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How do they decide on neck dissection post chemorad? Most who had it have side effects?
Been reading people's experiences with their neck dissections and it doesn't sound so easy. Do most people have side effects and long term symptoms from their neck dissections? Primarily, how do they exactly decide if you need one after you're done with chemorad treatments? (I am left tonsil SCC, left lymph involvement.…
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RayTodd
Has anyone heard from are friend down under? Last I heard he had gotten out of the hospital and was feeling poorly.
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Are these from Swallowing Issues?? Or dilation??
For anyone whose had esophageal dilation - Have you experienced food and liquid running out of your nose???? This just started today. Everything my husband Louis is eating or drinking is now running out of his nose. This is so ironic since we saw his ENT yesterday and she is now suggesting a GTube, which he WAS resisting.…
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Does activity on the petscan always mean the cancer is back?
My mom had HP+ BOT cancer that had spread to lymph nodes in both sides of her neck. She had 35 rad treatments with 3 cisplatin. The first petscan post treatment showed NED. However, yesterday she had her second Petscan and it showed activity at the site of the original tongue tumor and two small lymph nodes in the thoracic…
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difficulty swallowing after radiation for throat cancer
I am looking for anyone who has experience in this area.My husband was diagnosed on July 1,2009. He finished chemo & radiation Sept.10 and is still unable to swallow. He still has very thick mucous that he has to spit out & this keeps him awake most of the night. There is also still alot of blood coughed up. Has been tube…
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Cat scan tomorrow-Base of tongue cancer
Hello everyone. Gee it is hard. Tomorrow is the CAT scan to find out if my partner's cancer has spread or not. It is scary but we have to remain strong I know. She was diagnosed with base of tongue cancer on the 21st of October. They removed the tumor a couple of weeks before that and the results came back that it is…
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Gabapentin for post dissection symptoms
For all of you out there who have ongoing tightness, stinging, or aching in the area of the neck from partial or impartial neck dissections, I've been on gabapentin long enough now to see how it's working for me. For me it's been very helpful. As I've said before, the left side of my neck was ever present. The stiffness,…
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fentanyl patch, only, for pain?
I did not get such a patch, but know someone with C who does have one, and is also taking additional (unknown, as yet) med(s) for their pain. Is it anyone's experience to take other pain meds while having the patch? And, if so, what other med(s) were being taken at the same time? Again, I did not use said patch, so I plead…
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Lingering Sore Throat
This Friday I will be 4 weeks post rads. I still have a sore throat on the side that received the most radiation. In fact at times I think it may even be a set back since it burns when I swallow anything except water. When I went to my ent last week he said he was a little surprised that my throat was still so raw looking.…
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Desperately need feedback for Post Cancer issues
My husband Louis had his last chemo/radiation treatments in 9/07 for left tonsil cancer. 25 chemo/47 radiation. He seemed to be doing really well and was able to return to his construction job until 11/09. He experienced numbness in his left hand that compromised his work so much he had to retire early. In this last year…
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about a year ago....
It was the tuesday after thanksgiving last year that i got the news i had cancer. I have dreaded this day over the last few weeks. The memories of that moment and the year to follow. Waking up this morning i realized i have a choice to make. I can sit around and feel sorry for myself or i can take this day and be grateful…
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11/35 rads left, is it a cold or how I'm suppose to feel?
I've been very lucky and haven't developed mucositis or swallowing issues yet, however, I feel like I have a chronic cold. I did catch one just prior to leaving the hospital over a week ago. My nose gets dry, stuffed up sometimes and goes away, I often cough at night, my throat is little sore and although my mouth doesn't…
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"I woke up Sunday mornin' with no way to hold my head that didn't hurt"
(Kris Kristofferson reference) This much is true: Friday morning, while continuing to wear a sling I was told I could remove, a move I still find odd, I was kicking the old soccer ball around in the front yard with a 3-year old child, something I considered extremely safe until the competitive juices kicked into gear as he…
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High Scanxiety
Well, tomorrow is the big day. I have to go into the cancer center for a CT scan to see if the chemo that I have been on for about 3 months now is doing any good. I am stage 4 and this is not expected to cure me, but my wife and I are in high hopes that this has slowed down the growth of these little nasties. I have to…
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mastasized stage 4 squamous cell carcinoma tumor in the right maxillary sinus
My brother told me on the phone Monday, Nov 7th, 2010 he has quit recently been diagnose with sinus cancer. I quietly said I had to get off the phone and hung up, I cried for many hours. I finally got up enough guts to call him on tuesday, he said, his worst fear was that I wouldn't call him back....OMG you guys I am so…
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Husband has cancer. 1st surgery was Nov.3
Oh my. well my husband was diagnosed the middle of sept. He had a neck dissection and skin/vein graft from his wrist for his inside cheek and a graft from his leg to cover the arm. It all went very well, we spent 8 days in the hospital and then came home. We didnt make it to his first check up, he got an infection in his…
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Having some success
I'm 11 weeks post op from my neck dissection and I'm starting to have some success and freedom from the pain in my trapezius muscle. I noticed that the past 2 mornings I was actually able to pull a shirt over my head without it taking 5 minutes. So my rotator cuff and shoulder blade have relaxed enough that they are…
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Saliva measurement percentage
I'm now 2 weeks post concurrent chemo rad and still have 3 rounds of chemo left. I'm still have pretty dry mouth and extremely ropey saliva. As an example, what does it mean when someone says they had 80% saliva function back? Does it mean that they have pretty good quality (watery) saliva or could it be 80% saliva…
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Happy Turkey Day...
∩ │◥███◣ ╱◥███◣ ╱◥◣ ◥████◣▓∩▓│∩ ║ │╱◥█◣║∩∩∩ ║◥█▓ ▓█◣ ││∩│ ▓ ║∩田│║▓ ▓ ▓∩ ║ *”˜˜”*°• From our house to your house •°*”˜˜”*°• •°<•°*”˜˜”*°•Happy Thanksgiving to my CSN Family and Friends•°*”˜˜”*°•</font> ♥ :-) Have a wonderful day, don't eat to much, for the rest...you will :-) Best, John
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Severe Pain Months After Treatments Ended
Hi my name is Connie and my husband had Stage 3 Laryngeal Cancer. He did all his treatments (chemo and radiation)and his last treatment was on Aug. 31st. He went for his final biopsy and came back cancer free. He is still in severe pain and taking pain pills(tylenol 3 or Norco) and they dont seem to be having any effect on…
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nasty taste
If he tries something the taste gags him and makes him nauseous. Then he has an aversion to it and won't ever try it again. I have tried fruit or veg smoothies, magic mineral broth, soups, yogurt, you name it. I think that the lack of natural minerals, enzemes and vitamins is slowing down recovery. To me it is like…
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Jess Lewis
hey, Hondo, Micktissue, Krashpad, Joe and any other musicmen or women here, go to YouTube and punch in Jess Lewis. This girl is 16 years old, lives in Britain, only started playing guitar at age twelve and is now recognized by many great guitar players in England as the best Jazz guitarist over there, in my opinion she is…
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How do you get yourself to eat with no taste?
I am just past the middle of chemorad treatment, I have to admit having little or no taste I have been struggling to eat or drink anything. I have tried various soft foods like mashed potatoes, watered down rice, various soups, shakes, etc. The more liquified, the faster I can get it down, it seems the better. I drink my…
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thankful
I am so thankful my husband, Jim, whose hypopharyngeal cancer is in remission, is able to eat anything and everything he wants this Thanksgiving. We know we have been blessed and thank God for it every day. Thank you all, too, for all the good advice, all the listening and just for being here through some dark, scary…
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Hearing issues
Just wondering if tinnitus is always a precursor to hearing problems. Mine seems to be more persistent and no longer goes away after the 3rd Cisplatin infusion. For anyone who has lost hearing to any extent, did you experience tinnitus before that happened or are these 2 side effects unrelated? Thanks all. Andrew
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Adema
Ten weeks have passed since last rad/chemo for B.O.T and lung cancer.In the last two weeks I have swelling around neck and cheeks.In the morning the swelling is a lot, seems my tounge is swelled much of the day and hard to talk.Has anyone on CSN had this swelling from neck Rad/?? If so how long did it last? Have tried heat…
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Magic Mouthwash
I'm going to pick up a script for "magic mouthwash" I envision Shakespears witches standing around a cauldron strirring and chanting double, double toil and trouble...oh well. I've been reading about the MM and have a question; do you swish and swallow or do you swish and spit, different articles show one or the other.…
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Thanksgiving
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson It's getting on that time of year. Thought maybe a thread to express thanks, share a funny Thanksgiving story or quote might be appropriate. As cancer…
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Chef Daddy Mike
I talked to Mike today and they are all doing as good as possible. His Son blood count has been a little low so he was not able to take his Chemo for the last few weeks. His doctors are trying to get him ready for a large douse of Chemo so Mike believe that will mean staying in the hospital for a while. Mike continues to…
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HBO and hnc
I'm new to the Forum and am posting for the first time. I hope I'm posting correctly as I don't want to break any forum rules. My oldest sister is a cancer survivor,She has the same H&Nc as the actor Michael Douglas is enduring, I say survivor loosely, because she was diagnosed last July. She has been through her chemo and…