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Husband is Recovering - Trach Question
My husband continues to recover and seems to be getting better every day. He had first post op appt with surgeon Friday and he said he is doing well. Only issue he is having is he gained TWENTY POUNDS of water/fluid from fluid retention. Needless to say, he is on lasix and it is slowly coming off. Doc said not unusual when…
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tongue cancer
my husband had SCC of the tongue in 2008 and had a hemiglossectomy with a radial flap reconstruction radiotherapy (no chemo was needed as his lymph nodes all came clear after removal) He has been having trismus since then and alot of mouth infections. He had a another biopsy recently and it has recurred at the tip of his…
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Just checking in, and a small thank-you gift
Am a year out of chemo/radiation and just had a clear PET/CT scan 2 weeks back. In physio for neck fibrosis but otherwise doing really well. Way luckier than many. In fact, my band even recorded a 10-song album in Nov-Dec 2011. If any of you like early-style punk rock and roll/power pop, you can download the whole thing…
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Dogs, Cats, Goats, and Pets.....
Since we haven't done this for awhile, and I see a few newbies with Pet Family in their avatars. I thought it might be a good time to show your Pet Family Caregivers.... Jazzy is my honored sweetheart...she is one of two Chocolate Lab sisters we have, Jasmine (Jazzy) and Kali. They both gave me tons of love and support…
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External Beam Radiation
I'm about to receive External Beam Radiation for Papillary Thyroid Cancer, 5 days a week for 6.5 weeks, and was wondering if anyone had any advice. Not many thyroid cancer patients have to get XRT (EBR) so I've been advised to check out some of the other head/neck cancer threads. Any info or experiences would be helpful! I…
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Is peg tube removal painful?
Andy's doctor thinks he is ready to give up the peg tube in a few weeks. He is convinced that it is going to be very painful. He has the type that has an internal bumper (not a balloon). Spool...what's it really like?
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Turkey Neck and Phlem
I know these topics have been discussed before , but for the life of me couldn't find the past threads. After coming through all the treatments with little or no issues, I now have this "turkey neck" going on which I think is large under my chin & across my throat area plus I have this phlem that seems to be stuck in my…
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Information on eliminatiung Mucas
I wanted to pass along some useful information that I have found while going through my recovery from Throat Cancer. A little about my situation. I was diagonosed almost a year ago with stage 4 invasive squamous cell carcinoma ( throat cancer )I went through 6 treatments of Chemo & 42 Radiation Treatments. After waiting 3…
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To old friends and new...
It has been just over a year(!)since my husband was diagnosed with HPV+ tonsil cancer. I don't check in as much anymore...is that a good thing? My husband has been doing very well. We both feel very fortunate. Fortunate for good health right now, fortunate for those on this board who helped "us" get through it...you know…
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What a Night
This has nothing to do with anything on the board but I just had to share. Yesterday my daughter (18) came home with bad pains to the left pelvic area So I took her to the emergency room where we sat and waited for hours on end, When we finally got seen to they did the usual scans, CT and MRI and found a 15 cm cyst on her…
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Jevity 1.5
Is anyone in need of some.? I have a couple of cases I did not use and would hate it to go to waste. It expires in July. I am even happy to pay to ship it. We had to argue with our insurance company to even cover it as they believed it was unnecessary. How can they pay for a PEG tube but deny coverage for the sustenance…
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NED
2 years March 6th... saw hemo and rad ongologist... NED IS STILL IN THE HOUSE!!! spring is on the way here in the midwest... and life is good!.. My wish for you ALL is health and happiness. Wife
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NED
11 months out from final TX and received the NED news yesterday. My doc tells me that more than 50% of all re-occurences happen within the first year of treatment and almost all happen within the first two years. So here's looking at NED forever.
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thankful for NED visting the holiday weekend.
Hello to all, I had my one year scan a month early due to small lump that developed on my neck right above my adams apple. The great news it was an infection that could not drain in the lymph node duct that had scar tissue build up from radiation. Once the infection was removed I did my pet scan. The result came back as…
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Rad Onc Says NED
Ned again...but i got an off the wall answer. She said since there is no signs of recurrence that she wont order a PET or MRI. She said Kyle, believe it or not you beat this thing. Supposed to be happy right? Me, the first thing I think is about all the new aches and pains I have and how they could be METS and I should get…
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Is it possible to get thru this without a caregiver?
or say, just a part time care giver? I remember someone on here saying she'd been alone except some help of a couple good friends. I read it in the first couple of days, but I can't find that post nor remember who it was. I'm just trying to figure out how much of this I can handle on my own... p
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Benecalorie...any one use this?
I'm looking for some reviews of the Resource Benecalorie product. I read a couple on the Nestle web site.....some say great, some say it tastes awful. It's supposed to have no taste. Just wondering if it's worth the purchase. Aslo how about the Resource Breeze? Thanks!
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Collar Bone Drop
Hi Everyone 7 months ago, I had a radical neck dissection which removed the SternoCleidoMastoid muscle, IJV but thankfully preserved the accessory nerve (bruised it though leading to a painful shoulder for about 5 months). I'm a little confused though as the collar bone on the RHS has now dropped about 4 inches compared to…
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Three weeks in to Rads and Chemo
Hi everybody, my husband is three weeks into his Rads and Chemo. He gets his second dose of chemo tomorrow. He is feeling a lot worse than he thought he would. He had to stop working and so far has been driving himself to rads. But based on how he feels right now, I imagine I will have to start driving him. His side…
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brachytherapy
Hello, my mom will probably have brachytherapy as her next treatment for tongue cancer, does anyone have any experience with that, any suggestions or comments? thank you in advance for all answers.
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What A Surprise! Duh!
Chemo Brain May Last 5 Years or More well.blogs.nytimes.com "Chemo brain," the foggy thinking and forgetfulness that cancer patients often complain about after treatment, may last for five years or more for a sizable percentage of patients, new research shows.
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Cosmetic dental
I was lucky and kept my teeth and really have had minimal problems over the last decade+ since I finished treatment however my teeth are showing the stress and strain of radiation,dry mouth and probably age. Has anyone had either veneers or bonding following treatments? They are chipping in places plus they seem to be…
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Amifostine
Hey everybody, Just got back from rads, and the doc discontinued my amifostine. It made me real sick Wednesday, and I threw up after rads. I gotta tell you guys, that is something you don't want to do. Felt like I was breathing fire. It was terrible. But i guess it's one thing I won't have to hassle with now. I mean it let…
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pathology report-dissapointment again-update, mistake about positive margins
hi everyone, it's paintful to write the reality but it also helps me as I can put down what I'm feeling, so here it is: pathology report came back and the margin from the tongue was NOT negative. Tomorrow we are going to the radiation doctor to see what he thinks, wheather or not mom can have radiation again. She finished…
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Scope today
My husband had his 3rd - 3 month scope today. Doc says everything looks great. No scans of any kind except the pet 3 months out from radiation. I hear alot of people getting quartely scans, but our doc has not schedule any. Does that seem odd?
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Ultrasound questions
I came to this site in January by way of Kidney Cancer, but due to neck swelling/knot and pain that I have had for a while and ignored, I went last Friday and had and ultrasound of my neck. (my dr insisted) I am supposed to go this friday for the results, but because of the last ultrasound I had showing I had kidney cancer…
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Driving me crazy.
I know its only 9 rad sessions in, but the complete loss of tase is driving me potty. I can Still eat as my thoat is not to sore, but I've got no desire to eat as everything tastes like s#@t. I can still smell all the wonderful flavors as the food goes in my mouth but then it Ends there. Any ideas as to how long this…
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Are all Squamous Cell cancers the same?
what I mean by that, are some aggressive, and some more slow? I would swear I can feel this cancer growing (like the ringing in my ears seems louder, and I can feel pressure above the lymph node)...which could be my imagination, and maybe I slept funny...I keep trying to tell myself that the wait is making me neurotic. I…
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ANYONE HEARD FROM KIMBA??
After reading about Jim, I have also wondered why KIMBA has not given us a status report on Mark. Anyone hear from her? Mike
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SCC to Start - in Preauricular Lymph now - Radiation questions
I actually posted this yesterday in skin cancer as that is how mine started - but now I'm on a new adventure :) 37 rad trmts. w/ 5 high intensity to the tumor sites in front of my ear at the end I think. Doc said this morning that she doesn't think I'll lose a lot of hair but still no indicator on if it will come back.…