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Hubby had 4th erbitux today
Hi all: Basketcase wife checking in here. Charlie had his 4th of 7 erbitux treatments today. He didn't get taxotere today because his mouth and lips are broken out and doc wanted him to have a week with the magic mouthwash to heal it up. But, his blood counts are still pretty good, rbc was in normal range, wbc and platlets…
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Radiation Twice - Anyone? Recurrence - Hypopharyngeal Cancer - Husband
I have been reading this board for over a year and there is such a wealth of knowledge. My husband was diagnosed with hypopharyngeal cancer w/spread to 1 lymph node in June 2009. He went through 6 weeks induction chemo, followed by 35 rads + chemo (fun, fun). All was well we thought. This week marked 8 months out of…
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Mickey Had Surgery...
Mickey had his surgery on Tuesday, results not good according to the Dr's. They said the SCC was involved on the Carotid Artery, they removed all they could and also said it had spread to muscle and shoulder, but it was micrscoptic cells. They actually used a number like 3 months, 6 months, 9 months !!! That was Tuesday,…
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Last Day of Radiation today
Hubby had last radiation treatment today. All in all has done really well. About a twenty pound weight loss but is still taking all nutrition by mouth. No PEG tube. Sore throat but never lost his voice. Had terrible radiation burns at weeks 4 and 5 but they healed really quickly (may have been allergic to prescription…
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A newbie to your club *siiiiiigh*
Hoo-boy! Another BB forum to post to, but obviously, this is one that no one ever wanted to really a part of to begin with. Well here goes my first long-winded tale as I'm sure most people's first posts usually are. A quick shout-out of my rather unusual case... I'm 41, a non-smoker, non-drinker and in fact a lifelong…
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ROLL CALL ENROLLMENT OR SIGNING BACK IN.
Roll call was established a couple of years ago so individuals can briefly view the status of all those who were treated for head and neck cancer. As a newbie, you may also find individuals who have a similar illness and direct questions by a private message available on this forum. If you are enrolling for the first time,…
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Radiation mask and finz2lft
I did it, I put my mind in a far away place as everyone suggested and the hour dry run was over before I new it. Yea!!!!
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He's done
Glenn had his last radiation treatment this morning. He almost came out in a wheelchair due to a dizzy spell after standing up from the table but after we got done talking to everyone, he stood up and was feeling better so he walked out. Lots of mucus, throat pain, fatigue and just generally feeling like he's been pulled…
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Good News!!!
Well, I just came from the doc today. No Cancer, My breathing airway has opened, infection gone. game plan, 2 more weeks of medication for safety, 2 weeks off, and we are going to rewmove this trach in my thtroat permantley, YES!!!!!!I Got rid of one doctor, and will be down to one medication in 2 weeks, I had to share,…
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Hubby had third Erbitux/Taxotere today
Hi all: Basketcase here checking in. Charlie had his third of seven erbitux/taxotere treatments today on our birthday no less! Yes, we have the same birthday; he was 58 today and I was 57 today; but hey, if this takes care of it or at least gets it under control; it will be an awesome birthday! He's felt really good most…
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new
Hello everyone! I found this site last night and have been reading ya'lls posts...Thanx to everyone for sharing. I laughed and cried reading your stories and feel blessed to find this site.I have thought I was "being weak and feeling sorry for myself" until I read posts till wee hrs of morning,now I realize it's part of…
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Cancer Categories
My diagnosis was T4aN2b,SCCA L. Is there a site that explains what the code actually means? I've done some searches on the web with no success. Thanks Ed
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Will be updating.
Hi all, I leave for Tulsa in the morning to have all my scans and things rechecked and just wanted to thank everyone for all of your prayers and support. I will be posting my results as soon as I have them. Scans are being done on Tuesday so should know my Wed. Hope everyone does well this week. You will all be in my…
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Hello, I'm a newbie...with SCC, 12 wks. post treatment
I just stumbled upon this great resource. I'm just getting my feet wet looking at the posts and responses and I can tell there are a lot of great people and subjects that I want to know more about or comment on. I'm a 48 year old male diagnosed with Squamous Cell Carcinoma in January of 2010. I had a suspicious lymph node…
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reaction to radiation/chemo
My husband is having chemo and radiation after having two seperate sugeries to remove two seperate masses(mouth, neck). In addition to swelling there seems to be sloughing off of skin on what remains of his tongue, the inside of his mouth and lips. Anyone else come across this? None of the health care people mentioned this…
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First Post Treatment PET
Tomorrow morning I have my first post-treatment PET/CT scan. I had surgery in late April, SCC unknown Primary T0N1M0, and no rads or chemo. My scans prior to surgery showed all sorts of activity in my left and right tonsil as well as a number of lymph nodes. Post surgery pathology revealed all negative except for the one…
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L'hermitte Sympton
I just started experiencing L'hermitte Sympton. It is a strange sensation, but not really uncomfortable. Does it get more intense as time passes? I’m about 2 months post treatment.
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3 month PET Scan
I go in Monday for my 3 month pet scan. I had one a month out of treatment and it did not come back good. Since then I had some biopsies done and they came back great. I hope this one comes back great. Eating is such a pain in the butt, I have never had a problem eating before and now I am fighting to keep the weight on,…
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cause of oral cancer
did anyonwase get oral cancer from dentures or bridges,,,i have had irritation in the mouth since i was in a car accident at a young sge, right now i have inoperable thyroid cancer--but i hate these irritations in my mouth as i heard they can lead to cancer
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Pain Management after Chemotherapy
Brand new to this discussion board, my boyfriend Joe has recently been diagnosed with stage IV Tonsil Cancer. He has just completed his 2nd treatment of induction chemotherapy of Cisplatain, Taxatore & 5FU. Both times after treatment ended (4 days later because of the 5FU taking 92 hours) he is in agony at the tumor site.…
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TOTALLY CONFUSED AND MAD INSTEAD OF POSITIVE
For anyone who may have read my post from earlier today that indicated my Priamry Site was changed from BOT to my Right Tonsil, my wife received a call today from my Doc's APN indicating that all of the samples taken for my Biopsy last Wednesday afternoon are now all positive for the same type of cell. I guess when the Doc…
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Story of no Insurance
Got a Relative w/no insurance, or job, and in his mid-50's without much money. Been going to a "free clinic" for the last couple years, and has been told he has an acid reflux problem. Lost some 38lbs over that time, and swallowing has gradually gotten harder. So, they finally put tubes down his nose and throat, which led…
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doctors want to remove feeding tube im not ready yet
Hi all I hope all is well with everyone at my doc appt he want to remove my feeding tube but im still not comfortable with mt food intake by mouth on my own due to my lack of taste when did most of you no when it was time to get it removed , my family think ive become dependant on the feeding tube and thinks it is time but…
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ANYONE HAVE FEEDBACK REGARDING SURGICAL APPROACH
Things are finally coming together. I met with my Doc yesterday and he formally staged me as T2 N2 BM0 P16+. Just what I wanted to hear regarding the HPV. The Surgical approach for the Oral Cavity he call "Trans Oral Microscopic Laser Surgery." he says this approach will allow him to cut through the tumors and that he can…
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Update: Endoscopy on the horizon
Howdy everyone. The Drs want to do an endoscopy after the episode the other day. What happened was a painful exercise in what NOT to eat if you have a PEG and can't burp. I still have been putting all kinds of stuff in there, regular food instead of the formula, for a while now. Well, I guess the baked beans I threw in…
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Where's my PEG? - - Oh, yeah - they took it out this morning
Yay - my doc subscribes to the "no pain, no pain" ideology. My PEG was removed this morning. "Mild sedative" turns out to be something that knocked me out, and left me with no memory of the procedure once the happy juice got turned on. Gastro scoped me while I was in la la land, decided a stretching was in order, and did…
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Tingling Feet...need info please
Hi everyone, I think I have seen something about this but couldn't find it so I have to ask. I finished my rads June 24 and for about a week now my feet are tingling and feeling like they are asleep so bad I am going nuts. Is this something to be concerned about? I check back in next week to repeat my MRI and see the doc…
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Are you Full Yet?
I, had some great news and alot of support, I thank everyone for that...I have a question...Does anyone every get tired of eating?????? I eat day, all day, and have gained only 12lbs,....why is it when you have cancer it takes more food to gain weight, I weigh a whopping 152-lbs, and I was at 140...I need to get back to at…
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Has anyone experienced alcohol ablation int the lymph node area of the neck? What were the results?
I may be undergoing lymph node ablation in the neck area with an alcohol injection. Has anyone had this done and what were the results? Possible residual papillary thyroid cancer after after thyroid cancer surgery four years age.
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A laugh to brighten your day!
I'm new here and posted my story in an earlier thread. In it I mentioned that I went to Johns Hopkins on Friday. I was able to get an emergency appt. in only a day! How? Read on... So I've got the General working on this for me as well. My late dad 'Bigfuzzydad' was a Captain in the Marines in WWII in the Pacific. Tough as…