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Thanksgiving with NED
Happy Thanksgiving everyone! I haven't posted in a while. I just completed my 18 month scans and they tell me that I'll be spending Thanksgiving with NED. We're planning on a little turkey, football and happy dancing. To all those beginning the journey, be thankful for the professionals and caregivers that help you through…
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Happy Turkey Day All CSN "Buds"
Dear Buds: Just wanted to take this time to tell y'all how thankful I am for all of you! Your support and encouragement knows no boundries! I'm so thankful I found y'all. I could not make it very well without y'all. You're a special group, that's for sure. God Bless and Happy Turkey Day! Jan (Basketcase)
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Two years and one month
Well. Another check up and No Evidence of the Damn Disease. Happy as a pig in &@!(. I think we're missing out. We don't have thanks giving in Australia. Can someone explain to me when and what it resembles thank you all for posting all your thoughts and knowledge. It has helped me and others soooooo much. Love Jen xxx
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hospitalized after treatment
Spent almost 4 weeks in hospital after radiation and chemo. Neutropenic? I don't know can't eat anything as throat feels like it's being ripped open by razor blades. Family just keeps forcefully telling me to eat in a disgusted voice and I explain I can't it's too painful. Hospital was comforting but I was afraid I…
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which is harder, chemo or radiation with chemo every three weeks?
Hi to all! I'll be starting my chemo cycles on Dec 08(it would be 4 days a week),3 cycles. I am done with my radiation with one chemo every three weeks, lost 20 lbs, i am trying to heal right now to be ready for another fight. I know everybody is different but i just want to ask which is harder?
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Thank you so much
Please allow me this opportunity after the longest 8 months of my life to tell each and everyone of you, thank you so much for your support and advise. After being told that I could call the following day to get the results of my first PET scan post chemoradiation, I was instead told, "Report Unavailable" Today I found out…
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MY CSN BUDS
To all of my CSN buds, and incoming new buds, I want to say happy Thanksgiving, and say we are all truly blessed to be here, no matter what condition we may be currently in. For all who are not having a very good go if it right now, be thankfull you are here and able to be a part of this group. IT WILL GET BETTER!! To all…
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mucoepidermoid carcinima
i am 20 years old and I was told yesterday that the mass or lump i had on my neck was Mucoepidermoid carcinima. the intermediate type. I really dont know anything about it or what people have gone through. i really dont even know what it means. they are sending me to University of Michigan to do the complete tests, which i…
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I finally figured out what could be causing my lighted headness.
Hey Guys I know I havent been on here in about month or so but I finally went and got a balance test last week after my ENT doctor ordered it and here is the results they have found out: I have permit inner ear damage on the right or left ear but they cant figure out which one it is. I have numbness in both legs and right…
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Mouth Sore Question
I swish 3-6 times a day with baking soda/salt solution, I have a script filled for magic mouth wash, and will be picking up another script for caphosol(sp), mouth and throat are not really too bad at this point, however the rt side of my tongue feels and what I can see like I have a small cancur sore on it. Is there…
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Let's Dance!
Hi All! My 18-month follow-up PET-CT today was all clear! No evidence of disease! No uptake. No hot spots. I had a stage 4 base-of-tongue cancer with metastatic lymph nodes on both sides of my neck. Surgery to remove one large node, radiation and cisplatin chemo. Residual side effects linger, but I am so very very happy to…
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Thanksgiving foods
What is your favorite thing to eat this time of year? Maybe the easiest to go down, the best comfort food, whatever makes you happy. I'm trying to figure out what to do for Bob that would make him feel "normal" this Thanksgiving. I think it's got to be so hard seeing everyone else eating things that used to be favorites…
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Whey Protein
During the course of your treatment(s) have any of you drank whey protein drinks? I drink at least 3 per day to add protein to my diet along with any regular foods that have natural protein. I mix the whey protein powder with 8 oz 1 % mild and it adds another 66 grams of protein to my diet.
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Need Swallowing Advice
Hi my name is Joan and I have been treated for cancer at the base of my tongue. I had 35 radiation treatments and 3 cisplatin chemo treatments. The treatments finished on Sept. 26 and a week later I got so run down that I wound up in the hospital where I suffered a minor stroke and got out of the hospital 15 days later.…
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Final Grouper of the Season - Not Cancer Related......
I know some might be tired of reading my fishing reports, sorry..... I just can't help myself...I'm a Aquaholik, I love fishing, and being on the water is the best place to do that. Last Grouper story of the year, they are closed season ending today until next July; Josh and I got out early Sunday morning on the his flats…
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hemoglobin
Have any of you had a problem with a low hemglobin count during radiation therapy? Mom's count was 7.2 this morning so they're going to give her a blood transfusion to get it back up. I'm just curious as to how common this is among cancer patients undergoing radiation treatments.
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Taste and Saliva
I am a little over 2 weeks post rad and have a little saliva but very minimal and not enough to swallow food without washing it down with liquids. I have a sensation of taste but in most cases it is not what the food should taste like. For example I just had a powder sugar donut with my coffee and it tasted like cardboard.…
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Salty taste???
Hi everyone, My dad is almost 4 weeks out of treatment. He is swallowing somewhat now and even tried some broths, however, he still has phlegm and when he spits it out he cannot believe how salty it seems to be now. It is driving him crazy and doesn't care to try to eat anything because of the salty taste. Has anyone…
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Tongue pain--5 months post-surgery
Things have been going great. Finished Radiation/Chemo beginning of September and just returned from a week-long vacation in Europe. More tired than usual, but feeling good until . . . Recently, I've been having pain in my tongue where the tumor was removed via TORS. I can feel that the area around the incision has thick…
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Neck Dissection
Vickie just got the results of her CT scan after undergoing three rounds of Chemo. Her scan showed that a subtle enhancing node within the left posterior cervical triangle remains, but no other enhancing nodes or seperate mass lesions are evident. Our oncologist says this is incredibly good news and wants to just do…
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Hairy Tongue, got any cures?
Help I've got a bad case of; Hairy Tongue. My Doc's last advice was for me to ask my dentist. Does anyone have any advice for me or better yet how to get rid of it? I'm scraping and brushing it but it does not seem to be doing any good.
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adjuvant chemo
Hi everybody! this week would be my last week for radiation, but after 1 month i still have adjuvant chemo(3 cycles). I am NPC stage 2b and im just wondering if somebody had this kind of treatment? My doc told me it is not as bad as compared to 7 days of radiation with one day chemo every three weeks, atleast im done with…
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Just Started Chemo......
Hi everyone, My husband just had his first chemo treatment that lasted 6 hours and came home with the pump. So far he's been doing pretty good and is on a break for about 2 weeks. Not feeling sick to his stomach yet however his mouth is getting really dry. He has been using the salt and baking soda mixture with water about…
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Very New
I am looking for any information. The situation is brand new and I apologize for only having very limited info yet. My Daughter has been having problems with some headaches over the past 2 weeks. The MDs ordered a CT and MRI of her head yesterday which were normal of the brain. They did however find a 1cm lesion or mass in…
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Good and Bad news
Haven't been on all week, my laptop got a spyware and waiting for son to fix. I have to use the desktop in the bedroom and can't multitask on it. :( We recieved the CT on Jim's brain results yesterday. Good news is there is no tumors or lesions. Thsnk you God! Bad news, Jim has hydrocephalus (water on the brain). We have…
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Chemo Treatment Today
The location that I go to see my hemotology onco and receive weekly carboplatin is moving into a much larger facility on Dec 2nd.... great for them as they will have more space for all they do there including exam rooms and a larger room where patients receive treatment , it will certainly be more comfortable for those…
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Hiya
Hi everyone. Just wanted to say hi. 2 years 1 month and getting more amazing by the day. Have put some weight back on. Loving food again (except chocolate). Loving life and it's almost like this all happened in another lifetime. Great to see the oldies all doing well. Love to all and merry Christmas xxxx
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9 Years Ago this week
Wow my Wife and I was setting this morning and remembered that is was 9 years ago this week that we got the new of my cancer. I went to see my ENT about problems with my ear being full of liquid, also had a lot of problems in the nose from being broken twice as a kid. While he was in there repairing everything he seen…
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12 down - 27 more to go
Tomorrow I will be 1/3 of the way thru my rad treatments...not so bad so far. I see the rad doc every wed and he says I am doing well, keeping my weight, my mouth is a little sore, but no sores, the right side of my throat hurts a tad when I swallow, dry mouth annoying but manageable, still have saliva function..... BUT, a…
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Neck dissection complete
Hello everyone, Sorry I haven't posted in a while. I have been bust getting back to my new normal. My neck dissection is complete now and the pathology came back negative: no surviving cancer, thanks to the team of Doctors at University of North Carolina's Cancer Hospital and of course, GOD. As of now I am cancer free and…