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IV at home anyone?
Since this is something I hadn't heard of before, I thought I'd post it. Eating or drinking has become a nightmare as it has I'm sure with most of you. Even so, I'm drinking water and nutrition drinks as much as possible but for some reason I'll vomit hours later. There is lots of heartburn of which I'm taking Zantac for…
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Preparing for treatment
Hello all!!! I am very new to all of this. I was diagnosed last week on April 11, 2012 with Stage III Squamous Cell Carcinoma of the Tongue. I had was I thought was a canker sore on my tongue since mid-January and went to my GP and my dentist 6 times combined and was told it was just a canker sore for 2 months. I was still…
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READY FOR THE FIGHT PART II
Well I got the biopsy report today, confirmed SCC no stage offered. dittoII took the call and after she hung up, a few tears started to fall down her cheeks. I said why you crying and she said she was just hoping it would be something else. I told her its like having your home blown away in a Tornado, you see the damage…
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"There's a speed zone ahead but, all right, I don't see a cop in sight"
(Sawyer Brown reference) The siren and the flashing lights behind us usually cause us to instinctively pull off of the road to the right so that the policeman can get to where he is going, but since I was already in the left-turn lane, and since the police car was immediately behind me, I figured out that I was the obvious…
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Tummy upset, acid reflux?
Ok, guys for the last four days my stomach has been a little tipsy, and i've had acid reflux building up sometimes in my esophogus, enough to make me cough a little. Is this the onset of the dreaded radiation sickness? I've only got tommorrows rad treatment and then i'm done with my cookin', but am curious as to whats…
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Any good recipes for "our kind"?
I am a little over a year out of finishing my treatments. All is well and my weight in life are returning to my new normal. It has been an uphill battle to gain my wieght and my strength back at the gym. however, I've gotten back. I now work out five days a week and have returned my healthy eating habits I had before this…
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7th day of fever
My husband is a year out from treatment. He just started back to work on Monday. BAM!!!! He starts running a fever last Wednesday and is still running a fever today. The fever was at night the first 3 nights then it moved to off and on day and night. He says he has a mild headache around the top of his head. Other than…
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locals??
I was just wondering if there is any members that live near me. I read in a thread that Mrs. Sarge is in the DFW area, and Sooner79 had a photo of a TX Oncology t-shirt. I live in Commerce Tx, about 60 miles NE of Dallas. I had chemo(Dr. Teerdhala) and radiation(Dr. Caruso) at Tx Oncology in Mesquite, and my surgeon(Dr.…
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Nerve Damage from Neck Surgery
I had surgery to remove a tumor from my neck about 6 weeks ago now (which at the time was thought to be a branchial cyst). Over the last few weeks my shoulder and arm as well as my leg all on that side seem to have a slight weakness to them, and a bit of an ache. The shoulder area is a little tender. Its nothing major,…
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Cancer Etiquette Revisited - my rant for the day!
Months and months ago, I posted a link to a beautifully written and humorous blog entry by Amanda Enayati about cancer etiquette, in this case 'breast cancer etiquette.' Not our kind of cancer, but the etiquette still applies. It's definitely worth sharing with family and friends. It triggered several responses from folks…
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Weight loss during External Beam Radiation
I'm kind of confused about weight loss during external beam radiation. My oncologist told me to expect to lose a lot of weight, but my radiation therapist/oncologist told me to try not to lose weight.... What was your experience?? I can't imagine being able to keep my current weight (which is not a healthy weight) up when…
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Waiting for Scan Results
Seeing my oncologist tomorrow for the results of my MRI. Very nervous! This feels like quite an important scan - I had a clear PET scan around Xmas (which fooled my doctors into thinking I had a branchial cyst rather than a cancerous lymph node with unknown primary!), then waited a couple of months for it to be removed…
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repairing saliva glands??
Anybody hear anything else about this since its inception????? Dental Stem Cells to regrow and repair Salivary Glands.. by StemSave, Inc on Tuesday, January 25, 2011 at 11:20am · . By Dr. Dharmini Pathmanathan, DMD, PhD Dr. Xing Yan, has been awarded a grant from the National Natural Science Foundation of China in the…
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What a relief!
Pop, pop, fizz, fizz, oh what a relief it is! I finally got the copy of my PET scan report. Looks AOK. Putting the dancing shoes on. I have waited a long time for this. See the doctor on Wednesday.
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amifostine shot
Hi, I see lots of you have gotten the amifostine shot to protect salivary glands during treatment and I read that it protects the kidney also from damage by cisplatin. My chemo doc never offered this shot to me, did he goof up? I had stage 4 nasopharyngeal at 30yrs old.
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Any recommendations on NPC Radiation Oncologist near New York or TriState area?
Hi there, I was recently diagnosed as having NPC... now looking for a good radio oncologist near my home: New York or Tri-State area. As I found out that NPC is rare in the US, I wish he or she could have previous experiences and treats NPC on a regular basis. So far I have references to some very good radio oncologist,…
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Unkown Survivors!
Hello, I am coming up on 1 year and 10 months post treatment and have my scheduled scope next week; as usual I tend to get a little cranky and down at this time; especially today for some reason? Fortunately though, I recently came across an unexpected surprise that is helping me get through this emotional day. I am a…
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OT: A CSN 'Twas the Night Before Christmas & The 12 Things of Cancer Such a Pain to Me.
This poem, was literally, inspired by a dream I had a couple weeks ago: The Night Before Christmas 'Twas the night before Christmas, and all through the place not a CSN member was stirring, not even Ratface. Our hopes were all hung on every PET and Cat Scan In hopes that N-E-D, soon would be there. Shelley & Skiffin were…
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Proton Therapy
Wondering if anyone has received proton therapy for head and neck cancer. Husband diagnosed with adenoid cystic cancer removed parotid gland, facial nerve and ear cannel. Concerned about side affects of other radiations and read that proton therapy would have less side affects.
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How do you prepare foods for someone with feeding tube?
My boyfriend was just diagnosed with squamous cell carcinoma of the oropharyngeal. He will probably have a feeding tube. I am not sure what food to prepare, juices etc.
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Saliva
I had cancer of the larynx and have been out of radiation and chemo treatment for about nine months. I Just had a petscan and other than alot of irritation from the treatment, the cancer stayed away. Believe me, I am the most thankful person in the world right now and really hate to complain about anything. I do have a…
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Tips on getting through a good nights sleep...?
Hi All, My dad has recently finished treatment for laryngeal cancer, supraglottis S3N1. Treatment finished nearly 3 months ago, total of 35 rads & 3 rounds of cisplatin chemo over a 7 week period. He has been through it all and recovering well, back to eating on his own...no more tube! HOWEVER....since he has been eating…
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Important to me!!!!!!
Hey everyone...Bill here...just finished 35 rads and 9 week chemo for Stage 4 SCC...When first diagnosed, I had a lump the sise of a raquetball on my neck and all the discussion was whether it was to bid to remove or did I have to get rad/chemo to shrink and then remove...it was diagnosed HPV abd shrank immediately,,,,,now…
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FINITO
Hooray, I just finished my last Rad session, 33 and out. Now its cooking for a Couple of weeks then on the road to recovery. TASTE BUDS, SALIVA, REAL FOOOOOOD. This board and the people here have been fantastic and I would like to say T H A N K Y O U To each and everyone of you for all your support and advice. I'm not…
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Feeding tube vs. eating
Hi, Long time lurker, reading about others going through the same thing as me has helped a lot. Thanks everyone :) I've got a few questions about eating and the feeding tube, but first a little info about my current eating situation: Most or all posts I read about feeding tubes here, people have the PEG tube. I'm not…
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radiation & urbitux: burning skin solutions?
I have just had 3 radiation treatments (33 more to go) and 2 erbitux (cetuximab) infusions and already am experiencing fiery burn sensations and some redness over face (especially strong), neck, and chest. Since I have some rash on my face, I think that both treatments are contributing to the burning sensation. Radiation…
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Another surgery for Jim - update
Yesterday Jim had a CT on his stomach for pain he has had since they put the shunt in his brain. He has a mess, as the surgeon said, where the small intestine and the large intestine are joined, There is a 50/50 chance of cancer. However, the drain tube for the shunt drips on this area and it may be causing inflamation.…
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Gardasil Vaccine to prevent HPV+ SCC cancer recurrence
Hello all See the summary below of a study completed by the U of Alabama in 2010. Anyone here familiar with this? Has anyone discussed the ramifications of this study with their doctors, to assess the extent of its applicability to H&N SCC as opposed to Cervical SCC? The jury is still out on this one at Stanford, in part…
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Mrs. Sarge...
Copy and paste this into your address bar...It's part of the Super Thread regarding us who are about to start radiation. http://csn.cancer.org/node/236691
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Warnings, hints, suggestions of things to do!!
Just been diagnosed with Stage 1 Spindell Cell Carcinoma of the vocal cords. It was originally diagnosed and surgery done 1 1/2 yrs. ago. Never smoked/never drank and I am a female, so the only risk factor I had was reflux. Noticed my voice getting hoarse, had polyps and when they went in to get them also saw a suspicious…