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Head and Neck Cancer

mucositis
Hello Everyone, I am 13 rads in on 33 and 2nd chemo of three is on tuesday. Feel good except tongue hurts. I have mucositis. I can swallow but hurts. I still drink water and 3 shakes a day. I constantly rinse and gargle with water that has baking soda. Brunch often with biotine toothpaste and rinse and gargle with biotine.…
Canada
Are there any other people on this forum from Canada? Out of curiousity:) Cindy
Boring times
What do you folks do to occupy your time? That is if you can't or don't feel like going out. I get so bored. You can only stand so much TV. Fishingirl (Cindy)
Dead Flap???
My left wrist was taken last year for a flap, no problem, this year's surgery for recurrence a flap was graphed from my right thigh. I was told yesterday, by ENT that this was dying, no more blood flow. They want to do another graph from left leg. What happens if I don't? I am scared and tired of surgeries, I just got out…
Hyperbaric Oxygen Treatments
Happy Thanksgiving to all! My question is really about hyperbaric oxygen treatments. I want to know if anyone has had any experience with them after going through radiation? I am asking because my dad is claustrophobic and is not to fond of being stuck in a little skinny tube for a couple hours each day. I have seen a…
severe pain,cannot swallow,bleeding 3 months after radiation, depression--What can I do?
My brother finished chemo and radiation Aug. 5th 2009,almost 3 mos. ago for base of tongue cancer & one neck lymph node. They don't see any cancer. PET scan is Nov. 6th. He is 51 yrs. old. He still has severe throat pain, even with the pain medications. Cannot swallow--They say his windpipe won't close, and he's seeing a…
Throat Cancer and Erbetux Treatment
My husband had his first treatment of erbetux today (throat cancer). He also has Parkinson's Disease and neuropathy (83 yrs old). He has had uncontrollable tremors that last for a few minutes, no pain so far with the neuropathy. What can I expect and what can I do other than pray to help him? I feel lost in that I would…
Something to drink besides water!
My husband is 6 weeks out of treatment and drinks water. Has is just dying for something to drink that just might taste like something. Any ideas??? PK
HELP head and neck cancer
Hello my name is Carla, and i am asking for help. Please!! My brother has been diagnosed with squamous cell cancer, head and neck cancer. They said it was terminal. Any how since then he has had about 7 chemo treatments. He is now immune they say. He has begun radiation treatments, 18 out of 37 treatments so far. He has 2…
HELP! Any suggestion on Formulas for PEG Tube that does not cause Major Diarhea?
Hi , My loving Mom was recently diagnose with Stage 3 Throat Cancer of the Left Vocal Cord. Recent PETScan showed no growth into lymph nodes. She has been going thru intense Radiation which was at 2xs a day for 5 days and chemo once a week for abut 5 hrs. Well. she ended up severaly dehydrated, low BP, potassium, magnesium…
when is roll call typically done each year?
I have seen several roll call posts in the past on this list. Is there a certain time this is done? What is the procedure and who might be in charge of doing this from time to time?
Hope for the extreme cases
For all who question their chances- their hope, I submit the true story of a former co-worker. His stepson told me what I now tell you, and what I believe is true, from what I have seen and heard. The subject is still alive and well. This co-worker, who I will refer to as FS, went thru radiation treatment for oral cancer…
Category "About Oneself"
I entered a few hrs. ago and I don't think it worked. Anyway...how does one go about telling people "About Oneself" on the blog? Thanks, Cindy
Anyone here beat stage IV B throat Cancer?
Recently was told that the initial diagnosis of stage II was waaaay off. ENT based it on PET scan results, problem was the techs at the scan unit had a no show patient before me, and used the 45 + minute old glucose/tracer cocktail, and it did not highlight properly. Most people would have been happy to have their doc say,…
Nasopharyngeal- treatment specifics
A big hello to everyone- I just joined this forum minutes ago. A year ago I took the two tumors on the left side of my neck to my regular Dr. By the time the biopsy and Pet Scan was done, and chemo and rad were started, it was early February of 2009: 34 radiation zappings-20 places per session, during which I carried two…
Scarred for Life?
On December 2, 2009, I am going to have the cancer on my tongue removed, as well as a selective neck dissection. This may be vain, but I am worried about the scar that the selective neck dissection will leave. I'm twenty three years old and the thought of waking up every day to a reminder of the cancer scares me. My…
Me again
I am the small older one in this pic. The other is my Sis!! Cindy
At My Wits END! Argh....
My husband has hypopharyngeal cancer and is currently in the middle of rads and chemo. Has completed 23 of 33 rads, may or may not have another chemo session, depending on how his labs hold up. Does not had a feeding tube (his stupid choice), but was doing ok with hydration until last weekend. On Monday when we went in to…
Recurring sore throat
I was diagnosed with a throat cancer (right tonsil) tumor in April. I had three chemo (cysplatin) and 35 rad treatments, the last of which was on July 8th. I had the PEG tube installed and for about six weeks that was my source of nutrition. I had the tube removed about a month ago. I kept up my weight during treatment but…
Dying from laryngeal cancer, need help
My husband has end stage laryngeal cancer. No treatment options. He had a trach tube put in September to help with breathing. The lymph nodes on neck and collarbone are growing. Some days there is blood coming out under trach. Went to Dr. last week to have trach tube changed. Some bleeding upon change. Dr. said everything…
Nasopharyngeal Cancer and Agent Orange
Are there any one besides myself who have naspharyngeal cancer and had served in Vietnam. It can be a relative. Am trying to establish numbers and whether a claim was processed with the Veterans Administration.
Starting road to recovery
I had my first radiation today. 32 more to go. I have my first of 3 chemo treatments tomorrow. I just wanted to thank everyone on here for their prayers and support. Mostly I want to thank everyone for just being on here. To repay all of you for just being here I will make sure I am always on here to help others in the…
suggestion of foods that don't cause mucus
HI, I was wondering if anyone could give me foods that they eat that don't cause a lot of mucus and are easy to swallow and will help you gain weight . I know about ensure, soup, add gravy to foods. Thanks. Peeps4
Carcinoid Tumor
I am a caregiver and my husband was diagnosed with this and he had 2 tumors in his throat. They removed them on Oct 1st with a tube through the mouth and said he needed his voice box removed and some lymph nodes in the neck even though all tests did not show any cancer after the surgery. The tumors were below the voice…
Newly diagnosed
My husband has just been diagnosed with Stage IVA squamous cell carcinoma of the tongue. The tumor is small, less than 1.3 cm but it's in two lymph nodes on the same side of the neck. This is all so very new to both of us. It feels like everything is moving very fast and yet, dragging very very slowly. He's seen the first…
9 Days in Mouth Excercise hints?
Well guys I will have my 9th Rad today. First Chemo was last tuesday. Doing OK. Was hoping for a better week but doing ok. Pretty much already lost all taste for food. I have a appointment Monday for the speech therapist to do excercises. It hurts only when I open my mouth fully wide. Was wondering if anyone had some ideas…
Humidifers--do they help and what's the best kind
My husband is 7 weeks out of treatment for SCC HN, Occult Primary. He's having such a hard time sleeping at night, such a dry mouth that wakes him constantly. The doctor suggested using a humidifier to get moisture in the air. We bought one at a local drugstore (Vicks brand) but it was so noisy that neither one of us could…
Turkey neck getting worse this week, does it go away?
Is it because of thanksgiving fast approaching that I have developd a bad case of the turkey neck? I'm seven weeks post treatment and it really got bad this week, while brushing my teeth I can feel the fat moving back and forth. The area is swollen as if retaining water and is the classic turkey neck side effect. Does it…
Do you have to get sick from radiation to know that it is working?
Hi there my mum is starting week 4 of radiation. The tumour could not be removed totally due to its location. They are giving my mum mild doses of radiation also due to its location. Not that I want there to be nasty side effects it just worries me that there has been no nausea, weight loss, loss of appetite or strange…
post radiation side effects
Hey Everyone! im six months post radiation treatment for tongue cancer and still have a little "bronze" color on my face and some slight swelling in my cheeks. when will this disappear? thank you.

Head and Neck Cancer

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