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Hello, I'm a newbie...with SCC, 12 wks. post treatment
I just stumbled upon this great resource. I'm just getting my feet wet looking at the posts and responses and I can tell there are a lot of great people and subjects that I want to know more about or comment on. I'm a 48 year old male diagnosed with Squamous Cell Carcinoma in January of 2010. I had a suspicious lymph node…
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reaction to radiation/chemo
My husband is having chemo and radiation after having two seperate sugeries to remove two seperate masses(mouth, neck). In addition to swelling there seems to be sloughing off of skin on what remains of his tongue, the inside of his mouth and lips. Anyone else come across this? None of the health care people mentioned this…
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First Post Treatment PET
Tomorrow morning I have my first post-treatment PET/CT scan. I had surgery in late April, SCC unknown Primary T0N1M0, and no rads or chemo. My scans prior to surgery showed all sorts of activity in my left and right tonsil as well as a number of lymph nodes. Post surgery pathology revealed all negative except for the one…
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L'hermitte Sympton
I just started experiencing L'hermitte Sympton. It is a strange sensation, but not really uncomfortable. Does it get more intense as time passes? I’m about 2 months post treatment.
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3 month PET Scan
I go in Monday for my 3 month pet scan. I had one a month out of treatment and it did not come back good. Since then I had some biopsies done and they came back great. I hope this one comes back great. Eating is such a pain in the butt, I have never had a problem eating before and now I am fighting to keep the weight on,…
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cause of oral cancer
did anyonwase get oral cancer from dentures or bridges,,,i have had irritation in the mouth since i was in a car accident at a young sge, right now i have inoperable thyroid cancer--but i hate these irritations in my mouth as i heard they can lead to cancer
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Pain Management after Chemotherapy
Brand new to this discussion board, my boyfriend Joe has recently been diagnosed with stage IV Tonsil Cancer. He has just completed his 2nd treatment of induction chemotherapy of Cisplatain, Taxatore & 5FU. Both times after treatment ended (4 days later because of the 5FU taking 92 hours) he is in agony at the tumor site.…
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TOTALLY CONFUSED AND MAD INSTEAD OF POSITIVE
For anyone who may have read my post from earlier today that indicated my Priamry Site was changed from BOT to my Right Tonsil, my wife received a call today from my Doc's APN indicating that all of the samples taken for my Biopsy last Wednesday afternoon are now all positive for the same type of cell. I guess when the Doc…
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Story of no Insurance
Got a Relative w/no insurance, or job, and in his mid-50's without much money. Been going to a "free clinic" for the last couple years, and has been told he has an acid reflux problem. Lost some 38lbs over that time, and swallowing has gradually gotten harder. So, they finally put tubes down his nose and throat, which led…
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doctors want to remove feeding tube im not ready yet
Hi all I hope all is well with everyone at my doc appt he want to remove my feeding tube but im still not comfortable with mt food intake by mouth on my own due to my lack of taste when did most of you no when it was time to get it removed , my family think ive become dependant on the feeding tube and thinks it is time but…
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ANYONE HAVE FEEDBACK REGARDING SURGICAL APPROACH
Things are finally coming together. I met with my Doc yesterday and he formally staged me as T2 N2 BM0 P16+. Just what I wanted to hear regarding the HPV. The Surgical approach for the Oral Cavity he call "Trans Oral Microscopic Laser Surgery." he says this approach will allow him to cut through the tumors and that he can…
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Update: Endoscopy on the horizon
Howdy everyone. The Drs want to do an endoscopy after the episode the other day. What happened was a painful exercise in what NOT to eat if you have a PEG and can't burp. I still have been putting all kinds of stuff in there, regular food instead of the formula, for a while now. Well, I guess the baked beans I threw in…
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Where's my PEG? - - Oh, yeah - they took it out this morning
Yay - my doc subscribes to the "no pain, no pain" ideology. My PEG was removed this morning. "Mild sedative" turns out to be something that knocked me out, and left me with no memory of the procedure once the happy juice got turned on. Gastro scoped me while I was in la la land, decided a stretching was in order, and did…
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Tingling Feet...need info please
Hi everyone, I think I have seen something about this but couldn't find it so I have to ask. I finished my rads June 24 and for about a week now my feet are tingling and feeling like they are asleep so bad I am going nuts. Is this something to be concerned about? I check back in next week to repeat my MRI and see the doc…
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Are you Full Yet?
I, had some great news and alot of support, I thank everyone for that...I have a question...Does anyone every get tired of eating?????? I eat day, all day, and have gained only 12lbs,....why is it when you have cancer it takes more food to gain weight, I weigh a whopping 152-lbs, and I was at 140...I need to get back to at…
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Has anyone experienced alcohol ablation int the lymph node area of the neck? What were the results?
I may be undergoing lymph node ablation in the neck area with an alcohol injection. Has anyone had this done and what were the results? Possible residual papillary thyroid cancer after after thyroid cancer surgery four years age.
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A laugh to brighten your day!
I'm new here and posted my story in an earlier thread. In it I mentioned that I went to Johns Hopkins on Friday. I was able to get an emergency appt. in only a day! How? Read on... So I've got the General working on this for me as well. My late dad 'Bigfuzzydad' was a Captain in the Marines in WWII in the Pacific. Tough as…
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A little morning humor with your coffee
This morning I was doing my usual routine of coming to this site and another one that I frequent, with my coffee and was basically checking in on some of the posts. My wife came into the kitchen and with a strange voice said "Hello" almost imitating a Parrot. She does this once in awhile because she knows the story behind…
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thank you from Andyw
it has been a while since i wrote last and i want to say thank you to all the people who were kind enough to share with me and give me support. it is nice to know that there are people out there who understand. i have been trying to do more to help myself but it is difficult when i am depressed my doctor put me on…
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Help, Support, Information & Hope
Hi Everyone, I recently posted this on Brian's post but I also wanted to post this here for more people to see. I think that anyone with head & neck cancer will be able to benefit from this online support group. The Oral Cancer Foundation has an online & free patient forum that can be accessed from their main site here:…
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Brochure created for Head and Neck Cancer by Eagle Project
Here is the link to the brochure that I created for my Eagle Project. It is a list of foods and comfort items that other cancer patients have found helpful in their treatment. http://bit.ly/9L8Zei John
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thank you gifts for the nursing/doctor staff?
My husband has approx 2 1/2 weeks of radiation left, and he asked me to ask all you kind folks a question...is it appropriate to give a thank you gift of some kind (like a box of candy) to the staff who have helped him get through this horrible process so much easier? Just curious what everyone else has done, if anything.…
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Suction Aspirator for Mucous
My Doctor has suggested that I rent or purchase a Suction Aspirator for controlling the mucous/saliva that may build up in my throat. Does anyone have any experience or advice in regards to using an Aspirator. I have been told that it just makes it easier to get rid of excess mucous, and therfore easier to sleep. Thank…
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Update on Tim
Tim passed this morning at 5:40 am. He is whole again and free of cancer. Cathy
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BP Question
Hi all! Nine months out - scope was clean. Going for PET at Mt Sinai in August. Has anyone have trouble with LOW blood pressure? Last two weeks pressure running 80/50. Dr advised to add a lot of salt to foods, otherwise I will need medication which of course I do not want. I have enough trouble eating w/o adding salt to my…
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1st pet scan 2 months post radiation
Just got the results of my pet scan. Finished radiation 2 months ago for NPC. Had several lymphnodes enlarged and metabolicly active and a spot on my thyroid. The new results are: The nasopharyngeal mass is no longer identified as a discrete structure. Metabolic activity now appears normal. Of the lymph nodes,the ones on…
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Just getting started
Hi, my dad was diagnosed in mid june with SCC in his larynx. He is stage IVA. He is going to have 35 rads and 3 rounds chemo. He was set to start treatment a couple of weeks ago but went to his dentist and was told he should have all 25 of his teeth extracted. It was a huge shock but after hearing what the alternative…
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Hate having to ask a question so soon...
Mark finished treatment on Tuesday. In his appointment on Monday with the oncologist I heard him talk about "starburst" pain in his neck and ear (the side of the now removed tonsil, tumor, lymph nodes and neck muscle). He said is was like a flash, and started in a specific spot and shot out like a starburst. Today (Friday)…
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New member Husband has stage 4 pyriform sinus ca. in the epic study at U of C-besides Fire 34 are th
My husband was diagnoised with advanced pyriform/hypopharangeal HNSCC with mets to the lymph nodes. He's a T4N3MO. The epic study is being conducted to test the efficacy of erbitux with other chemo drugs. He started with chemotherapy in the fall of 09 and started chemoradiation in Jan. He completed his RX in Feb. He had 2…
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Missing U Sweet!
Please message or answer post Sweet. You have been on my mind, and in my prayers. Hoping you won the lottery, and are taking a much needed vacation from the madness! ;) Love Patty