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PET/CT Scan Results
The scans for my hubby were clean!! NED!! Next appt. is another PET Scan in 3 months. He does have a PEG tube in and started therapy for swallowing last month. That is our next hurdle...to get him eating again. Thanks everyone for your kind support the other day when I was scared out of my mind. This is an example of why…
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Sorry to say I is back nananana
Hi my friends and enemies heheh. Just back from Bali( actually 2 weeks ago) am 75% + deaf from Scuba diving.Got infected chest and sinuses caught the bug on the plane.Have not been up to much bit weak.Doc has uped antibiotics. That will teach me the Oncologist said no bike riding,travelling,enclosed spaces yadda yadda…
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Chat room?
Can't seem to get into the chat area...any pointers? It looks like it starts then bumps me to a blue screen to register my name...um I thought I did that already.
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A HUGE THANK YOU to all you beautiful people who answered my wife last Sept
my husband is in hospial. he woke up last night finding it hard to breath,lots of mucous in throat,chest felt heavy,coloured saliva on pillowcase for a few nights.is this what they mean about mucosis and would a vaporiser help? I have just looked at my history and found my lovely wife had asked you for help and you did so…
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NEED SOME ADVICE PLEASE HELP!!!
Hi everybody i haven't been on here long but i'm finding a wealth of information on this site and wanted to keep you guys posted i was diagnosed on April 2nd with Squamous cell carcinoma stage 2 or 3 right tonsil and right lymph node for the last couple of weeks i have had different biopsy's performed 1st on the right…
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Having a sappy evening....
but it was such a glorious, wonderful day. My PEG tube lightened up it's need to torture me in the afternoon (what a difference a few hours make)...It was sunny and warm for here (some sun and 60 degrees), the grass is greening up, some of the trees are starting to bud out, the air smelled like spring! Home Health stopped…
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I am ready to jump if i cant get this thing out of my throat
hi, my name is eileen..i am new to the club. i just finished 32 radiation treatments for squamous cell of the laranyx. im sorry if im not spelling correctly or even making sense right now as i am sitting here crying and can feel my neck still cooking. i have what feels like a rock sitting near my gag reflex and every few…
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post rad plaque removal method
I have seen a post a while back in regards to removing plaque from teeth by manual scaling instead of using a cavitron machine. I told my dentist about this and he didnt have much opionion on whether it's required or not for head and neck post radiation patient and he doesnt mind doing it manually. Would it be as effective…
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Pain
My husband was diagnosed with Stage 3 Cancer of the tongue last June 2011. Finished his radiation in September 2011. Has had four pet scans since radiation and it shows no new cancer. Had the feeding tube put in about July of 2011 and is still using. Still in so much pain when he trys to eat anything at all....even soft…
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Coming up on 1 year from diagnosis
Well on May 13 (which by the way this was Friday the 13th) it will be a year since my diagnosis os SCC of a knot in my neck with unknown primary and I feel a flood of emotions. Even though I don't post much I go to this site almost every day to check on everybody. I haven't met any of you but yet I feel connected to each…
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Radiation Therapy Question
My husband has completed his radiation/chemo therapy for nasopharyngeal cancer. He is scheduled for his PET Scan on Wednesday. If the radiation/chemo didn't work and cancer is still present what is the next step? Please do not spare any details...I need to know. Thanks.
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Break Time
Heading out in the AM on the big Cat(150')out of Ft Myers Beach to Key West. We did this several years ago when the boat was a V hull piece of junk, smaller and very old, so hopefully with a newer boat it will be a good trip. I do love Key West. Ft Myers Beach has a lot of found memories for my wife and I. We lived very…
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I'm Sad - Levon Helm (The Band, and Other Great Enterprises) is Dying
Dunno why this has touched me so. I've known of others who have died of head and neck cancer - people I've been acquainted with (thank you, CSN and OCF). I didn't even know this man had ever had throat cancer until today. But his imminent passing is gripping me - odd, for someone like me. Not that I'm heartless, I just…
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Dry Mouth
Hey Skiff, Do you have dry mouth at night? My saliva is coming back pretty good 60-70% and I was just wondering Steve
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Introduction and hello
I've been lurking on this board for a couple weeks, and finally decided to come out and say hello. :-) I was diagnosed in late March with oropharangeal SCC that is strongly positive for HPV-16. I was really glad to hear the HPV status, since I know that means it's more likely to respond well to treatment. My treatment plan…
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New To CSN
Hello CSN Members, I'm so glad to have discovered this forum. Before I posted I decided to read some of the other posts and even responded to a couple. In October of 2011 I was diagnosed with squamous cell occult cancer. In November I underwent neck dissection at Mt. Sinai hospital and my surgeon found the cancer was from…
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post rad plaque removal method
I have seen a post a while back in regards to removing plaque from teeth by manual scaling instead of using a cavitron machine. I told my dentist about this and he didnt have much opionion on whether it's required or not for head and neck post radiation patient and he doesnt mind doing it manually. Would it be as effective…
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GOOD READ!!!!!
Thought this was a good article! http://oralcancernews.org/wp/prognostic-significance-of-hpv-status-in-oropharyngeal-cancer/
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PEG Tube
Hi, I am new to CSN. Recently diagnosed with right tonsil cancer which travelled to 3 lymph nodes. For the last 2 months I have been through a series of doctor appointments. Just had my wisdom teeth pulled last week. Getting ready to get PEG Tube put in on Friday. was wondering what the recovery time is. Been told anywhere…
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having trouble gaining weight
Finished treatment for a tumor at the base of my tongue on August 4th 2011. Starting eating around Christmas time. Used a peg tube durning treatment. STill have it in,however dont currently use it. I hate to eat and am having a hard time gaining weight. Lost 50 pounds. Dont like the texture of food or taste in my mouth.…
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Proton Therapy
Wondering if anyone has received proton therapy for head and neck cancer. Husband diagnosed with adenoid cystic cancer removed parotid gland, facial nerve and ear cannel. Concerned about side affects of other radiations and read that proton therapy would have less side affects.
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gums rough like sandpaper
Was wondering, i've been brushing and rinsing lots since last rad treatment thursday, like three times a day (ok that lots for me I used to only brush at night)but have found that my gums feel really rough (like sandpaper). Is this a by-product of the radiation treatment? I thought it was my tongue the first couple days,…
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What a Day!!!
Just thought I would let you all know that there are some truely wonderful people Out there. Today I got called in to my local pub which was filled with about Eighty of my friends From all different pubs and other hangouts, and they were doing a fundraiser for little Old me, yes me. There was the full police pipe and drum…
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Three Years, and Counting
Got my PS/CT results today- all clean. My ENT, whose name is Tomek and a Wake Forest alumn, and whom I am really, really, glad he is my ENT, was showing an Intern around. He had to summarize my case, and told this Intern that because of my unknown Primary they had to "double dose" my treatment, which is the first I'd heard…
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A Part of the Soul
Ratface (I hate that name), someone I'm sure we all respect here, asked me to repost this story that is in the Expressions area of my Profile. It was originally written post-surgery while still in a state of opiated bliss, and then cleaned up a bit, but not much, as one of my first posts on this site. I am amazed that he…
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ENT Vist
Saw my ENT today for my 6 week follow-up, scoped my throat all looks good, still some risidual swelling but he said that is normal, since radiation is the gift that keeps on giving...said I looked perky and that he will see me again in 6 weeks. Thats good news to start the weekend..every one be safe be well and have a…
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Symptoms
Hoping for some help. I have noticed just in the last week food no longer taste the same and my thoart seems to have a bad taste, taste like an infection. Its harder to eat, and I just don't really enjoy eating now. Has anyone else had any of these symptoms before getting to treatment. I know during and after RADS and…
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29 years old have been diagnosed with Squamous Cell Carcinoma stage 3
Hi everybody my name is Matt i was diagnosed April 2 with Squamous Cell Carcinoma stage 3 it was a shock to us all i'm recently married with my wife of 6 years and we have a 5 month old son i have a owned a landscape company for 10 years now and with the diagnoses I have i had to hire another guy to help out with the…
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NED at 16 months out
early morning visit my the chief oncologist, Dr. Teknos and he found my tongue to be perfect. I have gained weight, have no eating issues nor swallowing issues. Not bad for someone who was diagnosed with Stage 4 and told by my ENT this year that he thought I wouldn't make it. Dr. T said I was one of his star patients and…
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Posting pictures
I'd like to thank Ingrid K for telling me how to post pictures, so I can kind of express myself and show off a little bit of my semi-kinda-sorta-hobby. To post a picture you will have to go into your Update member area, which you can do easily by hitting the "click me" words at the top of the screen next to create or…