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My oncologist jump started my morning
I didn't sleep well so I was still snoozing when he called promptly at 8am. He never calls in the morning, let alone first thing. I've been seeing him for almost nine years and he still doesn't know my voice, so he asks "is David there, I need to discuss his test results with him?" This is my first CT scan at a one year…
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9 Years Ago
9 years ago today my colonoscopy revealed there was a mass in my rectum. They wouldn't tell me it looked bad, they just said there was a biopsy and that further testing was needed. The next day (Thanksgiving) was the worst day of my life. We had all 8 kids and all our grandchildren over for dinner and no one knew of my…
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Finally surgery after 2 years on chemo
My mom has Stage 4 colon cancer mets liver. She had a colon bypass done and was on chemo for 2 years with different chemo combinations. She has been off chemo for 2 months because we switched oncologist and also getting consult from Memorial Sloan Kettering Cancer Center to ask about clinical trials. 2 weeks ago she had…
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Scared but not hopeless (introduction)
Hello all, first of all sorry for my bad english, its not my native language. I found this beautiful forum today. I read a lot of threads and there is a lot of positive people. I am a 28yo male from Europe. Dont know where to start. I dont have confirmed that I have cancer but I am very scared because I have a few signs.…
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Husband lost it for the first time...wife with cancer
I was just diagnosed with T2N1M0 colorectal cancer. I turned 40 a month ago, and have two young children and a few older step children. This topic isn't focused on me - I think I'm an emotional step or two past my husband. He lost it for the first time the other day, and I don't know how to deal with that. We are each…
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The fun never ends...
Just got out of the hospital the other day after being in for two weeks. I had septic shock. They figure it was from my colon being so irritated from not being used since the illeosomy that it turned mocroscopcally porous and allowed bacteria into my bloodstream. I had four different bacterias that are all related to the…
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SIRT Y90 for Liver Tumors - Any opinions/experience?
Hi, Came back from the hospital with a 2nd opinion from another oncologist. Mom has stage 4 colon cancer met liver. Been on a few chemo combinations for 2 years. Now this new oncologist says that mom is a good candidate for SIRT Y90 for her liver tumors. Anyone got experience with SIRT Y90? Any bad side effects? I did some…
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Joan M had Gallbladder surgery today
Would just like to wish Joan all the best, and hopefully the CT scan came out good on Monday showed good progress. Take good care and heal up so they can get you back on the juice (chemo). Tru
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Port Removal
Had port removed finally this Wednesday Nov. 22/17 @ 3:30pm. Thank God it's over for now. Well, it should only takes 20-30 minutes for removal but it took him (surgeon) almost 45minutes, and gave me more injection for numbness because I could still feel the pain while he was working on it. Now I am sore. My chest, right…
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Who's on Deck?
Tomorrow is DARCHER's surgery date. Let's all remain mindful of and prayerful for him. Jim
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Nausea getting worse with chemo....
My husband's nausea is getting worse with chemo. He takes Ondansetron 8mg 3 x a day. It starts the day of treatment and gets worse disconnect day and continues at least 2 days later. He has this aluminum taste. I am concerned because he has been loosing weight for months now. Does anyone know if there is another medication…
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Having anxiety about.... everything
so I made my first trip to MD Anderson this past Monday and I’m going this Monday for blood a ct and mri cuz they wanna make Sure my doctors here didn’t miss anything. I know I’ll be having surgery to remove the mass from my coLon. But I’m having tons of anxiety that they will find more stuff than they did at home. And…
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Vectibix rash
Hello my husband started Vectibix this week. His oncologist started him on antibiotics 1 week before. He will be on them the whole time while on Vectibix. So far i just see so dry skin. Just wondering when might the rash start or would it have already. He has so many other side effects and is so weak I'm hoping this will…
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Stage 3c in Jan. now mets to peritoneum - much discomfort
I am a 49 year old female diagnosed with stage 3c colon cancer in January of this year. Emergency surgery for colon resection and removal of tumor. 6 months Folfox. MRI in October and subsequent laparoscopy show mets to peritoneum. Scheduled to start new chemo (Folfiri and maybe others) this coming Monday. Here is my…
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Happy Thanksgiving All
Wishing a very Happy Thanksgiving to all of the members on this board. Some might not be of this country, but we can all be thankful that we are still posting and helping others with our experiences and encouragement. This board has a way of bringing people together to share a story, give a kind word or calm the fears of a…
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Adjuvant Chemo Therapy
Everyone: I decided to extract this topic from another large thread (118+ comments) to make it easier to access. There is nothing special about my adjuvant chemo therapy. The main reason I am semi documenting it is because there are a few others on the list who will begin theirs in the near future and my comments may help…
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Perhaps a quicker method to determine if chemo is actually working:
www.pharmabiz.com/NewsDetails.aspx?aid=77553&sid=2
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Observation
I have been on this forum for a short time (6 months), but I have been on another, similar forum (chronic, spinal pain) for several years. My time on such forums has been absolutely beneficial and I thank those who make this possible. But what I really want to do is share an observation I have experienced on this forum.…
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metastatic rectal cancer to sacro
Hi. I'm new here and looking from people who underwent or undergo with metastatic rectal cancer to sacro. Mine has 8cm of size. My dr said I shoud start witho chemo. My cea is 295ng. Do you think it's gonna work? Ill start folfox soon. God bless you.
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Reaction to capecitabine
Hi all, Firstly, i wish you all the very best with yr journey. I was diagnosed with stage 3 sigmoid cancer a few months ago. Surgery-the Dr's say, they are sure they got it all. Had 11 lymph nodes removed-1 showed positive for cancer. Have been on oxaliplatin & capecitabine, but didnt even make it through the 1st cycle.…
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just spent $4350 on ctc test, anyone else done this
if they don't find any ctc's its only $1200 and my odds of survival go through the roof. google genotics and ctc and cancer if your interested in these tests. if they find and culture ctc's they will test against all chemos and biologicals. i get the results just before christmas. here is hoping!!!!!!!!!! anyone else do…
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I'm back everyone
I'm still alive! Since my last visit here back in July, I had my partial colectomy surgery in August. Staged at 3b. Syncopsis: A tumor was found in my sigmoid colon during colonoscopy in July. Currently I'm half way into my adjuvant chemo. Just had my 4th treatment on this past Friday out of 8 that my oncologist…
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My high CEA journey.
Here's a post I made earlier in the year summarizing events I've gone through up till that point: CEA has been a constant bane to me since my initial diagnosis in 2012. Preoperative CEA was 13.9. The lowest it dropped to was 3.11 when the clinic I went to used a lab that did the Siemans/Bayer assay test that had 0-3 as…
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Is it normal for the oxaliplatin to be an issue so soon?
my husband has had only had 3 treatments with it and he is on day 11 from disconnect and still having numbness and tingling in his hands and problems with cold. He keeps saying he isn't going to tell them because he thinks it's too soon to cut it down. It did seem most people get to at least treatment 8-10 before it stays…
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life expectancy?
What have others discussed with their doctor about life expectancy and colon cancer? Did your doctor share survival odds or stats? Would you like to know what the odds are but need some help?
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Opting for Cap/Ox/Avastin adjuvant chemo. Any experience?
Met with Oncologist today. Since I don't want a port, he said we can do Xeloda at a higher dose, along with Oxyplatin and Avastin. Has anyone else chosen this route? I would be interested in your experience. I would be 7 days on, 7 days off with Xeloda. 4 pills am and4 pills pm. They would inject the Oxy and Avastin every…
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Waiting game can't eat
Good morning ....I am real new and will be getting my colonoscopy hopefully asap next week. Was in ER this weekend stomache bloating blood in stool and have a weired throbbing in or near rectum. I can't eat or drink due to the anxiety that what's ahead. Headaches and not wanting to get out of bed is over taking me . with…
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Ok this may be a weird question.
So this tumor that is almost a blockage is 20 cm up. I have been having burning to pee and they tested my urine and claim I don’t have a infection. But would the tumor affect that or do you think it is totally unrelated? I’m bout to start the monthly
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Five years today - 'You have Cancer'
Five years ago today, I heard those fateful words 'You have Cancer'. Five years ago today, my life changed for the better and for the worst. My trip started in the ER, with a jerk of a Doctor. It was my GP/PCP who started the ball rolling, and I ended up with a GI who did my very first colonoscopy, discovering the Cancer.…
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My Brother was just diagnosed with stage 4 colon cancer
Hi Everyone! My name is Jenn and I am here just to get some advice, input and encouragement. My "little" brother was just diagnosed with stage 4 colon cancer. He is 34 yrs old. On this upcoming Tues he will begin his chemotherapy. He was hoping to do a clinical trial of immunotherapy but his resulsts came back his tumor is…