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I am worried.
My husband has been on pain meds for over a month and started using the pain patch 2 weeks ago and he just started chemo and radiation yesterday. And from what I have read, the pain is going to get worse. His throat hurts all the time!!!!! Especially since they did the biopsy. I don't know how he is going to handle the…
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Eating Question
I had squamous cell cancer on the tongue and it was stage 4. I had 2 neck dissections and 95% of my tongue cut off. They used my thigh to replace my tongue. This was in July of 2010. I am supposed to be cancer free now. They removed 8 cancer cells from my neck also. My question is. I can finally start eaating soft stuff.…
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What a Long Strange Trip It’s Been
I don’t post very much or very often. I’m more of a “lurker” ‘round these parts. Because of the people on this forum, I’ve had my hopes bolstered, fears quelled, and most importantly, a TON of questions answered. I hope what little I’ve posted has given one or two of us strength on this arduous journey. My journey took a…
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Radical Neck Dissection, Base of Tongue Cancer
My friend, a 53-year-old male, was diagnosed with Stage IV base of tongue cancer (left side) in August 2005. Chemo, radiation, 80 pounds, and a mouthful of teeth later, they said the cancer was gone in May 2006. He began feeling some pain on the left side again in late 2006, but doctors said they could not see anything.…
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In praise of my wife Bobbie
I am now 2 months out from 35 rads and 3 chemos, and seemingly doing well, comparativly. on the 19th i go for lymph node extraction. But today my main reason for posting is to give thanks where thanks is due. My wife Bobbie, has been right there with me through thick and thin. And that is saying something. I know that what…
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First round of Chemo and Radiation today
My husband just finished his first round of Chemo and Radiation today. He is sleeping now. No nausea yet, just sleepy. Hope this goes smooth for my man.
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Nasopharyngeal Cancer Stage IVC
My husband has had Chemo (4 Chemo with Cisplation, Taxotere, and 5FU) and then Chemoradiation (35 radiation, 4 Carboplatin) which he finished in February. He had a PET Scan before Chemoradiation began which showed NED. He had mets to liver with a lesion in each lobe. Wondering if anyone has been in remission after Chemo…
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Nasopharyngeal Cancer
Anyone know any information on what causes Nasopharyngeal Cancer .. My husbands cancer is not linked to Epstein Barr Virus. He does not drink or smoke.But he did work with bulk cement for 37 years.
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Nasopharyngeal Cancer Stage IVC
My husband was diagnosed with Nasopharyngeal Cancer with mets to the Liver 09/10. He completed Chemo, then Radiation/Chemo in February. Going back for Pet and MRI in 2 weeks. He had a clean scan before beginning Raidation. Just wondering if there is anyone else out there who responded to just Chemo. If so, how long did…
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Anyone like me?
Can you tell me about your treatments and side effects? I am 38, eat healthy, and exercise 6 days a week. The doc told me that I would handle the 35 radiation treatments and cisplatin well, but I read many horror stories. Im nervous about the long term effects of dry mouth and my thyroid ..please elaborate on your…
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oral shingles?
About 3 months out from the end of treatment and it really feels like we're sliding back downhill. After Doug had his neck dissection, he started having trouble eating again. First, it was just the jaw and ear pain from the operation, but then he started having mucositis-like symptoms in his mouth, mostly where the gums,…
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update on mom .. tonsillectomy monday
Just wanted to post a small update. Mom is officially going for a tonsillectomy on monday. They feel this is most likely the primary and want to find it. On scope her right tonsil is visibly bigger than the left and feels nodular... mom has been scoped at least 12 times.. no one has mentioned this! first time it was on the…
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My husband has been diagnosed with 4A Throat cancer.
My husband has just been diagnosed with 4A throat cancer last month. He will start chemo and radiation on 4.4.2011. Any advice before we start our treatments.
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Cancer came back in the ear
My ENT did a biopsy in my ear because of granulations near ear drum. The result came back positive. Seems like NPC from last year has extended to ear area. I have to go see the oncologist again. Don't feel like going through another radiation and chemo which most probably will be suggested by the onco. Don't know what to…
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Cancer of the Tongue
There is a friend who after fighting 6 1/2 years, has begun to go down hill. His tongue cancer is now appearing in the neck/throat area as dermicil nodules (one about the size of a golf ball). He has begun to be extremely tired, sleeping a lot while at home. Does anyone have any clues/advice as to what the family can now…
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Lymphedema of the neck
So after doing some research I have Lymphedema of the neck, pretty good. Increased pain, celluitus of left ear, etc... I had a CT scan done last Wednesday and meet with a new ENT doctor this monday. What are some of the things that I can do to help this go away. I am on antibiotics for the skin infection, which hurts like…
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Losing my mind with fear
Well, I've had 3 radiation treatments and my mouth is soo dry and last night I couldn't eat because everything tasted so bad. I just want to cry all the time. My husband, who loves me beyond anything I could ask for just keeps telling me to stop dwelling on things. I really need some advice to do this. I just keep thinking…
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When do I take my peg out?
Hello everyone.. I finished 33 rad treatments and 3 chemo rounds for stage 4 scc of tonsils on 2/01. I am going for 90 day pet and ct on 4/25 and my DR doesn't want to take peg out until I get results. Is anyone in similiar situation? Thanks...Paul
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To much pain
I don't know what happened this weekend but the pain factor just got multiplied by alot, I take liquid oxycodone and it does help but the pain is so intense that it makes it hard to function. I had my partial neck disection done 3 weeks ago and all I can figure is the fluid has moved from my jaw bone are to under my chin…
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Lhermitte's Syndrome??
Hey Everybody I thought I was getting lucky and missing one of the many lovely side effects we all enjoy. But alas as luck would have it, I started getting the shooting "electric shocks" down my neck when I look down. I know this has been discussed before - Lhermitte's Syndrome I believe, but didn't read too close since I…
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RESTLESS LEG AND ARMS WHILE TRYING TO SLEEP
I am experiencing almost on a nightly basis a restless feeling or even a "funny bone" type feeling mostly in my left leg and left wrist. I typically experience this "jolting" in my ankle and knee and then up in my left wrist. I can take a little liquid Oxy. and about 45 min. later it stops. Can anyone offer any insight to…
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Power of Prayer-Thank you All!
I wanted to say "Thank You" for the many prayers. I had posted recently inquiring about pet/ct/mri, because I had a new lump on my neck. Seen the ENT today and he defined it as my salava gland, and not a lympe node. I also had developed some mouth sores, which only added to my anxiety. He was not concerned about them…
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Thick mucus
How long after radiation does the thick mucus last?
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My doctor just told me the strangest thing
. I went in for my 6 month check-up and she did all the normal things, mirror down the throat say eeeee, looked at my charts and then said I was cured. I never associated the word cure with cancer before, took me all day to say she is the dr. and run with it. So I guess for now I dont have cancer. I dont post often because…
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Second bellybutton club
Glenn joined the second bellybutton club today. He had a lady nurse practitioner yank his PEG tube out this afternoon. He said he was shocked when a lot of air came out with it. I asked him if he felt like he might fly around the room like a popped balloon. Scope last week, everything still looking good. PET in July at the…
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Chef Daddy Mike
I talked to Mike yesterday and he is doing really well, his intestines are working and he started to put on some weight. I asked Mike what happened he said he is not too sure but a few weeks ago he drank a few beers and the next day had a bowel movement, so he tried it again the next day and the same thing. He told his…
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permanent tattoo from mask?!?
As i cannot sleep once again.. i decided to whip out the little " HN radiation manual" we recieved today at the docs... " the therapist will draw on your skin with a felt marker. then they will make PERMANENT markings. These may be placed on your skin. They are made with a sterile needle and a drop of ink. The felt marker…
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"War of my life"
Hey everyone, just wanted to say hi. Last week was a year since my diagnosis and I have an upcoming PET scan (date to be determined pending insurance approval). Though I don't post on here often I do check it almost daily; keeping up with how everyone else is doing. I am very thankful for everyone on this board and the…
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supraglottic laryngectomy
Hi my husband is 52 years old and on March 13,2001 he had a surgery called a supraglottic laryngectomy and 2 inches of the base of his tongue was removed. He also completed 30 radiation treatments on both sides of his throat and the front of hid neck. His epiglottis was removed completely. This has created a problem for…
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Why I don't come by as often as I should..
Hello everyone! I hope everyone is doing well and in high spirits! I know I don't visit as often as I used to, I wonder if anyone will understand this.. Do any of you guys get "flashbacks" I guess you could say? When I come to this website it makes me think of how horrible I felt when I found you guys. It reminds me of how…