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Fairytales!!!
HELLO EVERYONE!!! Well, I am so very excited I'm about to just burst! It's been a couple of so-so days. I had chemo yesterday and was so tired I came home and slept. Today I thought I'd be raring to go because Gemcitabine is supposed to be an "easy" drug but I was nauseous and vomiting. Took some Zofran and started to feel…
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Funny, Funny Stuff...
I had the honor of getting a couple of interesting phone messages yesterday. Turns out Arnold Schwarenegger AND Forest Gump BOTH showed up for the 1st Semi-Annual Semi-Colon-Palooza festivities! I was jealous as I laughed HYSTERICALLY at the message I got. Due to my son's basketball game, I wasn't able to attend the bash.…
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Hello, I am new ...........
I just wanted to introduce myself. My name is Lorraine, and I was diagnosed with T4b Stage IIB colon cancer in September 2003.........had a colon resection and hysterectomy (tumor adhered to my uterus) in October 2003.........started ajuvent chemotherapy in November 2003........6 months FOLFOX regimen w/ fanny pack. Chemo…
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SpongeBob!!!!
Look for a mail from me on your start page and in your email. Ring us in your daylight hours or asap---if you wake us---tough----just love to hear from you guys!!!!!! Luv , Ross n Jen
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lung mets symptoms
Hi everyone- my "best half" recently had a miserable cold and stil has a lingering cough- of course I am scared the beast has migrated to his lungs...for any of you that has mets to the lungs- did you have symptoms of a cough?? Thanks everone for your response. Bev
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Erbitux and CPT-11
Hi, I often read the posts but don't post too often myself. I will start a new treatment of erbitux and CPT-11 next monday and would like anyone who has taken this combination to give me any info about side effects that you can. I have been on Folfox-6 and most recently Avastin and Folfiri (CPT-11, Leuco., and the 5-FU…
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Results of CT / PET Scan
Well, yesterday morning I get the call from my doctor, hoping to hear it was gone, I was told there is still activity and the remaining lesions on your liver have grown slightly...the largest was 1.7cm, now its 1.9cm...Boy, not what I wanted to hear and yesterday was really really tough...8 rounds of FOLFOX, 95% gone....5…
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Calling all Stage IV Suvivors
My dad was diagnosed with stage IV colon cancer in May 2002. Still going strong. It came back to his liver last year (2 small spots). Since being on Oxiplatin, one has disappeared and the other will be zapped in two weaks with radiofrequency ablation. Oncologist who told us on our first visit that there is a 25% chance for…
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chemo today
I did really well. Was there 7 hrs though. They had trouble with my infusaport first. It had clotted. They used medicine and I had to wait a half hour and they flushed it, still clotted so they did it again and it worked. Then nausea medicine and sugar water injected. Then oxaliplatin and leucovorin IV into my port for 2…
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Back to work after treatment
Hi there, For those of you who took time off work - My mom wanted me to ask how long after treatment did you go back to work? My mom has been off work since April 2004 and is going to go back part time. I'm convincing her to go back VERY part time. Did you find getting back to the 'routine' difficult? Any thoughts will…
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hi guys need advice on...
hi guys, i need some insite on hernia repair. i have finished chemo 26 weeks, i have had a colonscope(neg), i had ct scan(neg). but know i need to get a hernia where stoma site was repaired. dr says not to wait so maybe next week he said will have to patch it. any advise is appreciated. also everyone going to semi 1…
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PALOOZA PICS POSTED
Try to say that three times when you've had a couple of chocolate martinis! Chek out the latest pics from Colon-Palooza on my personal page (the tame ones that is... Don't want Jose to shut us down!) For the more wild shots from Colon-Palooza, go to: Http://www.ColonGirlsGoneWild.com You can download pictures or order the…
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CT-Pet Scan Number 2
After going through 8 rounds of Oxaliplatin & 5FU, I had a CT-PET Scan that showed the cancer that spread to my liver and lymph nodes was 95% gone...I tthen just finished 5 treatments of Irnotecan and Erbitux and get my 2nd scan tomorrow....I'm freaking out...nervous, anxious...Before the 1st scan my doctor said he didnt…
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SANDWICH UPDATE FROM COLON-PALOOZA I
The Lisas have taken over SB's pad and computer!!! The Hooter girls just got mad and left. Lisa Rose and I were out on the balcony waving goodbye and that really made them mad. The laid some nasty rubber as they sped off. Lisa Rose and I had to eat their dust. S*&%* happens. As you can tell we got her just fine. Sorry to…
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Semi-Colon Reunion and fitlisa?
All you semi-colons heading to the beaches of Mississippi for a weekend of fun, laughter, etc., etc., have a GREAT and SAFE trip. Hopefully, I will talk to you all sometime this weekend. I'm so envious - wish I could be there. I'll definitely be at the 2nd annual Colon-Palooza! Have fun! By the way, a side note: has anyone…
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Update......
I saw the oncologist yesterday and the xray show that the tiny spots I had on my lungs are now dime size. In just 45 days time. How scary is that? Anyway we meet again tomorrow for a definite plan of action. I see the surgeon this afternoon to get another port installed. YEEHAW!!! You guys all be well and have a great…
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hey guys let's all cheer stacy for...
hey guys on sat 1/22 stacy will be celebrating her 3 year ned. here's to you stacy and for many,many more to follow. cheers all the best bruce
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Cancer of the Appendix
I am being treated for this cancer, first with intraperitoneal heated chemo and now being given iv chemo. Anyone else have this or know of anyone that has? Having chronic diaherra, can't stop it losing weight, nothing stops it. Any suggestions? Have tried everything over the counter. I heard there was an injectable.
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Worried about my Mom.
Hi, Some of you may remember me, I am a CC survivor myself. I recently had a thoracotomy done (in October) for mets to the right lung. I am happy to report that at this time I am NED. My mother, however, just had a colonoscopy done (finally). I was diagnosed in 2002 and it had taken her this long to get around to being…
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Happy Happy Joy Joy
Funny how life is like a rollercoaster. Three weeks ago I was laying in my recliner in agony and feeling like total doo-doo. Today I am planning an impromptu trip with friends to Cancun leaving in 2 weeks. Leaving behind grey, cold, muck, slush, and the sadness of the Steelers losing the AFC Championship game. Going to a…
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Gemcitabine anyone???
Hello all, So, I met with the oncologist today and he is raring to go. Apparently the surgeon thinks I should start treatment instead of waiting so here we go! I'm starting tomorrow on Gemcitabine. I'll be doing DAY 1-Gemcitabine DAY 8-Gemcitabine and Xeloda from DAY 1 through 14. Break for a week, and then we go again. My…
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A QUICK THOUGHT
>In the beginning, God created the Heavens and the Earth and populated the >Earth with broccoli, cauliflower and spinach, green and yellow and red >vegetables of all kinds, so Man and Woman would live long and healthy >lives. > >Then using God's great gifts, Satan created Ben and Jerry's Ice Cream and >Krispy Creme Donuts.…
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itchy bumps
hi- has anyone experienced tiny bumps on skin (particularily arms and legs) that are very itchy? My "best half" is on 5FU/leucovorin and these appeared at the end of round 2-they are not as big as mosquito bites- more like what you would imagine flea bites to look like (nope- he doesn't have fleas!!) Any suggestions as to…
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Starting chemo again
Hi all, Well, will start the FOLFOX4 on Thursday morning, so say a prayer for me. I've not started it yet, but I've had so much pain recently that I'mtaking pain meds, which I'm afraid will stop my colon up, so I've been sleeping alot. Miss you guys. Remember me and my family in your prayers. I hope I don't get sick. Love…
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Small Intestinal Cancer
My friend Angie is 28 years old and recently diagnosed with this cancer. I am looking for anyone she may could chat with about this. Please let me know of anyone. Thank you! Amanda
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off to the hosp. I go again
Hi, I am off to the hospital. things are not moving again. Maureen
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trials
I would like to hear from any stage 4 semi-colons involved in involved in trials..esp stem cell w/sibling-relative donor. Bud
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Re; Ron50
Hey--did you guys all catch Ron's post? 8 year anniversary on the 22nd!!!!!!!!!!! CONGRATULATIONS RON!!!!!!!!!!!!! Knowing that in itself has got to put some sparkle in our lives Ron---thanks mate---- luv and a big hugg from Jen! And a hearty ozzie handshake from tha kanga-thong!!!
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Foolish Optimism?
I have been offline for a couple of weeks. The cat killed my mouse. Long story short: we have a bunch of spoiled pets that chew on woodwork, wires and one another. They eviscerate their toys and knock the stuffing of our sofa cushions. They eat so much food we are constantly running to the store hauling 20-pound bags of…
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where o where is sponger????????
hey sponger where are you. we miss your posts. hope everything is okay. all the best bruce