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Human Papilloma Virus
I have read that performing oral sex on females increases the risk of getting HPV induced cancer. Alcohol is also a risk factor. Guess smoking is also although that is something I never did. Is there any significance to having had a P-16 or HPV+ cancer other than the fact that these cancers seem to respond well to…
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I kinda disappeared here for the last couple of days...
Just want y'all to know that I'm doing well, just hyper sleepy....those anti-nausea meds knock me for a loop :) . Tomorrow I'll have 1 chemo down, 4 amifostines, and 4 rads in the bucket....yeah...and counting down. Now I'll go curl up under my blanket. Can hardly wait till this weekend to see how I really feel...no…
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weening myself off the tube...
Im only about three weeks post treatment for rads and a little longer for chemo. This is my second go round with SCC. This time base of tongue tumor, right side neck, Stage 4 BIG, 9 week Chemo Cisplatin and 35 rads. In 2006, Stage 1 left side neck w/radiation only.and at that time I did not use a tube. I remember the lost…
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Sharing some good news!
I have a couple pieces of good news, and I thought I'd share in case it can help brighten up some folks who are just starting treatment. I'm through the first week of treatment and into the second. When they checked my blood before my second chemo treatment, the platelets, white blood cell count and kidney function all…
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Need guidance with laryngectomy decision
Saw my head and neck ENT surgeon yesterday. Let me lay a little foundation for this topic. I was treated back in 2004 for BOT SCC. I had 5 sessions of chemo and 38 radiation treatments. I've been clear of cancer ever since. The consequences of radiation however, have given me a fit. I started having to have dilations for…
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phone ap for mouth cancer
Apparently "they" are working on a phone ap for the detection of mouth cancer. I saw this on the local DFW news a few minutes age. Something about taking a photo and sending it to your dentist?? In development. So, cell phones can help detect mouth cancer while giving you brain cancer? Just kidding about the brain C.
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FINE NEEDLE ASPIRATION OF NECK MASS
Im scheduled for a Fine Needle Aspiration tommorrow, I searched the Super Thread but not able to get what I was looking for. Although it looks to be a simple process based on Cancer Websites, just thought I would reach out to the people in the know. Did everyone get a Biopsy? I assume for the Staging it is necessary. Once…
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mucositis snot whatever it is..
I know this doesnt sound to pretty but as i am 1 week finished with the radiation, I know that i will have mucus. However why is it coming so much out of my nose? I Forever have a snotty nose that makes me cough..I am so backwards with all this.. I didnt loose weight I gained it. I didnt loose my sour or sweet taste I ate…
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toothpaste
I read the recent posing about the new toothpaste and it made me wonder what, if anything makes Biotene or any other dry mouth products woth the cost so I got my tube of biotene and read the active ingredients arer (drum roll) Flouride. I don't see any other additivies on the tube that makes it special. I do know their…
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Found a new toothpaste
While looking for PreviDent5000, I came across 3M Clinpro5000. It's more than double the size, touts better fluoride uptake, better remineralization (has Tr-Calcium Phosphate), and lower abrasion over the Colgate brand. On the shelf, they were the same price $13.99, but rang in on sale for $3.50 (ShoppersDrugMart, Canada).…
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New to the forum
Hello fellow survivors! I was diagnosed with stage 4 throat cancer in Oct. 2010. Finshed treatment in Dec. 2010. It has been 14 months since the end of (mis)treatment. Five CT scans later no cancer has re-occured. Numerous side effects persist, most likely till my death. Still waiting to recover my detection of sweet.…
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dj12....how is your PEG doing today?
As well as how did your first radiation go you today. Hoping to hear the PEG is being kinder to you. Mine actually didn't give me any trouble today at all, except where to keep it. Had to lose my bra to go to chemo...that was my fave storage place for it...ended up tucking it into my pants...LOL Just wishing you the best…
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Neck Dissection Monday
So I will be a little lighter by Tuesday, less a load of neck tissue and nodes, one tonsil and a chunk of the base of my tongue. I know many on here have had dissections, I know it's going to hurt for a couple of weeks, but honestly - bring it on! This is the first major step on the road to recovery after diagnosis and if…
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Phew...CT/PET results N0M0
It is a relief to know that the SCC in my tongue has not spread! The CT/PET scan I had yesterday went quite well... The tech who looked to be about 18 turned out to be very competent. My back and shoulders were a bit sore after staying still for so long, but otherwise it was apiece of cake! I really appreciate all the…
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Two types of cancer in a week!!!!
On the 12 march 2012 I was told I have a rare cancer of the sinus olfactory neuroblastoma ... On the 15 march 2012 I found out I also have stage multifocal breast cancer.. Fair I think not but that's what I've been dealt.. They are thinking of a combined op for my sinus from my nose and above and remove my breast in The…
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Octreotide and Esthesioneurblastoma
It's been a whirlwind week since my biopsy came back with esthesioneuroblastoma, low grade 2. Prayerfully, the tumor appears to be contained in the sinus. CT w/contrast of the neck does not show any lymph node involvment. MRI appears to show good margins at the dura, so hopeful no invasion into the dura. Although the…
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Update on tongue biopsy and good news!
Well we took off for a much needed trip to our RV property on the coast that has flooded TWICE now, so just getting back here. Replacing float barrels under a wooden dock is no fun, I tell you, but we also relaxed a lot. We so wanted to stay another day as we had unprecedented high temps for this time of year and full…
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Sourpuss
I've done 17/33 radiation sessions for thyroid cancer and everything tastes sour except ice cream and eggs. It's absolutely revolting -_-. Did anyone else have this strange side effect? When will it return to normal?
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helpful mouth care hints for H&N patients undergoing radiation therapy
Hi all, I wanted to post this link again... it talks about what i (and other patients on this list) found helpful during radiation treatments in 2009. Glad to say I am 2+ years out and all is looking good so far. the tongue hurts occasionally, a few things still don't taste good, or feel good in my mouth, and I still carry…
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SCAN schedules ???
They picked my cancer up with a pet scan but have had only one scan since Rad finished and I am suspicious I read the report before I saw my ENT. and it said due to teeth fillings they could not get a clear pic the ENT had a quick look and said oh that's all fine. HHHmmmm and it was not a PET scan I am going to do some…
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Please wish me luck!
I'm new and have gotten so much from what everyone has been saying. THANK YOU! It's fantastic to have a place where people with similar issues have posted their thoughts about this adventure we are on... I have my first CT/PET scan in 2 1/2 hours... I'm trying to stay positive, but of course I'm concerned about what it…
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One down....and well, I'm too sleepy to figure out how
many to go :) ....BUT, did my first chemo today...Got there at 8:30, they kicked me out at 1:00 for my first rad....came back, finished the chemo...and came home. Sleepy but that's all...5 year old grandaughter and her mom drove in from Seattle, and we got to spend a couple hours together, before they headed to the other…
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PET/CT Scan Results
The scans for my hubby were clean!! NED!! Next appt. is another PET Scan in 3 months. He does have a PEG tube in and started therapy for swallowing last month. That is our next hurdle...to get him eating again. Thanks everyone for your kind support the other day when I was scared out of my mind. This is an example of why…
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Sorry to say I is back nananana
Hi my friends and enemies heheh. Just back from Bali( actually 2 weeks ago) am 75% + deaf from Scuba diving.Got infected chest and sinuses caught the bug on the plane.Have not been up to much bit weak.Doc has uped antibiotics. That will teach me the Oncologist said no bike riding,travelling,enclosed spaces yadda yadda…
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Chat room?
Can't seem to get into the chat area...any pointers? It looks like it starts then bumps me to a blue screen to register my name...um I thought I did that already.
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A HUGE THANK YOU to all you beautiful people who answered my wife last Sept
my husband is in hospial. he woke up last night finding it hard to breath,lots of mucous in throat,chest felt heavy,coloured saliva on pillowcase for a few nights.is this what they mean about mucosis and would a vaporiser help? I have just looked at my history and found my lovely wife had asked you for help and you did so…
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NEED SOME ADVICE PLEASE HELP!!!
Hi everybody i haven't been on here long but i'm finding a wealth of information on this site and wanted to keep you guys posted i was diagnosed on April 2nd with Squamous cell carcinoma stage 2 or 3 right tonsil and right lymph node for the last couple of weeks i have had different biopsy's performed 1st on the right…
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Having a sappy evening....
but it was such a glorious, wonderful day. My PEG tube lightened up it's need to torture me in the afternoon (what a difference a few hours make)...It was sunny and warm for here (some sun and 60 degrees), the grass is greening up, some of the trees are starting to bud out, the air smelled like spring! Home Health stopped…
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I am ready to jump if i cant get this thing out of my throat
hi, my name is eileen..i am new to the club. i just finished 32 radiation treatments for squamous cell of the laranyx. im sorry if im not spelling correctly or even making sense right now as i am sitting here crying and can feel my neck still cooking. i have what feels like a rock sitting near my gag reflex and every few…
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post rad plaque removal method
I have seen a post a while back in regards to removing plaque from teeth by manual scaling instead of using a cavitron machine. I told my dentist about this and he didnt have much opionion on whether it's required or not for head and neck post radiation patient and he doesnt mind doing it manually. Would it be as effective…