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weight loss
I am 30 or so pounds overweitht, and can stand to lose that and not hurt my stamina and strength. My Radiatin Nurse told me to expect to lose 30 to 40 pounds. She told me to eat everything, and anything that I wanted now to put weight on. She said the weight loss is to be expected. Then a Rep from a Health Care company…
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Chemo brain is very real!
Hi Friends, Just opened my email ACS News Letter "New Connections". It recognizes & discusses the "mental fog" many survivors have complained about after chemo. http://www.newconnections-cancer.org/issue_33/01.html At least someone is acknowledging the connection. It's a start! Love & Prayers, Patty
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More Birthdays!
More birthdays! Isn't that why we are all here? And why we went through this horrible treatment? It was my husband's birthday yesterday. I made a potato salad and grilled shrimp with butter and capers on the BBQ. I tossed zuchinni and summer squash in olive oil and italian seasoning, and grilled them too. I was able to eat…
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First Visit with ENT
My dad has his first follow up visit with the ENT on Tuesday. Please keep us in your prayers that all goes well. I am a little worried trying not to get too worked up. Kathy
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Heightened immune system
This post is not for anything bad that is affecting me right now (for a change!) but for something good. It has been well over a year since I have had a cold, sinus or flu of some kind. I was being so careful during chemo last year, careful of who got near me, what I touched, extra hand washing and trying very hard not to…
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No evidence of disease
I toyed around with toying around with anyone who is interested in this news but decided that I am too grateful for all the amazing people in my life who have gone out of their way to tell and show me they care to mess around like that. Dr "Hee Hee" Lee, Doc Nuke 'Em, the radiation oncologist called and said of Monday's…
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Leukoplakia (sp?)
Had my 8 month checkup with ENT Friday and he used a new 3 chip scope to look in my throat. Old cancer site looked good but he spotted a couple of little whitish spots on my vocal cords. Called it Leukoplakia and said it was the result of heavy smoking or GERD/ acid reflux. I've never been a smoker and although I have had…
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Finished Radiation!
Well, peeps, I made it I finished my last dose of Rads today! I know I still have a long road ahead of me; but at least I made it through the hard part. I feel like if I made it through this alone I can make through anything. Just have one more dose of Cisplatin on wed, the done with chemo. I just pray and hope that this…
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Pituitary Gland Tumor
I was told yesterday that I have a Pituitary Gland Tumor, that most are benign and treated with medicine. As most of the ol timers know, I am 19 months cancer free from my Esthesionueroblastoma, and now this. I had yet another fun MRI and am waiting the results..... Anyone had to deal with this? What can I look forward to?
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numbness, hearing loss
Hi everyone. At the end of last week I noticed two things, 1) numbness in my hands and feet, and 2) tinnitus and hearing loss. The numbness is mainly in my pinkie fingers (mostly on my right hand) and big toes. The tinnitus is mainly in my right ear and things are sounding a bit muffled there too. I had a hearing test in…
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Here we go again...
Hi everyone! Well, the last time I wrote in, I was delighted because the Dr's had "cleared" my husband of stage iv squammous cell carcinoma of the right tonsil. We even celebrated with a vacation to Florida. A week after we got home, Herb began having alot of pain in his head and neck again. After a few unanswered calls to…
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back for more!
Well, I have been very busy as all of you would expect. Not only with all the Dr.s visits hospitals and comparisons. I read almost daily posts that I find here. There is so much info and heartfelt kindness and emotion. I read with great curiosity, fear, concern and tears. I'm a 48 yo grown man and I feel like such a child.…
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When To Get The First PS/CT
As a number in our family are dealing with this issue, or have of recent, I would like to have a thread which only addresses this issue. For me, it was 2 1/2-months, and the results were "something might have shown" under my tongue. My ENT was so concerned about it that he scheduled my next PS/CT for 8-months later! Yeah,…
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micktissue?
Hope your so busy at band practice you haven't been able to post lately.
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leg weakness
My dad has finished his treatment a week ago. At the start of his treatment he suffered from dizzyness and his legs felt week. He was dehydrated and the chemo doctor took him off his blood pressure medicine and the dizzyness has went away, however he says his legs still feel week. The chemo doctor told him that it could be…
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13 rads and 1 chemo down
Glenn is in his third week of treatment. He's had one Carbo/Taxol treatment and 13 radiation treatments so far. Nothing unexpected thus far. Throat pain and mucus starting to increase. Taste leaving but he still eats some things. Drinks Gatorade throughout the day. Again, I'm so grateful for the PEG and Glucerna being in…
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loss of voiceand hoarseness months after treatment
Hi all I was wonder have anyone experience losing there voice for the first time months after treatment ? thats what im going through my treatments was months ago and just a few days ago my voice went out completly and returned but now im horse a little this has never happened before is this normal ? im getting kinda scared
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formula for mucous
Is there a formula using baking soda, salt, and water for mucous? I cant find the measurements of formula. The Doctor said it worked great. Thankx Finz
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Hibi-you should be ashamed of yourself, spamming our website.
Please stop and market your product appropriately.
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Personality Change
My husband was diagnosed a year ago with stage 4 throat cancer including upper pallet. After Chemo and radation the Dr. diagnosed his cancer as terminal. My question is.....Has anyone seen a personality change?? He seems to get nasty verbally and then the next day sleep all day. We are going to the Dr. tomorrow but I…
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Depression
I hate being so alone and the doctors telling me how thankful I should be, "to be alive." Noway! How is it a blessing to have my children see me suffer??? I can never uncerstand why this has happened to me, since their are others who have snoked for more than a decade. My children struggle with my condition, and deny that…
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Tinnatus-hearing aid assistance available
Howdy, for those of us who might suffer long term hearing loss accompanied by tinnatus, hearing aids are often prescribed to lessen the sound in the ear/brain. Problem is, hearing aids are very costly, $2,500 or more. There are a couple of sources for financial and fitting support available. One is the Lions Club program,…
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Tinnitus
Hello everyone, Been off the board awhile while I got my body regulated. I got dependent on the pain meds and had to stop them. My question for anyone out there who is post treatment is, did anyone develop a sound in the ears for a temporary or permanent time after treatment? I lost a little hearing from the chemo, but…
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CSN Map of Locations ~ Started to Update
I think I have figured a way for the CSN Locations Map using Google. I'm not exactly sure of all of the specifics as of yet. But I created one with the link below. http://maps.google.com/maps/ms?hl=en&ie=UTF8&hq=&hnear=Tampa,+Hillsborough,+Florida&oe=UTF8&msa=0&msid=108290908437938654290.0004899d469e1599afb49 If you can…
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After The Trach
I had my Trach removed a week ago, I'm very happy, but have a few questions, someone that has had a Shiley #6 than went a #4, it was left in for 2 months, you no my l/s larnyx is paraylized, but when my throat was healing, it healed around the oval plug and rubbed till it got sore. to touch it is very firm and the whole is…
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acceptence & what next?
This is my second attempt @ the posting as advised by "scam"? Thanks. I just need to vent a bit. I did not think I saw this all coming, or the events ahead. It seems that everything moves so quickly, overwhelmingly fast. I suppose that is a good thing. I have had the neck dissection. the tonsillectomy. now waiting for some…
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Notable Hearing Loss = Change in Chemo Plan
Mark has "notable" hearing loss and doctors are changing his chemo from Cisplatin to Carboplatin + Taxol. I know I have read of others here who experienced the same thing. Greg, was it you that finished up with Erbitux? They say Carbo-Tax is equal. I said why not do it from jump? Then they have to say they prefer the…
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Radiation and Chemo
I will not see my Oncologist until the end of the month and he will prescribe treatment for Squamous Cell Carcinoma, from what I was told at prior appoints it will be radiation and chem (Cisplatin IV). Has anyone finished treatment with a minimum of side effects and after what week of treatment did you need another driver…
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Aaaiiieeee! Late Hair Loss?
Has anyone else here experienced "late" hair loss? I am roughly five weeks out from end of radiation, and six weeks out from my last cisplatin chemo. During treatment my hair thinned to roughly half of what I normally have, but as my hair is pretty thick, I still had scalp coverage. Hair got all dry and brittle, like it…
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Boost Boost Boost and a Map?
Hello All, Boost After having a diet of Boost/Ensure for the last 3 months practically 24/7, I am curious about how others feel..do you prefer Boost or Ensure..or something else? (I prefer Boost, but Costco only sold ensure..I tried Scandishakes, which were 600 cals and very yummy but too expensive) Where is the cheapest…