-
Starting Treatment Tomorrow
Hi I'm new here and just been diagnosed with Stage IV BOT SCC. Am scheduled to begin Chemo/IMRT on June 15. Two weeks ago had a neck dissection to remove a few lymph nodes on the left side of my neck, it was then they determined the cancer is originating at BOT. I'm from Chicago originally, but have lived in SE Asia for…
-
Crazy head pain
Hi Everyone! Just wondering if any of you who have had neck dissections and radiation have suffered with severe head pain? My husband Herb has officially been "cleared" of cancer for now, but this head pain has popped up aprox. 3 weeks ago. He can only sit up for 10-15 minutes and then has to go lay down because of the…
-
Update
Hi all again: Basketcase wife here again! Hubby got his two units of blood today - no problems and what a difference it has made. Also saw the gastro today and endoscopy is scheduled for next Thursday at 1 or 2. He is leaning towards an ulcer and when I asked him (he's so nice) could this be late side effect of…
-
Waiting Game
Hi everyone, Went to see my ENT yesterday, he gave me the results of my scan and scoped me with one of those new scopes with the camera. He explained that it was a sugar scan and how the whole thing worked. He put it on a number system for me saying that when the results come back as a 10 or 11, that is probably cancer.…
-
Here's a calendar
Hi everyone, here is an available calendar I've added a title to. I have three websites, and I could see about tacking one onto the end of one of my sites if this doesn't work. This is one I've used for different groups before, and is hosted by calendars.net. I've left the permissions wide open, so anyone can change…
-
Feeding supplies delivered
The durable medical equipment company delivered 11 cases of Glucerna, an IV pole and a box of gravity bags to the house yesterday afternoon. The visiting nurse comes on Monday afternoon to teach Glenn how to use it all. His Nutritionist wants him to take 9 cans a day (down from 12 originally) because she doesn't want him…
-
Finz2lft - Port Installed
Posted this for you Finz.... I have squmous cell cancer of left cervical node with occult primary tumor. The Radiologist thinks he knows where the primary is and has ordered another biopsy of tounge and nose area. I have my port installed tomorrow morning. Does that hurt,they have not told ne much. Then PEG, then Dentist,…
-
This lonleness is killing me.......
Hi all it is really hard for me as of now im extremly lonely my daughter was here with me but now she wants to go back to her nanny and papa my eighteen year old is there also my five year old is with his dad it seem as though once treatment ended everyone dissapeard when treatment ended they think all is well beecause I…
-
Tinnitus
Does anybody here that had rads and chemo have tinnitus, ever since my tx was complete I have a constant ringing in my ears, not enough to disturb me and only noticeable when I lay down to sleep at night or if I think of it, doc said it's an after effect. Denis
-
Can't get comfortable!
Anyone have trouble getting comfortable during treatment. It seems like no matter what I do I can't get comfortable. Also, having trouble sleeping. Only sleep 2-3 hours at a time! :) "All we can do is put it GODS hands" Charles
-
Hubby saw onc. today
Hi all: Basketcase wife here again. Just wanted to update y'all what the onc. told Charlie today. He is doing some slight internal bleeding not a lot but enough to push those blood counts down and causing the fatigue and headaches. So tomorrow morning he goes for two units of blood and then tomorrow afternoon to the gastro…
-
Possible cause of the "crazy head pain"
Hey everyone! We went to a neurologist today and he thinks that the head pain is due to a jawbone infection! Tomorrow off to the dental clinic at the cancer treatment hospital to see what can be done. This just gets "worser and worser!" Anyone been through this?? Thanks for reading!! Lori
-
Radiation tips? - parotid gland and fertility ?
Hello! Two months ago I had a tumor removed from my parotid gland that turned out to be cancer- acinic cell carcenomia. It didnt spread to lymphnoids or anything but one margin was really close to my nerves so they suggested radiation. Getting my mask fitted sucked! For those of you who had radiation, any tips you wish you…
-
New Meds for Depression
it's been a real long haul for alot of us, I needed help, for the depression. i am taking something that seems to knock me sock off this morning, nervous as a cat, citroplam is what i was given, and if you think your getting something to help, it is not.....let you guys know, I can't handle it!. More depressed than ever,…
-
Day 12 down and questions about throat pain meds
Hi all, Day twelve (out of forty) done today. So far hubby is maintaining weight. Managed to put on a few prior to RADs and the first two weeks. He is holding at 210 or so. So far, he can still eat, but taste is going quickly. Funny, but he is watching those cooking shows that some of you mentioned that you did. He has…
-
Ugghh! Charlie Brown!!!!! :(
I'm really sad and pissed off! I had made an appt to get a massage today; I was sooooo looking forward to it. :( I had told the girl when making the appointment that i was being treated for oral cancer and getting radiation and chemo. They called back and said they couldn't see me; that people aren't suppose to get…
-
Good Report
Hi All, Went for my biopsies yesterday and the ENT said nothing was there. He did take samples though and I will get it on paper in the next few days. Good Stuff!!!! Best to all, Steve
-
Can you swim with a PEG?
Can you swim with a PEG? What are some things the doctors don't tell you? Do's and Don'ts?
-
Fullness & Bloating with a PEG
My father has a PEG. He doesn't want to have the formula feeding because he says he feels very bloated and full. Why does he feels full and bloated when we know he doesn't have anything in his stomach?
-
First PET scheduled redux
I have a date for the PET/CT scan: 28 June. My first milestone! Fingers crossed. Steve, isn't yours coming up? Best, Mick
-
10 more to go
My dad has 10 more rads to go and 3 more chemos. He has been one of the lucky ones and has improved during the treatment. So far he has only lost around 10 pounds and still able to eat, but nothing has a taste. Can some of you let me know what to expect next as far as a time frame for appointments and scans. He already has…
-
1st Scan Clear!
Hi All. Haven't been on in awhile as my computer shot craps and I just got around to getting a new one. Received "all clear" on first CTscan last week. I know first scans show a lot of false positives. Hopefully this isn't the opposite - false negative (if there is such a term). More exciting for me is I finally ate after…
-
Blood counts in
Hi all: Hubby got results of blood work from GP yesterday and thyroid seems to be fine. His number for red blood cell count were: rbc 3.23; hemocrit - 26.3; and hemoglobin was 7.8. They told him to check with the oncologist which he has an appointment for Thurs. with him anyway and possibly the gastroenterologist; but he's…
-
Airline Travel & Ensure - The answer ie YES
Before I go off hunting the airline & home land security rules, I thought I'd ask the experts. I have a trip planned next month to the west coast and will need to have my meds (Ensure) with me. Will they let me through security with 2 or 3 bottles? Thanks for your responses. Ed Don't know how to delete, so this from…
-
Thrush x 3
I'm on my third case of Thrush. 1st time was after tonsillectomy and I used Difluken. 2nd time was during rad treatment and I used Nysatin. Both worked. 2 months post-treatment now and just got my 3rd case. I'm using Nysatin again and it's working. Avoiding Diflukin due to its effects on liver. Just wanted to know if…
-
Start tomorrow...didn't see it coming...
Just to let you all know, Mark starts tomorrow. Just learned it today...thought we had until next Monday. Not the best coordination...it is what it is...start early end early. He will have 30 rads in 6 weeks with the 3 doses of cisplatin. I have been following j3rey's post of "getting started, what to expect" so no need to…
-
Psychologically shifting from strong to powerless??
What kind of experiences are out there regarding having a good mastery of life, successfully self employeed, good family relationships, healthy personal self care (healthy body weight, good eating habits, physically healthy), strong self perception, and enjoying life; and having that turn around to being surgically beat…
-
Port out tomorrow woot woot!
Hi guys, Sorry I havent been on in a week or so, hope everyone is doing well, any updates anyone post on this thread. But yes, as the title states, I will be getting my port removed at 3 pm tomorrow!!!!! Any advice? I have been working like a rented mule these past two weeks, but I promise I will do better with checking in…
-
moving on without cancer
Hi everyone I hope all is well my son is grauduating from high school and im here to see it ! im very gratefull to god for granting me mercey and grace and sparing my life for me to beat the beast cancer has came and took so much from me but I will not give it my spirit and soul I fought to hard for that im in the presence…
-
What to expect after treatment
Hi Everyone, My husband was diagnosed in January with Stage 3 base of the tongue cancer with a matasis in one lymph node. His treatment consisted of full body chemo, one treatment every three week for three sessions. This was followed by 7 weeks of radiation, 5 days a week where one day each week included a chemo session.…