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Neck and shoulder problems 9 month after surgery
Hi everyone I have posted on this sight a few times.I can say that there is a lot of good supporting peaple on this sight.I have read many of your post and they have been real helpful. In March 2011 when I was Dianose,a general surgeon removed a lump from the left side of my neck and sent it out for a biospy.The first…
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TEETH BEING EXTRACTED!
hi everybody my name is Matt I'm 29 years old, tomorrow i have to get 20 teeth extracted and a chemo port put in i think this is going to make my treatment a lot harder to deal with and having no teeth will be a big confident and emotional issue for me please give me some words of encouragement the closer it gets the more…
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PEG tube and paper tape allergies
I wanted to post this in case it's helpful for anyone doing a search later who might benefit from this information. Maybe it's worthy of the superthread? :-) I have a wicked paper tape allergy on my thinner skin areas (like inner arms, stomach, etc.) which never really came to light until I got my PEG tube. Sure, I used to…
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So......week three is history....
it's Friday night, and I don't have to go for amifostine or rads tomorrow...whoo hoo!! I'm tired, but other than that, I feel pretty darn good. No sore throat....yet. I'm eating whatever I want to eat...plus backing things up with liquid nutrition. My taste buds started to change today...I remember the actual moment...LOL.…
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NPC NED
I had my 2nd post treatment MRI and PET done last week and the result for both scans are clear! Very happy and wanted to sure the good news with my fellow survivers. Doc changed my MRI schedule from every 4 to 6 months now. From what I read most people get scanned every 3 to 4 months during the first 2 year post treatment.…
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2wks out from radiation.
It's official I'm 2 wks out from my last radiation. Still very difficult. I'll have a good day then a not so good day. I'm not getting no where near the calories I shld be getting and that concerns me. I rarely eat or drink I take advantage of the times that I can eat lately there hasn't been any. Every time I eat or drink…
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Frank10g Passed Away
I am not sure how many of you remember Frank he joined CSN back on January 2010 and had just finished treatment with NPC. He had a second recurring of NPC about 10 months later that went into the ear and was undergoing treatment for it. I am sorry to say his Wife Natalie’s has just informed Scambuster and me that he passed…
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Just curious!!!!
How where you over 7 months out? My husband is over 7 months out. He has not returned to work. I will list his issues below and I am open to any feedback/suggestions. I know it takes a long time to heal. I am just worried he is not progressing much. 1. Weight issues, he weighs 129 - 132 on a good day. If he is having a bad…
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One little thing that I'm patting myself on the back....
Today was weigh in day at radiation, and I gained 3 lbs!! Yes I did...LOL....I've been eating all I want, but in the last few days have supplemented with the tube...and it works! Laralyn, I got my case of Instant Breakfast stuff......the 560 calories per 8 oz...will start using that tomorrow for even more calories. p
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I'm trying really hard here
But I'm wondering if it's time for a feeding tube :* (. I only have one more week of treatment, but then a few weeks of healing and I can barely get down sips of water. Even ensure/boost is brutal....I've even tried it in popsicle form. I'm overweight, so I do have some weight I can stand to lose, but I'm more concerned…
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Clear Pet Scan
All glory to God...I had my full body scan yesterday and will mark year since my diagnosis on May 13 and I got an all clear.I want to thank each one of you for your prayers and the constant support you give to me and everyone here on this site. Just knowing that someone understands how you feel because they have been where…
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mouth tray during radiation
It is an old topic but a good idea. Since there are several of us starting or just started radiation treatment, I think it would be useful. http://csn.cancer.org/node/209200 I will ask my radiation onc whether I could put it on during radiation. See my problem is that I didn't have it put on during simulation and mask…
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I may have to switch Oncologists....
I'm so upset. Before I started treatment, I went to our HR person at work, to see if I could go to the one who gave amifostine. The HR gal talked to both the insurance company and to the Oncologists office manager, came back to me and said it's good to go...so I've been going everyday for 3 weeks for amifostine, and have…
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Feeding Tube?
Hey folks, I know we have a super thread on the feeding tube, and I have read it and hundreds of comments on it since being diagnosed. I think the feeding tube may create more of a problem than a solution based on my circumstance its physical. That said I know some Skiffin and others that did not use a feed tube, and some…
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FEELING REALLY DEPRESSED
hi my name is Matt and i'm getting ready to go through treatment for head and neck cancer HPV positive tonsil cancer stage 4 level A they are proposing chemo and radiation that will be starting here and the next couple of weeks on top of that at 29 years old i have to have my teeth extracted on Monday yes my teeth aren't…
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21 days of fever and finally admitted to the hospital
Well they finally admitted my husband yesterday. He went to see his GP and he did the echo and said regardless of the results he was admitting him into the hospital, saying that he was worried. Symptons as of today: Neck Tenderness Tightnesss of the spinal cord severe fatigue fever up to 102 in the am & pm night sweats The…
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Those little sponges they have in the hospital....
...the ones you soak in water, and then can suck for moisture. Can a person buy those? They sure would come in handy... p
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Swallowing test
This passed Tuesday I finally passed my swallow test after 6 months with my 2nd feeding tube. That has been the happiest day in my life for a long time.Me and my husband had to travel 2 hours to get there. I still have to live my feeding tube in a little longer the dr said. that being said I had my husband stop at…
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rigid laryngoscopy
Anyone out there have one of these after treatment? My husband had tonsil cancer (hpv+), diagnosed in Oct 2011 and completed radiation and chemo treatment in December. He had a clean CT scan in January and a clean PET scan in April. ENT has done a scope and says there is still some film down there and wants to clean it…
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Cisplastin?
HI everybody i'm getting ready to start chemo and they are doing this drug every 3 weeks first one starting on radiation day i just wanted to see if there are any tips on how to keep from being sick and what your thoughts are on this thank you.
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Encourage me please!
I'm 1 wk out from radiation and I guess I expected a miracle. Unfortunately I have more pain now that I'm threw than I did through out my whole treatment. The vomiting has gotten better but I'm not able to eat of even drink hardly and this mucous is choking me. I get so discouraged, I feel the harder I try the more intense…
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Anybody want a brand new PEG Tube belt?.....FREE
I got the one I ordered, and it appears I'm going to have to do my shopping in the pediatric ward :) . This one fits 30" to 34" (they didn't mention that part in the ad). I can see what a handy-dandy thing it is, just that I can't keep it up where it belongs. PM me, and I'll get it into the mail. p
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A visitation/consultation report, every time you visit, yes?
Yesterday I had a three year follow-up visit. The hospital is implementing a new computer system. When you leave, you receive a written report of the, "Encounter". It's basic, but has, "basic" stuff on it. Things like: medications, allergies, immunizations, pharmacy information, diagnosis, treating physician, insurance…
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Having to have my teeth extracted prior to Radiation???
So to top things off of having cancer now i'm told that i have to have all of my teeth removed before starting treatment so like Monday they want to do that and then the following Monday they want me to start chemo which i thought chemo and radiation are done together and i'm scared that my body's immune system will be…
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What type of Radiation machine?
I'm sure this was brought up before; just thought it may be interesting to see what type of machine everyone is using or has used? Everyone always discusses the different chemos, but they just say how many rad treaments they will recieve. They never say what type of IMRT! I guess since I'm a nurse I was really interested…
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Thank the good Lord & my Doctors - I got the all clear today - :)
3.5 months after my last treatmet / Stage III base of tongue cancer with 1 lymph node involved. Radiation and Erbitux HPV+ Today was my first PET scan and CT Neck and Head scan / all morning ...saw the doctor at 3pm after all testing was down and I got the all clear. Onc doctor said he "thinks it looks great" ....said the…
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benefits of adjuvant chemo after concurrent radio+chemo in NPC
My treatment plan is being put in place except that my radio oncologist and medical oncologist have different opinions on whether I need that follow up cisplatin + FU5, called the adjuvant chemo. In my case, I was diagnosed as stage 3 NPC (T3N0M0, EBV+) in mid of April. The T3 is because the tumor touches bone structure at…
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When does speech therapy and/or swallowing therapy typically begin?
Hi everyone, I just joined recently to help find some more information for my Dad...He will finish his 2nd round of radiation (twice daily) and chemo (daily) on Friday. Despite a very swollen tongue still (went down a bit so that tongue was almost nearly in mouth but swelling still easily visible, until rest week 3 of…
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Starting week Four
So today starts week four of treatment for both radiation and chemo. Here's to approaching the middle of chemo! I know it's not the middle of radiation, because I'll cook for a couple weeks after, but it's still nice to mark some milestones! The lump of coal in my throat comes and goes. It turns out part of its return was…
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Need info on suggested treatment - Base of tongue - 1 lymph node - Stage III
Hi all. I am 3 months out from my treaments, but I have some questions. I went to the MSTI Clinic in Boise Idaho (great people, great experience) but I keep reading where many people seem to have had two things I did not have (if I am correct). So my question is what do you all think?? I was diagnosed with Stage III base…