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Update on Tim
Hello everyone Tim has had several scans since he has been in the hospital with pneumonia, this is week 3 in the hospital. Yesterday we got the word that the cancer has spread to his brain and no options where left. Tim has excepted this and has chosen to go home with the help of Hopsice. He is currently getting radiation…
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Still Fighting
It has been over a year since my husbands diagnosis and he is still fighting. He started out with stage IV tonsil cancer and did 35 rads with three cisplatin. Finished last Sept. Then on New Years Eve found out more "spots" showed up on PET in lymph nodes in the chest and started more chemo in Jan. Finished that on June…
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Heading for the finish line
Glenn has 6 more radiation treatments and 1 more chemo to go. He's experiencing every side effect they told us about but the real help in preparing for this stage came from this forum. I don't even know how to describe how much the knowledge and experience posted here has helped us. It's certainly kept me from panicking…
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Body temp questions..need answers please
Hi all...haven't been on for a bit since I went under my treatment and came home but now need some answer please. I had 20 Avian radiation treatments on my tumor and finished June 23rd. Go back on Aug.2nd to see what further treatment. Had a PEG tube placed and a Power Port. But here is my problem....I can't get my body…
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Scam...Cathy's Tim
You okay? Haven't heard much from you, it seems, lately. PM. Tim's left the hospital, still somewhat ailing, people. Beckon Call Time for Prayers directed towards Tim, and Cathy. kcass
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update
Saw my ENT today (Dr G). He walks in and says, "Hey, good to see you! You're looking great! Hey that PET scan, you know when I see one like yours I've never seen a patient get a recurrence so I think it's safe to say you're cured. There is the 5-year rule, but in my experience I think it's safe to say you are out of the…
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First subway sandwich post rads-YUMMY!!
A celebration- 4 months post rads--my first subway sandwich...mmmm..yummy Lots of mayo and sweet onion dressing..munch munch munch.
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PET/CT during treatment
Hi Folks, I've just completed completed my 25th rad, only 10 more to go!!! This week they also did a PET/CT. The rad doc was quite upbeat with the result which showed a roughly 60-70% reduction of the cancerous area on my BOT. He said normally they would see about 30-40% reduction at this point in the treatment. So, yes…
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INSURANCE/DRUG CO TRUMPH AGAIN!
I posted about a month ago, that I was stage 3 tonsil with right lymph node. The alternative doctor i seen called about proton thearpy. To make a long story short, the Ok facility approved me for the trearpy after about a week. However, after about 4 days the insurance co said NOT. Even though it FDA approved, they said no…
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Coffee
I just read an article that indicated that people who drank 4 cups of coffee a day were 39% less likely to get H&N cancers. I easily drank that much. Just curious about others out there? My big question though is, has anyone done much research on drinking coffee post-treatment? That is the Number 1 thing I miss! I just…
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My Dad
First of all, I would like to say thanks to all of you. This site has been a place of comfort, hope, and encouragement for me. My dad started his fight with this monster last October and his fight ended last Sunday. I just wanted to come here once more to say thank you to anyone who responded to my posts with information…
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Port
Hi All, Sorry I have not been been posting, but I returned to work last week and have been pretty busy. Sure have missed all of you guys and gals. The reason for this post is that right now I am feeling pretty dumb. I had not seen my med onco since the 1st part of April so I called her the other day because I was…
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major set back/ anyone relate
After a fairly decent 4th, I started to feel a little poorly starting Saturday, by Tuesday, I was feeling very light headed, and having a hard time breathing, I recently had my trach removed from Stage 4 throat cancer, and have been fightig with this for over a year now, 3 rd time of going in an clearing things up, well…
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Don't understand?
My Radiation ended last Monday and I had my last chemo dose on Wednesday and I still feel like like ****! Don't seem to be getting better; just weaker. maybe it's the chemo it's only been 4 days. I'm scared!!! I'm so, so tired of this! Please tell me that it will get better soon! :( Charles
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Update on Hubby Day 2 and question
Hi all! Basketcase here again. Charlie did well with the taxotere today so next Tues. he'll get the erbitux, taxotere. We have a question. I think I told y'all I lost my teaching job. I carry the ins. on both of us which is in effect through Sept. and then we'd have to COBRA it to the tune of $952/month! Don't know that…
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Pain after PEG normal????
I had a PEG put in on Thursday and I am still in pain (3 days later). It's all on the left side and it feels like something is moving around and pulling and burning inside. I have a bit of itching too. Does this sound normal to any of you that have traveled this road before? I would appreciate some insight. I just called…
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cisplatin taxol combo therapy. help
my insurance company is saying that cisplatin and taxol combo therapy falls into an experimental category and they will not pay. My tx is now being postponed. I need a link to prove otherwise. Why I need to do this and they are not listening to my med. oncologist is beyond me. Can anyone help?
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Freakishly well...
Hey everyone, I haven't posted in a while because I have been waiting for hard to hit. Well, hard hasn't hit yet. Mark is doing freakishly well with his treatments. Several weeks ago he was switched from cisplatin to carbo-tax, which has had very little side effects. Mark goes through his days pretty much like always with…
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HAVE YOU EVER HEARD of stage 5 cancer
has anyone ever heard of a stage 5 cancer? debbie
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alcohol
What's the real deal with drinking and cancer? I think that it's the sugar? since we are there how about the consumption of my favorite. Cookies! I like a few beers. Not had this discussion with anyone.
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power port
I had to have drains reinstalled in my neck this week. While in surgery the anesthesiologist was trying to put me out and all the drugs were infusing into my chest and shoulder. Hurt like hell! He ended up starting an iv in right arm just to put me down. Apparently this made the rounds at the hospital pretty quick the…
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Tim in hospital
Hi everyone Been a long time since I posted, sorry. Tim started his second round of chemo for the cancer that metastized into his lungs, bones and skin. He was showing improvement with the new treatment but since last Tuesday has been in the hospital w/pneumonia. He is having a bronchosopy today to see what's going on in…
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Exercise during treatment
There have been a few recent studies that have shown that moderate exercise during treatment can be quite beneficial to those going through this ordeal of ours. Moderate exercise being defined as 20-30 minutes / day of walking, yoga, easy bike riding etc. A couple of points I noted from these studies: There is less fatigue…
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Cancer free!!!!
Hi everyone! I haven't been online much lately, but I thought I'd let folks know that there IS hope for for anyone who has gone through base of the tongue cancer. I know that at times, when you are going through treatment and even the months after, that you feel you will NEVER feel good again. Notice I didn't say "normal".…
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ethyol injections to save salivary glands
Hi, I am currently in the early stage of chemo and radiation treatment for base of tounge c w/lymph metastisis.My wife suggested to the radioligist that we use ethyol to save the salivary glands.(she works at a hospital and speaks with many involved).Has anyone had any experience with ethyol? has it helped them? what kind…
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10 more to go
Well, Glenn has 10 more radiation treatments to go and 1 more Chemo. He's got some side effects mostly low blood pressure, lots of fatigue and a very sore throat. He's swallowing soft foods (nothing tastes good) and pills but most nutrition through the PEG. We started the PEG early in an effort to keep his nutrition…
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Update on Hubby
Hi all: Basketcase wife here again! Just wanted to let y'all know that Charlie did well with his first dose of Erbitux today. Actually he slept through it all! He'd taken one of his morphine tablets early this morning about 6 and then about 8:30 one oxycodone since we were going to be there a while and then of course they…
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Will i always have this spit cup? :(
I reposted this since it was added from last post which I know can get ignored! Hey, Thanks for everyone's replies! I truly, truly thank you from the bottom of my heart!! :) Have new question? Right the tough part is getting sleep, but it seems that I have constant secretions; not necessarily thick but constant. I know I'm…
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Squmous cell cancer of cervical node with primary occult tumor
Well, I am relatively new to this site, and it has been the best place for me to find out what I have in front of me. Many of you have replied to my questions, and I appreciate the honesty in the answers. I have one in regards to my chemo, and that is Cisplatin. I am haveing radiaton 5 times a week for 7 weeks, and…
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Half way home
Hi Folks, Sorry I haven't been on the past 2 weeks, as it turns out the internet server here was blocking this website (and a few others) inadvertently. After finally figuring out the problem was not with my computer, it was easily rectified. I am almost at the 1/2 way point in my treatment: 3 weeks of 7 RAD is complete…