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Some good news
I had my first three month check up Monday (CT and PET scan) and am still all clear (CEA less than 0.5). Little history, Stage 4 last February with 2 mets to the liver, 7 months of chemo, RFA to ablate the final met in October, no chemo since October. I feel bad posting when others aren't doing as well, but I thought maybe…
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Reminder..."Angels"
As you all know, kanga gets a bit sensitive sometimes. So I want to get that way now. Some of us are fortunate enough to have carers...like my "angel", Jen The following is for all those "angels" that look after us.--two statements. 1/ While I was doing chemo the nurses admitted a young lad(17 years old) who was…
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To Kanga and Jen
Hi, I probably said this in a previous post to you, but I wanted to especially say "Thank You" for all you've done for me. You have encouraged me so many times. And..your message about "angels" really inspired me. I have always appreciated all my husband does for me, but I probably don't tell him enough. He is my "angel"…
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new to group
Hi...was diagnosed with stage IV colon cancer last April...on the 15th. Thought I had an umbilical hernia. Had been on chemo till Nov, when a change in insurance had me hunting for all new dr's. Have many questions...scared about some new treatments..ports, surgery and new drugs. At least new dr's are giving me some…
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still in hospital
Hi everyone, I am still in the hospital. I am doing better though and had real food starting last night. I have lost 25 pounds already. Things are moving again and hopefully I will be home again soon. This time for good. Maureen PS on friday it will be 3 weeks since my surgery, I guess I am a slow healer.
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This chemo is tough!!
Hi all, Started the new chemo last week. Did pretty good the days I took it because they gave me anti nausea meds with it. Then Sunday night I got terribly sick. Nausea, vomitting and diarehea, all at once. I went to the hospital as my chemo doctor ordered and had IV fluids and IV anti nausea meds. I feel much better. They…
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Changed Username
Hi, it's me Lorraine Sugg........I became a member of the semi-colon family last week.....but didn't like my username........so I changed it to SweetLo57. All the good ones were taken....like SpongeBob! I have thorougly enjoyed reading all the messages, and will soon add my 'two cents' worth when I become better…
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Thank you...
Hi everyone. Thank you for the kind welcome comments and answers to my question. I've already discovered the "bathroom diet". I was hoping to regain the weight lost from purges for the colonoscopy and surgery, and not eating after the surgery. But haven't seemed to be able to add more than a pound or two of the 10 I lost…
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to Steved
Hey Steve..sorry I missed yah mate..I still get to post last and occassionally they get read before dissapearing off tha board!!!! Congats on the "off the chemo trip" mate. Now you can pull up a chair in the waiting room with some of us. There is a nice recliner 3rd seat from the left all ready for you. I believe that they…
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back to mayo again
hello all. i am still recovering from my right thoracotomy which there was four suspicious spots and 3 were cancerous but that was all in that lung. on feb 25th i will back in surg again(that is if nothing shows in scan on 24th) for the left side which presents with 7 suspicous spots. my surgeon has made it clear that we…
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Finshed bloody chemo!
Well, haven't posted for a while so thought it was a good chance for an update. finished my six months of chemo on friday gone and am starting to be able to see the other side of all this. still need my op to reverse my ileostomy and have some mixed feelings that others have described well about now not doing any hting…
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Hello Everyone!!!
Hello!! I am hanging in there. I have been reading some of the post sorry that I haven't been able to reply to everyone. I feel like I am still going through the motions. I have been having some rough days and didn't have anyone to talk to so I thought that I would post to try and help me deal with things. My house is…
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What I learned at Colon Palooza I
Hi to you all. I am back home now after a wonderful heartfelt weekend in Biloxi. As a fairly new person on this board (March of 2004)and the only one there that has active cancer, I wanted to share what it meant to me. I am stage IV with mets to liver and lungs. I stopped chemo after 8 months and am now doing the…
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Home From The Palooza ......
Hello All My Semi- Colon Friends, Well Andy & I made it home safe and sound from the Palooza. We had a wonderful time that I cannot put into words. Already I'm looking forward to Vegas this fall. Bob a great Big Thank You, from Andy and I we truly had a great time... Lisa P it was great hanging out with you, I now know the…
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help for mother in law
My name is Danny and I'm a testicular cancer survivior (5 years and counting). I'm hoping to get some help for my mother in law. She was diagnosed with colon cancer about a year ago, underwent surgery followed up with chemo (not sure which drug). She then went four months without proper follow up (her new oncologist seems…
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What does non-red blood look like?
Okay, I understand from the replies to Gabor that no matter what, when we see blood in our stools we should get it checked out, but that if the blood is bright red there are some probable benign causes. My question is, what does blood in the stools look like if it's not red? My doc says it's black and tarry, but I'm on…
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Hi, I'm new too...
Hello everyone. I'm new and want to introduce myself to you. The third week of December I had a colonsocopy (my first) and they found a lesion. I met that same day with the surgeon and he was able to schedule surgery for the following week. So...the last week of 2004 I had a right hemicolectomy. They staged the cancer as…
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Fairytales!!!
HELLO EVERYONE!!! Well, I am so very excited I'm about to just burst! It's been a couple of so-so days. I had chemo yesterday and was so tired I came home and slept. Today I thought I'd be raring to go because Gemcitabine is supposed to be an "easy" drug but I was nauseous and vomiting. Took some Zofran and started to feel…
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Funny, Funny Stuff...
I had the honor of getting a couple of interesting phone messages yesterday. Turns out Arnold Schwarenegger AND Forest Gump BOTH showed up for the 1st Semi-Annual Semi-Colon-Palooza festivities! I was jealous as I laughed HYSTERICALLY at the message I got. Due to my son's basketball game, I wasn't able to attend the bash.…
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Hello, I am new ...........
I just wanted to introduce myself. My name is Lorraine, and I was diagnosed with T4b Stage IIB colon cancer in September 2003.........had a colon resection and hysterectomy (tumor adhered to my uterus) in October 2003.........started ajuvent chemotherapy in November 2003........6 months FOLFOX regimen w/ fanny pack. Chemo…
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SpongeBob!!!!
Look for a mail from me on your start page and in your email. Ring us in your daylight hours or asap---if you wake us---tough----just love to hear from you guys!!!!!! Luv , Ross n Jen
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lung mets symptoms
Hi everyone- my "best half" recently had a miserable cold and stil has a lingering cough- of course I am scared the beast has migrated to his lungs...for any of you that has mets to the lungs- did you have symptoms of a cough?? Thanks everone for your response. Bev
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Erbitux and CPT-11
Hi, I often read the posts but don't post too often myself. I will start a new treatment of erbitux and CPT-11 next monday and would like anyone who has taken this combination to give me any info about side effects that you can. I have been on Folfox-6 and most recently Avastin and Folfiri (CPT-11, Leuco., and the 5-FU…
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Results of CT / PET Scan
Well, yesterday morning I get the call from my doctor, hoping to hear it was gone, I was told there is still activity and the remaining lesions on your liver have grown slightly...the largest was 1.7cm, now its 1.9cm...Boy, not what I wanted to hear and yesterday was really really tough...8 rounds of FOLFOX, 95% gone....5…
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Calling all Stage IV Suvivors
My dad was diagnosed with stage IV colon cancer in May 2002. Still going strong. It came back to his liver last year (2 small spots). Since being on Oxiplatin, one has disappeared and the other will be zapped in two weaks with radiofrequency ablation. Oncologist who told us on our first visit that there is a 25% chance for…
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chemo today
I did really well. Was there 7 hrs though. They had trouble with my infusaport first. It had clotted. They used medicine and I had to wait a half hour and they flushed it, still clotted so they did it again and it worked. Then nausea medicine and sugar water injected. Then oxaliplatin and leucovorin IV into my port for 2…
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Back to work after treatment
Hi there, For those of you who took time off work - My mom wanted me to ask how long after treatment did you go back to work? My mom has been off work since April 2004 and is going to go back part time. I'm convincing her to go back VERY part time. Did you find getting back to the 'routine' difficult? Any thoughts will…
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hi guys need advice on...
hi guys, i need some insite on hernia repair. i have finished chemo 26 weeks, i have had a colonscope(neg), i had ct scan(neg). but know i need to get a hernia where stoma site was repaired. dr says not to wait so maybe next week he said will have to patch it. any advise is appreciated. also everyone going to semi 1…
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PALOOZA PICS POSTED
Try to say that three times when you've had a couple of chocolate martinis! Chek out the latest pics from Colon-Palooza on my personal page (the tame ones that is... Don't want Jose to shut us down!) For the more wild shots from Colon-Palooza, go to: Http://www.ColonGirlsGoneWild.com You can download pictures or order the…
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CT-Pet Scan Number 2
After going through 8 rounds of Oxaliplatin & 5FU, I had a CT-PET Scan that showed the cancer that spread to my liver and lymph nodes was 95% gone...I tthen just finished 5 treatments of Irnotecan and Erbitux and get my 2nd scan tomorrow....I'm freaking out...nervous, anxious...Before the 1st scan my doctor said he didnt…