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Metastectomy???
does anyone know much about metastectomy? I have been reading recent articles that when dealing with a small amount of mets which can be surgically removed successfully, stage IV survival rates increase drastically. haven't heard it mentioned here and for all I know, I have been reading quackery; my husband is having his…
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Cyber surgery didn't work
my husband had scans today and the met that received cyber surgery looks larger than before; We have an appointment with the oncologist on Monday but at this point with nothing more showing, I want surgery, not biologic therapies which may be time-limited. although it could be much worse, it is not good. I am so frustrated…
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cyst or kidney cancer?
i've been having pain in my lower back so went for MRI. the back pain is when i sit for a spell. it doesn't hurt for me to walk. the mri showed I have a 1.3 cm spot on my kidney. below is what the report said about it. did any of you hear this when you were dx and was lower back pain a symptom? what symptom(s) did u have…
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4 Weeks Post Op: Great 1st Mtg with Oncologist; Learned about a Nomogram; & Decided Against Genetic
Well, it is hard to believe how time flies. I had my radical nephrectomy of my left kidney, for stage 1 Chromophobe RCC on 10/21. I was home three weeks and then back to work. I am 39 yrs. old in Southern AZ. Prior to my nephrectomy, at the urging of many, I contacted an oncologist specializing in kidney cancer at the U of…
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Surgery is booked!!
Hi! I got a phone call this morning. I will be saying good bye to "Arnold" the tumor on Monday, December 2nd. It is the day after my birthday, so I will have to celebrate "lightly". Just wanted to let you guys know! Jojo
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Post Full Left Nephrectomy for Chromophobe RCC on 10/21 - doing fine, but fear Recurrence
Hello all! I am 39 and had a rare form of RCC, Chromophobe RCC, Stage 1 in my Left Kidney, and had a full nephrectomy on 10/21. I am doing great, feeling great, and even back to work this week! I know it does NO good to worry about things yet to be, but I have read SO many stories about recurrence after 2, 3, even 7 years.…
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TW
Has anyone heard anything about Trevor? I've been very worried because I haven't seen anything at all for quite awhile. Please tell me he is doing better?
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learning from my mistakes
Hi all, Next Wednesday, I am flying into OKC to have my first scan since surgery, 6 months ago. And by scan, I mean chest x-ray. I also will be having my 2nd bloodwork, that same day. I can only assume the first bloodwork, done at my 6 week post-op visit, was all well and good since I never heard otherwise. In fact, I…
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multi septated lesion
Hello all, As these things often happen, when undergoing an MRI this week for Spinal Stenosis, the Radiologist noticed a multi septated lesion on my right kidney 5cmx3cmx5.6cm. She suggested an ultrasound immediatley to determine if it was a cystic neoplasm. I live in Ontario Canada where health care is free, which is…
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Two complex cysts in my left kidney. Need some input please
Hello crew ! i have been worried about my upcoming MRI and would like to hear from some people who have been through this. bear with me and I'll give you the longer version of the story. 12 years ago i was dealing with severe occasional abdominal pain. ( I sincerely believe I passed several small kidney stones ) I had a…
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Blood pressure issues
My blood pressure had been running on the low side just prior to and after surgery, 110/62. Then it started to rise: averageing 135/78. Two days ago it was 122/70. The next day it spiked to 150/84 and this morning it hit 170. I took an extra BP pill and it has dropped to 150. Have a call in to my primary doctor. Anyone…
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Introduction
This is my first post so I thought it would be best to provide some basic information about myself and my experience with kidney cancer . I am male , 60 years of age. I was diagnosed with stage four Renal Cel Carcinoma in March of 2011 . I had a laproscopic nephrectomy of my left kidney in April of that year after which I…
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Concerned wife here...husband suffering daily. Wish I could do more.
my husband had a partial nephrectomy in Jan last year. We are coming up on one year Anniversary and the swelling and pain in his side. The bulging where he feels like his insides are falling out. All the while, his drs all said well I m not a "muscle dr" ! it s just the muscle healing. I see him suffer every day, working,…
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What did you do for yourself today?
I should have posted this yesterday. Too much gloom and doom lately. We need to refocus on being kidney cancer survivors. That means we are living! Not lining up to die. Yesterday the temps almost reached 60 here in southern new england. I decided that although my strength is not quite 2/3s of my normal, I was strong…
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how often do you have your scans?
Hi all!!! Just wanted to ask how often do you get your regular check ups and scans? dad had radical neph in July and got his first scans 3 months later, result was NED (thanking God for that). tumor was 4 cm, stage 3 due to fat invasion, grade 2. Doctor was optimistic that theyy got all the cancer and ordered the next scan…
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How do you know if the votrient stops working?
My hubby has been on votrient almost 4 months and is now not having much of an appetite and more and more diarrhea and occasional low grade fevers. His blood sugars can be fine and then way up. Is there a way to tell if he isn't responding or the votrient has stopped working? Still new and learning this votrient and its so…
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Lab Test
Hi All..! Yes we all know the value of Lab Tests, post surgery.. BUT, so far there are no blood tests as an early indicator for Kidney Cancer like there is for some other Cancers. So, on my first Oncology visit at Stanford, one of the assistants told me she wished she would of gotten to me before surgery. She was doing…
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Radical Nephrotomy
MY Father went under Radical Nephrotomy and below were findings in the report which i would like to know about: Specimen consists of Radical Nephrectomy surrounded by peripheric fat measuring 18X15X8.Pheriphric fat can be easily stripped of from specimen. Kidney measures 15X13X4.On serial sectioning a mass is identified…
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feeling stupid and frustrated
I am SO frustrated! I have called several oncologists in my area, in hopes of getting an appointment and all of them have told me the same thing. Unless I am currently diagnosed with cancer, they will not schedule me. Furthermore, most of them make me feel stupid for even asking, when they say things like, "we only see…
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Going through some trying things right now
I have been reading the posts but not saying anything for awhile now. I wish we could hear something from TW. I have him on my mind and thinking about him. I have not seen anything either on Paula, has anyone else? My cancer scares just want quit. I had RCC in 2012 scans were good in march 2013. July diagnosed with colon…
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9 Year RCC Survivor!!
Good Morning! Exactly 9 years ago we were in the hospital and Dennis was having his kidney/adrenal/large cancerous tumor removed. That makes him a 9 year cancer survivor!! I am thankful that he is still around!! Statistics for 5 yr survival were pretty bleak in 2004. After that surgery we thought we were out of the woods…
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2 Weeks post op Radical Nephrectomy
Today I am 2 weeks post op from an Open Radical Nephrectomy with rib resection. I had all 38 of my staples removed. My scar goes from below my right shoulder blade, across my rib cage and down to below my belly button. I had a 20cm (HUGE!) tumor on my right kidney, which the pathology report said was Chromophobe Renal Cell…
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Votrient has failed for mom and potentially starting Avastin...scared, nervous, worried, skeptical,
Hi everyone, Haven't been here to post in a while, but there has been so much going on with mom. As some may already know, my mom was diagnosed with stage iv clear cell rcc with multiple mets to both lungs and liver in July of this year. She had her left open radical nephrectomy on August 1. She started Votrient 600mg the…
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HDIL2 to Sutent update
It has been awhile since I have posted, sorry. My prayers go out to those struggling. Thanks to those that are leading the way in trials. I am very happy to read that some of you are having success. My run on HDIL2 came to a halt as my kidney and liver could not take the stress. Doctors stated that if I continued and…
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Pathology report brings good news
I learned yesterday that the 2.5 cm tumor was not malignant. It was an oncocytoma, according to the pathology report. Fat adjacent to the tumor was also benign ... The specimen tested consisted of a 4.2 x 2.8 x 0.1 cm portion "of renal parnchyma ... The cut surface have a 1.6 x 1.4 x 1.4 cm mass that is grossly wihin 0.1…
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Help, scam message via private email
I just received a private email on CSN from mercyjones. It is a scam wanting help washing $8.3M. I wanted to get hold of the lady running the network but I do not remember her name. Can some one help me. TIA, Ron R
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How do you deal with kidney cancer that goes terminal?
My husband has stage 4 RCC that spread to multiple spots. He started Votrient and a month ago the PETScan showed the volleyball size tumor shrunk 40%. However, there are now 2 spots in the liver! The oncologist said to enjoy each day as long as we can. We were told surgery may be done and now that it moved to the liver the…
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Trust
So I've been lurking here for quite a while reading many of your posts. Many have been very helpful. Thank you. Reason for finally posting is that I like many of you have allowed this to consume our lives. I was diagnosed with a 4CM stage 1 RCC on my left that was "encapsilated" and removed via radical on May 28th. it…
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HELP! Have an appointment early tomorrow
Hi Friends, I got a call this afternoon that I have an appointment to see the uro-oncologist tomorrow morning. So I had to race around this afternoon to get disk copies of the scans that have been done so far. I brought them home, and my husband loaded the cds on the computer. Kinda cool, actually....but looking at the…
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Reality Check
I am in the process of closing my Law Office and touching base with my clients now that I am 70. One client I called was in her mid 70's and I had been to Court with her a few months ago regarding her sister's disability. She told me that right after I saw her last she was diagnosed with lung Cancer and had just had Chemo.…