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Head and Neck Cancer

GREAT PET SCAN RESULTS
I just want to thank everyone on this site for all the helpful info and encouragement over the last 5 months (seems like 5 years!). Jim from Delaware, soccerfreaks, seifken, hondo... naming is tough because i read them all and got help from all. I had tonsil cancer stage 3 and 2 lymphnodes involved. 35 Radiation and 3…
PET scan results show spots on lungs
My husband just received results of PET scan. Original SCC in neck, too large to remove...radiation/chemo all summer. Very strong/stubborn high school football coach. Never missed practice or work! Still can't swallow and using PEG. Waited 90 days for PET scan and now it shows both lungs are full of 'spots' and more lymph…
Cancer Centers. Are they worth it?
I'm currently going through what started as head and neck cancer in 2006. Now it has spread throughout my body. My doctors have told me that I have been though 5 treatments and they really have not put a dent in it so more than likely a sixth treatment won't help. Basically they are saying sorry there is nothing else that…
calling all picky eaters
OK, this is a question for those who have been out of treatment for some time now. My husband has always been a picky eater. Now he is almost 3 weeks out of radiation/chemo, and I can't get him to try foods again. He can swallow water, pills, and an occasional bit of cream of wheat. Because everything still tastes yucky,…
Exposed bone
I had bottom of mouth cancer. I am keeping a potentially long tail short by not going into details about how I have complained about post opterative symptoms for several months. I was prompted to see my surgeon over moderate pain during and after radiation treatments. It turns out that I have some kind of ulcer, maybe…
I can still feel tingling radiation going on 3 weeks post, Is this normal?
Ok, help me out here. It's three weeks post radiation and I'll be sitting watching TV and can feel tingling, radiating for lack of a better word, definately some activity on the side that received tha most radiation. Is this what they mean when they say it keeps on cooking or giving? Doctor said everything looked good, all…
the feeding tube or "Peg"
Ok people, my boyfriend tried and tried and just hasnt been able to go the entire distance. He is 10 days out of a 6 week radiation treatment, 1 chemo a week. He is so very miserable and in agonizing pain even with pain meds. He isnt taking in any noticable nutrition because its too much pain to swallow. Throat and mouth…
Time to "brush up" on things...
I am 31 months post tx and just had to have some major dental work done. (well, it felt major to me). I had a root canal on my rear molar where my tumor was along with other work (sedation dentistry rocks!) They at first wanted to extract it, but I would have to go through 20 hyperbaric chamber treatments before the…
Hiccups
Had Chemo first round Tuesday and yesterday got hiccups. They come and go randomly.
Anyone have experience with Dr. Eric Moore or Dr. Guy Petruzzeilli?
I am hoping someone on here has some sort of experience with one or both of these docs. My dad has been diagnosed with SCC at the base of the tongue and is looking to get an appt with one or both of these doctors. Also, I keep hearing that there is a greater success rate with a "board" of doctors working for you (like they…
First time thread starter is healthy but not better. I think I need help?
Hello everyone!! First time thread starter on this forum. In February of 07 I was diagnosed with stage IV base of the tongue cancer. All treatment were successful. Seven weeks of radiation and four weeks of chemo. The whole radical nine yards. Everyone who has tongue cancer knows what I am talking about. It has been almost…
Husband Just Diagnosed - UPDATE
My husband was just diagnosed with hypopharyngeal cancer with spread to lymph nodes. I am so scared, and he is very stoic. He will have 6 treatments (1 per week) of chemo, and then several weeks of daily radiation with a few more chemos thrown in for good measure. The doc says their protocol has 80-85% cure rate, which is…
Tooth decay
i went for my dental checkup last week. the dentist said that my teeth are already weakening from having a dry mouth. he said that normal saliva helps to keep the teeth clean and free from harmful bacteria but, now that i don't have much saliva, my teeth could decay very fast. i am trying to maintain a more strict cleaning…
Anyone heard of Stevens-Johnson Syndrome?
Sometimes this skin reaction is related to radiation therapy. my boyfriend checked into the hospital tonite to undergo the placement of his feeding tube and txted me to look it up. Depressing to say the least. Dont know who told him about this, why, as far as if they think he has that, or what. His skin is all blistery,…
Cyberknife and NPC
My doctor told me today that I need to keep my options open to the future; he thinks that Cyberknife would benefit me. They have also told me for the passed 3 years now that I need to get back on more Chemo, I can’t understand why. For the passed 3 years all the PET scans show an area in my left nasal that might or might…
SCC of the tongue
11/8/09 at 4:00 Hello to all! My father Tim (a 65 year old non smoker and non drinker) was diagnosed Monday with SCC of the base of the tongue. He is in stage 2 with no spread to the lymph nodes at this time. He is getting his PET scan on Monday and will also have a chest x-ray this week. We really don't know much at this…
Hyperbaric oxygen treatments
I finished radiation for laryngeal cancer about 9 weeks ago. I now have real problems with 4 teeth ( I had 3 removed prior to treatment ) For the doctor to be ble to take them out I have to have hyperbaric oxygen treatment, 20 treatments of 2 hours a day prior to extraction nd 10 days after extraction. Has this happenneed…
Nasopharynx cancer, draining out of residual after radiation therapy
after a series of radiations, my problem is the residual inside my head cannot be drained out.. can somebody please advice me how to do.. i already undergone an operation drilling on the left air. but still there are residuals inside which results to infections. i have been taking ciprobay for almost 3 months now as per…
post treatment lethergy
My husband is 10 days past chemo and radiation treatment for stage 4a base of tongue squamous cell carcinoma. They tell us that we have had it easy symptom-wise, although it has felt very rough going through it all. I can't believe I didn't find this board till after he had finished treatment. I could have sure used a…
If you could tell them just ONE thing......
If you could give a new person just starting thier walk through our little corner of Hell just ONE piece of advise(and one only) what would it be. Also, how far into or past treatment are you, just want to see how the advise changes as we progress through Tx and healing. Silly question I know, but I am just curious. My…
Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
Thought it was gone?
In November, 2008, my prothedontist noticed a sore under my tongue during an implant checkup. It wasn't there in March, 08 and wouldn't go away. Had a biopsy Nov 12. Diagnosis: Carcinoma In Situ. Operated on at OU (OKlahoma Univ) Health Sciences Center December 28, 2008. Laser only, no radiation, no chemo. Released same…
Long road to recovery
I have been reading the discussion boards and benefit from your comments and experiences during the past 5 months. My husband finished 7 weeks of radiations and chemo at the end of August for his right tonsil cancer. It's been 2 months since his last treatment and he still has bad pain in the back of his throat. He hardly…
SQUAMOUS CELL CARCINOMA - NECK CANCER - NEWBIE AND NEED SOME CHEMO INSIGHT
Help me! I was going to post this on the caregivers board, but thought this might be a better place to get some input. My husband had his first chemo after being diagnosed with the above, and finally finding the point of origin is where his tonsil used to be. Stage 3, spread to lymph nodes, but not to lungs, etc. OK, for 4…
not sure how to help my husband anymore
Day 24 after my husband's chemo/radiation treatment has ended. It seems to me that Kevin is remarkably worse when I am around on the weekends. He thinks that might be because he talks more when I am around, and talking makes this throat hurt which makes him throw up. Twice now today. The morning started positively when our…
It is not all doom and gloom
I feel the need to pass on that there is a light at the end of the tunnel. I was diagnoised with stage IV tonsil cancer. I went through the 9 weeks of of chemo cycles, one week on Monday I received my chemo and then wore a pump until Friday. Then had two weeks to recover and did this three times. Then I had 7 weeks of…
It's the final countdown... dadada the final countdown...
Hello All, I don't mean to be cheesy, but I could not resist. I have been away from the boards due to this little battle with cancer. I have only 1 chemo and 5 rads left. It really has been quite the little trial that life threw my way. These discussion boards have been a great comfort and source of information. Thanks to…
Will I ever gain any weight???
First a little background. I have squamous cell cancer of the larynx and NSCLC in my left lung. I underwent 35 radiation treatments and 6 cisplatin for the larynx, these treatments ended Aug. 12, 2009. I underwent 4 Stereotactic Radiation treatments for my lung, these ended Sept.28,2009. I had my feeding tube removed on…
Tonsil Cancer
I have/had cancer in my tonsil and gland on the right side of my neck. It has been 3 weeks since my last radiation and chemo - but my tongue and gums are still burning and causing great discomfort when I try to eat. Tried all the mouthwashes and rinses the doctors have suggested but nothing helps. Anyone have any…
Clean Scan
We were given a good report and the DR said my husband did very well during the treatment and she was VERY proud of him. She said treatment was 100% responsive and no tumor or cancer left. So that also means no surgery!!! Whew, now I can breathe. I am so proud of him too. He really pushed himself hard and has already gain…

Head and Neck Cancer

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