Head and Neck Cancer

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Discussion List

  • User: "joannaw81"
    so we went for the consulation in reference to brachytherapy. After the doctor examined my mom he found "something" close to the tongue or rather more on the floor of the mouth. Said it's a little bum…
    6 views
    0 point
    Started by joannaw81
  • User: "hislove40"
    I've done 8 Rads of 2nd set (1st set was aimed at temple so no issues and done now). These are with the mask aimed at lymph nodes left side - taste buds are going - still can taste sweet but not reall…
    11 views
    10 comments
    0 point
    Started by hislove40
    Most recent by hislove40
  • User: "skippy"
    Has anyone taken the drug Neurontin for pain from nerve damage?
    6 views
    9 comments
    0 point
    Started by skippy
    Most recent by tommyodavey
  • User: "arndog64"
    How long did your throat/tongue hurt after radiation? My husband said his throat and tongue still hurts like heck. He is taking 4 hydros a day for pain. He is 9 months out. The doc told him to watch h…
    11 views
    4 comments
    0 point
    Started by arndog64
    Most recent by tommyodavey
  • User: "sabado"
    my wife has just been diagnosed with this cancer and I am wondering if anyone out there has gone through the treatment, radiation or whatever and could provide some feedback, thanks.
    71 views
    24 comments
    0 point
    Started by sabado
    Most recent by Hondo
  • User: "CherriBlossom"
    It was around this time a year ago my blood test showed my prolactin level was 3 times higher than normal. I was referred to an endocrinologist who ordered me MRI scan to confirm pituritary tumor was …
    13 views
    11 comments
    0 point
    Started by CherriBlossom
    Most recent by Hondo
  • User: "rdbaughman"
    I had my Total Laragectomy surgery on January 5th this year, comming up on 12 weeks ago. I still have a lot of swelling & my neck under my chin is hard as a rock as is my neck on both sides of my face…
    98 views
    2 comments
    0 point
    Started by rdbaughman
    Most recent by longtermsurvivor
  • User: "rdbaughman"
    Hi, this is my very 1st day here. I just registered & looking for information. A little about my situation. Diagonosed almost a year ago with stage 4 invasive squamous cell carcinoma ( throat cancer )…
    34 views
    15 comments
    0 point
    Started by rdbaughman
    Most recent by phrannie51
  • User: "kimmygarland"
    My husband continues to recover and seems to be getting better every day. He had first post op appt with surgeon Friday and he said he is doing well. Only issue he is having is he gained TWENTY POUNDS…
    25 views
    5 comments
    0 point
    Started by kimmygarland
    Most recent by rdbaughman
  • User: "J20"
    my husband had SCC of the tongue in 2008 and had a hemiglossectomy with a radial flap reconstruction radiotherapy (no chemo was needed as his lymph nodes all came clear after removal) He has been havi…
    1 views
    0 point
    Started by J20
  • User: "BrianKrashpad"
    Am a year out of chemo/radiation and just had a clear PET/CT scan 2 weeks back. In physio for neck fibrosis but otherwise doing really well. Way luckier than many. In fact, my band even recorded a 10-…
    3 views
    12 comments
    0 point
    Started by BrianKrashpad
    Most recent by Skiffin16
  • User: "Skiffin16"
    Since we haven't done this for awhile, and I see a few newbies with Pet Family in their avatars. I thought it might be a good time to show your Pet Family Caregivers.... Jazzy is my honored sweetheart…
    11 views
    34 comments
    0 point
    Started by Skiffin16
    Most recent by BrianKrashpad
  • User: "zipperneck2012"
    I'm about to receive External Beam Radiation for Papillary Thyroid Cancer, 5 days a week for 6.5 weeks, and was wondering if anyone had any advice. Not many thyroid cancer patients have to get XRT (EB…
    3 views
    10 comments
    0 point
    Started by zipperneck2012
    Most recent by zipperneck2012
  • User: "robinleigh"
    Andy's doctor thinks he is ready to give up the peg tube in a few weeks. He is convinced that it is going to be very painful. He has the type that has an internal bumper (not a balloon). Spool...what'…
    1258 views
    9 comments
    0 point
    Started by robinleigh
    Most recent by CajunEagle
  • User: "osmotar"
    I know these topics have been discussed before , but for the life of me couldn't find the past threads. After coming through all the treatments with little or no issues, I now have this "turkey neck" …
    61 views
    4 comments
    0 point
    Started by osmotar
    Most recent by jim and i
  • User: "rdbaughman"
    I wanted to pass along some useful information that I have found while going through my recovery from Throat Cancer. A little about my situation. I was diagonosed almost a year ago with stage 4 invasi…
    14 views
    4 comments
    0 point
    Started by rdbaughman
    Most recent by rdbaughman
  • User: "KareGiver"
    It has been just over a year(!)since my husband was diagnosed with HPV+ tonsil cancer. I don't check in as much anymore...is that a good thing? My husband has been doing very well. We both feel very f…
    3 views
    3 comments
    0 point
    Started by KareGiver
    Most recent by fisrpotpe
  • User: "Tonsil Dad"
    This has nothing to do with anything on the board but I just had to share. Yesterday my daughter (18) came home with bad pains to the left pelvic area So I took her to the emergency room where we sat …
    10 views
    10 comments
    0 point
    Started by Tonsil Dad
    Most recent by Pam M
  • User: "Cathelen72"
    Is anyone in need of some.? I have a couple of cases I did not use and would hate it to go to waste. It expires in July. I am even happy to pay to ship it. We had to argue with our insurance company t…
    605 views
    8 comments
    0 point
    Started by Cathelen72
    Most recent by robinleigh
  • User: "wifeforlife"
    2 years March 6th... saw hemo and rad ongologist... NED IS STILL IN THE HOUSE!!! spring is on the way here in the midwest... and life is good!.. My wish for you ALL is health and happiness. Wife
    6 views
    16 comments
    0 point
    Started by wifeforlife
    Most recent by robinleigh
  • User: "shoeloy"
    11 months out from final TX and received the NED news yesterday. My doc tells me that more than 50% of all re-occurences happen within the first year of treatment and almost all happen within the firs…
    11 views
    12 comments
    0 point
    Started by shoeloy
    Most recent by Kimba1505
  • User: "areomech"
    Hello to all, I had my one year scan a month early due to small lump that developed on my neck right above my adams apple. The great news it was an infection that could not drain in the lymph node duc…
    8 views
    11 comments
    0 point
    Started by areomech
    Most recent by NeoTheron91
  • User: "Kyle Gilmore"
    Ned again...but i got an off the wall answer. She said since there is no signs of recurrence that she wont order a PET or MRI. She said Kyle, believe it or not you beat this thing. Supposed to be happ…
    17 views
    10 comments
    0 point
    Started by Kyle Gilmore
    Most recent by NeoTheron91
  • User: "phrannie51"
    or say, just a part time care giver? I remember someone on here saying she'd been alone except some help of a couple good friends. I read it in the first couple of days, but I can't find that post nor…
    42 views
    25 comments
    0 point
    Started by phrannie51
    Most recent by Mikemetz
  • User: "GOBLUE124"
    I'm looking for some reviews of the Resource Benecalorie product. I read a couple on the Nestle web site.....some say great, some say it tastes awful. It's supposed to have no taste. Just wondering if…
    80 views
    2 comments
    0 point
    Started by GOBLUE124
    Most recent by DrMary
  • User: "stevomuzo2"
    Hi Everyone 7 months ago, I had a radical neck dissection which removed the SternoCleidoMastoid muscle, IJV but thankfully preserved the accessory nerve (bruised it though leading to a painful shoulde…
    8 views
    2 comments
    0 point
    Started by stevomuzo2
    Most recent by Hal61
  • User: "Jennjallen67"
    Hi everybody, my husband is three weeks into his Rads and Chemo. He gets his second dose of chemo tomorrow. He is feeling a lot worse than he thought he would. He had to stop working and so far has be…
    11 views
    11 comments
    0 point
    Started by Jennjallen67
    Most recent by Spider1man
  • User: "joannaw81"
    Hello, my mom will probably have brachytherapy as her next treatment for tongue cancer, does anyone have any experience with that, any suggestions or comments? thank you in advance for all answers.
    1 views
    3 comments
    0 point
    Started by joannaw81
    Most recent by longtermsurvivor
  • User: "pattyanny"
    Chemo Brain May Last 5 Years or More well.blogs.nytimes.com ‎"Chemo brain," the foggy thinking and forgetfulness that cancer patients often complain about after treatment, may last for five years or m…
    6 views
    7 comments
    0 point
    Started by pattyanny
    Most recent by staceya
  • User: "Greend"
    I was lucky and kept my teeth and really have had minimal problems over the last decade+ since I finished treatment however my teeth are showing the stress and strain of radiation,dry mouth and probab…
    3 views
    5 comments
    0 point
    Started by Greend
    Most recent by Greend