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Where's my PEG? - - Oh, yeah - they took it out this morning
Yay - my doc subscribes to the "no pain, no pain" ideology. My PEG was removed this morning. "Mild sedative" turns out to be something that knocked me out, and left me with no memory of the procedure once the happy juice got turned on. Gastro scoped me while I was in la la land, decided a stretching was in order, and did…
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Tingling Feet...need info please
Hi everyone, I think I have seen something about this but couldn't find it so I have to ask. I finished my rads June 24 and for about a week now my feet are tingling and feeling like they are asleep so bad I am going nuts. Is this something to be concerned about? I check back in next week to repeat my MRI and see the doc…
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Are you Full Yet?
I, had some great news and alot of support, I thank everyone for that...I have a question...Does anyone every get tired of eating?????? I eat day, all day, and have gained only 12lbs,....why is it when you have cancer it takes more food to gain weight, I weigh a whopping 152-lbs, and I was at 140...I need to get back to at…
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Has anyone experienced alcohol ablation int the lymph node area of the neck? What were the results?
I may be undergoing lymph node ablation in the neck area with an alcohol injection. Has anyone had this done and what were the results? Possible residual papillary thyroid cancer after after thyroid cancer surgery four years age.
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A laugh to brighten your day!
I'm new here and posted my story in an earlier thread. In it I mentioned that I went to Johns Hopkins on Friday. I was able to get an emergency appt. in only a day! How? Read on... So I've got the General working on this for me as well. My late dad 'Bigfuzzydad' was a Captain in the Marines in WWII in the Pacific. Tough as…
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A little morning humor with your coffee
This morning I was doing my usual routine of coming to this site and another one that I frequent, with my coffee and was basically checking in on some of the posts. My wife came into the kitchen and with a strange voice said "Hello" almost imitating a Parrot. She does this once in awhile because she knows the story behind…
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thank you from Andyw
it has been a while since i wrote last and i want to say thank you to all the people who were kind enough to share with me and give me support. it is nice to know that there are people out there who understand. i have been trying to do more to help myself but it is difficult when i am depressed my doctor put me on…
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Help, Support, Information & Hope
Hi Everyone, I recently posted this on Brian's post but I also wanted to post this here for more people to see. I think that anyone with head & neck cancer will be able to benefit from this online support group. The Oral Cancer Foundation has an online & free patient forum that can be accessed from their main site here:…
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Brochure created for Head and Neck Cancer by Eagle Project
Here is the link to the brochure that I created for my Eagle Project. It is a list of foods and comfort items that other cancer patients have found helpful in their treatment. http://bit.ly/9L8Zei John
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thank you gifts for the nursing/doctor staff?
My husband has approx 2 1/2 weeks of radiation left, and he asked me to ask all you kind folks a question...is it appropriate to give a thank you gift of some kind (like a box of candy) to the staff who have helped him get through this horrible process so much easier? Just curious what everyone else has done, if anything.…
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Suction Aspirator for Mucous
My Doctor has suggested that I rent or purchase a Suction Aspirator for controlling the mucous/saliva that may build up in my throat. Does anyone have any experience or advice in regards to using an Aspirator. I have been told that it just makes it easier to get rid of excess mucous, and therfore easier to sleep. Thank…
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Update on Tim
Tim passed this morning at 5:40 am. He is whole again and free of cancer. Cathy
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BP Question
Hi all! Nine months out - scope was clean. Going for PET at Mt Sinai in August. Has anyone have trouble with LOW blood pressure? Last two weeks pressure running 80/50. Dr advised to add a lot of salt to foods, otherwise I will need medication which of course I do not want. I have enough trouble eating w/o adding salt to my…
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1st pet scan 2 months post radiation
Just got the results of my pet scan. Finished radiation 2 months ago for NPC. Had several lymphnodes enlarged and metabolicly active and a spot on my thyroid. The new results are: The nasopharyngeal mass is no longer identified as a discrete structure. Metabolic activity now appears normal. Of the lymph nodes,the ones on…
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Just getting started
Hi, my dad was diagnosed in mid june with SCC in his larynx. He is stage IVA. He is going to have 35 rads and 3 rounds chemo. He was set to start treatment a couple of weeks ago but went to his dentist and was told he should have all 25 of his teeth extracted. It was a huge shock but after hearing what the alternative…
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Hate having to ask a question so soon...
Mark finished treatment on Tuesday. In his appointment on Monday with the oncologist I heard him talk about "starburst" pain in his neck and ear (the side of the now removed tonsil, tumor, lymph nodes and neck muscle). He said is was like a flash, and started in a specific spot and shot out like a starburst. Today (Friday)…
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New member Husband has stage 4 pyriform sinus ca. in the epic study at U of C-besides Fire 34 are th
My husband was diagnoised with advanced pyriform/hypopharangeal HNSCC with mets to the lymph nodes. He's a T4N3MO. The epic study is being conducted to test the efficacy of erbitux with other chemo drugs. He started with chemotherapy in the fall of 09 and started chemoradiation in Jan. He completed his RX in Feb. He had 2…
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Missing U Sweet!
Please message or answer post Sweet. You have been on my mind, and in my prayers. Hoping you won the lottery, and are taking a much needed vacation from the madness! ;) Love Patty
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choking alot lately
Hi all ive been kinda choking off of liquids I drink lately it seems a though im not controlling that part of how im swallowing as anyone else had this issue ?
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Here I go again
Second recurrence. ENT told me my byopsy came back positive. Small spot, soft pallet. I thought I had it licked in November 2008; surgery, flap, skin graph, 30 days rads. It came back in Oct 2009; Surgery in November; flap, skin graph...Flap problems two more surgeries in December...flap won't take because of previous…
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first scan after treatments
Finshed treaments 9 weeks ag and my first scan are coming uo...i am a nrevous wreck .does everyone go through this - any help on hoe to deal and if it does get easie. I wrry constantly about cancer returning. Leanne
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It is gone
In March I was diagonosed with squamous cell carcinoma of the hypopharyrnx. Looking up that cancer online the only thing I could find was prognosis was dismal. Never believe what you read. I went through 35 radiation treatments and 3 cistiplatin treatments. Today the doctor shoved that lovely device down my nose and said…
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Blood Tests - any extras to ask for ??
Hi Guys, I wanted to check if there are any additional blood tests I should request as I am going to see Chem Ali next week and will have blood taken. I gather the usual test will cover: RBC Hemoglobin Hematocrit wbc Neutrophil Eosinophils Basophils Lymphocytes Monocytes Platelet Count I might ask for another HPV while…
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Father finished treatments two weeks ago, and now bloodclot in left calf...
hello everyone out there, my father recently finished his chemo/radiation treatments the week of june 14 for stage iv tongue cancer, started floor of mouth.. i took him for his weekly checkup with radiation nurse and he was complaining of some leg pain so they sent him for a scan, found a small clot and admitted him for…
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GRAVEY UPDATE GOOD NEWS :)
Hey everyone, I have been reading some posts and it's good to see a positive swing for some of you, some finished with their treatments and now have had some recoup time. You who are still struggling, look too these vets for help, you have a well of knowledge here that you cant get anywhere else, even from a doctor. Yes,…
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Great Day!
My day started out with a more than normal amount of hairballage. Proceeded to rain like crazy and got soaked going to my office. When I went to ENT's office, first thing he does is give me one of his dumb jokes (he's the guy who came in the morning of my surgery and said "I would feel great today if I could just get rid…
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caregivers site
Hi all, I had thought in one of the discussion boards there was a site for caregivers. Can someone point me in the right direction? My fiance could use a site to see he is not alone and be able to share his views. Thank you Debbie
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Physical therapy
Has anyone gone though phsical therapy after they finished treatment, I have lost just over 90 pounds and I think that now that I am eating solid food I will be able to maintain weight. I have lost so much muscle mass that just standing or walking for over 15 minutes and I get terable back pain. Some friends sugested that…
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six month check up no sign of cancer
Hi I hope all is well with everyone I went to the check up he seen no cancer when he used the endospoe seriously I said sir just give me the numbing spary youre gonna spary in my nose and let me apply it myself he laughed but i was dead serious he also told me im not out the woods yet and the first two years are the…
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Cardiovascular calcification after radiation
MY BFF PEGGY IS IN THE HOSPITAL RIGHT NOW. SHE WAS ADMITTED WITH CONGESTIVE HEART FAILURE ON SUNDAY. ON TUESDAY THEY WERE GOING TO DO OPEN HEART SURGERY. SHE HAD HODGKIN'S DISEASE WHILE WE WERE IN HIGH SCHOOL, SHE IS NOW 56 YEARS OLD. THEY HAD TO CANCEL THE SURGERY BECAUSE RIGHT B4 THEY DID A CAT SCAN AND FOUND…