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what is "met"?
I am getting antsy about surgery next Tuesday. I appreciate reading the posts. I am not sure what many of you mean when you discuss 'met'? I will probably enjoy pizza and beer for the last meal!
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Scared of surgery?
I've read this often. Also have read reports like Sindy's who've had many parts removed. Can't scare her with a scapel. It got me thinking....hmm.... elbow bone tumor removed at 12 yo. the start of it all. I ate aspirin like m&ms for a year. Carried a bottle in my pocket. rt. knee, 3 or 4 procedures for bilateral…
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new member- stage 3a grade 4 considering clinical drug trial of Everolimus
Hi! My name is Stacy and Im 39 years old, very healthy and no risk factors. I'm married with 2 young daughters. I went to the ER 1/5/14 for Abdominal pain that turned out to be an 8.5 cm tumor on my right kidney. It was also hemorrhagic. Had total right open nephrectomy on 1/15/14. Pathology. stage 3 grade 4. No renal vein…
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Clinical Trial-Ipilumab & Nivolumab
Well, after waiting some 4-5 months I finally got all the go heads from the Doctor, Cancer Center, Insurance Company, and the Sponsor. I signed my contract about two weeks ago and tomorrow I start the trial. Get both Ipilumab and Nivolumab every three (3) weeks for 4 sessions.then only one of the two drugs every three…
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About Fatigue from Radiation
My father is receiving radiation treatments for kidney cancer (Stage IV, RCC- poorly differentiated cell type). He is to receive a total of 15 radiation treatments and has had half of them already. Before the radiation, he had enough energy. He could walk around (though not stand for extended period of time); he could talk…
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Getting drain removed
I'm heading back to Sloan Kettering today to have my drain removed. Had the little sucker in for a week so it's high time, but I'm also getting very anxious. For one, I'm worried that it'll hurt and for another, Dr. Russo might have the pathology report and I'm really scared of it.
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IL2 blog
Spent yesterday getting scanned and ported and got my first dose about six hours ago. No nasty side effects but I am told these will come with subsequent doses. Staff have all been great and my wife is here sleeping in a chair. Really didn't need any help yesterday but I am sure that will change too. this protocol is for…
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Partial Nephrectomy Done!
Hi everyone. Finally able to sit and post. Thank you all so much for all the comments, advice, support, and shared experiences on my intro thread. This board is invaluable and has been such a huge help for me. I had the open partial nephrectomy on Monday, home yesterday on Wednesday. I kept thinking of Iceman’s words of…
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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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Cabo Clinical Trial
Hi Gang... just found this on another WEB site.. and checked it out... They are recruiting in a bunch of countries all over the world and in many places here in the U.S. This is a Cabo Vs Everolimus Phase 3 Study... FYI... NCT01865747 Says they are looking for 650 participants.. Yes several spots in the U.K. (no Ireland,…
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scans coming up and Fox I have report on hip
Its that time again for scans of kidney in 3 weeks. I already dread it lol. Colonoscopy follows in June. Good news is ,,,, my breast biopsy from Monday was benign. I am so very happy. I am at high risk of breast cancer and now every 6 months its a mammogram and ultrasound. They placed tumor marker on the mass i have now to…
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anxiety
Drs. concerned over a suspicious small cyst on outside of right cancer. They believe 70% chance of cancer so they want to operate. DaVinci, almost a year to the day I had prostate done. Never been in the hopsital in 68 years! appreciate comments.
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Would you mind giving a caregiver some helpful ideas for emotional support? For me.
My husband was diagnosed with clear cell RCC with bone mets 2 years ago. Since then I have really appreciated the knowledge that has been shared, and the compassion and support you have given to me, so that I can help my husband. I am asking for some advice on ideas that may help me. It's so difficult sometimes and I know…
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Ctrl+Alt+Del.
So many come to this forum. Seeking advice, information and to share experiences. This becomes a first person pipeline on collecting input about surgery, recovery, scans, drugs and lifestyle changes. Academic and emotional information is openly discussed... Cancer has such a huge impact on our lifes. I couldn't even spell…
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The War on Cancer....
FYI. http://www.businessinsider.com/the-war-on-cancer-enemy-of-the-state-2014-3
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Unexplained weight loss, anyone have experience with it
I had unexplained weight loss which lead me to having a ct scan which in turn lead to the discovery of my kidney cancer. After I had my partial nephrectomy the surgeons told me they didn't think it was likely that that small tumor was responsible for my weight loss. So a couple days ago I had upper and lower g.i.…
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International Day of Happiness
Today is the International Day of Happiness! Soooo....Happy Happiness Day everyone! It is also the first day of SPRING!! (can somebody please let Mother Nature know??) So today, please forget your troubles, and watch a funny movie, google youtube for Happiness Day clips, hug your loved ones and feel that wonderful feeling…
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planned CSN maintenance this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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No eating
My husband has had RCC since November 2011. On January 13, 2012 he had his right kidney removed and the IVC repaired as it had traveled up the IVC and was touching the heart. 7 weeks later they found it had moved into the lungs and was put on Sutent. July of 2013 the right lung was clear and the left lung had shrunk about…
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HDIL2 treatment centres
Hi all i am investigating IL2 treatment and as it is not a treatment available in Australia I am trying to find the best treatment centre and wanted opinions from anyone here that can advise who I should approach in the US regarding costs etc. Thanks for your help. Sue
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Checking in
I thought I'd pop in with an update on my latest scan. NED for RCC...yay. It's been 3 1/2 years, give or take, since my diagnosis and everything has been good so far. I had stage 2 grade 3/4 clear cell, highly necrotic, 9 cm tumor on my left kidney, removed in Oct of 2010. On another note, I do need follow up ultrasound…
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2 years (21cm tumor)
It's been awhile since I've last been on here. Life takes you all over and sometimes I forget about all this. I have my two year follow up in a couple weeks and so far everything has been great. Not sure if any of you remember, but I had a 21 cm tumor removed. My lone kidney struggled for a little while to keep up, but has…
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Scared
Hello Everyone, I just joined this site because I was browsing for information and found many answers on here. I am a 42 year old woman and I have a 1 inch tumor on my right kidney and it has to be removed. I will be scheduling a robotic partial nephrectomy soon but am really scared. Do you all have any advice or stories…
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One major battle ahead!!
Hi There, I have been having a pretty crappy time since my last post. I had been suffering incessant coughing so my GP sent me for an X-ray which showed a tumour in the left lung. I had been awaiting a full body scan at that time, so this was rushed forward. I then went back to see the Oncologist to discover that not only…
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blkjak's ct update
All of his tumors have shrunk. And there are a lot of them! So the bladder cancer chemo is working, indicating that this might be a transitional cell kidney cancer. The results were great for only five weeks of treatment. The dr said that they rarely see shrinking this early...usually if it's going to work they see stable…
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How/When doc's deliver results of scans
In the blink of an eye, we are heading into 6 month scans. It's so bizarre how the whole ordeal can seem so far away, yet so present at the exact same time. Anyways, my husbands scans are scheduled 9 days before his appointment with the oncologist. I was just wondering what to expect regarding delivery of scan results.…
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GFR Question for you guys
I had my surgery on October 5, 2012. 11CM T3A Grade 3. I know I am at high risk of reoccurence but so far my scans have been clear. When I had my last scan a few weeks ago it was noted my GFR has declined to 55. I don't have a baseline because all my previous bloodwork just notes ">60". My creatinine is also a bit evalated…
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2 weeks in Ipilimimab and Nivolumab Trial
Two weeks in and all blood tests are fine but this week I have really felt tired and just cant seem to catch up on my sleep/rest. Body just aches and I have had some issues with being a bit lightheaded at times. Hands are starting to peel which I was told could happen. 2nd infusion on March 4. Are these side effects…
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Happy Anniversary?
I think? 3 years ago today I finished my workout and had a good 2.5-3 mile run. I have exercised regularly since a teenager. I've run for over thirty years. (and are my legs tired!) Anyway, I had decided to approach my 60's by trying to reach a peak in my fitness. My mission statement was that when I died, I wanted to be…
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New Member
Hello, I’ve been trying for ages to open an account here and never got a password or notification yet it kept saying I was a member. So finally after opening a third email account (since it thought I was a member it kept saying that email address is already in use) I got a password. I just want to say that I’m in awe of…