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Interesting side effects

buzz99
buzz99 CSN Member Posts: 404
in Head and Neck Cancer #1
We have been talking about serious side effects of radiation years after the end of treatment. Has anyone experienced unusual ones which are not so serious? Buzz lost his whistle but gained long, dark, curly eyelashes! He looks like he is wearing mascara. Karen
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Comments

  • palmyrafan
    palmyrafan CSN Member Posts: 396
    #2
    Interesting Side Effects
    I actually did gain a "good" side effect years after treatment.

    Before radiation in '96 I wasn't the artistic type. Now I have a passion for the arts.

    Teresa
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #3
    palmyrafan said:

    Interesting Side Effects
    I actually did gain a "good" side effect years after treatment.

    Before radiation in '96 I wasn't the artistic type. Now I have a passion for the arts.

    Teresa

    Hi Buzz

    The side effects are different for everyone and the ones I hate the most are the ones that sneak up on you years down the line when you are not looking.

    Take care
    Hondo
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  • fisrpotpe
    fisrpotpe CSN Member Posts: 1,349 Member
    #4
    I have
    I have side effects and longer I go we get into the unknown of long long term side effects, should be interesting. The most Unusual one I have is my friends continue to have to put up with me. LOL

    John
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  • Scambuster
    Scambuster CSN Member Posts: 973
    #5
    fisrpotpe said:

    I have
    I have side effects and longer I go we get into the unknown of long long term side effects, should be interesting. The most Unusual one I have is my friends continue to have to put up with me. LOL

    John

    Old McDonald had a mute pig - Ey Ay Eh Ay Ohhh
    Well I can't grunt like a Pig anymore.

    The only time this is missed is when I sing 'Old McDonald Had a Farm' and if my little girl sings '...Has Pig', well, I'm screwed ! I simple can't to the Pig noise ;o{

    I have to revert to 'Oink OInk Here and an Oink Oink there' version which doesn't really sound like many Pigs I have encountered, and being a farm boy of sorts, I have met a few.

    Scam
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  • Kimba1505
    Kimba1505 CSN Member Posts: 557
    #6
    Scambuster said:

    Old McDonald had a mute pig - Ey Ay Eh Ay Ohhh
    Well I can't grunt like a Pig anymore.

    The only time this is missed is when I sing 'Old McDonald Had a Farm' and if my little girl sings '...Has Pig', well, I'm screwed ! I simple can't to the Pig noise ;o{

    I have to revert to 'Oink OInk Here and an Oink Oink there' version which doesn't really sound like many Pigs I have encountered, and being a farm boy of sorts, I have met a few.

    Scam

    Herky Jerky...
    ...at least this is what Mark calls it; and I am wondering if anyone else has it. He has random, spontanious jerks of his head. It kinda pulls to the right, and looks a little like a dance move. It bothers him, but it doesn't hurt. It bothers him because he doesn't understand where it comes from (doctors don't know) and he can't control it. I have to stop myself from mirroring it back...just because it is kinda like a dance move. LOL.
    Kim
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  • jr58
    jr58 CSN Member Posts: 9
    #7
    turn it into a positive
    Since my treatment i have lost most of my sense of smell and my taste buds are strugling too so I have taken up cooking and everyone at home loves it,go figure.I love cooking and i'm never short of tast testers,it really makes me happy to see everyone enjoy eating.
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  • Greend
    Greend CSN Member Posts: 678
    #8
    jr58 said:

    turn it into a positive
    Since my treatment i have lost most of my sense of smell and my taste buds are strugling too so I have taken up cooking and everyone at home loves it,go figure.I love cooking and i'm never short of tast testers,it really makes me happy to see everyone enjoy eating.

    Tongue
    I can't stick my tongue straight out any more. It goes to the left. Also no way to sing Old MacDonalds, the E,I,E,I,O sounds like a cat with a mouth full of molasses.
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  • D Lewis
    D Lewis CSN Member Posts: 1,581 Member
    #9
    Kimba1505 said:

    Herky Jerky...
    ...at least this is what Mark calls it; and I am wondering if anyone else has it. He has random, spontanious jerks of his head. It kinda pulls to the right, and looks a little like a dance move. It bothers him, but it doesn't hurt. It bothers him because he doesn't understand where it comes from (doctors don't know) and he can't control it. I have to stop myself from mirroring it back...just because it is kinda like a dance move. LOL.
    Kim

    CaCaw!
    I seem to have lost my CaCaw! It was a high-pitched imitation of a crow, and was invented at my work as a way to let the other cubicle-dwellers know that the boss was headed in their direction. Boss came down the hall, and I tried to CACAW and it just came out as a raspy croak. He came up without warning behind a coworker, who was embroiled in a loud personal phone call with her kids, and heard the entire thing. At that point, all the rest of the group were screaming CACAW for me and laughing hysterically. Ah well.

    About the herky jerky head thing; could this possibly be a manifestation of our old friend, the LeHermittes' syndrome? I still twitch sometimes, although it is getting better.

    Deb
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  • MrsMB2
    MrsMB2 CSN Member Posts: 8
    #10
    Greend said:

    Tongue
    I can't stick my tongue straight out any more. It goes to the left. Also no way to sing Old MacDonalds, the E,I,E,I,O sounds like a cat with a mouth full of molasses.

    You guys are funny
    ...that's all I have to say...
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  • Kaylee-parotid
    Kaylee-parotid CSN Member Posts: 16
    #11
    Smelling the roses!
    I'm 2 years post-rad for parotid cancer. I regained my taste only 6 weeks post rad, but realised sometime after that, that I can no longer find a divine-smelling rose. I used to enjoy them so much. Small price to pay, though!
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