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App's for kidney health: Tracking phosphorus in your diet
Hi everyone, In the interest of full disclosure, I am acquantied with the developer of this app. Our kids play together sometimes. But wanted to mention it here because it is a brand new app related to kidney health and diet. It is called The Phosphorus Tracker and you can use it to track the amount of phosphorus in your…
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Upcoming Partial Nephrectomy
Hi! I'm a new member to the group. Very glad to have found it! Lots of good information and support! A little history: diagnosed with a 2.5cm solid rt. renal mass (arising anteriorly - midpole) compatible with RCC (via ultrasound, then MRI with gadolinium showing heterogeneous enhancement). Tests also showed that the mass…
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Is this normal?
I am six weeks post op from left nephrectomy (5.2 RCC mass contained in kidney with clear margins)on Monday. I am having more discomfort ( not pain) now then I had after the first couple weeks. Just a bit of aching where the kidney was. No other problems, is this just the normal progression in healing? Feels like I would…
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Just found out
I just discovered in the past few weeks that I have kidney cancer. I am scheduled to have my kidney removed next week. I have been lucky till now and have never spent a night in the hospital my entire life. Now I am terrified. I am lucky and have a great group of friends and family for support. But I could really use some…
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Yo-yo syndrome
Sometimes this forum just eats your guts out. We cheer for each other and when the yahoos are over, we cry for the rest of us. Then there is the purgatory of waiting for scan results. Emotions are pulled in every direction. What will it be today? Euphoria or depression? Long timers watch others come and go as the roller…
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Hernia
Sorry I've been gone for a while. I've been going out full speed trying to make up for last Summer with the kids. I noticed a small bugle right, smach dab in the middle on my incision. It looks like a text book example of an incisional hernia. I did have 3 surgeries in 3mths using the same incision and I'll admit I did…
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kidney cancer or something else
So since march maybe a little before I had these flank pains on both sides, eventually it went to both sides of the lower back & mid back, and then the abdomen & both hips. Its a sharp/aching/dull low pain. This of course scared me and in April I went to a quickcare where they found microscopic blood in my urine and said I…
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Outpatient IL2
Has anyone taken or done the IL2 outpatient therapy. If how was your response or any info please. Thanks Regina
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Working on Year 5!
I have stage IV Kidney Cancer and I was diagnosed as stage IV on August 3, 2011. I have been through alot of surgeries and I am still here fighting. I had scans and MRI on July 31 and get results on August 10, but this is by far the worst scanixety I have been through yet! When I first came to this sight so many helped…
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Scared
Hi, My name is Regina just recently diagnosed with stage4 rrc with mets in lungs. I have been taking Votrient for about 2weeks with a few side affects. Just wondering if it's true about a 6 months survival rate. Scared to death about this disease. I'm 54 and in good health. I have had high blood for many years. Any info…
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Newly diagonsied
Good day, Last month I found out that I a cyst that was found in a scan 2 years has grown and after the last scan with contrast tha cyst has started show sepations. The oncologist is going in next Friday to remove the hopefull 3 of the cyst that are in the right kidney. She says that these are stage 1 tumors and after…
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A 2-year-old little girl with stage IV kidney cancer
I feel so sorry for this little girl who has not even begun to live her life. http://www.komonews.com/news/health/Kids-with-cancer-get-futuristic-chance-at-saving-fertility-321472951.html
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Immunity & Energy after full nephrectomy & adrenal gland
Hi all - Been some time since I have been out here. I hope everyone is well though I read the posts regarding 2 people passing away recently. Sad to see that and sad to know so many of you are hurting. I am over a year out from a full nephrectomy on my right side that included removal of my adrenal galnd and in the last 8…
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Personal Growth when you have cancer
To all of you, I am so moved and impressed, by the outpouring fo sincere sentiment and mourning upon finding out about Nano and DJ. There is a special bond that seems to develop amonst individuals who have cancer and more especially, those who share the same diagnosis, i.e. kidney cancer no matter the sub-category. I…
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22 and officially joined the club
A month ago I had right flank pain and I went in for an ultrasound. They found a tumor 1.1x8.7x9.8cm. Today I got the results back from the biopsy, apparently it's Chromophobe Renal Cell Carcinoma. At the age of 12 I had thyroid cancer now 10 years later it's kidney cancer. Life's a trip isn't it. My question is has…
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Clear cell renal carcinoma
Had surgery one week ago. They found some spots on my lungs. Not sure what kind of chemo treatment I will be having but doctor said that this type of cancer has the most success rate of others. Would like to hear from others with this form of cancer and what type of chemo was used on them. I am stage 4 so I am really…
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sad news
I'm sorry to bring more sad news to this group.... so many of you were so helpful with your support and advice. My mother passed away on June 11. this is the first time I could bring myself to come to the board again sice her passing. Mom was in so much pain,the cancer spread to her spinal column and she couldn't bear the…
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Interesting Findings on Magnolia Extract
Anyone hear of magnolia extract being studied for inhibitory effects on RCC? It sounds really promising. Apparently honokiol, a biologically active ingredient has a major inhibitory effect on cell growth and metastases. I’m really intrigued by this. There was an artical by an oncologist in the most recent issue of Bottom…
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Is there a way to see previous posts by an individual?
Thanks.
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New to this
Hi all, I am so grateful to have found this site. I had an MRI for a uterine fibroid and they found a mass on my left kidney. A week later I had laparoscopic hand assisted nephrectomy. a 5.2 cm stage 1 grade 3 tumor was encased in the bottom of my kidney, margins were clear and pathology stated the it had to be grade 3…
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Inylta and scanxiety
I hate Inlyta. or rather, I hate its side effects more:sore feet, sore hands, achy aches, problems on the poop deck, sore mouth. fatigue. My hormones are so mixed up they think I'm a post-menstrual woman! So I went into the Oncs office full of hope, he had mumbled about a trial of something new So I go in with hope of…
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Question about Second Opinions and Insurance.
Hi Everyone So as I posted in another thread my right kidney has a complex cyst with septation measuring 3.2cm X 2.9cm and a second cyst measuring 3.5cm X 2.3cm, not sure if this second cyst is complex with septation. Also my left kidney has an inferior cyst measuring 2.9cm X 2.2cm. My initial urologist appt. is scheduled…
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For the first time... Scanxiety?
Hey, all, So I just set up all my appointments for my one-year scan coming up in September. Have to get a renal ultrasound, a chest x-ray and a basic metabolic panel... The x-ray is new; he didn't order one at the 6 month follow up. The last time I can't say that I had the dreaded "scanxiety," but something weird happened…
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Scan Frequency Post Partial Nephrectomy for Low Risk Patients?
I had a partial in July 2014. I was in the low risk group. I had scans at 6 months and 1 year, both clear. My next appointment is 1 year from now. I thought I would get scanned every 6 months for 3 years. But the guidelines from the American Urological Association say: "Abdominal imaging (US, CT, or MRI) may be performed…
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Metal taste in mouth
This is my 2 nd round with Kidney cancer. I found something that works with metal mouth & is even good for diabetics. Its a plant called Miracle Fruit ( a friend bought me a plant as a gift). It has little red berrys that you eat. It takes away metal mouth & makes every thing taste sweet. I pick the berrys when they are…
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29yo 3cm mass on left kidney
Hello all, I recently had a CT scan to rule out some other issues and they discovered a 3cm mass on my left kidney... I was promptly sent to a urologist who was talking with me about masses prior to looking at the ct basically there are basically 2 types cystic which are always benign and then those that are almost always…
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Got mri results back
I'm in the process of getting all my tests in order before surgry although I have yet to pick a surgeon it's such a big decision. My mass is a complex enhancing mass multicustic/multiseptated appreence thick peripheral wall and septa... My spleen in also enlarging. Is that common? Can anyone make since of this for me.…
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Fatigue
My husband has stage 4 kidney cancer and is on 800mg of votrient daily. It seems to be working as the last scan showed the tumors were breaking up. His problem is extreme fatigue. He's on oxygen daily which is a result of his lung biopsy and removal of 3 lesions in February, 2015 (right nephrectomy oct 2014) He just can't…
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Not eligible for trial - now starting Votrient
It's been a couple of months since I posted and the time has been spent having every imaginable test to see if I might be eligible for the Niviolumab/Ipilimumab versus Sutent trial starting here in Melbourne, It was only a 50/50 chance I would get the Niv/Ipi combination and in the end my kidney function was found to be…
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I'm new to this and have some ?
I was just diagnosed with stage 1 kidney cancer. I'm going through some test already had a cat scan and they found 1 1/2 inch mass on lower front Right kidney. I'm 32 yr d female and I have 2 young kids. I am scared and nervous beyond belief. Went to urologist today and they are sending me for Mir tomorrow and to check my…