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NED
2 years March 6th... saw hemo and rad ongologist... NED IS STILL IN THE HOUSE!!! spring is on the way here in the midwest... and life is good!.. My wish for you ALL is health and happiness. Wife
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NED
11 months out from final TX and received the NED news yesterday. My doc tells me that more than 50% of all re-occurences happen within the first year of treatment and almost all happen within the first two years. So here's looking at NED forever.
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thankful for NED visting the holiday weekend.
Hello to all, I had my one year scan a month early due to small lump that developed on my neck right above my adams apple. The great news it was an infection that could not drain in the lymph node duct that had scar tissue build up from radiation. Once the infection was removed I did my pet scan. The result came back as…
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Rad Onc Says NED
Ned again...but i got an off the wall answer. She said since there is no signs of recurrence that she wont order a PET or MRI. She said Kyle, believe it or not you beat this thing. Supposed to be happy right? Me, the first thing I think is about all the new aches and pains I have and how they could be METS and I should get…
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Is it possible to get thru this without a caregiver?
or say, just a part time care giver? I remember someone on here saying she'd been alone except some help of a couple good friends. I read it in the first couple of days, but I can't find that post nor remember who it was. I'm just trying to figure out how much of this I can handle on my own... p
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Benecalorie...any one use this?
I'm looking for some reviews of the Resource Benecalorie product. I read a couple on the Nestle web site.....some say great, some say it tastes awful. It's supposed to have no taste. Just wondering if it's worth the purchase. Aslo how about the Resource Breeze? Thanks!
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Collar Bone Drop
Hi Everyone 7 months ago, I had a radical neck dissection which removed the SternoCleidoMastoid muscle, IJV but thankfully preserved the accessory nerve (bruised it though leading to a painful shoulder for about 5 months). I'm a little confused though as the collar bone on the RHS has now dropped about 4 inches compared to…
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Three weeks in to Rads and Chemo
Hi everybody, my husband is three weeks into his Rads and Chemo. He gets his second dose of chemo tomorrow. He is feeling a lot worse than he thought he would. He had to stop working and so far has been driving himself to rads. But based on how he feels right now, I imagine I will have to start driving him. His side…
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brachytherapy
Hello, my mom will probably have brachytherapy as her next treatment for tongue cancer, does anyone have any experience with that, any suggestions or comments? thank you in advance for all answers.
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What A Surprise! Duh!
Chemo Brain May Last 5 Years or More well.blogs.nytimes.com "Chemo brain," the foggy thinking and forgetfulness that cancer patients often complain about after treatment, may last for five years or more for a sizable percentage of patients, new research shows.
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Cosmetic dental
I was lucky and kept my teeth and really have had minimal problems over the last decade+ since I finished treatment however my teeth are showing the stress and strain of radiation,dry mouth and probably age. Has anyone had either veneers or bonding following treatments? They are chipping in places plus they seem to be…
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Amifostine
Hey everybody, Just got back from rads, and the doc discontinued my amifostine. It made me real sick Wednesday, and I threw up after rads. I gotta tell you guys, that is something you don't want to do. Felt like I was breathing fire. It was terrible. But i guess it's one thing I won't have to hassle with now. I mean it let…
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pathology report-dissapointment again-update, mistake about positive margins
hi everyone, it's paintful to write the reality but it also helps me as I can put down what I'm feeling, so here it is: pathology report came back and the margin from the tongue was NOT negative. Tomorrow we are going to the radiation doctor to see what he thinks, wheather or not mom can have radiation again. She finished…
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Scope today
My husband had his 3rd - 3 month scope today. Doc says everything looks great. No scans of any kind except the pet 3 months out from radiation. I hear alot of people getting quartely scans, but our doc has not schedule any. Does that seem odd?
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Ultrasound questions
I came to this site in January by way of Kidney Cancer, but due to neck swelling/knot and pain that I have had for a while and ignored, I went last Friday and had and ultrasound of my neck. (my dr insisted) I am supposed to go this friday for the results, but because of the last ultrasound I had showing I had kidney cancer…
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Driving me crazy.
I know its only 9 rad sessions in, but the complete loss of tase is driving me potty. I can Still eat as my thoat is not to sore, but I've got no desire to eat as everything tastes like s#@t. I can still smell all the wonderful flavors as the food goes in my mouth but then it Ends there. Any ideas as to how long this…
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Are all Squamous Cell cancers the same?
what I mean by that, are some aggressive, and some more slow? I would swear I can feel this cancer growing (like the ringing in my ears seems louder, and I can feel pressure above the lymph node)...which could be my imagination, and maybe I slept funny...I keep trying to tell myself that the wait is making me neurotic. I…
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ANYONE HEARD FROM KIMBA??
After reading about Jim, I have also wondered why KIMBA has not given us a status report on Mark. Anyone hear from her? Mike
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SCC to Start - in Preauricular Lymph now - Radiation questions
I actually posted this yesterday in skin cancer as that is how mine started - but now I'm on a new adventure :) 37 rad trmts. w/ 5 high intensity to the tumor sites in front of my ear at the end I think. Doc said this morning that she doesn't think I'll lose a lot of hair but still no indicator on if it will come back.…
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Spring is sprung...at least according to the calender.
Been awhile since I have posted...for good reasons. I am sure gaining my strength back quickly and have been back at work pretty steady. I have been watching from the shadows and am touched by everyone's truly compassionate reaction to Delnatives passing. So genuine...CSN is such a great place. Also I am amazed to watch…
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please advise
hello to everyone, my dad just came from the GI dr. today. we went there because we are about 5 months since treatment for tonsil and lymph and still cannot swallow more than liquid and brooths and we wanted to try throat dlitation. The dr. came out after endoscopy and said that he could not dilate anything because there…
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Acinic Cell Cancer Head/neck
Does anyone know of any treatment, besides surgery, for acinic cell cancer? I was told there is no chemotherapy by surgeons, but I think there must be. Thank you as I have had three failed surgeries and really need help.
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Ink
After being out of treatment for 15 months I decided it was time to get a tattoo to state my feelings about cancer. (I have two other tats from my 30's that have to do with music) After much deliberation I decided to go with screw cancer. New parlor in the town I live in and both artists are young and very cool. I sort of…
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My Sister Husband
It’s been a hard week, my Sister who has Parkinson Disease very bad lost her Husband last week. He was just 48 and in very good health, he went finishing by his self and they found the boat capsized and his body floating. It is believed that he had a Heart attack and fell overboard. It is not just Cancer that kills; she is…
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Hobbies and Other Interests
In reading Tonsil Dad's post and learning he is a framer of artwork and photos. I decided to start a post on hobbies and other interests. I know myself (other than fishing, LOL), one of my hobbies and first loves has always been art. I mainly like to do wildlife art, and portraits, usually always in acrylic or prismacolor…
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Fallen Warrior ~ Jim in Delaware
With a very heavy heart, I'm making this post.... MarineE5, sent me a message today that he had found out that Jim had passed away on February 25th. Below is the link to his obituary..... Jim in Delaware In reading the obituary, I can't help but to think that Jim (knowing his dry humor), entirely or definitely had a hand…
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oral mets lung
We were hoping this mess was over until a ct showed cancer in both of my husbands lungs. We are praying for a miracle. Has anyone else had any experience with anything like this? He is 32 so the Drs have no answers because of how agressive this cancer has been. This is the 4th time in less than a year he has had it.
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13 radiology treatments completed and now the dreaded mucous
I've completed 13 of the 35 radiologic treatments and 2 of 7 chemo. My throat is so sore that swallowing is extremely painful. Doctor prescribed Vis lidocaine/diphen/Maalox and this helps to some degree for a quick meal but it lasts about 15 minutes at the most. I have just about given up trying to eat by mouth and use the…
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Carboplatin?
I'm going to do another round of radiation/chemo. One week of Cyberknife and three consecutive weeks of Carboplatin. Supposedly Carboplatin has a lot fewer side effects than Cisplatin. Anyone have experience with Carboplatin?
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Some Updates About Me Lately.
Hey All I know I havent been posting on here as of late but just been dealing with doctors apts. I am still cancer free as of last fall but still dealing with some really nasty side effects from post cancer treatments. Like my light headness all the time and shoulder/neck problem and numbness in the legs/arms. So today I…