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FOLFOX4
Hi guys, Went to chemo doctor today and he decided to put me on FOLFOX4 instead of all 4 drugs. I don't know a lot about it, other that what they told me today. Can anyone tell me their experiences with it??? I also finally got some pain medicine, so maybe I'll finally get some rest. I have my port put in tomorrow and will…
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Better update than earlier-Please read and pray!!!!
This is a better update. I'm sorry I was so vague earlier. Thinks have not really sank in yet. Hi everyone, Got my biopsy report today. Cancer is back for a third time. I go to chemo doctor tomorrow and then Friday I have Hickman cath put back in to infuse 4 very strong chemos at once. Then they will TRY to remove the…
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Trouble with computer
Sorry posted previous message twice. Stupid computer!!!! Love, Judy
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FOLFOX4
Hi guys, Went to chemo doctor today and he decided to put me on FOLFOX4 instead of all 4 drugs. I don't know a lot about it, other that what they told me today. Can anyone tell me their experiences with it??? I also finally got some pain medicine, so maybe I'll finally get some rest. I have my port put in tomorrow and will…
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Thank you everyone
Hi, Thank you for all your prayers and good wishes. I see there have been alot of posts while I have been gone. I have alot of reading to catch up on. I am slowly recovering, but I am sooooo glad it is over. I continue to pray for everyone on this board, those of you that are just starting on this terrible journey and also…
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Thank you all
Hi All and thank you so much for your caring and support and for the Prayer Chain. You have no idea how much this touched me and I have no doubt the prayers of all you amazing folks will help guide the hands of my surgeon tomorrow and will give me strength for my recovery. I have asked my husband to post an update here and…
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Requesting Positive Vibes!!!
Hi All, Well the time is almost upon me - I have my surgery for the peritoneal carcinomatosis this Friday and am very glad that I made the decision to have it done now instead of waiting until March to go to Washington. Again, thanks to all of you in helping me come to that decision. I have started to feel uncomfortable…
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all clear
it is my understanding that for colorectal cancer its 5 years from diagnosis until you can get an all clear, has anyone any experience of this, thanks, cheil.
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Nettie
Hi Everyone, keep Nettie in your prayers as well. She was to have surgery yesterday and another surgery on Monday. I hope someone will be able to hear about her. Love to you all Fran
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Thanks
To all our wonderfull friends here we thank you for your condolences and prayers. I have been busy trying to keep Jen occupied and so have been a little slack posting here. She is coping ok. The saddest thing Jen is dealing with is a rift in her family. It is over very trivial "past" things and some of you, no doubt, have…
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Very bad news today-PLEASE READ
Hi all, Judy here. Well, got the biopsy and CT Scans today and it's very bad. Doctor said it is in my pelvic area, goes all the way from my tailbone to vagina. Will have to have very strong chemo to reduce it before surgery and then he's not sure can get it all. I asked if this was going to kill me and he said it could.…
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My surgery is over, I am almost home
Hi everyone. I cannot believe my surgery is over. I am still in the hospital (surgery was Friday.) I found this computer in the ICU waiting area and figured out how to get on. Last nite they stopped my IV fluid, took out the epidural, and the foley catheter. Everything is working well. The colostomy bag was changed…
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Special Day for me...
Today is a special day for me and one I felt was so far away 10 months ago. Today is my mom's last day of treatment. YIPPEE!!!! I'm planning to make dinner for my family and after dinner about 20 - 25 close family & friends will be joining us for cake and champagne. The cake says.... Congratulations on kicking BUTT! My…
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How to save some tax money, and other things
I read today that the VA did a study of 2,700 patients. First they did a digital/rectal exam, looking for occult/fecal blood. Then they did a colonoscopy a few days later after a prep. They concluded the digital exam alone was "worthless" since it missed the tumors in 95% of the patients who had them. So many latex gloves…
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Update
Start chemo today. 5 FU, leucovorin, and irinotecan (i think this is the folfiri regimen) and avastin. Also have an appt with a radiation oncologist today, to talk abotu possible radiation treatment. My medical oncologist doesn't think it's an option, but i want to hear what radiation specialist thinks. I also have a 2nd…
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sad day
Hi all.....today was a sad day for us. We were told this morning that Jen's sister passed away suddenly. She was 47. It was not cancer related. I know you will all have us in your thoughts and prayers. luv n huggs, kanga and Jen
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GALLERY IMAGES
Hey... I just posted some gallery images at my Pineapple House (homepage) here on CSN in case anyone is interested. Have a great day (happy MLK Day) - SpongeBob
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Polyps
My brother-in-law had a Colonoscopy last Monday. Polyps removed and results back with Cancer in one. Doctor said he is confident and that he removed polyp and stem, He suggests a Colonoscopy again in six months. We want him to go now for another opinion. What do some of you suggest?
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Hello Everyone!!! I'm trying!!
Hello Everyone!!!! I am sorry that I haven't been around lately!! I just haven't been to positive lately. I received an email from a special friend and he said to post. So it took a while but here I am. I have thought of all of you all the time and just think about everything you guys have done for us in the past and I owe…
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my surg is tomorrow
hey all. first off like to say to kanga and jen i am soooooo sorry for your loss. know that i will keep you in my prayers. i will having my first surg in the morning tomarrow. the second one will be probably monday but he said he will see how im doing. the reason it was put off cuz a few things showed up in my pet and they…
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questions -
It was mentioned to my mother once that the doctor thought her tumor was there from 6-9 months before diagnosis. A friend of the family was told his tumor was there for 10 years before diagnosis but they are both in the same stage! My questions are... Were anyone of you told how long the tumor was there for? Can doctors…
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How long has anyone had diarrhea?
Hi All, I don't post frequently, but my mom was diagnosed with stage 4 colon cancer with mets to the liver in August. She just completed her 8th round of chemo - (Folfox + Avastin) and it seems that after every 4th treatment she gets a severe case of diarrhea. Her last treatmet was Jan 30 and she's had diarrhea and…
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Thank you for the out pouring response!
Howdy, Man I wasn't on line for a few days and Wow, thanks for the replys and announcements of your concern & overwhelming response to me joining "The Group"! Ha. Yes I have been reading & have answered a few of your posts kinda on the sidelines so to speak but I do understand each of our own problems & medical B.S.…
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Test results are in
Hi to my friends!!!!! As some of you know, I am stage IV colorectal cancer (mets to liver and lung) dx in March or 2004. I began chemo immediately (folfox 6 with avastin) and had good tumor shrinkage the first 3-6 months. After that, everything plateaued and I kept getting chemo. It got very hard and after lots of reading…
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Panic Attacks
Hi all, hope everyone is doing well. I'm starting to freak out a bit. I think I'm experiencing panic attacks. I've had two episodes, the first one happened while I was lying in bed reading..felt like a couldn't swallow. Only lasted a couple of seconds, but it freaked me out. The 2nd one happened the other night...was…
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I am confused, please help!
My dad met with the oncologist this a.m. and my mom said the doctor told him that it's not that there is cancer anywhere that we are continuing the chemo it is that there may still be cell alive really to multiply. My das is colom cancer stage 3, 11 out of 19 lymph nodes involded (permanent colostomy, March 2004) What does…
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Will get the results the 19th
Hi all, I had my CT Scans done today and didn't get sick on the barium, Thank God. They gave me ativan and phenergan and that seemed to do the trick. Will see my surgeon on the 19th and he'll give me the results of biopsy and CT then and then he said we'd work out a new plan of treatment. Waiting is going to be very hard.…
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maybe I need a name change?
Hi again- oh my- one eagle swings??? actually kinda catchy though!! I think I should somehow find a way to put an apostrophe in my name..as in "on eagle's wings" from "And he will raise you up on eagle's wings, bear you on the breath of dawn, make you shine like the sun, and hold you in the palm of his hand" Thanks for the…
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ok, call me stupid but.....
what is NED? gina
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fear with loss of confidence
I will try to make this as brief as possible. Hubby was dx Sept 03 stage4 colon w/ met to 6 nodes, liver & lung. Dr has lied to us we have found out and i have lost confidence in him. Not his treatment because I have researched and know that his protocol is the same as all the large cancer centers. I hate it when he sugar…