Got scoped yesterday...no sign of nothing. NPC

Kyle Gilmore
Kyle Gilmore Member Posts: 55
in Head and Neck Cancer #1
Well this is my second check up since treatment and my Onco is still pretty proud of herself and how she nailed my tumor. She said its all gone, I am good to go.It was a pretty big one,lol

It was tough and it is still tough. Everyday I wake up and think about this thing in one form or another.I wake up in the middle of the night sometimes on the verge of a breakdown...thank god for lorazepam.lol

Life does promise to be a lot more intense in flavor as I heal and decide what I am going to do with the rest of the time I have.

Comments

  • CaKat
    CaKat Member Posts: 28
    #2
    Be kind to YOU!
    You have been through so much. Neither the physical nor the emotional pain goes away right off. Know that you have been given the ability to go on...small steps work much better at first. Whatever you feel/think is fine, right. As the days go on, so will you! Way to go!
  • kokomc
    kokomc Member Posts: 22
    #3
    Great News

    I am very happy for you and your good report, my husband also had NPC and he is doing very well 6 years after treatment.

    God be with you
    Mary
  • sumarah8
    sumarah8 Member Posts: 32
    #4
    I'm so happy for you,
    I'm so happy for you, Congrats on being Ned! God bless us all...
  • Kyle Gilmore
    Kyle Gilmore Member Posts: 55
    #5
    sumarah8 said:

    I'm so happy for you,
    I'm so happy for you, Congrats on being Ned! God bless us all...

    Thanks!
    Hows things for you?
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
    Congrats
    It does get easier, but it's hard to feel confident for awhile....

    Best,
    John
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #7
    Kyle Gilmore
    That's terrific. Stay well!
  • Crazymom
    Crazymom Member Posts: 339 Member
    #8
    great news
    Congrats!
  • sumarah8
    sumarah8 Member Posts: 32
    #9
    Kyle Gilmore said:

    Thanks!
    Hows things for you?

    I'm doing fine, started to
    I'm doing fine, started to gain weight, I don't have peg so I'm really trying to eat by mouth but I guess its a good idea that they didn't install a peg on me. I'm going to have my 2nd cycle of chemo next week, I hope I'll be fine, I did good on my ist cycle, I hope it would be the same. I'm really happy for you, you are so blessed...
  • francma
    francma Member Posts: 69 Member
    #10
    Congrats to you Kyle!
    Congrats to you Kyle! Stay positive and believe!! I am 9 months post treatment and scoped every month and docs are confident it is not returning. Will be having second Petscan this month.
    Word of advise on the lorazapam. when the time comes, be sure you wean off at 10% each week, as I hadn't and it really screwed up my sleep pattern (had insomnia) for a very long time.

    Only the very best wishes sent to you
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #11
    Great News
    Kyle, So good to hear everything is looking good. Have you started working out again? How is that going? Cheers.

    Jimbo
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #12
    Wonderful
    That is wonderful news! it will get easier over time. Be strong and have fun.

    John
  • Hondo
    Hondo Member Posts: 6,636 Member
    #13
    Hi Kyle

    Congratulations on the NED report. Just to give you a heads-up on the Jaw after a few years it will start to close up a little more each year so keep it moving as much as possible and stretch it as wide as you can five or six times a day.

    Blessing to you my friend
    Hondo
  • Kyle Gilmore
    Kyle Gilmore Member Posts: 55
    #14
    sumarah8 said:

    I'm doing fine, started to
    I'm doing fine, started to gain weight, I don't have peg so I'm really trying to eat by mouth but I guess its a good idea that they didn't install a peg on me. I'm going to have my 2nd cycle of chemo next week, I hope I'll be fine, I did good on my ist cycle, I hope it would be the same. I'm really happy for you, you are so blessed...

    I think your 2nd and 3rd
    I think your 2nd and 3rd round shouldnt be to tough if you breezed through the first
  • Kyle Gilmore
    Kyle Gilmore Member Posts: 55
    #15
    Jimbo55 said:

    Great News
    Kyle, So good to hear everything is looking good. Have you started working out again? How is that going? Cheers.

    Jimbo

    I am back at work but just
    I am back at work but just cant find the energy to exercise yet.I have started to do stretchs
    for my neck and jaws.... Its gonna be awhile till i can really excercise i guess
  • Kyle Gilmore
    Kyle Gilmore Member Posts: 55
    #16
    francma said:

    Congrats to you Kyle!
    Congrats to you Kyle! Stay positive and believe!! I am 9 months post treatment and scoped every month and docs are confident it is not returning. Will be having second Petscan this month.
    Word of advise on the lorazapam. when the time comes, be sure you wean off at 10% each week, as I hadn't and it really screwed up my sleep pattern (had insomnia) for a very long time.

    Only the very best wishes sent to you

    Thanks...I barely use the
    Thanks...I barely use the lorazepam maybe 4 or 5 times since october? I tend to wait till things get unbareable then try to do something about it.lol

    Lorazepam is great though..pulled me out of some pretty dark thoughts
  • nwasen
    nwasen Member Posts: 235 Member
    #17
    Hondo said:

    Hi Kyle

    Congratulations on the NED report. Just to give you a heads-up on the Jaw after a few years it will start to close up a little more each year so keep it moving as much as possible and stretch it as wide as you can five or six times a day.

    Blessing to you my friend
    Hondo

    Great news
    I sure understand the committee in your head telling you bad things. I have been out of treatment for over a year (almost 13 months) and I go for my PET scan next Thursday. Most days and nights I go about my life pretty happy and then it will hit me I HAD CANCER and it was Stage 4......canker sore? Is it cancer? I think most of us will deal with those negative thoughts as long as we live.
    I know my plan for the rest of my life is to follow my bliss.....and for me that is more live rock n roll shows. I travel about 70 miles to a place where I can meet the bands, hang out and take photos. I have met some great friends thru the past 11 years of me going there and my dream to is to retire in 3 years and move to Cleveland. (Hey we all have our dreams!)
    I also spend alot of time volunteering for a local food movement in my small town and seeing as many old friends as I can.
    Cancer doesn't mean the end of your life; but we do find a new normal.
    Be sure to take good care of yourself, do your jaw exercises like Honda says and hope we get nothing but NED news from you!!!
    Peace,
    Nancy aka toughcookie
  • Pam M
    Pam M Member Posts: 2,196
    #18
    sumarah8 said:

    I'm doing fine, started to
    I'm doing fine, started to gain weight, I don't have peg so I'm really trying to eat by mouth but I guess its a good idea that they didn't install a peg on me. I'm going to have my 2nd cycle of chemo next week, I hope I'll be fine, I did good on my ist cycle, I hope it would be the same. I'm really happy for you, you are so blessed...

    Hope all Goes Well, sumarah8
    My first cycle of chemo was the roughest.
  • Pam M
    Pam M Member Posts: 2,196
    #19
    Glad You've Got a Proud Onco
    Thanks for sharing the good news.
  • sumarah8
    sumarah8 Member Posts: 32
    #20
    Pam M said:

    Hope all Goes Well, sumarah8
    My first cycle of chemo was the roughest.

    Thank you Pam, I hope it
    Thank you Pam, I hope it would be the same for what I'd been through with the ist cycle...

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