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Update on Tim
Tim passed this morning at 5:40 am. He is whole again and free of cancer. Cathy
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BP Question
Hi all! Nine months out - scope was clean. Going for PET at Mt Sinai in August. Has anyone have trouble with LOW blood pressure? Last two weeks pressure running 80/50. Dr advised to add a lot of salt to foods, otherwise I will need medication which of course I do not want. I have enough trouble eating w/o adding salt to my…
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1st pet scan 2 months post radiation
Just got the results of my pet scan. Finished radiation 2 months ago for NPC. Had several lymphnodes enlarged and metabolicly active and a spot on my thyroid. The new results are: The nasopharyngeal mass is no longer identified as a discrete structure. Metabolic activity now appears normal. Of the lymph nodes,the ones on…
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Just getting started
Hi, my dad was diagnosed in mid june with SCC in his larynx. He is stage IVA. He is going to have 35 rads and 3 rounds chemo. He was set to start treatment a couple of weeks ago but went to his dentist and was told he should have all 25 of his teeth extracted. It was a huge shock but after hearing what the alternative…
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Hate having to ask a question so soon...
Mark finished treatment on Tuesday. In his appointment on Monday with the oncologist I heard him talk about "starburst" pain in his neck and ear (the side of the now removed tonsil, tumor, lymph nodes and neck muscle). He said is was like a flash, and started in a specific spot and shot out like a starburst. Today (Friday)…
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New member Husband has stage 4 pyriform sinus ca. in the epic study at U of C-besides Fire 34 are th
My husband was diagnoised with advanced pyriform/hypopharangeal HNSCC with mets to the lymph nodes. He's a T4N3MO. The epic study is being conducted to test the efficacy of erbitux with other chemo drugs. He started with chemotherapy in the fall of 09 and started chemoradiation in Jan. He completed his RX in Feb. He had 2…
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Missing U Sweet!
Please message or answer post Sweet. You have been on my mind, and in my prayers. Hoping you won the lottery, and are taking a much needed vacation from the madness! ;) Love Patty
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choking alot lately
Hi all ive been kinda choking off of liquids I drink lately it seems a though im not controlling that part of how im swallowing as anyone else had this issue ?
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Here I go again
Second recurrence. ENT told me my byopsy came back positive. Small spot, soft pallet. I thought I had it licked in November 2008; surgery, flap, skin graph, 30 days rads. It came back in Oct 2009; Surgery in November; flap, skin graph...Flap problems two more surgeries in December...flap won't take because of previous…
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first scan after treatments
Finshed treaments 9 weeks ag and my first scan are coming uo...i am a nrevous wreck .does everyone go through this - any help on hoe to deal and if it does get easie. I wrry constantly about cancer returning. Leanne
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It is gone
In March I was diagonosed with squamous cell carcinoma of the hypopharyrnx. Looking up that cancer online the only thing I could find was prognosis was dismal. Never believe what you read. I went through 35 radiation treatments and 3 cistiplatin treatments. Today the doctor shoved that lovely device down my nose and said…
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Blood Tests - any extras to ask for ??
Hi Guys, I wanted to check if there are any additional blood tests I should request as I am going to see Chem Ali next week and will have blood taken. I gather the usual test will cover: RBC Hemoglobin Hematocrit wbc Neutrophil Eosinophils Basophils Lymphocytes Monocytes Platelet Count I might ask for another HPV while…
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Father finished treatments two weeks ago, and now bloodclot in left calf...
hello everyone out there, my father recently finished his chemo/radiation treatments the week of june 14 for stage iv tongue cancer, started floor of mouth.. i took him for his weekly checkup with radiation nurse and he was complaining of some leg pain so they sent him for a scan, found a small clot and admitted him for…
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GRAVEY UPDATE GOOD NEWS :)
Hey everyone, I have been reading some posts and it's good to see a positive swing for some of you, some finished with their treatments and now have had some recoup time. You who are still struggling, look too these vets for help, you have a well of knowledge here that you cant get anywhere else, even from a doctor. Yes,…
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Great Day!
My day started out with a more than normal amount of hairballage. Proceeded to rain like crazy and got soaked going to my office. When I went to ENT's office, first thing he does is give me one of his dumb jokes (he's the guy who came in the morning of my surgery and said "I would feel great today if I could just get rid…
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caregivers site
Hi all, I had thought in one of the discussion boards there was a site for caregivers. Can someone point me in the right direction? My fiance could use a site to see he is not alone and be able to share his views. Thank you Debbie
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Physical therapy
Has anyone gone though phsical therapy after they finished treatment, I have lost just over 90 pounds and I think that now that I am eating solid food I will be able to maintain weight. I have lost so much muscle mass that just standing or walking for over 15 minutes and I get terable back pain. Some friends sugested that…
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six month check up no sign of cancer
Hi I hope all is well with everyone I went to the check up he seen no cancer when he used the endospoe seriously I said sir just give me the numbing spary youre gonna spary in my nose and let me apply it myself he laughed but i was dead serious he also told me im not out the woods yet and the first two years are the…
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Cardiovascular calcification after radiation
MY BFF PEGGY IS IN THE HOSPITAL RIGHT NOW. SHE WAS ADMITTED WITH CONGESTIVE HEART FAILURE ON SUNDAY. ON TUESDAY THEY WERE GOING TO DO OPEN HEART SURGERY. SHE HAD HODGKIN'S DISEASE WHILE WE WERE IN HIGH SCHOOL, SHE IS NOW 56 YEARS OLD. THEY HAD TO CANCEL THE SURGERY BECAUSE RIGHT B4 THEY DID A CAT SCAN AND FOUND…
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ROLL CALL INDIVIDUAL STATUS/UPDATE July 2010
First, I would like to extend my deepest sympathy to CatyA88 for the passing of her loved one Tim. May she find peace as she cope with her loss during the difficult days to follow. God Bless. Thank you all for participating. I do wish you will continue to be present. The below is an update on our Roll Call. We started this…
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Fini
Mark is done with treatment. Anxious relief.
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CSN ~ Better than Morning Coffee
Good Morning Brothers & Sisters....fellow Warriors Sometimes hitting up CSN first thing in the morning is better (or at least as good) as my morning cup of coffee. Reading all of these positive posts this morning is especially uplifting. Also getting a call from another survivor (Charles - Irish) yesterday evening was good…
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Tattoos....
I posted another in my expressions that I like...FAITH.
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Greg - Debbie - PEG with Extra "Tissue" Sticking Out
Remember you two had similar issue, some sort of tissue or growth coming out of stomach area at PEG tube. Saw my doc today, who said it is (something I don't remember) "mucosa". Said this happens sometimes, and is not a concern. He said when I get my PEG removed (next week), it should go away, if not, they'll cauterize it.
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Chefdaddy, please post so we know you're ok, please
Mike, I know you are still very tired but we haven't heard anything on you in some time and we are extremely worried. If you are able, please just post "OK" so we know that you're still getting on and hopefully that you're doing ok. God bless you friend!! debbie
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Soccerfreaks MIA?
Has anyone heard from Joe? Best, Mick
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2nd round of erbitux and taxotere
Hi all: Basketcase wife checking in. Charlie had his second of seven treatments of erbitux and taxotere today. It went well. Doc. said his blood work looked pretty darn good. Checked with gastro on way out as his appetite is not great right now and he gave him another prescription of something to take witht he nexium.…
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relief
well I knew it was coming.... I have been in chemo and rad treatment for BOT primary w/lymph mets for a little under 3 weeks.I was told to expect some adverse side effects.well friday it started with what felt like a lump in my throat.That became what felt like trying to swallow shrapnel every time I drank or ate. I has 20…
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Don't know what to expect
My husband was diagnostic last month with cancer at the base of his tongue, he is also a diabetic with he controls with insulin daily. He starts his chemo tomorrow and radiation,we were told chemo once a week for 6 1/2 weeks for 4 hours and radiation for about 20 to 25 minutes. He has never been sick a day, and is the…
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sixth month check up scared to death
Hi all my sixth month check up is coming up im going see the same docter who dignose me with cancer and right about now I keep reliving the moment he said You have cancer and still havent gottten used to that endoscope going in my nose no matter how much numbing meds he puts in there that crap hurts ! dose anyone have tips…