Two year checkup....NED

wmc
wmc Member Posts: 1,804

Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hour in standstill traffic because of a wreck. 

The good news was the checkup was good as expected and my doctor said he liked the videos I did and has shown them to many of his patients. Then the SLP stopped by just to say Hi and as I was leaving one of the techs said, I know you, I've seen your videos, you won't believe how many people he has shown them to. That really made me feel good knowing they have helped more people. Then my 11 hour day was good, and I see him in six months. I know the videos have been seen in 22 countries and have helped some get lung function test. Now they have also helped some know they can take inhalers, and encourage others make the adjustment to be a Lary. It was a good day, long [430 miles] but good. Still  N.E.D.

Bill

Comments

  • Barbaraek
    Barbaraek Member Posts: 626
    I'm Grateful

    that NED was the result of your long day and that you are such an encouraging soul to others Bill! Thank you for your posts here on the message board.

     

    Barbara

  • MarineE5
    MarineE5 Member Posts: 1,029 Member
    Bill

    I'll keep it short - OUTSTANDING Laughing on your NED

    My Best to You and Everyone Here

  • swopoe
    swopoe Member Posts: 492
    Wonderful

    news on the NED! Continued good thoughts coming your way!

  • phrannie51
    phrannie51 Member Posts: 4,716
    Whoo Hoo, Bill!!!

    NED is what we all love to hear about!  Always a relief, I know.

    p

  • MrsBD
    MrsBD Member Posts: 615 Member
    Great news about your two

    Great news about your two year NED! It's a milestone for sure. I'm happy to hear your videos are helping others. Hopefully you will be doing many more school talks and continue to make an impact.

  • BarryChen1010
    BarryChen1010 Member Posts: 27
    Congratulations on your NED

    Congratulations on your NED and your helping to others with your video. You also inspire a lot in the site. Thanks!

  • hwt
    hwt Member Posts: 2,328 Member

    Congratulations on your NED

    Congratulations on your NED and your helping to others with your video. You also inspire a lot in the site. Thanks!

    Wonderful news

    Congrats all the way around.

  • lifeisDHA
    lifeisDHA Member Posts: 64
    cong!

    so glad to hear some good news.

  • wmc
    wmc Member Posts: 1,804
    Thank you all....

    I really have never been nervous about going for my checkups. When they took my larynx they got the tumor and everything around it and them some. Then they took 86 total lymph glands from both sides [48 on the left and 38 on the right] just as a precaution. They did think one looked like it might be something before the surgery, so they did a neck dissection on both sides because of my lungs they wanted to save the radiation for later. They did ask if I wanted to do radiation, which I didn't. My doctor also said that he is not recomending it and feels I don't need it. If he would have said he did recomend it I would as I had so much faith in him. I did my research before and new I could go anywhere I wanted. I chose Stanford for several reasons. It has a great National rating in both Cancer and ENT. Texas was not going to be practical for travel as my wife will not fly and my son needed to be able to come and go back home when needed. His credentials where he graduated and did his internship was some of the best.

    When I told him that I could whistel and blow up a balloon he asked me to do the videos. I thought he was just being kind. He said If I do them and have them on YouTube he then could use them and there was no conflict because he could not film me. Too many Doctor, patients confidentially rules and problems. I never thought he would really use them that much. I believed the SLP would because when we met before surgery she got on the phone and had me talk to a person that had the prosthesis I was going to have. I could not tell he had one.

    I think this is the reason I have the need to help support others. Kinda like Pay it foward or at lease pay it somehow for been given a second chance on life. I owe someone..........

    Bill

  • Kenny-
    Kenny- Member Posts: 99 Member
    Good news!

    Good news! Great to hear about it and nice to hear the good vibes spreading! Cool

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    Wonderful news!

    So glad to hear!

  • osmotar
    osmotar Member Posts: 1,006
    Congrats Bill

    wonderful NED news 

    linda

  • RoopaliSandeep
    RoopaliSandeep Member Posts: 15
    osmotar said:

    Congrats Bill

    wonderful NED news 

    linda

    Congrats Bill

    Many congratulations for your NED. You are one of the helpful persons on this board. May you have many many many many more NEDs. Great going.

    Roopali

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    good!

     

     

     

    Bill,

    Congratulations, looks 20/20 to me.

    Matt

     

    image

     

  • avisemi
    avisemi Member Posts: 172
    the long day was totally

    the long day was totally worth it! Yay to NED!!!!!! And yay to all the good you are doing by Sharing your story!!!!

    congrats!!!! I am so glad I checked the board today. It is awesome to have some happy updates to celebrate!

  • josh r.
    josh r. Member Posts: 264 Member
    Great day!

    Hi Bill,

    Congratulations Bill on your milestone! I also want to thank you for our info and positive input to all on this site, especially to our new teamates. You have helped and encouraged so many including me. All the best, josh r.

  • donfoo
    donfoo Member Posts: 1,771 Member
    woohoo

    Yo Bill,

     

    Glad to hear such good news. Wishing you many more! 

    Monday was a rainy one, made me work at home rather than do the drive to SJ.

    We'll catch each other at the next one!

    Congrats,

    Don

  • Goyca
    Goyca Member Posts: 220
    Amazing news Bill

    Amazing news Bill