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Head and Neck Cancer

PET vs. Ct Scan
Hello, Monday I am having my second scan since I finsihed treatment in Feb. I am a bit nervous, but that is par for the course. The first CT scan as NED. My question is I often hear of people getttin PET scans. I have never had one, I have only had CT scans and am curious if anyone can tell why doc sometime do CT or PET…
Constant Cough
On August 5th. I had a tumor removed from the base of my tongue near my epiglotis. I have had a constant cough since the surgery. Has anyone else experienced this situation?
Bone Scan Wednesday
I do not work because of Cancer side effects. I had stage 4 sqamus cell carcinoma with 7/8 of my tongue removed and a secondary in my neck. I had a double neck dissection with cancer in my neck. I had 6 surgerys along with Cisplatin and radiation. Something my doctor thinks Cisplatin makes my joints hurt so bad i take 90mg…
Post Treatment Depression?
My husband finished radiation and chemo on August 22nd. No PEG through the treatment and he managed to eat through all but the last 2 weeks when he lived on Ensure. Last week he was hospitalized for 6 days due to dehydration and high creatinine levels. This was probably due to the chemo (cisplatin) as well as throwing up…
Week two post treatment feeling blue
Tomorrow will be two weeks since I completed treatment and I'm feeling blue. My energy is slowly coming back, although I nap at least once a day. Still not eating other than tube feedings because of pain, but starting to feel like it's a possibility. Had a lot of nausea last night and today (threw up tube feedings) and…
Did anyone else have a crooked smile after mouth surgery?
I had very noticable damage after my partial glossectomy...my smile was very crooked. Half of my upper lip (the tumor side) was significantly higher than the other half. It was really hard to apply lipstick. From what I learned through Googling, apparently the lingual nerve can sustain serious damage during surgery. When I…
Dad needs positive support
My dad is 55 and just diagnosed with esophageal cancer. It has spread to some of the lymph nodes. I am looking for a survivor who can give him hope. I really believe that a positive outlook and a strong will to survive helps! He is starting chemo on Tuesday. They have said no to surgery and opted against radiation at this…
1 year NED
Got my 1 year NED Friday and wanted to let everyone know. I don't post much but I read the forum pretty regular. To the people just starting there journey, it's rough but well worth the fight when your through with your treatment. I love and feel for you all! May God bless you and keep you! I didn't want cancer or the…
Dysphagia Post - throat (hypopharyngeal cancer) radiation treatment
All, By God's grace, my father is cancer free for past 6 months. He completed his stage 4 throat (hypopharyngeal cancer) treatment 6 months ago, which included 3 rounds of neo-adjunct chemotherapy followed by chemo-radiation (33 radiations). After radiation, he is aspirating when he tries to take in liquid and solid food…
week 4 and 3 to go
Hubby started this journey by saying, "I have to start in order to finish." He has finished week 4 and is surprisingly good. He does have a lot of mucous and dry mouth at night that has him up a few times, and naturally he is increasingly tired. He reports throat pain, but is only taking acetimetaphin right now. He has a…
prostate biopsy
Some of you may know that I was diagosed with prostate cancer in 2013, it was the lowest grade possible and had not progressed up to my last biopsy last year, tomorrow I go for my annual biopsy, absolutely no fun, so keep me in your thoughts as it is very uncomfortable. Denis
New member with obturator
I posted yesterday 8/24 but can't find my post so will try again. Does anyone have an obturator, and what can you eat with it? I've had my final obturator since Jan. 2016 but am unable to get beyond a soft diet. Still have some mouth pain and am on opioids, low dose. I'm also working with a swallowing therapist, doing…
New Caretaker
Greetings everyone, I haven't posted earlier but I sure have been reading this forum for a couple of months. My husband had a small "dysplasia" on inside his cheek that his ENT decided needed to come out and was certain it was nothing to worry about. Imagine my surprise, make that nightmare, when he came out after surgery…
Checklist for general practitioner
For those of you who follow up with your general practitioner....this links to a useful list your doctor should be aware of. It details some of the issues specific to the side effects from treatment of head and neck cancers. http://dribrook.blogspot.com/p/americancancer-society-key.html Barbara
Introduction
I am from Southern Illinois. I am 64 years young! My wife and I will celebrate our 40th anniversary in Dec. My wife is a survivor of oral and breast cancer. Her initial diagnosis was in 2005. She is my hero! In early July I was diagnosed with stage 2 squamous cell at the base of my tongue. I was revered to Siteman Cancer…
Rang that Bell 8/16
I rang that bell 2 days ago! While waiting to go in an Aunt and her niece walked in (the Aunt rang the bell last week). They came back just to see me ring the bell!! I was so touched! My husband and our middle daughter were there when I went into treatment and when I walked out our oldest daughter was there as well!! She…
New member with obturator
I'm a new member who has an obturator. See my CSN space for more info. I'd like to talk to others who have an obturator to ask how you manage it and what you can eat with it. I'm almost 2 years post-treatment and still dealing with mouth pain, taking pain meds. I haven't been able to move past eating smoothies, blended and…
New Diagnosis-Going to Siteman Cancer Center-Anyone else?
Hi, My husband is newly diagnosed with Head and Neck cancer involving the right base of tongue, right tonsil, 4 lymph nodes, and a muscle in his neck. PET scan results were that it has NOT spread to other body parts. We're still waiting to see if it is HPV positive or not as the first biopsy didn't have enough cells to…
Hearing loss
Before hubby started treatment his doc did a hearing test on him (just in case). During treatment he had super sensitive hearing, but not what you'd call "loss" in any sense of the word. It wasn't until after he was nearly done and afterwards that we began to discover that he had 30% loss. At the time it wasn't high on our…
At The Concert
I had stage 4 tongue cancer with secondary in my neck lmphnodes. They removed 7/8 of my tongue and replaced it with my thigh. My wife and another couple went to a concert to see my wifes favorite band REO Speedwagon. My wife does not do well navigating from the seats to the concession stand plus she wanted to see this…
Still getting sores?!
I finished rads on June 30th, about 7 weeks ago. I'm making good progress on recovery but noticed that I'm still getting sores popping up on the sides of my mouth towards my throat. They are not large and don't really hurt. They're just annoying when I eat. They seem to appear and reappear in the same spots. How long does…
Just finished first clinical trial treatment this week
I had HPV+ SCC in my left tonsil and soft palate (Stage IV) in 2014, and had HPV+ SCC in my right lung and lymph nodes (Stage IIIa) at the end of 2015. Both times I had chemo-radiation, the first time with cisplatin and the second time with carboplatin+taxol. The three month PET scan was all clear, but at my six month PET…
diagnosis
hi i went to a ENT doc may 20, they did a scope up nose into throat , the nurse said it doesnt look like cancer .... i went back to see the doctor a week later he did the same , he said it looks like cancer , so we scheduled a biopsy june 15 , all tests came back negative , so we scheduled another biopsy july 7 he said he…
week 3
Hello all....to those finishing up rads/chemo...CONGRATS!!!! I am really happy for you. Hubby finished week 3 of radiation and week four of the eribitux. He has been swishing, swashing, spitting, swallowing, and rinsing, as well as rubbing creme on his face. Woke up this morning with pain (just like ya'll said he would)…
Louisiana The Great Flood of 2016
Photos of our Neighborhood 1 day after the flood Hi everyone this is a video of Avies Knoll where I lived for the past 17 years, stop the video from playing right at 808 and look to the bottom left side you will see my White Truck and the Green roof on my work shop. We did ok and did not get flooded but everyone else and…
Oral Cancer :(
Hello, my boyfriend was just diagnoised with the adenoid cystic carcinoma cancer located in his mouth specifically in the hard palate section. They advised us that he would need to under go surgery to remove it,, this would mean removing his hard palate , his full upper teeth and that they would reconstruct it with his…
really confused
My ent doctor told me that i have hypertrophy on base of tongue so he sent for MRI two weeks ago and today i had a biopsy of lymph node . I don't understand why. Why he did the biopsy of my lymph node and not my base of tongue? ? I'm really confused Please help Thank you William
Meeting Mr. NED
Just a note folks.... 3.5 years out - NED. Despite lingering side effects (definitely a PITA but all part of the "new normal") I'm functioning at 90+% pre cancer in terms of saliva, swallowing, eating, taste etc. Rad Onc couldn't have been more pleased. next poke, scope and prod in Feb. 2017. Keep up the good fight!…
Chemo week three tomorrow
My husband is in the Siteman Cancer Center program which includes Cisplatin and Abraxane every three weeks for nine weeks. On the weeks he does not have both he has Abraxane only. The side effects thus far are body aches (Back and legs mainly) and fatigue. Legs also ache, but we think it was because his sodium level was a…
Just checking in:
Hello to all, It has been awhile since on the board but just had my annual CT of head and neck with dye this week and NED!. All clear at year 3 having had SCC BOT stage IV HPV16+. I never take feeling good for granted. Had a lovely lunch with Phrannie when in Montana, She is amazing. Youngest daughter getting married in…

Head and Neck Cancer

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