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Pain
My husband was diagnosed with Stage 3 Cancer of the tongue last June 2011. Finished his radiation in September 2011. Has had four pet scans since radiation and it shows no new cancer. Had the feeding tube put in about July of 2011 and is still using. Still in so much pain when he trys to eat anything at all....even soft…
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Coming up on 1 year from diagnosis
Well on May 13 (which by the way this was Friday the 13th) it will be a year since my diagnosis os SCC of a knot in my neck with unknown primary and I feel a flood of emotions. Even though I don't post much I go to this site almost every day to check on everybody. I haven't met any of you but yet I feel connected to each…
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Radiation Therapy Question
My husband has completed his radiation/chemo therapy for nasopharyngeal cancer. He is scheduled for his PET Scan on Wednesday. If the radiation/chemo didn't work and cancer is still present what is the next step? Please do not spare any details...I need to know. Thanks.
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Break Time
Heading out in the AM on the big Cat(150')out of Ft Myers Beach to Key West. We did this several years ago when the boat was a V hull piece of junk, smaller and very old, so hopefully with a newer boat it will be a good trip. I do love Key West. Ft Myers Beach has a lot of found memories for my wife and I. We lived very…
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I'm Sad - Levon Helm (The Band, and Other Great Enterprises) is Dying
Dunno why this has touched me so. I've known of others who have died of head and neck cancer - people I've been acquainted with (thank you, CSN and OCF). I didn't even know this man had ever had throat cancer until today. But his imminent passing is gripping me - odd, for someone like me. Not that I'm heartless, I just…
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Dry Mouth
Hey Skiff, Do you have dry mouth at night? My saliva is coming back pretty good 60-70% and I was just wondering Steve
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Introduction and hello
I've been lurking on this board for a couple weeks, and finally decided to come out and say hello. :-) I was diagnosed in late March with oropharangeal SCC that is strongly positive for HPV-16. I was really glad to hear the HPV status, since I know that means it's more likely to respond well to treatment. My treatment plan…
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New To CSN
Hello CSN Members, I'm so glad to have discovered this forum. Before I posted I decided to read some of the other posts and even responded to a couple. In October of 2011 I was diagnosed with squamous cell occult cancer. In November I underwent neck dissection at Mt. Sinai hospital and my surgeon found the cancer was from…
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post rad plaque removal method
I have seen a post a while back in regards to removing plaque from teeth by manual scaling instead of using a cavitron machine. I told my dentist about this and he didnt have much opionion on whether it's required or not for head and neck post radiation patient and he doesnt mind doing it manually. Would it be as effective…
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GOOD READ!!!!!
Thought this was a good article! http://oralcancernews.org/wp/prognostic-significance-of-hpv-status-in-oropharyngeal-cancer/
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PEG Tube
Hi, I am new to CSN. Recently diagnosed with right tonsil cancer which travelled to 3 lymph nodes. For the last 2 months I have been through a series of doctor appointments. Just had my wisdom teeth pulled last week. Getting ready to get PEG Tube put in on Friday. was wondering what the recovery time is. Been told anywhere…
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having trouble gaining weight
Finished treatment for a tumor at the base of my tongue on August 4th 2011. Starting eating around Christmas time. Used a peg tube durning treatment. STill have it in,however dont currently use it. I hate to eat and am having a hard time gaining weight. Lost 50 pounds. Dont like the texture of food or taste in my mouth.…
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Proton Therapy
Wondering if anyone has received proton therapy for head and neck cancer. Husband diagnosed with adenoid cystic cancer removed parotid gland, facial nerve and ear cannel. Concerned about side affects of other radiations and read that proton therapy would have less side affects.
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gums rough like sandpaper
Was wondering, i've been brushing and rinsing lots since last rad treatment thursday, like three times a day (ok that lots for me I used to only brush at night)but have found that my gums feel really rough (like sandpaper). Is this a by-product of the radiation treatment? I thought it was my tongue the first couple days,…
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What a Day!!!
Just thought I would let you all know that there are some truely wonderful people Out there. Today I got called in to my local pub which was filled with about Eighty of my friends From all different pubs and other hangouts, and they were doing a fundraiser for little Old me, yes me. There was the full police pipe and drum…
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Three Years, and Counting
Got my PS/CT results today- all clean. My ENT, whose name is Tomek and a Wake Forest alumn, and whom I am really, really, glad he is my ENT, was showing an Intern around. He had to summarize my case, and told this Intern that because of my unknown Primary they had to "double dose" my treatment, which is the first I'd heard…
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A Part of the Soul
Ratface (I hate that name), someone I'm sure we all respect here, asked me to repost this story that is in the Expressions area of my Profile. It was originally written post-surgery while still in a state of opiated bliss, and then cleaned up a bit, but not much, as one of my first posts on this site. I am amazed that he…
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ENT Vist
Saw my ENT today for my 6 week follow-up, scoped my throat all looks good, still some risidual swelling but he said that is normal, since radiation is the gift that keeps on giving...said I looked perky and that he will see me again in 6 weeks. Thats good news to start the weekend..every one be safe be well and have a…
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Symptoms
Hoping for some help. I have noticed just in the last week food no longer taste the same and my thoart seems to have a bad taste, taste like an infection. Its harder to eat, and I just don't really enjoy eating now. Has anyone else had any of these symptoms before getting to treatment. I know during and after RADS and…
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29 years old have been diagnosed with Squamous Cell Carcinoma stage 3
Hi everybody my name is Matt i was diagnosed April 2 with Squamous Cell Carcinoma stage 3 it was a shock to us all i'm recently married with my wife of 6 years and we have a 5 month old son i have a owned a landscape company for 10 years now and with the diagnoses I have i had to hire another guy to help out with the…
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NED at 16 months out
early morning visit my the chief oncologist, Dr. Teknos and he found my tongue to be perfect. I have gained weight, have no eating issues nor swallowing issues. Not bad for someone who was diagnosed with Stage 4 and told by my ENT this year that he thought I wouldn't make it. Dr. T said I was one of his star patients and…
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Posting pictures
I'd like to thank Ingrid K for telling me how to post pictures, so I can kind of express myself and show off a little bit of my semi-kinda-sorta-hobby. To post a picture you will have to go into your Update member area, which you can do easily by hitting the "click me" words at the top of the screen next to create or…
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Anniversary of My Cancer
Today is my birthday . . . and the official diagnosis of my cancer. I am very fortunate to have an essay published on the website "The Good Men Project." Many of you will be able to relate. http://goodmenproject.com/featured-content/the-anniversary-of-my-cancer
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I PROMISE NOT TO MOVE
I just have to ask, after reviewing the MASK section of the Super Thread again today am I the only one who just wanted to tell them, Look no MASK for me I PROMISE NOT TO MOVE. Seriously I know what the answer is likely to be, but I had a few XRays in my life, and they would say hold your breath and do not move, which I…
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Hello friends!
I'm the wife of ditto1 and wanted to give you all a big THANK YOU for your positive comments and attitudes in this forum. You have been a great source of inspiration to both Doug and I as we begin our journey down this path God has placed us on. We know that He is in control and are holding tight to our faith. He has led…
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On the Road Again
Hi all: Thought I'd drop in before I take off for NC in the morning. I promised my mother-in-law I'd try to get in and spend a week with them before I have try to go back to work somewhere! Don't think I want to teach again except for substituting and I really just have to work for about a year till Charlie's SS and my…
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Good News!
Went for my consult today and I'm not NEARLY as frightened. He said I wouldn't have most of the side effects that I read about here on these boards, because of where my cancer is and because they can pinpoint it so precisely. I have to have another MRI Friday and if that turns out clear then the treatment plan is for 28…
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New to CSN Tongue cancer
Hi all, I am new here. I just had surgery to remove a part of my tongue. The pain I can deal with it's the sounding like Sylvester the cat I can't get over! :-) Anyways I was wondering if there are any others out there that are scared that the Cancer will come back. I had not even thought about that since the surgery…
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Locked, Loaded & Ready to Go
After surgery, MRI's, CT's, PET Scans, mask fitting, dozens of blood draws, practice radiation session, and countless doctor visits - my husband's third battle with the beast begins on Monday. He is not able to participate in the clinical trial that we were all excited about, as they were concerned about some of his levels…
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Done with mask for now!
Well today was my last treatment of radiation for hopefully ever! On to the next step, the long one, chemo for a year (sigh), talking to the onco tommorrow to set up for the treatment. WEll I'll probably feel like crap in about two hours so i'm signin' off till morning and hope I can get a good night sleep although I doubt…