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Dental Concerns
Hi all, I have a Dentist appointment this Friday and was wondering what kind of dental problems if any that any of you might of had from your treatment. My cancer was dicovered back in May by my Dental Hygenist during a routine cleaning and exam. (She found swollen lymph node on one side of my neck) This Friday will be my…
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Done Deal
I wanted to say thank you to everyone who helped me through this ordeal. Hopefully I can be of help to someone. Alex.
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getting off pain meds
I need some advice about getting off pain meds. My husband started wearing fentynal patches two weeks before his treatment ended 5 weeks ago. He was at 50 mcg for much of that time, and now both the doctors and Kevin are ready for this to decrease. Last weekend Kevin decided that he would quit cold turkey (a REALLY bad…
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Another Day - another side effect?
Hi all! Maybe someone can help me with this one. I awoke yesterday with sharp shooting pain in back of my skull. I went to my regular MD, and he feels it may be nerve pain and suggested an anti-inflammatory. I tried over the counter (Motrin, Advil etc) to no avail. He suggested Celebrex, which I tried, but it really did…
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New Here
hi I am a 16 month cancer survivor of the tongue, it was on the side of my tongue, lesion and tumor about 2cm. My doctor removed it and he cut into my neck and it did not spread. he said the tumor was patented? What does patented mean? I'm freaking out. yes I did quit smoking 3 months after surgery and started due to…
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Phlem:(
Hi Everybody! Hope everyone is on their way to wellness:( I have a question about spitting up phlem. I had my last radiation treatment 24 days ago, and I had not stopped spitting up phlem!!! It is constant. Does anyone have any idea how long this goes on for? It's one thing that is keeping me home. No one wants to hear and…
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DCa drug to cure cancer
Has anyone heard of this drug called DCA? There is a Dr. Evangelious Michelakis, at The University of Alberta, Canada. Who claims this will cure cancer. You can google DCA and get more info. Very interesting!! But how can one get some of it? That's the big question:) Fishingirl (Cindy)
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CT Scan clear but excessive pain
Hi All, My Father got operated for tongue cancer which had spread to his lymph node. He underwent 6 cycles of chemotherapy(cisplatin was administered) and 33 days of radiation. He continously complains of excessive pain in the operated area and like lot of pressure being exerted on the jaw. he does sometimes have nasal…
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nanodiscs- cure for cancer?
Story is on Yahoo's front page, dated today at 4:18 PM, Eastern Time: "nanodiscs", which get implanted, and then subjected to a low magnetic field, can kill 90% of the cancer cells in just 10 minutes. They are described as tiny magnetic discs. Argonne National Laboratory in the US is involved, as one of the authors of the…
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Tinnitis
Hi all! I am hoping one of you many fellow survivors can help. I have been suffering with tinnitus since my chemo (cysplatin)& rad treatment ended 6 wks ago. I recently have had pain in my head and neck, which feels like a shock, but can come and go at any moment, and is continuous. My regular MD feels it is nerve pain. So…
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Ambertose by Manatek
I read in a discussion on saliva about Hondo using Ambertose at one point. I'm wondering how that did for you Hondo and would like to hear from anyone else who may have used it. A friend's husband takes it for arthritis and they thought it might help my husband who is 10 weeks post treatment for H&N squamous cell, occult…
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Loss of taste from radiation
Hi my name is Donne. My mom was diagnosed with Squamous Cell Carcinoma of the Tonsil (stage II) in mid September. She had her tonsil removed and had a feeding tube put in before her treatments began. She just started radiation/chemo November 9 and she is doing great she has really high spirits and enjoying her life and…
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mucositis
Hello Everyone, I am 13 rads in on 33 and 2nd chemo of three is on tuesday. Feel good except tongue hurts. I have mucositis. I can swallow but hurts. I still drink water and 3 shakes a day. I constantly rinse and gargle with water that has baking soda. Brunch often with biotine toothpaste and rinse and gargle with biotine.…
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Canada
Are there any other people on this forum from Canada? Out of curiousity:) Cindy
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Boring times
What do you folks do to occupy your time? That is if you can't or don't feel like going out. I get so bored. You can only stand so much TV. Fishingirl (Cindy)
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Dead Flap???
My left wrist was taken last year for a flap, no problem, this year's surgery for recurrence a flap was graphed from my right thigh. I was told yesterday, by ENT that this was dying, no more blood flow. They want to do another graph from left leg. What happens if I don't? I am scared and tired of surgeries, I just got out…
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Hyperbaric Oxygen Treatments
Happy Thanksgiving to all! My question is really about hyperbaric oxygen treatments. I want to know if anyone has had any experience with them after going through radiation? I am asking because my dad is claustrophobic and is not to fond of being stuck in a little skinny tube for a couple hours each day. I have seen a…
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severe pain,cannot swallow,bleeding 3 months after radiation, depression--What can I do?
My brother finished chemo and radiation Aug. 5th 2009,almost 3 mos. ago for base of tongue cancer & one neck lymph node. They don't see any cancer. PET scan is Nov. 6th. He is 51 yrs. old. He still has severe throat pain, even with the pain medications. Cannot swallow--They say his windpipe won't close, and he's seeing a…
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Throat Cancer and Erbetux Treatment
My husband had his first treatment of erbetux today (throat cancer). He also has Parkinson's Disease and neuropathy (83 yrs old). He has had uncontrollable tremors that last for a few minutes, no pain so far with the neuropathy. What can I expect and what can I do other than pray to help him? I feel lost in that I would…
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Something to drink besides water!
My husband is 6 weeks out of treatment and drinks water. Has is just dying for something to drink that just might taste like something. Any ideas??? PK
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HELP head and neck cancer
Hello my name is Carla, and i am asking for help. Please!! My brother has been diagnosed with squamous cell cancer, head and neck cancer. They said it was terminal. Any how since then he has had about 7 chemo treatments. He is now immune they say. He has begun radiation treatments, 18 out of 37 treatments so far. He has 2…
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HELP! Any suggestion on Formulas for PEG Tube that does not cause Major Diarhea?
Hi , My loving Mom was recently diagnose with Stage 3 Throat Cancer of the Left Vocal Cord. Recent PETScan showed no growth into lymph nodes. She has been going thru intense Radiation which was at 2xs a day for 5 days and chemo once a week for abut 5 hrs. Well. she ended up severaly dehydrated, low BP, potassium, magnesium…
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when is roll call typically done each year?
I have seen several roll call posts in the past on this list. Is there a certain time this is done? What is the procedure and who might be in charge of doing this from time to time?
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Hope for the extreme cases
For all who question their chances- their hope, I submit the true story of a former co-worker. His stepson told me what I now tell you, and what I believe is true, from what I have seen and heard. The subject is still alive and well. This co-worker, who I will refer to as FS, went thru radiation treatment for oral cancer…
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Category "About Oneself"
I entered a few hrs. ago and I don't think it worked. Anyway...how does one go about telling people "About Oneself" on the blog? Thanks, Cindy
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Anyone here beat stage IV B throat Cancer?
Recently was told that the initial diagnosis of stage II was waaaay off. ENT based it on PET scan results, problem was the techs at the scan unit had a no show patient before me, and used the 45 + minute old glucose/tracer cocktail, and it did not highlight properly. Most people would have been happy to have their doc say,…
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Nasopharyngeal- treatment specifics
A big hello to everyone- I just joined this forum minutes ago. A year ago I took the two tumors on the left side of my neck to my regular Dr. By the time the biopsy and Pet Scan was done, and chemo and rad were started, it was early February of 2009: 34 radiation zappings-20 places per session, during which I carried two…
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Scarred for Life?
On December 2, 2009, I am going to have the cancer on my tongue removed, as well as a selective neck dissection. This may be vain, but I am worried about the scar that the selective neck dissection will leave. I'm twenty three years old and the thought of waking up every day to a reminder of the cancer scares me. My…
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Me again
I am the small older one in this pic. The other is my Sis!! Cindy
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At My Wits END! Argh....
My husband has hypopharyngeal cancer and is currently in the middle of rads and chemo. Has completed 23 of 33 rads, may or may not have another chemo session, depending on how his labs hold up. Does not had a feeding tube (his stupid choice), but was doing ok with hydration until last weekend. On Monday when we went in to…