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NPC and Proton Radiation....
I've been reading about Proton Rads...has anybody gone this route instead of the IMRT? Everything I'm reading says it's as effective as IMRT, but with less damage to surrounding tissue, as well as less side effects during and down the road. My insurance will cover at 3 or 4 places that offer it, yet all are far away from…
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Results of dad's CT scan
Dad's scan was clear today. His doctor told him he had three choices. 1. He could stop chemo completly and wait for another occurance 2. He could have started again with no break on a lower dose of the same chemo 3. He could take a two month break, then rescan and go from there. Dad and the doctor felt the best option for…
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NPC
Hi My name is Joseph Sultana, 43 year healyhy male ( or used to be ) I have just been diagnosed with Stage 2 NCP. I would really love to hear from anyone who has been down this road as I feel I am spinning out of control.
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Jitters again over staying here or
going to a big Cancer Center. I just got my NPC Stage III diagnosis last Tues., and even set up appointments for the Radiologist and the Oncologist next week. At first I was thinking that since they have an IMRT here, and because the chemo seems pretty much standard for this that I would just stay here for treatment.…
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Has anyone tried steroid injections?
Hello to all, I've been doing some research and wonder if anyone can shed some light on the idea of throat dilitation as well as steroid infections into the scar tissue to reduce inflammation, in hopes of less dilitations in the future. My dad was dx 8-8-11 with tonsil and lymph stage 4a hpv. Finished chemo and rad end of…
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Need your help, please. Stage 4 - Acinic Head/neck, parotid gland and lymph nodes acinic cell ca,
I need help to find out where to go and who to see now. I have had three failed surgeries of parotid gland and radical neck lymph node dissections at three different hospitals and the wrong radiation with damage and severe lymphadema of neck. Acinic cell is extremely rare and I was told I cannot have any more radiation and…
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Two reasons to celebrate today
Today is my 29th wedding anniversity. My oncologist also gave me the results of my six weeks CT and PET scans this morning. They showed no evidence of cancer. Thanks to all of you for your help and support over these last seven months. It has made all the difference.
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Hi! New here........pain management issue
Hi everyone. I've been lurking for a few days. There is so much information on this site, it's been so helpful! My husband is currently going through treatment for tonsil cancer. Tomorrow he will half way through his 7 chemos and 35 rads. He did great for the first two weeks,but as of the end of last week and just this…
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Carotid Body Tumor
I'm 29 years old, 4 months pregnant, and I have just been at least preliminarily diagnosed with a carotid body tumor. I say preliminarily because the diagnosis was arrived at after an ultrasound, and I'm waiting on referrals to talk to specialists. So I guess my guess is that if it's NOT a carotid body tumor, it's…
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Diagnosis at last...
I have NPC T1N2M0 Stage III...the primary tumor is at a place in my throat that is against the vertabrae(maybe they all are with this??), so the plan is rads and chemo first. There is also an enlarged node on the other side of my neck, smaller than the original one. He said they'll be cooking those along with the tumor. I…
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Sore throats and such post treatment?
Hi, I am almost 2 years out (In June) for stage 4 SCC. Yesterday and today I sound very hoarse and like a frog. My throat is sore on my left (affected) side and so is the side of my tongue where I had a partial glosectomy. Any one else do this sort of thing, or should I go in? Just had my check 3 weeks ago. Can't do any…
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Newly diagnosed
Good morning everyone. I was recently as of 2/3/2012 diagnosed with a cancerous tumor on the base of my tongue. Yesterday I had all of my top and bottom back teeth removed. Once all this heals I will begin radiation and chemo treatments. I see my chemo dr. today for the first time and am supposed to get fitted for my mask…
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Scan vs. scope
Okay...I have two specialists...the chemo doctor (who I only met 3 times during treatment and did not really care for) telling me he wants me to have PET scans every three months. Then I have my radiation doctor (let me also add he is one of the best radiologists in the nation), who I highly respect and saw every other day…
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little over 3 weeks out from last rad/chemo
Well Hello there! What can I say, I made it through treatment. I was hospitalized a few times, had a pretty rough road but I am finally turning the corner and life is much better. All of my superficial burns have healed, I got my PICC out 2 days ago. I have been dry swallowing pretty well and am gonna start thick fluids…
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Diet during treatment
New to the group. My uncle is starting treatment- Radiation and Chemo and we are looking for any advice, suggestions, comments, or opinions on what he might be able to eat during his treatments. He had his tonsil and a portion of tongue removed so swallowing has been difficult but is getting better. Any suggestions?
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PET Scan
Received my PET scan results from Mondays test...NED!!!!!! Wahooooooo. Now it's back to see the onco again in 3 months and follow ups with CT scans prior to that visit. Linda
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did you choose the easy or the hard path?
Hi everyone, I'm new. Let me start off by saying that I've been reading posts here since the day of my diagnosis and this forum has been a place of wisdom, comfort, hope, and many smiles. When I talk about cancer I'm pretty emotionless, so here we go with some dry dry background info. :) I just turned 31, male, I don't…
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Fuzzy vision
Currently I am diagnosed with SSC Stage 4 with origin at base ot tongue and tumor positive for HPV. I have gotten 2 out of 3 chemo treatments of Cisplatin and 21 out of 35 radiation treatments. I was recently put on a fentenyl patch for pain and another patch for muscous. Within the last 10 day my vision has become blurry.…
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Mouth Piece
Just a quick question, is there anyone else who got a mouth piece to wear during treatments, along with the mask? Just wanted to see if this was standard operating procedure. Thanks - Grace
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In case you were worried...Because I was.
MONDAY, Mar. 26, 2012 — Over the past several months there have been a number of alarming news reports highlighting links between oral sex, the human pappillomavirus (HPV), and cancers of the head and neck. It all basically started after the Journal of Clinical Oncology published a study in October detailing a significant…
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Gum/gingiva cancer
Hi, Im scc T4aM0N0 gum cancer that spread to mandible, jaw bone. Removed mandible, pulled all teeth, free flap leg. 6 weeks radiation, no chemo. June 15, 2012 i will be a one year survivor. I have no idea what my odds are, i ask my surgeon at md anderson and she said she doesnt give prognosis because shes not god. Ok so i…
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Coughing At Night
I was diagnosed with vocal cord cancer in 1993 and had six weeks of radiation therapy and have been cancer free. My voice is very hoarse still but I can talk and feel well and count my blessings. I still cough , most of the night. My throat has always been very dry since the radiation treatment and I get little like "b b's…
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Happy Day
One more rad session down, 13 to go. Just thought I would mention I had bloodwork done on behalf of the Chemo Dr and I got my results yesterday he shown me every Test they did, Complete Blood Count & Complete Metabolic panel and I was really Happy because every test was perfect, when I say perfect I mean that all the…
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NED
Just had an exam/scope this morning and NED was the word. I'm now about 23 months out so I'm putting off the two year dance until June but it is was still a pretty happy dance. SCC Unknown Primary was my dx and we opted for surgery only so much of this time has been spent waiting and dreading the appearance of a primary…
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UPDATE TO RECENT SCOPE AND EXAM SUCCESS
Hello all, as I stated in my previous post I had an upcoming neck and chest CT with contrast on the 26th. I got the results and they have found some "Groung Glass" like nodules just like I had with a CT last June. My last CT was in December and nothing was seen in my lung. Of course I am a little nervous, but since I have…
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Are some of us going crazy? No, it may be PTSS...
An excerpt from someone who recently finished treatment... "Her diagnosis was severe Post Traumatic Stress Syndrome. When she first said it I thought, well that’s just silly! That’s only for people who have gone to war! I told her this and she nodded and said, “that is exactly what you have been through … you have been…
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Introducing myself
Hi everyone! I've been lurking around for a couple of weeks (posted a couple of times) and wanted to introduce myself. I'm 26 and I have an aggressive papillary thyroid cancer that is no longer taking up radioactive iodine (which is the standard treatment for thyroid cancer), so at this point they're treating me more like…
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Whips and jingles....
I had my PET scan on Tuesday morning and the countdown has begun until my consult with my ENT on Monday afternoon. I want to know what type of C I have...yet, I'd love to back peddle about 4 years. I told my sister that if...when the Dr. starts talking...I cover my ears and start singing "lalalalalala"...to keep taking…
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Dog Feet....
OK, I thought this was kind of funny and wanted to lighten the mood going into the week-end.... Kali & Daddy Feet Have a good one.... ~John
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Scan Prayers and update
I wanted to give you guys and update on my dad. He just finished 9 rounds of chemo for his reoccurance of tongue cancer. He has done really great just a few issues with low blood counts. His oncologist feels like the cancer is gone again. His plan is to do a CT scan this coming Tuesday and then if it looks good they will…