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two weeks and 3 phone calls later...
Two weeks and 3 phones calls later, and still no results on my chest x-rays. These were my first set of tests since rad neph, 7 months ago. In the beginning, I was anxious. Now, I'm just pissed. The common curtesty of returning a simple phone call in a timely manner is lost in the majority of the medical profession, in my…
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Feeling Very Strange Today
Hi everyone, well its exactly 1 year today that I was told that I had kidney cancer and I feel very weird about it all. Its been a rollercoaster of a year and I am grateful I am still here. My mind seems to be playing games with me at the moment and I just keep thinking its going to come back even though I get lots of…
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latest scan
Well here we go. I had my follow up scan yesterday. The IL-2 is doing it's job! My tumors are stable or shrinking. What else can I ask for? Next scan is in 6 weeks. There was a time a couple years back when scans showed tumors everywhere. Now only down to a couple soft tissue mets and a couple bone mets. And they are…
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Three-time renal cell carcinoma survivor
This is my first time sharing my personal account with kidney cancer on this board. I decided to do so in effort to offer some hope for anyone who needs it. I am a three-time renal cell carcinoma survivor--the last two of which were stage 4 (metastatic and distant spread). My first diagnosis was at the age of 25 following…
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When is the most common timeframe to have the first post-surgery scan???
My open radical was on Oct. 2, which got rid of my 4cm cubed tumor (named Edward) -- stage 1B, grade 3. My first post-surgery urology and oncology appointments are coming up in January. I just got the reminder in the mail -- and, apparently, I do NOT have a scan scheduled. That really surprised me -- I fully expected to…
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RCC mets to lungs at almost 2 yrs post nephrectomy
I'm new to this site and here because I think the best place to gain information is from those who have gone through it, the person at hand is my amazing father who is,to say the least ,in total shock. He has been having 6 mon scans done since his football sized tumor was removed during a radical nephrectomy almost 2 years…
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40 Year Old Kidney Cancer Survivor (2001)
My name is Jim. I had just turned 38 when I was diagnosed in 2001 with Stage 1 RCC. My wife had just lost her 40 year old brother 4 months earlier to cancer (melanoma) and it was a very scary time. As with many people, it was caught by "accident" by a family nurse practitioner (my HMO doctor quit -3rd one in a year) who…
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Collecting Duct Carcinoma
Aka we're back. We saw blkjak's new oncologist on Monday. Our shot at testicular cancer is over. He believes that this is kidney cancer, as previously thought, and thinks it is collecting duct. He is being treated with chemo weekly, carboplatin and paclitaxil , as this is the one subtype of kidney cancer that can respond…
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Scam
did anyone else get a scam message from a creep claiming he/she has less than 2 weeks to live and, what else??? that, of course, he/she needs help in accessing funds that he/she will donate to cancer research. the message was sent by someone purporting to be a CSN member and obviously accessed my CSN space. Sarah
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News I didn't want to hear
Well, I am just back from the oncologist after undergoing scan last week and the news is not good. After being on Votrient for a little under 3 months there are new metastatic sites - 9 lesions on my pancreas and 2 on my spleen. I am shell shocked to say the least. I have not yet told anybody the bad news. Off Votrient in…
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Two years out
I was looking forward to my 1.5 year ct scan follow up to my rcc surgery since I've been seeing blood in my urine and wanted to rule out recurrence of my rcc. Ive already had another surgery since my kidney surgery--benign tumors in my neck lymph nodes. And last week, at a routine mammogram and follow up, I was diagnosed…
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Some Scary News, But Not Afraid!
Hi Everyone, Sorry I have been out of the loop for a few days, but we just found out on Wednesday that my RCC has spread to the brain. I have about a 1.5 centimeter tumor on my left side that was causing numbness in my right leg and arm, thought I was having a slow motion stroke, but turns out cat scan showed tumor…
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1yr anniversary. And another checkup!
I took my blood test and chest x-ray today, but then they called me back later and said I need to come in tomorrow for a kidney ultrasound? Is this normal for a 1 year post op checkup? I go to see the doc on Friday. I have been training alot for the past few months, getting ready for my attempt at an Ironman in May 2014.…
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JUNO IMMUNE THERAPY CURING CANCER! MUST READ! THIS IS OUR FUTURE!
http://junotherapeutics.com/ This is another encouraging link. Hold on everyone, it won't be long now! It can't be!!
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Washington Post Opinion Piece: Author decribing how RCC taught him about mortatlity
Here is an article that may be of interest. Ice, please do not read his other peices, they will get you riled up. I am not endorsing his opinions, just this one article.…
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Cure for cancer? I think Scientists are getting there! Look at this!
http://www.cnn.com/2013/12/07/health/cohen-cancer-study/ This is very encouraging! They seem to be on the right track! I believe the cure will come! Soon!
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MD Anderson here I come..help/advice needed!
May 13: partial done, robot, stage 1 but grade 4 due to small sarcomatoid feature. "We got it all.." Sept 18: "clear" CT scan Nov. 20: new read of CT: "need to do PET/MRI." Results: 10 hot spots at original surgery site, 1.5 inch tumor on dome of liver. waiting on appt. to MD Anderson in Houston as medical team here says…
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Scar Question
Hi there, I'm currently looking after my Mum who had a radical nephrectomy 3 weeks ago. She had a 9cm tumour. Because she's never been poorly before, she's worrying about lots of things. She thinks she should be doing a lot better than she is, even though we're telling her to listen to her body and take small steps. Today,…
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How do you sleep post surgery?
Just wondering how you sleep post surgery. Was thinking of getting a recliner, then it occured to me that pushing back and trying to get UP would be too difficult. I know some of you mention propping self up in bed. Any other ideas that worked for you? Thanks, Jan
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Help...kind of freaking out
Hi! Sorry I have bern away for awhile. Had a partial nephrectomy on sep 3rd. My tumour was about 3.5 cm grade 2 clear cell rcc. Right after the surgery I had a chest CT which showed 2 nodules...2mm in one lung and 3mm in the other. Went yesterday for my 3 month follow up scans...pelvic abdominal and chest ct with and…
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Hello, new here.
I'm not sure if this is the right place to post this, but I'm just going to jump in. I'm having a hard time with this whole cancer thing. I don't really know what to think of it. I think, at the moment anyway, I'm considered a survivor. Funny thing that is. I consider myself a survivor of many things. I survived an…
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Tomorrow Arnold will be leaving me!
Hello Friends! After a long wait, I am finally heading to the hospital tomorrow to evict Arnold from this body of mine. I have told my sons that I look at it as an "all-inclusive" get away! Three nights-all expenses paid stay...all the ice-water I want to drink and jello to eat! Just wish there were palm trees...I LOVE…
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New here,had Open radical nephrectomy on 10-1, 10cmX11cm
Had Open radical nephrectomy on 10-1,back to work on the 27th so that part is going pretty good,I am woried about what happens next. the oncologist said we would do a ct scan in Jan of 2014. Does that sound about right?
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Newly diagnosed
So....here I am where everyone thinks they will never be. I am a 43 yr old mom of 2 teenagers...had a robot assisted partial nephrectomy about a week ago and got pathology results 2 days ago. Rcc clear cell type grade 2 stage 1, tumor was 3.5cm oval shaped on very top of right kidney. Scheduled now for bone scan and chest…
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Avastin plus interferon for xp11.2 translocational RCC (9-year-old son)
I posted at SP, but want to ask here and see if anyone has experience with Avastin plus interferon. Profile: 9-year-old boy dx in March, 2013, xp11.2 translocation RCC. Left kidney removed with 20 more tumors in lymph nodes nearby. There are 5 clusters of tumors in neck, chest, abdoman, all in lymph nodes. Started Sutent…
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Motovational Video
Hi All..!! OK, this is NOT Cancer related, but it is motovational..!! And for the biker folks here.. I am sure you can relate.. And for the non-bikers, I hope this gets to you as well... Oh yes, his "English" is a tad hard to understand... heh http://www.youtube.com/watch?v=TNKuesBVmYs Ron
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Infusion Room
Five weeks after my surgery I met with an oncologist, at a local cancer center. I expected this to be a short meeting as I am primarily just in a monitoring mode. My path had come back as Clear cell T1bNxM0. On the advice of many I elected to see a oncologist despite my urologist explaining that my odds of a cure were…
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Has anyone had a mass around the Renal artery/vein area?
Hello again~ I only posted 1x as I am new here. I have a 4.2 mass in left kidney but it is in the middle and between(?) the renal artery and vein, so I have to have a radical nephrectomy. The surgeon is going to try and do this laparoscopically, but warned me he may have to do an "open" incision if need be. Seems this…
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Finally saw an Oncologist for advice what to do
After all various recommendations to go get the consultation of an oncologist due to a May 17th removal of a T1a F2 3.4x2.2 clearcell and my first follow up is due on Dec 10 after an ultrasound week prior, with the surgeon......the highly praised oncologist basically swept me out the door and said I have nothing to offer…
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I wish....
I could deal with the emotional side of this a bit better. Some days I go about my work and life and feel great. Other days I am hit with the most awful depression about having to live my life with all these issues. I just wont plan anything beyond three months. There is no definate 'next year' anymore in case I have a…