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NED keeps coming around....

CLRRN
CLRRN CSN Member Posts: 127
in Head and Neck Cancer #1
I know I don't post much on here but I do read posts daily and try to add my two cents here and there. For those that don't know, I'm a caregiver to Mike-he is also my life partner (maybe someday we'll get married-LOL). He is 13 months post treatment for Stage 4a Tonsil Cancer. I'm pleased to report that NED came around again and his PET scan was clean. This was his 3rd PET post treatment and all have been clean (Sept, Feb, Jul)

I'm so humbled to be amongst such strong survivors, caregivers and friends. Pleae continue to have faith and believe.

As always, thank you for your supportive words of encourage.

Chris and Mike

Summary of our journey.....
Feb10-felt a node on neck, course of antibiotics, followed by CT, 2 FNA that were inconclusive
19Mar: Total neck dissection w/42 nodes removed, 2 LN +, tonsillectomy. HPV (-) he was a smoker and quit on 19Mar. Staged at 4a
3 cycles of Cisplatin (26Apr, 17May and 07Jun)
8 weeks of radiation (last treatment 17Jun)
Lost 63# (was 283 and now averages around 220#)
PEG removed 12Oct
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Comments

  • luv4lacrosse
    luv4lacrosse CSN Member Posts: 1,410 Member
    #2
    AWESOME NEWS
    Great way to start my Monday.

    Stay strong and keep NEDDIN!!

    Mike
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #3
    WoooHooo
    So awesome to here.....you are now free to roam about the earth....

    Best,
    John
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  • Irishgypsie
    Irishgypsie CSN Member Posts: 333
    #4
    Skiffin16 said:

    WoooHooo
    So awesome to here.....you are now free to roam about the earth....

    Best,
    John

    Great News!
    Good to hear the great news!!!!! :)

    Charles
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  • fisrpotpe
    fisrpotpe CSN Member Posts: 1,349 Member
    #5
    Love Those
    I love the NED sightings and when they are so multiple it brings on more dance time. Time to celebrate again and do the dance.

    More praise to our father above.

    John
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  • Kent Cass
    Kent Cass CSN Member Posts: 1,898 Member
    #6
    CLRRN
    Sounds like a success story to me, and that is a good thing. Congratulations.

    kcass
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  • sweetblood22
    sweetblood22 CSN Member Posts: 3,228 Member
    #7
    Kent Cass said:

    CLRRN
    Sounds like a success story to me, and that is a good thing. Congratulations.

    kcass

    Happy Dance
    I love NED. Congrats.
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  • Pam M
    Pam M CSN Member Posts: 2,196
    #8
    Yay
    Glad NED's taken a liking to you two. Thanks for sharing. Keep it up.
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  • D Lewis
    D Lewis CSN Member Posts: 1,581 Member
    #9
    Helloooooooo NED!
    Nice to see you again, buddy! Go Mike! Heal on!

    Deb
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  • Jimbo55
    Jimbo55 CSN Member Posts: 590
    #10
    Yes
    Always good to hear another clean scan. Congrats. Cheers.

    Jimbo
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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #11
    Jimbo55 said:

    Yes
    Always good to hear another clean scan. Congrats. Cheers.

    Jimbo

    Praise God
    Praise God for your good resukts. I was really down this morning and your news brought me joy. Hope Jim and I will be dancing with you soon.

    Blessings
    Debbie
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  • mixleader
    mixleader CSN Member Posts: 267 Member
    #12
    More NED
    Congratulations on Mike's NED. I am feeling really, really down today due to many issues and reading things like this are a good thing to boost my spirit.
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  • Greg53
    Greg53 CSN Member Posts: 849
    #13
    mixleader said:

    More NED
    Congratulations on Mike's NED. I am feeling really, really down today due to many issues and reading things like this are a good thing to boost my spirit.

    Yeah!!
    Congrats Chris and Mike! Glad to hear you are doing well. We are about the same timeframe. Hopefully we'll both be checking in with good news for years to come. Enjoy!!

    Positive thoughts!

    Greg
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  • patricke
    patricke CSN Member Posts: 570 Member
    #14
    Great News
    Here's hoping that NED keeps coming around from now on!

    Patrick
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