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super high calorie shake that can pass through PEG tube
I thought I would share the recipe I have used to keep my husband’s weight stable during chemo/radiation. He started at 160 lbs., lost 5 lbs. after the first two weeks of treatment, then ended treatment three days ago at 160 lbs. We were told he would lose lots of weight, so I am pleased to say that doesn't have to happen.…
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Nasopharyngeal newly diagnosed
Hello everyone, My name is Paula (39 years old) and last month I was diagnosed with nasopharyngeal squamous cell carcinoma. I had one right side lymph node involved 1.5 cm which was taken out and that is how everything started. I did all the ct scans, mri,.... The scans show normal nodes and doctor does not think that…
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need suggestions
Hello all, greetings i am 32 year old who has been diagnosed with Squamous cell carcinoma of tongue and underwent surgery almost two months back and am recovering. i was asked to go for radiation for 27 sessions. all went well till 14 sessions and after that due to problems in swallowing i stopped taking food and was on…
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Feeding Tube
Do most patients have a tube put in prior to radiation and chemo treatments? My husband has squamous cell carcinoma of the tongue? He had surgery to remove a lymph node. He already had the port put in last week. Or do some doctors see how much weight you lose first? Thanks again everyone, Penny
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DILATATIONS
HAD ESOPHEGEAL RESECTION SURGERY ON DEC 3,2003. DEVELOPED A FISTULA WHICH HEALED. SINCE THEN I HAVE HAD 14 DILATATIONS. THE LONGEST TIME BETWEEN EACH HAS BEEN 6 WEEKS 3 DAYS.CAN ANYONE GIVE ME INFORMATION ON THEIR EXPERIENCES WITH DILATATIONS. THANK YOU
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Help - my dad is starving
Hi all. I'm new here, but have bene reading your posts for a while. My 66-year-old father was diagnosed with esoph cancer 16 months ago. He had surgery 14 months ago to remove his esoph and part of his stomach. No radiation or chemo after the surgery. The problem is that he never stopped losing weight, even after…
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New here -- tongue cancer
being brand new to this cancer thing, i'm hoping to gather information. researching on line is doable and important yet i yearn to cut to the chase if possible! my mom was diagnosed with tongue cancer in march. since, she's had it removed (surgery) and is recovering at home. radiation (5x week) is next.... then, another…
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squamous cell carcinoma of the tongue
I am 27 years old and I was diagnosed with squamous cell carcinoma of the tongue on Feb.6,2003. At the time I was 8 1/2 months pregnant with my second daughter. I have never smoked. chewed tobacco, etc.. I wasn't a risk candidate. This all started out as an ulcer under my tongue 3 months before! My ENT dr. decided to wait…
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Are They Any Similar Experiences???
I just recently had my six month check-up by my medical oncologist. She tells me that she is moderately concerned about a scaly type growth on my left ear. As such, she refers me to a dermatologist. I meet with the skin doc last week. He tells me that he is not overly concerned about the ear issue for whatever reason. He…
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off topic
What do I need to have in order to use the chat room? Everytime I tried to log in it sayes I cannot use it yet. Then there are about a billion things to download, and I am not sure what to use, thanks, Charlene
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Almost done with Radiation
Back in January I did a posting asking for advice because I was "Scared of Radiation". I had a rare tumor removed from my left cheek and needed 33 sessions of radiation to the left side of my face. So many of you responded and I have a few people that have really helped me get through this. First, I want to say thank you.…
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coping with fear
Hello all I'm new to this board today. Abiut 1 year ago I was diagonised with throat and chest cancer...Im happy to say that on april my first pet scan came back clear. I thought that was the end of a long year of pain and depression. I lost 25 lbs,,and being only 140 lbs to start with, well now i look horrible...trying to…
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in treatment for metastatic squamous cell ca of 2 out of 14 nodes in neck txna2mo
Hi, I'm having my 16 th IMRT today. Had 2nd cysplatin chemo 2 days ago. Having heartburn but no nausea or vomiting. Lucky, huh? I'm having thinning of my hair and wonder if I should get rid of it or wait. this is messy. So far no feeding tube. I'm very tired and don't feel like doing much. I'm sure this is normal. I hope…
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growth on mucas membrane
went rad oncologist on wednesday,,got scoped,,,found a pollup or some sort of growth on a mucas membrane,,said it did not look like cancer and not to worry,,,well im sure all of of worry quite a bit,,seeing my ent on 05/01 looking for some good news,,till then will keep on back burner,,,anyone have any thing similar??
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Immediate Hunger with Peg Tube?
my mom has a peg tube and when her hunger bell goes off, it goes off immediately... it's literally, no, i'm not hungry yet, then BAM! i'm starving, i need to eat now! we are wondering if this might be considered a normal experience. thankfully we've got her nutrition schedule down to a 20-minute window so we're prepared…
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Be sure to stay checked in with your internist during rad & chemo
My husband and I have learned thru this experience how important it is to check in with your OWN Dr. Our internist has been awesome and offered options that the oncologists didn't. For instance - he discovered thrus in the throat and prescribed a great script. to help - really improved the awful taste that occurs with rad…
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Did yoru memories help or hurt you?
When you were diagnosed and going through treatments. Did your memories help you get through the rough times or hurt? My husband has just finished up his last radiation/chemo rotation (5 rotations in all so it's been a long 10 weeks for us). Anyway I thought since we just got married less than 4 months ago that he would…
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RADADTION
IM GETTING READY TO GET MY MASK MADE FOR RADADTON AND I WAS JUST READING SOME OF THE STORY ON IT....IM SCARED
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Soreness on Tongue
I had base of tongue cancer in September 07 and finished radiation and chemo therapy at the end of December 2007. I have been back for checkups in April and June and the tumor is gone. When I went back today for a recheck, it still looked good in that area but I told them about soreness on my tongue on the left side (where…
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Weight
I am curious about other peoples experience with weight gain post treatment. I lost about 42 pounds during 7 weeks of treatment (radiation and chemo). I was eating by mouth (with pain)about 2 weeks after treatment and had the PEG tube removed 4 weeks after because I HATED that thing. I forced myself to eat and gained about…
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Radiation Therapy
I have rresigned myself to my diagnosis and am going through the stages of care. My first step is a PET scan, followed by a neck dissection to remove a swollen lymph node, finishing the whole odessey with radiation/chemo. Question 1: How often do people lose their teeth from the radiation therapy? Question 2: If the cancer…
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Swollen face
Hello everyone, I am 6 months post radio and 2 and a half months post last chemo treatment. Was only operated on to remove one lymph node. Over all things are looking pretty good. However I would like to know if, after finishing treatments, any of you had a swollen face (cheeks mostly) and facial baby fine hair. If so how…
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LA Times ( 1-21-2002 ) all about Saliva
My husband told me the other day that Rush Limbaugh said that there is an article in the LA Times talking about Saliva. Go to LA Times website and go to their word search, type in Saliva, and you will see 4 to 5 articles. Now I plan on writing to LA Times, because in Kansas, there is a clinical trial accepting ( recruiting…
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erbitux Rash
Hello, I hope everyone is doing okay. I am going into my second week of radiation with 2 erbitux treatments down. The rash is very uncomfortable. It is dry and itchy. Any recommendations on a moisture cream? Alex.
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Update on treatment
10 RADS down 23 to go. Got real dry mouth and tongue starting to feel like I've burned it. So far the worst is that all the food taste's like Ceeee-Rap. I can't hardly stand to eat, but am trying to get what I can down, but am not hungry at all. Sure hope that this doesn't ruin food for ever. Mon. had real bad reaction to…
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Second Opinions
My 77 year old father has been diagnosed with squamous cancer. There is a tumor on the left side of his neck (about the size of a golf ball). His history is 63 years as a heavy smoker (he quit 3 weeks ago), daily drinker with dentures. He just had major lung surgery two weeks ago as they saw a spot in his PET scan (they…
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Lack of Taste and Swelling, Dry Tongue
I have noticed that the feeling of dehydration (swollen tongue, dry mouth and blah feeling) along with loss (change) of taste is a common theme for those that have had chemo and\or radiation. Is anyone else experiencing the same problems that have only had surgery? I had my 4th surgery on my tongue, the last bringing a…
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Swelling at Surgery site
Hello..I am new to this site, it has taken me a while to find a support site. I have been out of Rad and Chemo for 6 weeks now, I still have a peg as the new half tongue is still not working properly, but my question is about the swelling under my chin and on my neck. I have been told it is normal and to massage it a few…
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New & Scared, Help Please
Hi: First of all, I want to say that I am soooo glad that I found this site. Its sucks to be alone w/this. Anyhow, I had tongue cancer. I had surgery 5/30, removed about 1/3 of the tongue and neck dissection. I have having abou 30 treatments of radiation and 3 chemo, rad everyday and chemo every 21 days. The chemo is…
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Why don't you ask me about my PET scan?
Fantastic news. I had my 6 month scan this past Monday and it came back cancer free, full body. Not even any sign of previous radiation therapy "leftovers". All clear. Thank God, modern medicine, my wife, my support group and great Docs/Nurses. JK