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Hello to my fellow NPC cancer survivors
I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!
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New Dry Mouth Product
I went for a dental cleaning this week, and the dental hygienist recommended a new product she had recently discovered at a dental conference. It is called "Oramoist", and it is a "patch" only 1/2" in diameter and 1/8th inch thick. It is pressed against the roof of the mouth, about half way along the palette. You hold it…
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NED - 3 months T1N0M0
Just want to let u know that got my MRI exam. As it says on the paper no signs of desease. Had oral tongue cancer T1N0M0. No radiation thankfull, just a strange shaped tongue and few speaking issues. Thankfully eating normally (and healthier). Hope to keep like this forever. I always think of u guys!
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ADD
More testing on my hubby, we thought he was suffering from short term memory loss, come to find out he has ADD. Doctor said something like radiaiton posioning. I dont know, anymore. The one thing I know, is that the treatments jacked my husband up. But, he is alive. On the depressed side trying to figure out if he can…
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unexpected dry mouth solution
We stumbled upon an unexpected solution for dry mouth at night, C-PAP. Jim has sleep apnea but has not worn his C-PAP machine for almost a year because of it being uncomfortable and pressing on the already painful nerve that the tumor pressed on and so got out of the routine of wearing it. Well his PC doc said he was not…
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New here...hi everybody
Just got the bad news yesterday that I have cancer in my head/neck somewhere...I won't know precisely until I have a PET scan next week. I am scared to death of course, but have been reading a lot of upbeat posts here...thank you all for that!! My mother had a laryngetomy in 2002, so I do have some idea of what I'm about…
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Retreat slowed me down more than planned
I went on a much needed 5 day spiritual retreat on March 11 and promptly broke a bone in my foot. I was so upset, not about the bone but about maybe having to leave. I was able to stay for 4 days but our son had to drive Jim over to get my car home. It was the first time Jim has driven since diagnosis in May 2011. He did…
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tongue cancer
my husband had SCC of the tongue in 2008 and had a hemiglossectomy with a radial flap reconstruction radiotherapy (no chemo was needed as his lymph nodes all came clear after removal) He has been having trismus since then and alot of mouth infections. He had a another biopsy recently and it has recurred at the tip of his…
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More Very Bad News
I have been having intense pain in my right ankle and right thigh for a few days now. My personal Doc talked to me this morning and after hearing my description of the pain and looking at the latest CT scan, he thinks there is a strong possibility that the cancer has spread to my bones. He immediately scheduled me for a…
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more uncertain news and more waiting
so we went for the consulation in reference to brachytherapy. After the doctor examined my mom he found "something" close to the tongue or rather more on the floor of the mouth. Said it's a little bump that is hard and he is not sure at this point if it's a scar tissue from radiation or post surgery tissue or another…
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Tongue Biopsy
I had mucoepidermoid carcinoma of my left submandibular. Finished treatment (surgery & radiation) Jan. 2011, have had clear PET/MRI since. My question is I recently found a lump on my tongue on the underside the same side as the cancer. I went to my onco, who ordered a MRI and wants to see me in a month, or if the lump is…
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more uncertain news and more waiting
so we went for the consulation in reference to brachytherapy. After the doctor examined my mom he found "something" close to the tongue or rather more on the floor of the mouth. Said it's a little bump that is hard and he is not sure at this point if it's a scar tissue from radiation or post surgery tissue or another…
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Thrush?
I've done 8 Rads of 2nd set (1st set was aimed at temple so no issues and done now). These are with the mask aimed at lymph nodes left side - taste buds are going - still can taste sweet but not really much else. I've been drinking carnation instant breakfast, milkshakes. Anyway, my throat is getting more sore with dryer…
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nerve damage
Has anyone taken the drug Neurontin for pain from nerve damage?
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throat/tongue pain
How long did your throat/tongue hurt after radiation? My husband said his throat and tongue still hurts like heck. He is taking 4 hydros a day for pain. He is 9 months out. The doc told him to watch his tongue and make sure it does not get infected. I am just wondering, the body is an amazing healing machine. What is it,…
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nasopharyngeal cancer,type III
my wife has just been diagnosed with this cancer and I am wondering if anyone out there has gone through the treatment, radiation or whatever and could provide some feedback, thanks.
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pregnancy and H&N cancer
It was around this time a year ago my blood test showed my prolactin level was 3 times higher than normal. I was referred to an endocrinologist who ordered me MRI scan to confirm pituritary tumor was the cause of my prolactin levels to elevate. Indeed, I was diagnosed with a small benign pituritary tumor which I was…
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Swelling after Total Laragectomy
I had my Total Laragectomy surgery on January 5th this year, comming up on 12 weeks ago. I still have a lot of swelling & my neck under my chin is hard as a rock as is my neck on both sides of my face. I have talked to my doctor about this & he does not seem to be concerned about this but I really don't like his attitude.…
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How long does throat stay sore after Surgery
Hi, this is my very 1st day here. I just registered & looking for information. A little about my situation. Diagonosed almost a year ago with stage 4 invasive squamous cell carcinoma ( throat cancer )I went through 6 treatments of Chemo & 42 Radiation Treatments. After waiting 3 months for the swelling to go down I was…
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Husband is Recovering - Trach Question
My husband continues to recover and seems to be getting better every day. He had first post op appt with surgeon Friday and he said he is doing well. Only issue he is having is he gained TWENTY POUNDS of water/fluid from fluid retention. Needless to say, he is on lasix and it is slowly coming off. Doc said not unusual when…
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tongue cancer
my husband had SCC of the tongue in 2008 and had a hemiglossectomy with a radial flap reconstruction radiotherapy (no chemo was needed as his lymph nodes all came clear after removal) He has been having trismus since then and alot of mouth infections. He had a another biopsy recently and it has recurred at the tip of his…
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Just checking in, and a small thank-you gift
Am a year out of chemo/radiation and just had a clear PET/CT scan 2 weeks back. In physio for neck fibrosis but otherwise doing really well. Way luckier than many. In fact, my band even recorded a 10-song album in Nov-Dec 2011. If any of you like early-style punk rock and roll/power pop, you can download the whole thing…
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Dogs, Cats, Goats, and Pets.....
Since we haven't done this for awhile, and I see a few newbies with Pet Family in their avatars. I thought it might be a good time to show your Pet Family Caregivers.... Jazzy is my honored sweetheart...she is one of two Chocolate Lab sisters we have, Jasmine (Jazzy) and Kali. They both gave me tons of love and support…
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External Beam Radiation
I'm about to receive External Beam Radiation for Papillary Thyroid Cancer, 5 days a week for 6.5 weeks, and was wondering if anyone had any advice. Not many thyroid cancer patients have to get XRT (EBR) so I've been advised to check out some of the other head/neck cancer threads. Any info or experiences would be helpful! I…
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Is peg tube removal painful?
Andy's doctor thinks he is ready to give up the peg tube in a few weeks. He is convinced that it is going to be very painful. He has the type that has an internal bumper (not a balloon). Spool...what's it really like?
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Turkey Neck and Phlem
I know these topics have been discussed before , but for the life of me couldn't find the past threads. After coming through all the treatments with little or no issues, I now have this "turkey neck" going on which I think is large under my chin & across my throat area plus I have this phlem that seems to be stuck in my…
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Information on eliminatiung Mucas
I wanted to pass along some useful information that I have found while going through my recovery from Throat Cancer. A little about my situation. I was diagonosed almost a year ago with stage 4 invasive squamous cell carcinoma ( throat cancer )I went through 6 treatments of Chemo & 42 Radiation Treatments. After waiting 3…
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To old friends and new...
It has been just over a year(!)since my husband was diagnosed with HPV+ tonsil cancer. I don't check in as much anymore...is that a good thing? My husband has been doing very well. We both feel very fortunate. Fortunate for good health right now, fortunate for those on this board who helped "us" get through it...you know…
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What a Night
This has nothing to do with anything on the board but I just had to share. Yesterday my daughter (18) came home with bad pains to the left pelvic area So I took her to the emergency room where we sat and waited for hours on end, When we finally got seen to they did the usual scans, CT and MRI and found a 15 cm cyst on her…
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Jevity 1.5
Is anyone in need of some.? I have a couple of cases I did not use and would hate it to go to waste. It expires in July. I am even happy to pay to ship it. We had to argue with our insurance company to even cover it as they believed it was unnecessary. How can they pay for a PEG tube but deny coverage for the sustenance…