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New here,had Open radical nephrectomy on 10-1, 10cmX11cm
Had Open radical nephrectomy on 10-1,back to work on the 27th so that part is going pretty good,I am woried about what happens next. the oncologist said we would do a ct scan in Jan of 2014. Does that sound about right?
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Newly diagnosed
So....here I am where everyone thinks they will never be. I am a 43 yr old mom of 2 teenagers...had a robot assisted partial nephrectomy about a week ago and got pathology results 2 days ago. Rcc clear cell type grade 2 stage 1, tumor was 3.5cm oval shaped on very top of right kidney. Scheduled now for bone scan and chest…
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Avastin plus interferon for xp11.2 translocational RCC (9-year-old son)
I posted at SP, but want to ask here and see if anyone has experience with Avastin plus interferon. Profile: 9-year-old boy dx in March, 2013, xp11.2 translocation RCC. Left kidney removed with 20 more tumors in lymph nodes nearby. There are 5 clusters of tumors in neck, chest, abdoman, all in lymph nodes. Started Sutent…
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Motovational Video
Hi All..!! OK, this is NOT Cancer related, but it is motovational..!! And for the biker folks here.. I am sure you can relate.. And for the non-bikers, I hope this gets to you as well... Oh yes, his "English" is a tad hard to understand... heh http://www.youtube.com/watch?v=TNKuesBVmYs Ron
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Infusion Room
Five weeks after my surgery I met with an oncologist, at a local cancer center. I expected this to be a short meeting as I am primarily just in a monitoring mode. My path had come back as Clear cell T1bNxM0. On the advice of many I elected to see a oncologist despite my urologist explaining that my odds of a cure were…
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Has anyone had a mass around the Renal artery/vein area?
Hello again~ I only posted 1x as I am new here. I have a 4.2 mass in left kidney but it is in the middle and between(?) the renal artery and vein, so I have to have a radical nephrectomy. The surgeon is going to try and do this laparoscopically, but warned me he may have to do an "open" incision if need be. Seems this…
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Finally saw an Oncologist for advice what to do
After all various recommendations to go get the consultation of an oncologist due to a May 17th removal of a T1a F2 3.4x2.2 clearcell and my first follow up is due on Dec 10 after an ultrasound week prior, with the surgeon......the highly praised oncologist basically swept me out the door and said I have nothing to offer…
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I wish....
I could deal with the emotional side of this a bit better. Some days I go about my work and life and feel great. Other days I am hit with the most awful depression about having to live my life with all these issues. I just wont plan anything beyond three months. There is no definate 'next year' anymore in case I have a…
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This was interesting
http://www.youtube.com/embed/8xPLvYZHFIs?list=PLEyXw_hOMY5Sld8RHgCXpaK4vZUWmQhNK
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Four Ways to save money on health care
Hi All, Here is a link that was posted in the KCA's facebook page. With rising health costs, it's good to remember that we can control some costs for medical care. http://money.msn.com/investing/post--4-ways-to-save-money-on-health-care?ref=bfv Rae
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We might be back here
After six weeks of intense chemo, it looks like this is not testicular cancer. It didn't work. Mayo finally came back with their pathology review last week and say they think its rcc but can't classify further. We are feeling defeated. No one seems to have a clue. So I don't know if they will treat this as collecting duct…
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Stage 4 with bone mets. Do you have chronic pain? What medications do you take?
My husband was diagnosed at Stage 4 with mets to bones. He had back surgery. A titanium cage to replace a vertebrae, and some plates and screws along 8 other vertebrae. Big surgery. Also eventually had a nephrectomy. Back surgery was March 2012 and nephrectomy January 2013. The last scan showed no metabolic activity with…
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Thanksgiving
Tomorrow is a special holiday for all of us Americans (the Canadians celebrated last month). Let us each sit back and think about what we have to be thankful for in the past year whether it is related to RCC or not. Icemantoo
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Is it worthwhile?
This is a question I really really need to ask. I've been very lucky, I've been NED for 6 years and now for the first time there seems to be something amiss. There are spots on my pancreas. If I didn't have a history of cancer someone woild have said "spot schmots, just forget about them. But post RCC there is a nervous…
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"Guardedly optimistic"
we got a 3 month reprieve; our visit to the oncologist was encouraging. He explained how cyber radiation works so that the met that appears on the T11 is unchanged or stable. he explained that if and when it wants to grow, the radiation will kill it. Scans were otherwise clean and he, as well as the surgeon were pleasantly…
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Have you had a back ache with your cancer?
I have had a deep ache mid back and sometimes on the side. Often I need to lay down or take a med to help with it. I asked the Urologist and he said no, its not from the tumor. Hmm. So I ask my MS neuro and she says NO, its not your MS its your kidney tumor. Anyone have a back ache as a symptom? Jan
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Alexandra
Hi All.. I suspect some of you are not paying close attention... either that or you are not speaking up.. Our Dear Alexandra is one sneaky Devil of a gal.. She changes her Avatar pretty often...yesterday was this dancer.. can you say HOT..! Today a Mermaid.. wonder what tomorrow will bring..?? Alex, thanks.. you are…
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Metastectomy???
does anyone know much about metastectomy? I have been reading recent articles that when dealing with a small amount of mets which can be surgically removed successfully, stage IV survival rates increase drastically. haven't heard it mentioned here and for all I know, I have been reading quackery; my husband is having his…
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Cyber surgery didn't work
my husband had scans today and the met that received cyber surgery looks larger than before; We have an appointment with the oncologist on Monday but at this point with nothing more showing, I want surgery, not biologic therapies which may be time-limited. although it could be much worse, it is not good. I am so frustrated…
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cyst or kidney cancer?
i've been having pain in my lower back so went for MRI. the back pain is when i sit for a spell. it doesn't hurt for me to walk. the mri showed I have a 1.3 cm spot on my kidney. below is what the report said about it. did any of you hear this when you were dx and was lower back pain a symptom? what symptom(s) did u have…
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4 Weeks Post Op: Great 1st Mtg with Oncologist; Learned about a Nomogram; & Decided Against Genetic
Well, it is hard to believe how time flies. I had my radical nephrectomy of my left kidney, for stage 1 Chromophobe RCC on 10/21. I was home three weeks and then back to work. I am 39 yrs. old in Southern AZ. Prior to my nephrectomy, at the urging of many, I contacted an oncologist specializing in kidney cancer at the U of…
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Surgery is booked!!
Hi! I got a phone call this morning. I will be saying good bye to "Arnold" the tumor on Monday, December 2nd. It is the day after my birthday, so I will have to celebrate "lightly". Just wanted to let you guys know! Jojo
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Post Full Left Nephrectomy for Chromophobe RCC on 10/21 - doing fine, but fear Recurrence
Hello all! I am 39 and had a rare form of RCC, Chromophobe RCC, Stage 1 in my Left Kidney, and had a full nephrectomy on 10/21. I am doing great, feeling great, and even back to work this week! I know it does NO good to worry about things yet to be, but I have read SO many stories about recurrence after 2, 3, even 7 years.…
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TW
Has anyone heard anything about Trevor? I've been very worried because I haven't seen anything at all for quite awhile. Please tell me he is doing better?
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learning from my mistakes
Hi all, Next Wednesday, I am flying into OKC to have my first scan since surgery, 6 months ago. And by scan, I mean chest x-ray. I also will be having my 2nd bloodwork, that same day. I can only assume the first bloodwork, done at my 6 week post-op visit, was all well and good since I never heard otherwise. In fact, I…
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multi septated lesion
Hello all, As these things often happen, when undergoing an MRI this week for Spinal Stenosis, the Radiologist noticed a multi septated lesion on my right kidney 5cmx3cmx5.6cm. She suggested an ultrasound immediatley to determine if it was a cystic neoplasm. I live in Ontario Canada where health care is free, which is…
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Two complex cysts in my left kidney. Need some input please
Hello crew ! i have been worried about my upcoming MRI and would like to hear from some people who have been through this. bear with me and I'll give you the longer version of the story. 12 years ago i was dealing with severe occasional abdominal pain. ( I sincerely believe I passed several small kidney stones ) I had a…
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Blood pressure issues
My blood pressure had been running on the low side just prior to and after surgery, 110/62. Then it started to rise: averageing 135/78. Two days ago it was 122/70. The next day it spiked to 150/84 and this morning it hit 170. I took an extra BP pill and it has dropped to 150. Have a call in to my primary doctor. Anyone…
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Introduction
This is my first post so I thought it would be best to provide some basic information about myself and my experience with kidney cancer . I am male , 60 years of age. I was diagnosed with stage four Renal Cel Carcinoma in March of 2011 . I had a laproscopic nephrectomy of my left kidney in April of that year after which I…
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Concerned wife here...husband suffering daily. Wish I could do more.
my husband had a partial nephrectomy in Jan last year. We are coming up on one year Anniversary and the swelling and pain in his side. The bulging where he feels like his insides are falling out. All the while, his drs all said well I m not a "muscle dr" ! it s just the muscle healing. I see him suffer every day, working,…