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Cancer free!!!!
Hi everyone! I haven't been online much lately, but I thought I'd let folks know that there IS hope for for anyone who has gone through base of the tongue cancer. I know that at times, when you are going through treatment and even the months after, that you feel you will NEVER feel good again. Notice I didn't say "normal".…
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ethyol injections to save salivary glands
Hi, I am currently in the early stage of chemo and radiation treatment for base of tounge c w/lymph metastisis.My wife suggested to the radioligist that we use ethyol to save the salivary glands.(she works at a hospital and speaks with many involved).Has anyone had any experience with ethyol? has it helped them? what kind…
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10 more to go
Well, Glenn has 10 more radiation treatments to go and 1 more Chemo. He's got some side effects mostly low blood pressure, lots of fatigue and a very sore throat. He's swallowing soft foods (nothing tastes good) and pills but most nutrition through the PEG. We started the PEG early in an effort to keep his nutrition…
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Update on Hubby
Hi all: Basketcase wife here again! Just wanted to let y'all know that Charlie did well with his first dose of Erbitux today. Actually he slept through it all! He'd taken one of his morphine tablets early this morning about 6 and then about 8:30 one oxycodone since we were going to be there a while and then of course they…
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Will i always have this spit cup? :(
I reposted this since it was added from last post which I know can get ignored! Hey, Thanks for everyone's replies! I truly, truly thank you from the bottom of my heart!! :) Have new question? Right the tough part is getting sleep, but it seems that I have constant secretions; not necessarily thick but constant. I know I'm…
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Squmous cell cancer of cervical node with primary occult tumor
Well, I am relatively new to this site, and it has been the best place for me to find out what I have in front of me. Many of you have replied to my questions, and I appreciate the honesty in the answers. I have one in regards to my chemo, and that is Cisplatin. I am haveing radiaton 5 times a week for 7 weeks, and…
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Half way home
Hi Folks, Sorry I haven't been on the past 2 weeks, as it turns out the internet server here was blocking this website (and a few others) inadvertently. After finally figuring out the problem was not with my computer, it was easily rectified. I am almost at the 1/2 way point in my treatment: 3 weeks of 7 RAD is complete…
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Results in froms husband's endoscopy biopsy
HI all: Basketcase wife here again! The biospy from hubby's bleeding ulcer did show cancer! Needless to say, I've been a triple basketcase. We got the results last Thursday from the gastro; he did say it may be the same type he had in his neck and he thought it was treatable. We had seen the onc. for the horrible lower…
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Awesome Help
I just wanted to say thank you to everyone on here who has taken the time to answer all my silly questions and help over the last couple of months. You are all awesome and without you all I would still be struggling. It's nice to have a place to come for concerns and questions and answers. God Bless you all. Debbie
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Visit with Oncologist Today
Hi all: Basketcase wife here. I had posted earlier about Charlie's biopsy from bleeding ulcer showed cancer. Well, he had the abdominal ct scan and lower lumbar mri on Tuesday and we met with onc. today. It seems as if this is a very rare thing to have happened with head and neck cancer. It has returned not in his throat,…
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New - questions about chemo
Hi all, my brother had primary tumor in max sinus removed, followed by radiation, then not long after developed lump near salivary gland, had second sugergy to remove, tumor was malignant with SCC along with 3 lymph nodes and one on the opposite side. Now, they want him to start chemo (his second surgery was three weeks…
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SSD and retirement
Is there soemone that can answer my questions about ssd and retirement. It is not for today, but something to know for near future. I am 54 and had work for private industry for 26 years until dec. 2003, when company relocated to chicago, il. I was totally vested in my retirement and 401K. I took my 401K and reinvested it,…
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any updates on Chefdaddy
I'm gettng really worried about Mike again. It has been a long time, does anyone have an update on Mike? Thank you in advance for replying. God Bless, debbie
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Looking for long term users- Erbitux
Im still trying to do the best i can for my wife(see my users profile) ANYONE used erbitux over a long period of time? She had recurrence within 2 months but now latest PET CT after 9 weeks of Erbitux , no visible pathalogy sign of tumor, nor microscopic, except small nodule on lung, which they believe insignificant. So it…
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Another Survivor
Not really a topic thread- JUST news of another long-term survivor. Got my Port flushed today. A new Nurse did it, and we got to talking about her Brother-In-Law, who battled larynx/neck C before she was "in the family." Told her a little about our ACS site, and that I just might post: According to this Nurse, her BIL was…
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Chemo doctor
This is a follow up about the ENT my dad went to. When we went to see the chemo doctor today the first thing he told my was that the ENT told him he was really happy with my dad progress. I can not believe that he could not have said that to us. The chemo doctor could not see anything or feel anything that caused him…
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Question- False Negatives and Positives
Hi there My wifes PET CT (4 months after a second partial larengectomy and 5 months after lung lumbectomy) came back clean and a mass of a previouse PETCT shrunk almost completely to 0.3 inches. but with no pathology lighting up there. So this is considered a reaon to be happy. 1.However there is a nodule about 0.2 inch on…
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Need post treatment surgery. :-(
Hi Everyone, hope someone can give me their experience here. I'm three and one-half months out of chemo and radiation to the neck for primary base of tongue, mets to two lymph glands. One of the glands was removed for original biopsy. Now the three-month scan shows "borderline" activity in the remaining originally affected…
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ENT visit did not go well
Hey everyone! My dad's visit with the ENT did not go well. Like before he talked only to the nurse and nothing to my dad. He looked in his mouth and felt the area around his neck. Then told him that he wanted him to go for a PET scan in 4 weeks. I questioned him about the chance of false positives showing up and it was not…
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Introduction
Hi, I'm new here, just thought I would introduce myself. I had cancer on the base of my tongue and it spread to the lymph nodes to my right side and three places on the left side of my neck. So I had radical neck surgery to remove the cancer, it overtook my lymph node, it was 5 cm, and they removed some muscle, jugglar…
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Please Help - Nasal Cancer - for Snoopneng
Hoping some "veterans" will see this post. Snoopneng posted on another thead: my dad has the same cancer a about a year ago new please tell me if ur cancer is still there and how do u take care of it. cause my dads cancer is getting worse. his on stage 4 which they say he could die any moment now. if anyone who could help…
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Hairballs and Boost Breath
This is another one of those posts that sounds like a bad song title. Does anyone else feel like they are always trying to cough up a hairball? What makes it better? Also, does boost give you worse breath than ensure or is all bad? Thanks Stacey PS IS anyone here on Facebook? I am listed as Stacey Almos on FB, please…
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Time off work!
Hey folks, How we doing? I have a general question. Would like to start a list of the average time people took off of work from the initial diagnosis, to surgery, then through chemo. When this started right before surgery even before asking the nurse gave me a employment note to be off 6-7 months. Since I have surgery in…
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"Grossly Normal"? - PET Mostly Clean
Add another to the "three months out" club. Got my results today. Started late October 2009 with base of tongue stage IV - two nodes involved, one huge, one slightly enlarged. Did Induction Chemo, then rads with concurrent chemo. Tongue is clean now (per CT and PET - "no significant activity"). Formerly huge node is a…
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Getting the PEG out
Good Morning everyone I hope everyone is feeling better today. I have an appointment tomorrow to get the PEG out. I was waiting until after my PET came back and what the outcome of that would be. Now that the scans are good I believe it is time. I have been using it still, supplementing with it. I have so much Jevity left…
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Foods people CAN Tatste!!! ONLY POSITIVE POSTS PLEASE!
Ok, I was wondering of the people that are post treatment what foods can you taste. I don't care if it's been 1 month post treatment or 10 years. Just want to see some positives of what foods people can taste! I have noticed though that there aren't too many long termer's on here. I was connected to two people who are from…
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Fear/Discouragement
How did you all cope with fear? Here it is 4 AM and I can't sleep. I am just starting this journey and I wonder if I will have the strength to make it. I will be having G-tube surgery tomorrow and starting chemo and radiation on Monday.
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Question about PEG tube
Hi-I need info on peg tube. Husband has end stage laryngeal cancer and down the road will probably need peg tube when he can't swallow anymore. I need to stay 3 steps ahead of everything. What kind of Dr. puts the tube in? Is it an out patient procedure? How do you take pain medication through the tube? Also how do you…
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Radiation
Good Morning. I would like to thank everybody that are replying to my posts, as you are helping me with my questions so much. Today, is a beautiful day here in Down Eastern North Carolina. Just beautiful, and we are having a family cookout today that is on my bucket list before I start Radiation next week on July 13th--YEA…
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Operation coming up
Hi all I am fairly new here, and would like to know what to expect of the operation i have been scheduled for on the 26th July. I had a biopsy under the tongue - tested as positive as a cancer, and have a permanently swollen left side lymph glan on my neck. The operation is - left fom excision, right fom boipsy(frozen),…