount of salt in my diet . In order to achive a level above 130 I have to eat on the order of 16,000 mg of sodium . After consumning that…
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Both Kidneys?
Hi, Does anyone here have issues in both kidneys? I was feeling good when I was told the CT scan indicated a 1.6 cm BosniakIII cyst on outside of R kidney that should come off and that a 2.6 cm BosniakII cyst in the middle of my L kidney didn't look worrisome but after processing all of this I'm feeling really concerned…