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Wife sleeping a lot and not eating
Wife is stage 4 colon with Mets to liver, she just started her 4th chemo and last week or so she is slowly losing her appetite and sleeping a lot then before. Today she barely ate today, seems like her appetite is non existent and she wants to stay awake but can’t. I’m worried about her, is this normal to have a slip…
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Sleeping All day??? Is this normal?
Hi everybody ... my Dad was (officially) diagnosed a week ago wtih Stage 4 - mets to liver, he's been in pain for a month. We;re meeting with the oncologist tomorrow, and he's getting his chemo port put in Friday and supposed to start chemo next week. We are still worried about his liver. But he has started sleeping ALL…
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neuropathy getting worse
My husband finished his last oxaliplatin treatment in September. During treatment his neuropathy would almost be gone by the next treatment but now he feels his neuropathy is worse than even during treatment. I know oxaliplatin has lingering effects but curious if it got worse for others too. Also wondering if it is due to…
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Adoptive Cell Therapy at NCI
This is a variant of the Tumor Infiltrating Lymphocytes Clinical Trial at NCI that I've been talking about recently. The earlier trials are for those with KRAS G12D (with alleles HLA-A*1101 or HLA-C*0802) or G12V (with allele HLA-A*1101). The Adoptive Cell Trial is for more general mutations. I suspect that they are…
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Scan today
Good morning all, I hope everyone is doing well with this fight. I have my yearly scope this morning. My journey started on May 2004. I was diagnosed with stage ll. Had 6 months chemo. Had a reversal of my bag. Had a recurrance in Jan 2009, just need surgery. Thru the years I have faced many healh issues, but have always…
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Scan Results On It Is Back - Growing and Spreading
Lymph nodes increasing in size and starting to pop up in other places throughout the lung. Guessing no chemo yet (meet with Oncologist next week), thinking I go another scan or two before that happens. Yippee.
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Advice to self of yesteryears!
I was diagnosed with Stage IV colon cancer in April 2012. If the person I am now could speak to who I was then, what would I say? It is an interesting question to contemplate. What advice could I give to me, to help make coping easier? What wisdom could I share that would guide and comfort me through the tougher days? When…
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Cold Sensitivity
How do you know/test that the cold sensitivity has passed for the cycle?
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port issues
I was never a fan of getting a port and I have one. Lately when I go they have trouble getting to draw blood from it and I don't want chemo done in my viens by iv. Is this something that is common? I am told is does happen, but there really is nothing I can do to prevent it. I just like to know if others have it happen to…
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Restaged to stage 4
I posted several days ago asking about when a PET scan could be wrong. I guess I was hoping that it was and wasn't too excited about my husband having a liver biopsy. Well, we did do the biopsy and it was cancer. So the doctor restaged him to stage 4. He had CT scan and MRI at the end of Septmember before his colon…
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Good news--touching base
Hi friends: I have been off the board for a few months, but thought I would visit with some good news. For those of you who do not know me, I had a colectomy in March 2017, 3b, and tried chemo, rejected oxilaplatin after one treatment, but did capecitabine (Xeloda) until it caused heart-attack like symptoms. I had a CT…
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Good news - colonoscopy results
Yesterday I had my one-year post-op colonoscopy. (I had cancer of the rectum diagnosed Dec 2002. Chemoradiation followed by surgery in April 2003, then postsurgical radiation). I got the results immediately - ALL CLEAR!! Yeah! Hoorah! As some of you know, I believe in celebrating every bit of good news - hope you don't…
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Black Stool
I had a positive cologuard test almost 2 weeks ago. I'm still waiting for my colonoscopy. Here's my issue. Over the past 4 days my stool has gone from brown to solid black. I have looked everywhere for what that means and can't find anything except Black Tarry stool, like tar. I am not having that and cannot find any…
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Follow up appointment more confusing than anything
originally she told us 4 treatments, scan, surgery, the rest of treatments. Then it became 6 treatments, scan, surgery, the remaining 6. Now it's well it shrunk so much let's do 4 more treatments scan again, then consider surgery, but maybe finish all 12 treatments surgery,then done. Can I say how much not having an exact…
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Tastes Change
I was in the hospital for 19 days while they cleared my abscess, found the tumor, removed the tumor. Most of the time I was nothing by mouth, with a couple of clear liquids only days. I have not had the desire for sweets or been able to eat sweets since. I tried an oreo when I came out of sedation for my chemo port, and it…
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Results and a blood clot
i only have the results because they called about the blood clot. I guess he has a clot in the catheter? I am guessing port, since thats the only thing he has in his body? Has anyone ever had this? His tumor shrank from 3.8 to 2.5 cm so now we see if he can have surgery. I will know more in the morning, blood thinners…
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White blood count way down
I am ge my second round of chemo. My white blo count dropped again. Today it was at .660. They are going to see if insurance will approve Neulast. Anyone else have this happen. They said, if it goes to .5 or below I could win a hospital stay.
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Scan today results tomorrow
I was not overly worried until his latest CEA result came into his chart. He started chemo at 14.7, one month in was 8.2 and today one month later is 8.7. I know .5 is not horrible I know this in my rational thinking mind, but in my crazy go off the rails with worry wife mode I am certain the scan will show no change and…
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Another good report
Did a colonoscopy yesterday. First one where they used a drug where I remained awake. I was awear of what was being done but simply didn’t care. The sedation was interesting to note, but especially noteworthy is that the colonoscopy was all clear. And the surgeon said my next colonoscopy can be in five years. That would be…
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Not diagnosed but worried
I am new to this forum and have not been diagnosed with cancer, but am very concerned with my current symptoms: I have been having some pretty significant gastro problems for several months, and have also had a tubular adenoma removed from my colon two years ago. My GI refuses to do another colonoscopy stating "standards…
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Diet Coke
I noticed another person on this forum wondering if diet coke contributed to her husband's cancer. I am curious to see how many cancer patients on here drink diet coke or another drink with aspertame. When I was originally diagnosed in 2006 I was an avid diet coke drinker (many per day). Shortly after my original…
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Anyone that had Oxaliplatin that didn't have Neuropathy or had a mild case?
There's a thread with it being a problem and I was wondering if there are people that went through it that had no or minimal symptoms with neuropathy. Going to see the oncologist in about 30 minutes to get set up.
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positive Cologuard
68 y/o just received notice from my doctor i have a positive Cologuard result. Now scheduled for colonoscopy which I have never had....bad, I know. I have normal hemoglobin, no occult blood was noted when my ob gyn performed his in office fecal test recently. No symptoms. I am of course terrified and my doctor seems to be…
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Wife shockingly diagnosed with Stage 4
With a 12 week old at home my wife was fighting what we thought was post C section constipation. So after some back and forth we went to colonoscopy. We got the worst mews possible with in 24 hours stage 4etatsized to the liver and lungs. We've had C scan pet scan and now my wife has a colostomy to enable to her to eat.…
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1st FOLFOX treatment and found out KRAS positive
Well, my dh just got disconnected from the pump today and completed his first round of FOLFOX. Avastin will be added next time. His side effects have been cold issues with eating and drinking. He can't even handle room temp. He drank room temp water and his throat closed up and he couldn't speak! It scared me! He also has…
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Eyelids Twitching
After receiving my 5th IV drip treatment (Oxaliplatin) the day after Thanksgiving, I noticed neuropathy got to my eye lids. When I left the clinic and as soon as exposed to the cold air, my eyelids twitched and fluttered. My eyes started to close and I couldn't see. It lasted about few seconds then went away. It went on…
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My husband has a cold
he just had chemo Thursday- Saturday. His WBC count was good at about 7.2 his platelets were on the low end at 145 not sure if that matters. Is it dangerous for him to have this cold? other than he is being very dramatic and I could be what is dangerous for him. Honestly I am not sure what to do here, no fever, just a bad…
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Feel rough today
Today is the day I go back to get disconnected from the take home chemo. My doctor had said the couple of days after I weould feel tired and beat up. He was not wrong. I can't even describe how I feel bad, just that I do. It is only my second infusion. I hope this is really just a couple of days.
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First day Chemo Radiation - Could feel in treatment and now feel burn
I thought it was all in my head. I tried to think it was in my head, I really did. But it wasn't. I could feel the beam on my skin during treatment. When I walked to the changing room, I felt a sunburn. When I looked at my **** in the mirror it was terribly red and creased looking. The redness went away, but the burn is…
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Lymph Nodes Tested?
My Onc said they tested 4 lymph nodes on me when htey removed my colon- I've read that anyhtign less than 12 nodes tested puts a person into the higher risk category for recurrence because they can't be moe sure that lymph noces were invovled because too few were tested- Does onyone have any insight on this? I was told…