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Finance help?
Thought i'd ask here cause I haven't found any information on the site yet. I have metastatic malignant malenoma stage III N1b. I will be out of work for the chemo treatments because the company I work for looses its contract with the air force on apr 27. Needless to say I will be jobless and trying to find a way to help…
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Me and My Big Fish...
Sorry to start a new post, but wanted you to get a face with the name. This is my big fish I caught a few years ago. I was nicknamed that afterwards. :) I hope to keep up with y'all. I'm still in such worry mode over the biopsy on my tongue and possible recurrent SCC, mets all that stuff. Maybe it's in my head but I think…
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strange - Fever
My husband started with a headache yesterday at 4:30 and started running a fever up to 101.8. Took some asprin and fever went away. Woke up this morning fine and no fever. Then again today at 4:30 headache and another fever same temp. He has no other symptons. Any idea what could be going on?
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Port in place, however...
instead of them kicking me out of this place at 1:00 in the afternoon as planned, I'm laying in a hospital bed with a punctured lung...not badly punctured, more like a slow leak :) wish they had the same stuff you can put into a tire for slow leaks...hopefully it will seal up by tomorrow morning, and I get home by early…
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New baby
I have a new granddaughter Jessica Rae 6 lbs 5 ozs. Life continues to recycle :>) Baby and mom doing great...dad is a nervous wreck
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Such a busy time....
but things are coming together it appears. Monday/mammogram...Tues meeting with the surgeon to put in my port and the Gastreo____(I can't spell it)who will do the tube. Today a MRI for my brain and cervical...tomorrow placing the port. The oncologist called and said they will be starting chemo and rads on Monday the 16th…
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Allergy Season
Has anyone here come up with a good concoction of allergy meds that doesn't add to the dry mouth we all seem to have. I am getting my butt kicked by the pollen over here in Oregon.lol
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SCC Recurrence?
I posted this on the Skin Cancer site, but have had no responses yet since the 10th, so thought I would try again here. Here is my post: So I posted recently on HNC board about just having a tongue biopsy under the left side of my tongue on Monday. I had Mohs surgery on Feb. 28, 2012 to remove SCC from my right lower lip.…
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Sick of shakes?
Hope you don't mind a commercial plug here, but I really wanted to share because it helped me and I've seen a lot of talk about being fed up with a shake diet. I was recently declared NED, but understand the disgust/monotony in having to sustain on Boost/Ensure. If I remember right, each bottle was less than 200 calories…
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Teeth a-poppin!
Hi all! I made it through surgery with flying colors! Thank you all for your praters & posts! Feeling better today, and going back tomorrow to remove the packing from my nose. I hope to find out about the biopsy in a few days. Question- I am having dental problems due to the radiation. I had a wisdom tooth pulled, and went…
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never give up
I am a 78 yr.old male DX.in 2011 with B.O.T & gland,both sides and spread to right lung,no prim. found.Very close to end-in Hosp. for week and down to 115lbs.They, Dr's said I was only treatable, not cureable, and was given very little hope to with stand the Chemo/Rad. A thanks to the many post read on this network and my…
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Ear wax cement or just poor phone service?
I ran into a friend yesterday who had rads to head and neck. She ended up with ears plugged with wax, that had to be removed by the doctor. Anyone else with this issue.. I have been having a hard time hearing with my right ear when I am on the phone, I had been blaming ATT, but it may be ear wax... PS... In general I like…
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The Plan for me.....
I saw the Oncologist today...my appointment was at 9:30, and he was with me unitl almost 1:00...longest Dr. appointment I've ever had in my life....and the most thorough exam I've ever had in my life. I like him, too!!! The plan will be as follows...35 rads.....3 doeses of Cisplatin, three weeks apart...then another 3…
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Depression
Haven't been on the board for awhile since filling in for a pastor has become more involved than planned. Anyway I wanted to bring upt he subject of depression. Jim has not recovered energy since his treatment ended in August 2011.Yeshe had a shunt put in his brain January which set him back a bit but three months later…
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Checking In
Hi All: Hope everyone had a Hoppy Easter! I got back from Hilton Head last week as a brief little vacation. While there visited Parris Island as my oldest brother (the only I have left) was a Marine and I really wanted to go and visit it. It was very impressive and I got him some great souvenirs. I have some sad news. I…
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Paranoia strikes at night...
Tonight I think I found another node swelling in my neck. I know where the two are that the Dr. knows about, one is obvious to see, the other easily felt...but now a third? I see the radiologist today, but now am worrying that my PET scan is already outdated. Do I show it to him? I don't want to get two nodes nuked when it…
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Lympnode left side of neck behind ear removed, stage III metastatic malignant malenoma
Hi all, i'm new here and mid february had a small pea sized lump in my neck, was concerned as I had five small skin cancers and a small malenoma removed from my back before. Went to the doc and was told it was probably an infection in my lympnode was given antibiotics and went home. Next week it was twice the size (1cm),…
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Toothpaste
I have been using the biotene gel toothpaste since my diagnosis last Aug, along with that I use a sonicare elec toothbrush and a waterpic...sometimes I don't think the toothpaste is really cleaning my mouth, guess in my skewed brain if it ain't foamy in my mouth ,please JG no comments about a foamy mouth :p ), it ain't…
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Stage IV Nasopharyngeal Cancer, newly diagnosed
My fiance was just diagnosed this week with stage IV nasopharyngeal carcinoma. It's metastatic and spread to lungs, lymph nodes, and his bone marrow. We had the most horrendous experience with the doctor who just told us and tried to rush us out of the office to take the next patient apparently. Apparently this cancer is…
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Husband's Plan - Clinical Trial
We've spent the last two days meeting with doctors, research people, nurses, etc. My husband finds himself in the unfortunate position of recurrence and has positive margins after his 3/5 surgery. He is slated for cisplatin chemo weekly, concurrently with 6 weeks of IMRT radiation. (They are dosing him weekly instead of…
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Questions for those who experienced Peripheral Neuropathy
My husband completed treatments (32 rads/3 cisplatin) on August 22nd. Approximately 1 month later he started getting the numbness in his hands and feet, but nothing extreme. All of his doctors said that it was most likely a delayed side effect of the chemo but didn't offer any solutions. It has gotten progressively worse.…
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New to CSN...hello! Tongue biopsy question
I had a tongue biopsy today and it hurt like heck, so I started searching the 'net for info on how long the pain will last. I came across this site, and was reading all the posts and felt since I haven't been diagnosed yet then I wasn't really a qualified member. Then it hit me like a ton of bricks. I AM a cancer survivor,…
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anyone else have allergic reactions to erbitux?
I have stage 4 advanced tonsil cancer and had my first chemotreatment ("front loaded"--400mg per square meter body mass) of erbitux (or cetuximab) on Friday. I had pretty serious chills, my blood pressure went way up, and because my temperature spiked (101.9) I went to ER (lots of laughs for 5 1/2 hours). My oncologist…
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Happy Easter!
In the spirit of the holiday, believe in renewal and healing. I have been blessed in so many ways, as I have go through this journey of adjusting to the new me. I wish all here on CSN, strength, wisdom, and courage to continue the fight, and NOT give in to the beast. I have become a better, stronger, compassionate,…
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Update on my Husband Bob
Hello to all... wanted to give an update on my husband. Some of you may recall that he is in his third battle with the beast since mid 2009. He had rads and chemo in 2009, surgery with wrist flap in 2010, and on March 5, had another surgery with pectoral flap used. They were unable to get clean margins; therefore, chemo…
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Ready for the Fight?
I apologize in advance for this question, because so many of you have been fighting this Beast and as I read your comments Im inspired that the human spirit can show up to fight things that I would think are just impossible. My question is, is the journey worth it. Im sure Im just anxious after reading all the trauma…
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Just done treatment today......
I had SCC on the left side of my neck in 2006....Dignosed with SCCT4 last Jan.-got 3 rounds of Cisplatin over 9 weeks(last Chemo 10 days ago)and 35 Radiations which ended today.....I am feeding exclusively off the PEG and have lost my voice, essentially my ability to swallow and of course my sense of taste! SO, considering…
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NED at 3!
I just got back from my lead oncologist's office, who gave me and my wife the great news that my CT scan showed NED! That puts me somewhere around 3 years in remission, and my next scan won't be for another whole year. That good news gets dampened a bit by the reality that I have a debridement of my left mandible in less…
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Happy Easter with treatment finished
Hi I have not written in a while. I finished by radiation 2 weeks ago. The first week after radiation was bad. This week has been better. I seem to be getting more mouth sores. When do the mouth sores go away? I am off pain pills and my throat is hurting. How long does the throat hurt after radiation? I am grateful to have…
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I KNOW
Excuse my rambling today, I know something I did not invite has entered my body, I know it has no good intentions, I know I will have to ask it to leave. I know it will not go quietly, I know it will not apologize for being where it is not wanted. I know it will demand I fight the battle of my life if I dare think it will…