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Kidney Cancer

Help needed
Hi all, I'm not sure if I am using this site correctly? I have posted previously and also commented on a topic. However, I have received no replies etc. I am currently on a drug trial using sorafenib, having had a nephrectomy in August last year. I am keen to share experiences with others using that drug, which I believe…
Itchy Hands?
does anyone out there get really itchy hands particularly at night??? just wondering x
SORCE TRIAL PARTICIPANT WISHING TO SHARE EXPERIENCES
Hi all, I am currently on the SORCE trial at Addenbrookes in Cambridge. I was diagnosed with kidney cancer on 5th August 2012 as a 46 year old man and had the affected kidney removed approx 3 weeks later. It was checked and found to be stage 1 and grade 4. Due to the aggressive nature of it I was offered a place on the…
Thank you!
I found this group when my husband was diagnosed with stage 4 renal cancer; at first, he was told "maximum one year, lucky if you make it to Christmas". a summer day turned upside down. I read about the Mayo Clinic and other cutting edge treatments from all of you. i learned that stage 4 was not a death sentence and then…
Metasis TCC and Chemo theropy as first step with cisplatin and gemcitabine new drugs
Dear All ,My dad is 54 and is detected with TCC cancer having lump nodes in kidney and lesion in liver and neck and nodules in lungs . Doctor suggested chemo gemcitabine plus cisplatin 1.6 gm. for 2 days and the for day 3,4,5 inj Ancount 300 Mcg. Is this the right way for such a cancer or .. its better to have the kideny…
Renal Cell Cancer
My husband is facing surgery in 2 weeks. In 1998, he was diagnosed with Renal Cell Cancer, he had his left kidney removed. This past January, Renal Cell Metastasized to his spleen and pancreas...we were told it was very rare for this to occur. April of this year he had his Spleen, Gall Bladder, Tail of the Pancreas and…
encouraging results from sutent
It has been a challenging year and the many hurdles that all on this site have crossed is a testament to the "never guit" mindset of the survivor and care giver. I am fotunate enough to share the results of our first scan on sutent. All three nodules in the lungs have shown interval response to therapy with decreased size…
New here looking for support
Hello All, I was diagnosed in May of this year with a pretty large growth in my right kidney (2a I think). The tumor was contained within the kidney no lymph nodes, viens, or anywhere else by the ct scans and pathology post surgery. I was very blessed to have caught it so early. My 3 month scans, chest xrays, blood and…
two weeks and 3 phone calls later...
Two weeks and 3 phones calls later, and still no results on my chest x-rays. These were my first set of tests since rad neph, 7 months ago. In the beginning, I was anxious. Now, I'm just pissed. The common curtesty of returning a simple phone call in a timely manner is lost in the majority of the medical profession, in my…
Feeling Very Strange Today
Hi everyone, well its exactly 1 year today that I was told that I had kidney cancer and I feel very weird about it all. Its been a rollercoaster of a year and I am grateful I am still here. My mind seems to be playing games with me at the moment and I just keep thinking its going to come back even though I get lots of…
latest scan
Well here we go. I had my follow up scan yesterday. The IL-2 is doing it's job! My tumors are stable or shrinking. What else can I ask for? Next scan is in 6 weeks. There was a time a couple years back when scans showed tumors everywhere. Now only down to a couple soft tissue mets and a couple bone mets. And they are…
Three-time renal cell carcinoma survivor
This is my first time sharing my personal account with kidney cancer on this board. I decided to do so in effort to offer some hope for anyone who needs it. I am a three-time renal cell carcinoma survivor--the last two of which were stage 4 (metastatic and distant spread). My first diagnosis was at the age of 25 following…
When is the most common timeframe to have the first post-surgery scan???
My open radical was on Oct. 2, which got rid of my 4cm cubed tumor (named Edward) -- stage 1B, grade 3. My first post-surgery urology and oncology appointments are coming up in January. I just got the reminder in the mail -- and, apparently, I do NOT have a scan scheduled. That really surprised me -- I fully expected to…
RCC mets to lungs at almost 2 yrs post nephrectomy
I'm new to this site and here because I think the best place to gain information is from those who have gone through it, the person at hand is my amazing father who is,to say the least ,in total shock. He has been having 6 mon scans done since his football sized tumor was removed during a radical nephrectomy almost 2 years…
40 Year Old Kidney Cancer Survivor (2001)
My name is Jim. I had just turned 38 when I was diagnosed in 2001 with Stage 1 RCC. My wife had just lost her 40 year old brother 4 months earlier to cancer (melanoma) and it was a very scary time. As with many people, it was caught by "accident" by a family nurse practitioner (my HMO doctor quit -3rd one in a year) who…
Collecting Duct Carcinoma
Aka we're back. We saw blkjak's new oncologist on Monday. Our shot at testicular cancer is over. He believes that this is kidney cancer, as previously thought, and thinks it is collecting duct. He is being treated with chemo weekly, carboplatin and paclitaxil , as this is the one subtype of kidney cancer that can respond…
Scam
did anyone else get a scam message from a creep claiming he/she has less than 2 weeks to live and, what else??? that, of course, he/she needs help in accessing funds that he/she will donate to cancer research. the message was sent by someone purporting to be a CSN member and obviously accessed my CSN space. Sarah
News I didn't want to hear
Well, I am just back from the oncologist after undergoing scan last week and the news is not good. After being on Votrient for a little under 3 months there are new metastatic sites - 9 lesions on my pancreas and 2 on my spleen. I am shell shocked to say the least. I have not yet told anybody the bad news. Off Votrient in…
Two years out
I was looking forward to my 1.5 year ct scan follow up to my rcc surgery since I've been seeing blood in my urine and wanted to rule out recurrence of my rcc. Ive already had another surgery since my kidney surgery--benign tumors in my neck lymph nodes. And last week, at a routine mammogram and follow up, I was diagnosed…
Some Scary News, But Not Afraid!
Hi Everyone, Sorry I have been out of the loop for a few days, but we just found out on Wednesday that my RCC has spread to the brain. I have about a 1.5 centimeter tumor on my left side that was causing numbness in my right leg and arm, thought I was having a slow motion stroke, but turns out cat scan showed tumor…
1yr anniversary. And another checkup!
I took my blood test and chest x-ray today, but then they called me back later and said I need to come in tomorrow for a kidney ultrasound? Is this normal for a 1 year post op checkup? I go to see the doc on Friday. I have been training alot for the past few months, getting ready for my attempt at an Ironman in May 2014.…
JUNO IMMUNE THERAPY CURING CANCER! MUST READ! THIS IS OUR FUTURE!
http://junotherapeutics.com/ This is another encouraging link. Hold on everyone, it won't be long now! It can't be!!
Washington Post Opinion Piece: Author decribing how RCC taught him about mortatlity
Here is an article that may be of interest. Ice, please do not read his other peices, they will get you riled up. I am not endorsing his opinions, just this one article.…
Cure for cancer? I think Scientists are getting there! Look at this!
http://www.cnn.com/2013/12/07/health/cohen-cancer-study/ This is very encouraging! They seem to be on the right track! I believe the cure will come! Soon!
MD Anderson here I come..help/advice needed!
May 13: partial done, robot, stage 1 but grade 4 due to small sarcomatoid feature. "We got it all.." Sept 18: "clear" CT scan Nov. 20: new read of CT: "need to do PET/MRI." Results: 10 hot spots at original surgery site, 1.5 inch tumor on dome of liver. waiting on appt. to MD Anderson in Houston as medical team here says…
Scar Question
Hi there, I'm currently looking after my Mum who had a radical nephrectomy 3 weeks ago. She had a 9cm tumour. Because she's never been poorly before, she's worrying about lots of things. She thinks she should be doing a lot better than she is, even though we're telling her to listen to her body and take small steps. Today,…
How do you sleep post surgery?
Just wondering how you sleep post surgery. Was thinking of getting a recliner, then it occured to me that pushing back and trying to get UP would be too difficult. I know some of you mention propping self up in bed. Any other ideas that worked for you? Thanks, Jan
Help...kind of freaking out
Hi! Sorry I have bern away for awhile. Had a partial nephrectomy on sep 3rd. My tumour was about 3.5 cm grade 2 clear cell rcc. Right after the surgery I had a chest CT which showed 2 nodules...2mm in one lung and 3mm in the other. Went yesterday for my 3 month follow up scans...pelvic abdominal and chest ct with and…
Hello, new here.
I'm not sure if this is the right place to post this, but I'm just going to jump in. I'm having a hard time with this whole cancer thing. I don't really know what to think of it. I think, at the moment anyway, I'm considered a survivor. Funny thing that is. I consider myself a survivor of many things. I survived an…
Tomorrow Arnold will be leaving me!
Hello Friends! After a long wait, I am finally heading to the hospital tomorrow to evict Arnold from this body of mine. I have told my sons that I look at it as an "all-inclusive" get away! Three nights-all expenses paid stay...all the ice-water I want to drink and jello to eat! Just wish there were palm trees...I LOVE…

Kidney Cancer

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