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Awesome fist Votrient scan

jhsu
jhsu CSN Member Posts: 80
edited April 2015 in Kidney Cancer #1
Again, what an awesome fist Votrient scan

  

Way back in 2011 I had an enlarged mediastinum lymph node located in the subcarinal region, EBUS biopsy was negative for malignancy. It did not change for about 3 years. After catching a cold or for some other reason it went haywire, coughing was my symptom. My cough was so bad or even difficult to breath during my regular running exercise. Doctor rounded up another biopsy to confirmed my RCC was back, that was one week before I was admitted to ER.

 

December last year, the tumor invaded and obstructed the left main bronchus. They tried EBUS with laser to punch it through without success. CT image showed my left side of the lung was totally white out, it felt like there was a huge boulder against on my chest. Started Votrient right away while I was still unconscious in the ICU. My lung popped open within a week of taking Votrient, very weak but I could breath again.

 

Yesterday, I finished my 2nd marathon run this year. (Just updated my profile)
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Comments

  • Allochka
    Allochka CSN Member Posts: 1,089 Member
    #2
    Amazing!
    !'ve checked your

    Amazing!

    !'ve checked your profile - you are Stage 4 since 2008 and running marathons in 2015. What an inspiration! 

    Congrats on good scan!

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  • APny
    APny CSN Member Posts: 1,995 Member
    #3
    Allochka said:

    Amazing!
    !'ve checked your

    Amazing!

    !'ve checked your profile - you are Stage 4 since 2008 and running marathons in 2015. What an inspiration! 

    Congrats on good scan!

    That is fantastic. Love

    That is fantastic. Love hearing stories like this! Congrats on good scan and may it continue for many years to come.

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  • angelsnls
    angelsnls CSN Member Posts: 67
    #4
    Congrats on good scan, wow

    Congrats on good scan, wow marathon running that is amazing,

    Sending Love and hugs to you

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  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #5
    angelsnls said:

    Congrats on good scan, wow

    Congrats on good scan, wow marathon running that is amazing,

    Sending Love and hugs to you

    Great news and very inspiring

    Great news and very inspiring to hear this! Keep up the good work!

    Hugs

    Jojo

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  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #6
    Jojo61 said:

    Great news and very inspiring

    Great news and very inspiring to hear this! Keep up the good work!

    Hugs

    Jojo

    Awesome

    Just absolutely awesome.

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  • jason.2835
    jason.2835 CSN Member Posts: 337 Member
    #7
    Woah...

    Holy crap, a marathon? Wow, that is amazing. It's very inspiring to hear that this disease can be beaten back with enough willpower from the patient and the doctors. Great stuff. 

     

    - Jay

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  • jhsu
    jhsu CSN Member Posts: 80
    #8
    Keep on running, keep on

    Keep on running, keep on living and keep on knocking on heavens door.

     

    Jonathan

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  • strongmind
    strongmind CSN Member Posts: 34
    #9
    jhsu said:

    Keep on running, keep on

    Keep on running, keep on living and keep on knocking on heavens door.

     

    Jonathan

    Great news...

    Good luck!!

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  • Rosie5511
    Rosie5511 CSN Member Posts: 8
    #10
    A Marathon ....so

    A Marathon ....so inpirational ...I walk and sometimes I run a little ..one day I will run a marathon. I am 2 years post nephrectomy after RCC, I will run a marathon oneday.

    great work!

     

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  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    #11
    Rosie5511 said:

    A Marathon ....so

    A Marathon ....so inpirational ...I walk and sometimes I run a little ..one day I will run a marathon. I am 2 years post nephrectomy after RCC, I will run a marathon oneday.

    great work!

     

    Phiedippedes

    I know what happened to him! I hope one day to limp a mile or so.

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  • Debbiebaker2000
    Debbiebaker2000 CSN Member Posts: 1
    #12
    Votrient

    have 89 200mg pills I cannot use.   Drug worked great for a while, but then I built up a tolerance.  I am moving on to a new trial.

     Would be happy to  donate the pills. Good luck with your great scans 

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  • troyan76
    troyan76 CSN Member Posts: 1
    #13
    Debbiebaker2000 said:

    Votrient

    have 89 200mg pills I cannot use.   Drug worked great for a while, but then I built up a tolerance.  I am moving on to a new trial.

     Would be happy to  donate the pills. Good luck with your great scans 

    Votrient

    Good luck!

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