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Kidney Cancer

Pre-surgery lab
I go in tomorrow for my pre-surgery lab. It is finally sinking in and feeling real. I go for surgery next Wednesday for them to remove however much they need to take of my right kidney. I have searched countless sites on the web for information & have gotten a wealth of information from you. I feel as ready as I am going…
Caregiver - Husband diagnosed stage 4 clear cell RCC
My husband was diagnosed in March of this year with Stage 4 clear cell RCC. He had 2 rounds of Sutent which worked some on round 1one. He had a radical nephrectomy in July to remove the tumor, kidney and ended up taking his spleen, part of his diaphram, almost half of his pancreas -- Now he is undergoing IL2 for the…
Everest Trial - Who is on it? How long? What side effects have you had?
I'm nearing the end of this study. Next week I have my blood tested (for the 9th or 10th time), then I have 1 more 6-week period on the drug, then the final CT and blood test and go off the drug. I'm pretty sure I was on the drug and not the placebo. At least I hope I was, since I haven't felt great this year. It hasn't…
CT scan report
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
Mother in Law and a complex cyst
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
Overwhelmed
This is my first post and I'm not sure where to start. I hurt my back at work 6 months ago and on MRI they found what they thought was a kidney cyst. Doctor said to recheck in 6 months. I did, sono showed it has grown and suggested a CT. I had CT done which suggested to see a Urologist and that it was solid, possibly renal…
Post surgical abscess
Just found this site, which is great since its hard to discuss some things with friends and family, as you all know. Just recently had surgery on Nov. 18th, Radical Nephrectomy left side due to a 4cm tumor. Had to remove the entire kidney due to the location of the tumor. Two weeks after surgery I wasnt recovering as…
Post surgery - lost/confused
I learned about my renal cell kidney cancer on Monday, November 25, 2013. I had experienced symptoms (anemia, fatigue, fever, chills, night sweats, 30lb weight loss, loss of color to skin) over the past year and a half. After several months of blood tests with no change in iron or hemoglobin, my internist referred me to a…
Happy Ending
I must be quick here. Baby is asleep in the Jeep. Not to worry, I'm with him, sitting in the driveway as, he was asleep upon returning from errands. Besides, it's a beautiful day here in the Oklahoma City burbs! Window cracked and Dr Hook on the radio...what a life, huh? To be two again!! Anyway, finally spoke to…
had 1st oncology appt today
Finally, seven months after neph, I saw an oncologist today. Tomorrow, I go for ct's of abdomin (he said he'd make sure the technician gets the lower lobes of my lungs as well) and pelvis. I couldn't be more pleased! He was something else, I tell ya. Very personable yet professional. He told me he'd have my results by…
Being an advocate for a parent who has kidney cancer
If I could get some help from an Urologist; my father was diagnosed back in the 2nd to 3rd week of Nov.2013 of 2 masses in one of his kidneys, and the surgeon does not appear to have any urgency with removing them, despite the fact that my father has been hospitalized for back and abdominal pain the last week of Nov. that…
real or imagined?
I went in for my scans today feeling good and confident. That faded real fast! Upon being taken back, the tech asked me if I'd ever had a reaction to contrast before and I told her I had not. I told her I was not suppose to have contrast today and she said yes you are, that's what the doctor ordered. So, I asked her to…
First post surgery scan next week.
Hello all. Hope all is well. I haven't been on here in a while, mostly due to a work schedule that was not favorable to spending a lot of time on the computer. It seems all I accomplished was going to work and then "passing out" in the recliner once i kicked my shoes off. Sometimes didn't have to remove the shoes. Anyhow,…
more and more test
Well since last post on here i have been sent to a onc who only takes care of bone cancer patients and he said on ct scans I brought with me he didnt see hardly anything to make me have all this pain in my hip. He said I surely was sore in all the hip area. THe hot spot on pet scan showed on iliac creat. I go tues and have…
Ready to get this done-surgery tomorrow the 30th!!
Ready, set, go, be gone Tumor! Seems like I've been waiting forever. Drinking my magnesium citrate..yum! How long can I expect to be in hospital? Doc said 1-3 days? Oh how I hope he can do this lap incisions & not open. I had abdominal lap incisions before, but mostly above navel. I did very well post surgery. But I also…
YAY!!!! That is all! Just YAAAAAYYYYYYY!
Nodules in lungs are stable.
Naming your tumor???
Ok, I saw on a few posts that some are naming their tumors. I decided why not? Maybe that would help me deal better. Sooo, mine is Stewart (who is my favorite minnion on Depicable Me) I know....probably silly but I love those little guys. I told my daughter who is 19, she thought it was funny and loved it. She went and…
Happy Holidays
I haven't been on in awhile. Busy traveling to visit family and also for work, and just haven't found the time to pop in. Just wanted to say hello and wish all of you improved health and peace in the coming year. Wish I could say my cancer has been out of my mind. The good news is that there's no evidence of mets still.…
Afinitor anybody?
Great doctor @ MD Anderson, Dr. Tinnir, has me now on Afinitor, 10 mg daily, for trial. I spent 3 days @ MDA doing every scan/test under the sun. He says he can not "cure" me but I signed up for a trial with Afinitor being the first of 3 drugs he will use. Return every 8 weeks for check-ups. Anyone ever used this baby?…
Here we go
When I went to the doctor last week to get my nephrectomy staples out, I told the doctor that I would be worried a lot more and seeing him a lot more for every twinge or ache or worry. So the last couple of days I have noticed a very bitter taste in my mouth. It has been very busy of course the last couple of days and at…
When does the surgery pain end?
I assume my pain is from the nephrectomy and the lung wedge resection, rather than things glowing. I am 18 months post nephrectomy, and 11 months post wedge resection. In some ways, the pain is getting worse. At times, I feel like I can barely walk (who knew how much the admomen moved during walks). Am I special? Or have…
Everolimus - anyone have info or experience?
A friend of mine informed me of a drug trial and I was curious if anyone here had experience with the trial or had thoughts on it. The Everolimus drug trial is for kidney cancer patients who have already undergone surgery. http://clinicaltrials.gov/show/NCT01120249
Help needed
Hi all, I'm not sure if I am using this site correctly? I have posted previously and also commented on a topic. However, I have received no replies etc. I am currently on a drug trial using sorafenib, having had a nephrectomy in August last year. I am keen to share experiences with others using that drug, which I believe…
Itchy Hands?
does anyone out there get really itchy hands particularly at night??? just wondering x
SORCE TRIAL PARTICIPANT WISHING TO SHARE EXPERIENCES
Hi all, I am currently on the SORCE trial at Addenbrookes in Cambridge. I was diagnosed with kidney cancer on 5th August 2012 as a 46 year old man and had the affected kidney removed approx 3 weeks later. It was checked and found to be stage 1 and grade 4. Due to the aggressive nature of it I was offered a place on the…
Thank you!
I found this group when my husband was diagnosed with stage 4 renal cancer; at first, he was told "maximum one year, lucky if you make it to Christmas". a summer day turned upside down. I read about the Mayo Clinic and other cutting edge treatments from all of you. i learned that stage 4 was not a death sentence and then…
Metasis TCC and Chemo theropy as first step with cisplatin and gemcitabine new drugs
Dear All ,My dad is 54 and is detected with TCC cancer having lump nodes in kidney and lesion in liver and neck and nodules in lungs . Doctor suggested chemo gemcitabine plus cisplatin 1.6 gm. for 2 days and the for day 3,4,5 inj Ancount 300 Mcg. Is this the right way for such a cancer or .. its better to have the kideny…
Renal Cell Cancer
My husband is facing surgery in 2 weeks. In 1998, he was diagnosed with Renal Cell Cancer, he had his left kidney removed. This past January, Renal Cell Metastasized to his spleen and pancreas...we were told it was very rare for this to occur. April of this year he had his Spleen, Gall Bladder, Tail of the Pancreas and…
encouraging results from sutent
It has been a challenging year and the many hurdles that all on this site have crossed is a testament to the "never guit" mindset of the survivor and care giver. I am fotunate enough to share the results of our first scan on sutent. All three nodules in the lungs have shown interval response to therapy with decreased size…
New here looking for support
Hello All, I was diagnosed in May of this year with a pretty large growth in my right kidney (2a I think). The tumor was contained within the kidney no lymph nodes, viens, or anywhere else by the ct scans and pathology post surgery. I was very blessed to have caught it so early. My 3 month scans, chest xrays, blood and…

Kidney Cancer

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