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STILL FEELS LIKE THERE'S A GOLF BALL IN MY THROAT!
My cancer began on my right tonsil. It spread to one lymph node on the right side of my neck. I finished treatment 5 weeks ago; 6 chemos and 39 radiations in the neck area. I also have a peg tube for feeding. Before radiation, every morning, I was given a shot of Ethyol (sp?) which is supposed to protect the salivary…
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Had a swallow test..what to expect now
Hi All, My husband finished radiation and chemo on November 10, 2009. He has been unable to eat or drink anything since 10/10/2009. He had a swallow test done today and the results were that when he swallows it is heading down his windpipe. The therapist recommended 2 swallowing exercises and on 1/5/2010 he will have…
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Looking for Kurt (doitforoj)
Not sure if this is the way we do this but I sure would like to hear from Kurt (doitforoj) Kurt, I sure would like to hear how you are doing. I know by now you are are deep into your treatment and not feeling well but want to you to know I think about you and your family often. Keep grinding and hang in there. Mike
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Platlet Counts
Hi All: My husband Charlie, saw his oncologist on Thursday - good report; sees no evidence of cancer. Praise the Lord! He's seeing both the rad onc. and reg. onc. every three months now. His blood work was great except his platelets are at 65,000. They've flucuated between 108,00 to now 65,000 from June to now. But in…
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Just Updating
Again...can't thank everyone enough for the advise, support and prayers. Past few days have all been the same. Sleep 2 hours...get up pee...do my mouth rinsing...go back to sleep. LOL pain is about a 5 but constant. Gets annoying but just think about how bad it could be if not for everyone on here. I think of every…
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Diabetisource
Does anyone know where you can buy Diabetisource cheap, our insurance will not pay for it? Thanks, Suzi
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OK come clean guys
This is to all the male cancer survivors on this list. Have you even played the cancer card with your wife when she needed your help even when you were really feeling better? Kevin is a little more than 10 weeks post treatment. He is finding more and more energy every week as he recovers. Energy especially for things he…
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Radiation damage
It's six years since hubby was first diagnosed with Cancer of the Larynx (cleared last year)and now he's been told he has progressive bulbar palsy/ A.L.S. The E.N.T. doc. said he had radiation damage and then referred him to a neuro who dx P.B.P./A.L.S. Anyone heard of radiation causing this or similar disease?
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Had feeding tube taken out today!
I had my feeding tube taken out! And it didn't hurt one bit! Here I was worried for nothing:)Now I'm on my own. Sink or swim. I will still drink 4 Ensure a day, untill I get up closer to the weight I should be. Also, I have been feeling a little down. And I should be one of the happiest girls in the world! My husband…
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weight
Am 17 days past end of 34 rad treatments having a problem maintaining weight appitite not good and no taste effects this also any advise I donot have a feeding tube any advice I have lost 50 lbs
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Thank you all
Thank you to everyone on the board. I just wanted to let you know that sadly, my husband passed away at 3:00 a.m. this morning. I don't think I could have gotten through the past several months without all of you.
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Advice - MO Visits spaced out?
Hi - pretty new patient here, started round 1 induction chemo (21 day rounds) for Base of Tongue IV on Nov 19 - round two on Dec. 9. Round 1 I met with MO every week and had blood work done. GI tract got fried (meds helped w/ pain) and developed an infection while white cells were tanked (antibiotics worked). Started round…
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complete esophageal blockage
Evan went to have his esophagus dilated today, but they found that it is totally blocked. They could not believe that they had let him go so long without being checked out. They have set up an appointment for this Friday to set up a day for surgery, yet they know that they won't be doing it until after the first of the…
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Taste
After Radiation treatment how long for taste to come back
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ropey saliva following chemo and radiation
As you can tell we are newbies to this site but I've noticed that there is a LOT of information out there from everyones' experiences! My husband was diagnosed with a strange cancer located at base of tongue with lymph node involvement, so he had chemo (cisplatin),followed with 36 rounds of radiation in 08 which didn't do…
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First PET Scan
I have my first post treatment PET scan this Wednesday. Have never had one before and was wondering how long they take. Before my treatment I had 2 CAT scans with contrast that were done pretty quick. (Head and neck area only) This PET is supposed to go from my knees to the top of my head. Also, I have a prescription to…
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scalp itching
I am on 3 rd week of erbitux and my scalp has not stopped itching, i have tried many shampoos any one have any ideas. going for 3 week of radiation wish me luck..tonsil cancer -tonsil and 2 lymph nodes removed. diane from wisconsin
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Just starting out
My father-in-law has stage 4a throat/neck cancer. He's in his mid 70's and is in the middle of his third round of chemo coinciding with his first round of radiation. His cancer manifested itself in a swollen lymph gland that doctors insisted was an infection (two needle biopsies were negative). After they opened him up to…
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suv what does it mean
We just got back the new pet scan report and i was wondering what this means.... Two new hypermetabolic lymph nodes in the right level 2 neck, 2A lymph node with suv 4.8 in image 224 and 2B Lymph node with suv 6.1 in image 220. Its the suv that i dont really understand Doctor is not very good about explaining things.And We…
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Senate Health Care Bill Would Allow Insurers to Limit Coverage for Seriously Ill Patients.
A loophole in the Senate health care bill would let insurers place annual dollar limits on medical care for people struggling with costly illnesses such as cancer, prompting a rebuke from patient advocates. The legislation that originally passed the Senate health committee last summer would have banned such limits, but a…
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Super GOOD news!!!!
Hi everyone!! I have got the best news that I have ever had in my life!!! I was told on Monday that I am now cancer free!!!!! I just cried with happiness in the Drs. office at the cancer centre. This may sound weird but, I am soooo very relieved on one hand and then on the other, I almost feel guilty. Because I made it…
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immune system after chemo and radiation
Hi all: Been awhile since I've posted anything; but wanted to know about immune system after chemo and radiaiton. My husband finished his chemo in Jan. '09 (with two carbos in March) and finished his radiation in April. His PET scan on 9/1 was extraordinary! (Praise the Lord!) His three month check in with his radiation…
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Thought I was going deaf
I am in my ninth week out of treatment for Stage 1 Left Tonsil Cancer. Had surgery, then 7 weeks IMRT and weekly Erbitux. About 6 weeks out of treatment I noticed my hearing became affected and I wasn't hearing well as if my ears were blocked. I went to a GP and he said my ears were full of wax, gave me ear drops and said…
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Question about feeding tube
I still have my feeding tube in, plus I am eating most foods. The problem is, is I'm not gaining any weight. Do I have to keep using the feeding tube untill I get to a certain weight. And do you gain weight faster by eating real food as oppossed to the feeding tube. Like if the feeding tube was gone and all I could rely on…
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False salty taste for meat
I just have to ask this one. I've gotten a lot of my taste back. Egg nog actually tastes GOOD. Chocolate, not so much. I'm crazy on vegetarian soups. Fresh fruit is good, most sweets are not. But the one that kills me is beef. I have tried several variations of beef dishes, soups, etc., and I've noticed that anything with…
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TPF neoadjuvant or Cisplatin w/radiation
Just found this site; hope you can help. From what I seen in the last hour of reading, there are some marvoulous people here. Diagnosed as Stage 4; t-4;n-1;m -0, on November 16th. basal tongue squamous cell carcinoma. Now that the raging fear and panic has subsided and I only want to throw up every hour when I think about…
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Roll Call, January 2009
Here’s wishing all the very best for the coming year and that we can all answer and be present on this roll call. This roll call was started on August 5, 2008. Please post if you are present this month. Here are the folks who had head and neck cancers: NAME, STATE Bany, New York (Dad –TR2- had cancer) Bughunter Tennessee…
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When is the PET Scan done?
I completed treatment about three months ago, and I have been under the impression that the big sign-off comes when I get my post-treatment PET scan. I just saw my oncologist this week, and she said they don't expect to do the PET scan for at least a YEAR! She told me that getting a PET scan this soon would show nothing…
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Hondo’s up-date
Hi everyone just got back from seeing my oncologist, first I would like to thank you all for the prayers offered in my behalf, it is proof that God hears when his people pray. As you know my doctors were telling me about two months ago that they believe I need to try cyber-knife to remove what is left of the NPC cancer…
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Just Starting
Hi, I am a 59 year old male. I just finished neck surgery where they removed my tonsil, and metastasized squamus cell carcinoma glands and nodes. Went to the dentist today to get teeth in order then start Rad treatments in about two weeks. From what I understand it will be about the same as everyone, 5 to 8 weeks. The…